https://simplecast.com Wisdom Shared with Carole Blueweiss Meet the experts on the frontlines: individuals with first-hand experiences facing a range of challenges. Their personal stories not only provide unique insights but also open up new possibilities for how we navigate our own lives. 2020-2023 Wisdom Shared with Carole Blueweiss en Sun, 6 Jul 2025 04:00:00 +0000 Sun, 6 Jul 2025 04:00:12 +0000 https://wisdom-shared.simplecast.com Wisdom Shared with Carole Blueweiss https://image.simplecastcdn.com/images/1e05fd64-4a29-4f3e-8d9c-e031d899d15c/de726d35-4398-4840-bea3-353f628a04f4/3000x3000/wisdom-shared-with-ground-2-jpg-f.jpg?aid=rss_feed https://wisdom-shared.simplecast.com episodic Meet the experts on the frontlines: individuals with first-hand experiences facing a range of challenges. Their personal stories not only provide unique insights but also open up new possibilities for how we navigate our own lives. Dr. Carole Blueweiss false https://feeds.simplecast.com/z4dXZFXL connection, community, awareness, abelism, change, politicians, accessability, healthcare workers, advice, alternative, anat banial methood, children with special needs, disability, disabled, parents, suoport, traditional, support groups, nine essentials, feldenkrais, functional medicine, extraordinary, cerebral palsy, unique, non traditinal Carole Blueweiss clevpt@gmail.com 8f3cb967-a43a-46d0-aa3f-cd5c617e0032 A Sister Shines a Light on Special Needs Episode Summary

In this heartfelt episode, I’m joined by Kylainah Zacharcuk, author of You Can Find Me in Her Shadow: My Sister Has Special Needs and This is My Story. Kylainah opens up about the unique and often complex experience of growing up as the sibling of someone with special needs. We talk about her book, which gives voice to the often-overlooked sibling perspective, and explore the emotional layers that come with love, responsibility, and identity. Kylainah also shares candidly about her own mental health journey. We hear how treatment modalities like Anat Baniel Method NeuroMovement® helped both Kylainah and her sister. Passionate, authentic, and deeply thoughtful, Kylainah brings honesty and heart to this powerful conversation.

About Kylainah

Kylainah Zacharcuk currently lives in Southwestern Ontario with her Golden Doodle, Lenny. You Can Find Me in Her Shadow: My Sister Has Special Needs and This is My Story is Kylainah's first novel. In the first week of the book's release, it was on the number-one bestseller list in multiple categories on Amazon Canada. It currently holds five stars and is a recommended must-read.  My book has also been picked up by Barnes & Noble, BAM! Books-A-Million, and Bookshop.org.

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]]> Sun, 6 Jul 2025 04:00:00 +0000 clevpt@gmail.com (Kylainah Zacharcuk, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/sister-special-needs-92iuQ4YJ Episode Summary

In this heartfelt episode, I’m joined by Kylainah Zacharcuk, author of You Can Find Me in Her Shadow: My Sister Has Special Needs and This is My Story. Kylainah opens up about the unique and often complex experience of growing up as the sibling of someone with special needs. We talk about her book, which gives voice to the often-overlooked sibling perspective, and explore the emotional layers that come with love, responsibility, and identity. Kylainah also shares candidly about her own mental health journey. We hear how treatment modalities like Anat Baniel Method NeuroMovement® helped both Kylainah and her sister. Passionate, authentic, and deeply thoughtful, Kylainah brings honesty and heart to this powerful conversation.

About Kylainah

Kylainah Zacharcuk currently lives in Southwestern Ontario with her Golden Doodle, Lenny. You Can Find Me in Her Shadow: My Sister Has Special Needs and This is My Story is Kylainah's first novel. In the first week of the book's release, it was on the number-one bestseller list in multiple categories on Amazon Canada. It currently holds five stars and is a recommended must-read.  My book has also been picked up by Barnes & Noble, BAM! Books-A-Million, and Bookshop.org.

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]]> A Sister Shines a Light on Special Needs Kylainah Zacharcuk, Carole Blueweiss 00:42:45 genetic condition, abm, biofeedback, disability, mental illness, mental health, differently abled, disabled, neurofeedback, sibling with special needs, special needs sibling, neurodevelopmental disorder, grin2b, special needs, anat banial methood, ocd, special olympics, diverse needs, anxiety, obsessive compulsive disorder, neuromovement false full 4 4 a5915278-88d5-45de-95cc-c209ef546772 Kindness as Superpower: Miguel Gabriel's Journey From Speech Struggles to the Big Screen Episode Summary

In this episode, actor and voiceover artist Miguel Gabriel shares his journey from struggling with impaired speech to finding his voice, literally and creatively. Thoughtful and grounded beyond his years, Miguel opens up about overcoming bullying, staying true to himself, and how kindness—his self-described superpower—has shaped his path. His reflections on rejection, faith, and friendship offer wisdom that resonates at any age.

About Miguel

Miguel Gabriel, an American actor of Spanish-Filipino and Hungarian descent, has been captivating audiences since he began his career in theater at the tender age of five. After a series of successful appearances in popular shows like "How to Get Away with Murder" and lending his voice to animated films like "Puss in Boots: The Last Wish," Miguel has made an exciting leap into his first feature film, "Camera." In this pivotal role as Oscar, he stars alongside Hollywood royalty, Beau Bridges, marking a significant milestone in his acting journey.

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]]> Sun, 11 May 2025 04:05:00 +0000 clevpt@gmail.com (Carole Blueweiss, Miguel Gabriel) https://wisdom-shared.simplecast.com/episodes/miguel-gabriel-speech-struggles-acting-CbD7cOWX Episode Summary

In this episode, actor and voiceover artist Miguel Gabriel shares his journey from struggling with impaired speech to finding his voice, literally and creatively. Thoughtful and grounded beyond his years, Miguel opens up about overcoming bullying, staying true to himself, and how kindness—his self-described superpower—has shaped his path. His reflections on rejection, faith, and friendship offer wisdom that resonates at any age.

About Miguel

Miguel Gabriel, an American actor of Spanish-Filipino and Hungarian descent, has been captivating audiences since he began his career in theater at the tender age of five. After a series of successful appearances in popular shows like "How to Get Away with Murder" and lending his voice to animated films like "Puss in Boots: The Last Wish," Miguel has made an exciting leap into his first feature film, "Camera." In this pivotal role as Oscar, he stars alongside Hollywood royalty, Beau Bridges, marking a significant milestone in his acting journey.

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]]> Kindness as Superpower: Miguel Gabriel's Journey From Speech Struggles to the Big Screen Carole Blueweiss, Miguel Gabriel 00:33:58 movement challenges, stutter, disability, bone growth delay, actor, speech therapy, voiceover, speech challenges, bullying, camera, speech impairment, camera the movie, acting, communication, theater, beau bridges, speech impediment, theatre, teenager, jay silverman, physical therapy, bruce davison, impaired speech false full 3 4 e8505988-958c-459f-9cba-ec6fb6742bd5 Blessed With Support Episode Summary

In this episode, Michele Uriarte-Beards shares her journey as the mother of actor and voiceover artist Miguel Gabriel. When Miguel showed early signs of speech and movement challenges, Michele navigated the uncertainties of finding the right support. Facing resistance—even from within her own family—she remained determined to help her son thrive. In addition to exploring various therapies, she found unexpected help in the theatre community, which not only provided Miguel with a creative outlet but also set him on a path to a professional acting career. Michele also reflects on Miguel’s experience with bullying—how those who once bullied him ultimately became his bodyguards. It’s a powerful parallel to his journey from struggling with speech to becoming a successful voiceover actor. 

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]]> Sun, 30 Mar 2025 04:05:00 +0000 clevpt@gmail.com (Michele Uriarte-Beards, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/blessed-with-support-e24b51Mw Episode Summary

In this episode, Michele Uriarte-Beards shares her journey as the mother of actor and voiceover artist Miguel Gabriel. When Miguel showed early signs of speech and movement challenges, Michele navigated the uncertainties of finding the right support. Facing resistance—even from within her own family—she remained determined to help her son thrive. In addition to exploring various therapies, she found unexpected help in the theatre community, which not only provided Miguel with a creative outlet but also set him on a path to a professional acting career. Michele also reflects on Miguel’s experience with bullying—how those who once bullied him ultimately became his bodyguards. It’s a powerful parallel to his journey from struggling with speech to becoming a successful voiceover actor. 

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]]> Blessed With Support Michele Uriarte-Beards, Carole Blueweiss 00:54:23 movement challenges, stutter, disability, bone growth delay, actor, speech therapy, voiceover, speech challenges, bullying, speech impairment, acting, communication, voice over, parenting, beau bridges, speech delay, theatre, jay silverman, physical therapy, advocacy, impaired speech false full 2 4 8b49b049-16b6-4f3c-a761-ad229af3ee52 A Heart-Stopping Moment: Faith, CPR, and Miracles (Replay) Episode Summary

This is a replay of a recent episode because February is American Heart Month. Craig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. 

About Craig & Karey Packard

Craig and Karey Packard live in Londonderry, NH.  They have been married for 36 years and have 4 children and 2 grandchildren.  

Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine.

Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce.  Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade.

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]]> Sun, 16 Feb 2025 05:05:00 +0000 clevpt@gmail.com (Carole Blueweiss, Craig Packard, Karey Packard) https://wisdom-shared.simplecast.com/episodes/a-heart-stopping-moment-cpr-_9VqodQV Episode Summary

This is a replay of a recent episode because February is American Heart Month. Craig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. 

About Craig & Karey Packard

Craig and Karey Packard live in Londonderry, NH.  They have been married for 36 years and have 4 children and 2 grandchildren.  

Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine.

Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce.  Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade.

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]]> A Heart-Stopping Moment: Faith, CPR, and Miracles (Replay) Carole Blueweiss, Craig Packard, Karey Packard 00:34:54 cardiac event, faith, miracle, heart health, non-survivable event, cpr training, cpr, american heart association, cardiac arrest, hypertrophic cardiac myopathy, prayer false bonus 4 a7992ea1-a4a3-4433-96a9-b8b7508eeb83 The Dye-lemma: Autism, Behavior, and Food (Replay) In light of the news that the FDA is banning Red No. 3 due to health concerns, we're replaying this popular episode from last season that discusses the impact of food dyes on behavior.

Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vY

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]]> Mon, 27 Jan 2025 04:00:00 +0000 clevpt@gmail.com (Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/the-dye-lemma-autism-behavior-and-food-QB7haUzc In light of the news that the FDA is banning Red No. 3 due to health concerns, we're replaying this popular episode from last season that discusses the impact of food dyes on behavior.

Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vY

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]]> The Dye-lemma: Autism, Behavior, and Food (Replay) Carole Blueweiss 00:29:53 In light of the news that the FDA is banning Red No. 3 due to health concerns, we're replaying this popular episode from last season that discusses the impact of food dyes on behavior. In light of the news that the FDA is banning Red No. 3 due to health concerns, we're replaying this popular episode from last season that discusses the impact of food dyes on behavior. false bonus 4 049af6ab-baa4-491b-b21b-e0705fbe7c0d The Power of We: It Takes a Village Episode Summary

Days for Girls is an organization empowering communities worldwide through menstrual health education and resources. Today, I’m thrilled to welcome the founder of Days for Girls, Celeste Mergens, along with her husband, Don. This episode dives deeper than just menstrual equity and the work of DfG. We discuss Celeste’s memoir, The Power of Days, which chronicles her inspiring journey—from growing up in poverty and overcoming abuse to leading a global movement. They also open up about Celeste's rare hereditary movement disorder that affects her and four of her grandchildren.

About Celeste Mergens

Celeste Mergens is an author, thought leader, and changemaker and has been featured in Oprah’s O Magazine, Forbes, and Stanford Social Innovation Review. She is the Founder of Days for Girls, a global award-winning organization championing Women's Health and Menstrual Health Equity. Days for Girls was named by the Huffington Post as a ‘Next Ten’ Organization poised to change the world in the next decade and has reached more than 3 million women and girls in 145 countries.

Typically averaging dozens of speaking events a year, Celeste is a sought-after professional speaker and consultant. She was awarded the AARP Purpose Prize, Conscious Company Global Impact Entrepreneur Top Ten Women, 2019 Global Washington Global Hero, and Women's Economic Forum's Woman of the Decade.

CelesteMergens.com

Celeste's Book The Power of Days

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]]> Sun, 12 Jan 2025 05:05:00 +0000 clevpt@gmail.com (Celeste Mergens, Don Mergens, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/celeste-mergens-days-for-girls-rGPtRPCK Episode Summary

Days for Girls is an organization empowering communities worldwide through menstrual health education and resources. Today, I’m thrilled to welcome the founder of Days for Girls, Celeste Mergens, along with her husband, Don. This episode dives deeper than just menstrual equity and the work of DfG. We discuss Celeste’s memoir, The Power of Days, which chronicles her inspiring journey—from growing up in poverty and overcoming abuse to leading a global movement. They also open up about Celeste's rare hereditary movement disorder that affects her and four of her grandchildren.

About Celeste Mergens

Celeste Mergens is an author, thought leader, and changemaker and has been featured in Oprah’s O Magazine, Forbes, and Stanford Social Innovation Review. She is the Founder of Days for Girls, a global award-winning organization championing Women's Health and Menstrual Health Equity. Days for Girls was named by the Huffington Post as a ‘Next Ten’ Organization poised to change the world in the next decade and has reached more than 3 million women and girls in 145 countries.

Typically averaging dozens of speaking events a year, Celeste is a sought-after professional speaker and consultant. She was awarded the AARP Purpose Prize, Conscious Company Global Impact Entrepreneur Top Ten Women, 2019 Global Washington Global Hero, and Women's Economic Forum's Woman of the Decade.

CelesteMergens.com

Celeste's Book The Power of Days

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]]> The Power of We: It Takes a Village Celeste Mergens, Don Mergens, Carole Blueweiss 00:53:47 the power of days, nonprofit, seizures, menstrual supplies, period poverty, women's health, menstruation, menstrual equity, periods, familial paroxysmal nonkinesigenic dyskinesia, menstrual health awareness, genetic, days for girls, rise gatherings, pnkd, menstrual health, paroxysmal nonkinesigenic dyskinesia, menstrual hygeine, movement disorder, poverty, exploitation, celeste mergens, menstrual cup, luxury tax false full 1 4 356890bc-dc44-4d32-9f6c-ad78acf98d5b A Heart-Stopping Moment: Faith, CPR, and Miracles Episode Summary

Craig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. 

About Craig & Karey Packard

Craig and Karey Packard live in Londonderry, NH.  They have been married for 36 years and have 4 children and 2 grandchildren.  

Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine.

Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce.  Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade.

From This Episode

 

 

 

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]]> Sat, 21 Dec 2024 05:05:00 +0000 clevpt@gmail.com (Carole Blueweiss, Karey Packard, Craig Packard) https://wisdom-shared.simplecast.com/episodes/faith-cpr-miracles-6C8OwZs4 Episode Summary

Craig and Karey Packard share their inspiring story about facing an unexpected health crisis that forever changed their lives. They recount how the life-saving power of CPR played a critical role in a miraculous outcome. Their story is one of faith and resilience and a good reminder of the power of preparation in the event of the unexpected. 

About Craig & Karey Packard

Craig and Karey Packard live in Londonderry, NH.  They have been married for 36 years and have 4 children and 2 grandchildren.  

Craig did his undergraduate work at Tufts University, completed medical school at the Uniformed Services University of the Health Sciences, and later added a Masters in Public Health from Harvard. He served as a doctor in the US Air Force for 26 years before retiring from the military in 2011 after which he worked in the Occupational Medicine field for an additional 10 years before fully retiring. He was board-certified in Family Medicine, Aerospace Medicine, and Occupational Medicine.

Karey graduated from Clarion State College with a degree in accounting after which she received an Associates degree in paralegal studies at George Washington University. She had to leave the workforce when their oldest son was diagnosed with leukemia and with the frequent military moves, she never returned to the paid workforce.  Among her numerous volunteer roles, she has worked for the American Heart Association as an advocate for CPR training and heart health for the past decade.

From This Episode

 

 

 

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  • Audio Engineering by Steve Heatherington of Good Podcasting Works
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]]> A Heart-Stopping Moment: Faith, CPR, and Miracles Carole Blueweiss, Karey Packard, Craig Packard 00:34:54 cardiac event, faith, miracle, heart health, non-survivable event, cpr training, cpr, american heart association, cardiac arrest, hypertrophic cardiac myopathy, prayer false full 14 3 2443858e-6055-4b87-bb63-f6a5a198a3b0 Beyond the Socks: Understanding Balance, Fall Prevention and Aging with Awareness with Dr. Carole Blueweiss Episode Summary

In this bonus episode, you will hear Erica DeMarch interview me on her Balance Matters podcast. We not only discuss my TEDx talk Your Socks May Hold the Key to Aging Better.  We also dive deep into the themes of the talk—exploring what else I would have shared if given more than 10 minutes to speak. In addition, we discuss the importance of body awareness in balance training along with exploring methods that can help with awareness through movement, like the Feldenkrais Method and yoga - powerful tools for improving balance and preventing falls. 

About Erica and Balance Matters

Erica DeMarch, founder of Step and Connect and inventor of Balance Matters, interviews leaders in medicine, health, and wellness to give you up-to-date information re: balance tips, resources, and exercises to implement in your practice.

Erica's website: www.stepandconnect.com

The Balance Matters podcast: https://balancematters.buzzsprout.com/

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]]> Sun, 15 Dec 2024 05:05:00 +0000 clevpt@gmail.com (Carole Blueweiss, Erica DeMarch) https://wisdom-shared.simplecast.com/episodes/balance-matters-UerhK72t Episode Summary

In this bonus episode, you will hear Erica DeMarch interview me on her Balance Matters podcast. We not only discuss my TEDx talk Your Socks May Hold the Key to Aging Better.  We also dive deep into the themes of the talk—exploring what else I would have shared if given more than 10 minutes to speak. In addition, we discuss the importance of body awareness in balance training along with exploring methods that can help with awareness through movement, like the Feldenkrais Method and yoga - powerful tools for improving balance and preventing falls. 

About Erica and Balance Matters

Erica DeMarch, founder of Step and Connect and inventor of Balance Matters, interviews leaders in medicine, health, and wellness to give you up-to-date information re: balance tips, resources, and exercises to implement in your practice.

Erica's website: www.stepandconnect.com

The Balance Matters podcast: https://balancematters.buzzsprout.com/

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]]> Beyond the Socks: Understanding Balance, Fall Prevention and Aging with Awareness with Dr. Carole Blueweiss Carole Blueweiss, Erica DeMarch 00:53:55 falls, tedx talk, aging, falling, balance training, feldenkrais method, fall prevention, mobility, physical therapy, feldenkrais, balance false bonus 3 15712ba9-22bd-461e-a4b4-a97f46a7e1be Truth Teller: Sheila Nevins and Tourette Syndrome Episode Summary

Sheila Nevins, a prominent documentary filmmaker and best-selling author, discusses her experiences with her son's Tourette syndrome and speaks about the broader themes of aging, disability, and authenticity. Through personal stories and reflections, she sheds light on often misunderstood topics, emphasizing the importance of genuine representation over sensationalism. With humor and candor, Sheila shares her journey of seeking answers and navigating the complexities of life. Her commitment to storytelling is marked by a willingness to confront uncomfortable truths, making for a compelling and insightful conversation. Sheila shares a wealth of wisdom for us all.

About Sheila Nevins

Sheila Nevins is an American television producer and former head of MTV Documentary Films division of MTV Entertainment Studios. Previously, Nevins was the President of HBO Documentary Films. She has produced over 1,000 documentary films for HBO and is one of the most influential people in documentary filmmaking. She has worked on productions that have been recognized with 35 News and Documentary Emmy Awards, 42 Peabody Awards, and 26 Academy Awards. Nevins has won 31 individual Primetime Emmy Awards, more than any other person. The film, I Have Tourette's but Tourette's Doen't Have Me, won an Emmy.

Sheila's IMDB page

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]]> Mon, 7 Oct 2024 04:05:00 +0000 clevpt@gmail.com (Sheila Nevins, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/sheila-nevins-tourette-syndrome-AIEVeiq7 Episode Summary

Sheila Nevins, a prominent documentary filmmaker and best-selling author, discusses her experiences with her son's Tourette syndrome and speaks about the broader themes of aging, disability, and authenticity. Through personal stories and reflections, she sheds light on often misunderstood topics, emphasizing the importance of genuine representation over sensationalism. With humor and candor, Sheila shares her journey of seeking answers and navigating the complexities of life. Her commitment to storytelling is marked by a willingness to confront uncomfortable truths, making for a compelling and insightful conversation. Sheila shares a wealth of wisdom for us all.

About Sheila Nevins

Sheila Nevins is an American television producer and former head of MTV Documentary Films division of MTV Entertainment Studios. Previously, Nevins was the President of HBO Documentary Films. She has produced over 1,000 documentary films for HBO and is one of the most influential people in documentary filmmaking. She has worked on productions that have been recognized with 35 News and Documentary Emmy Awards, 42 Peabody Awards, and 26 Academy Awards. Nevins has won 31 individual Primetime Emmy Awards, more than any other person. The film, I Have Tourette's but Tourette's Doen't Have Me, won an Emmy.

Sheila's IMDB page

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]]> Truth Teller: Sheila Nevins and Tourette Syndrome Sheila Nevins, Carole Blueweiss 00:51:26 tic disorder, motor tics, disability, tourette's, coprolalia, vocal tics, documentary, aging, raynaud's, neurological disorder, tic, filmmaker, autoimmune disease, sheila nevins, scleroderma, raynaud, tourette syndrome true full 13 3 3ef0aea3-07b0-43fa-913e-fca1cb350132 Finding Voice Through a Camera Episode Summary

In this episode, I talk with Jay Silverman, an award-winning filmmaker known for his emotionally resonant work. Jay discusses his journey into feature filmmaking, which began with "Girl on the Edge," a deeply personal film inspired by his daughter's recovery through equine therapy. His latest film, "Camera," is another heartfelt project influenced by his experiences as a father of a daughter with impaired speech. Jay shares how his work has become a vehicle for expressing the lessons and wisdom he's gained from these personal experiences, driven by a passion to touch others through his storytelling.

About Jay Silverman

For over 40 years, Jay Silverman has excelled as a leading Director, Producer, and Photographer specializing in award-winning films, television, digital, and print campaigns.

Jay’s narrative films have been awarded numerous Best Feature and Audience Awards at festivals across the country.  His current dramatic feature "Camera", stars Golden Globe, Emmy, and Grammy Award Winner Beau Bridges, Jessica Parker Kennedy, Scotty Tovar, Bruce Davison, and Miguel Gabriel.  It will be released on Amazon and iTunes on July 23rd, 2024.  His first was the multi-award-winning dramatic feature “Girl on the Edge”, starring Peter Coyote, Taylor Spreitler, Mackenzie Phillips, Elizabeth Peňa, Gil Bellows, Rex Lee, Amy Davidson, and Amy Price Francis that premiered on Showtime. His second is the charming romantic comedy “Off the Menu” starring Dania Ramirez, Tony Award Winner Santino Fontana, Makenzie Moss, and Maria Conchita Alonso, which premiered on HBO & Amazon. His third is the true story drama “Saving Paradise” starring William Moseley, Johnna Braddy, Mary Pat Gleason, Bill Cobbs, Paul Dooley, and James Eckhouse currently on Tubi and Amazon.

Jay Silverman Productions: Jay Silverman Production’s mission is to use the power of storytelling to inspire and entertain with a message that is uplifting for society.  As an independently owned and operated entertainment production company that develops and produces independent films and television shows, we believe we have an important responsibility to use storytelling to make the world a better place.

Watch Camera: https://linktr.ee/camerathemovie

From This Episode

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 1 Sep 2024 04:05:00 +0000 clevpt@gmail.com (Jay Silverman, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/finding-voice-through-a-camera-2sfX8czj Episode Summary

In this episode, I talk with Jay Silverman, an award-winning filmmaker known for his emotionally resonant work. Jay discusses his journey into feature filmmaking, which began with "Girl on the Edge," a deeply personal film inspired by his daughter's recovery through equine therapy. His latest film, "Camera," is another heartfelt project influenced by his experiences as a father of a daughter with impaired speech. Jay shares how his work has become a vehicle for expressing the lessons and wisdom he's gained from these personal experiences, driven by a passion to touch others through his storytelling.

About Jay Silverman

For over 40 years, Jay Silverman has excelled as a leading Director, Producer, and Photographer specializing in award-winning films, television, digital, and print campaigns.

Jay’s narrative films have been awarded numerous Best Feature and Audience Awards at festivals across the country.  His current dramatic feature "Camera", stars Golden Globe, Emmy, and Grammy Award Winner Beau Bridges, Jessica Parker Kennedy, Scotty Tovar, Bruce Davison, and Miguel Gabriel.  It will be released on Amazon and iTunes on July 23rd, 2024.  His first was the multi-award-winning dramatic feature “Girl on the Edge”, starring Peter Coyote, Taylor Spreitler, Mackenzie Phillips, Elizabeth Peňa, Gil Bellows, Rex Lee, Amy Davidson, and Amy Price Francis that premiered on Showtime. His second is the charming romantic comedy “Off the Menu” starring Dania Ramirez, Tony Award Winner Santino Fontana, Makenzie Moss, and Maria Conchita Alonso, which premiered on HBO & Amazon. His third is the true story drama “Saving Paradise” starring William Moseley, Johnna Braddy, Mary Pat Gleason, Bill Cobbs, Paul Dooley, and James Eckhouse currently on Tubi and Amazon.

Jay Silverman Productions: Jay Silverman Production’s mission is to use the power of storytelling to inspire and entertain with a message that is uplifting for society.  As an independently owned and operated entertainment production company that develops and produces independent films and television shows, we believe we have an important responsibility to use storytelling to make the world a better place.

Watch Camera: https://linktr.ee/camerathemovie

From This Episode

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Finding Voice Through a Camera Jay Silverman, Carole Blueweiss 00:34:59 filmmaking, stutter, disability, mute, girl on the edge, camera, speech impairment, ray charles, photography, premature baby, inclusion, parenting, movie camera, storytelling, fatherhood, mentorship, impaired speech false full 12 3 d39b0ce2-7c84-4e8f-9ac8-d4c7435eecac Idle Hands Are the Devil's Playground: Drugs, Overdose, and Recovery Episode Summary

Noah, my ATV guide in Alaska, joins me on this episode of Wisdom Shared.  Last season, we heard from Noah's mom, Melissa, who talked about her sobriety journey.  In this discussion, Noah courageously shares his difficult journey with pills. He nearly died. He offers advice, hope, and solidarity to others facing similar struggles. His powerful narrative underscores the transformative power of sharing personal experiences in the hopes of helping others. 

Resources

National Harm Reduction Coalition

https://www.cdc.gov/opioids/basics/fentanyl.html: 

https://www.cdc.gov/drugoverdose/prevention/index.html

Fentanyl Test Strips

Find Narcan Near You

If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. 

Related Episodes of Wisdom Shared

Addiction to Sobriety: A Mother's Journey: Noah's mom shares her own addiction story

Anonymous Sister

Overdose Awareness: A Sister's Tribute

Retired FBI Agent Reflects On Opioid Crisis

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 11 Aug 2024 04:00:00 +0000 clevpt@gmail.com (Noah, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/drugs-overdose-recovery-siojwRpP Episode Summary

Noah, my ATV guide in Alaska, joins me on this episode of Wisdom Shared.  Last season, we heard from Noah's mom, Melissa, who talked about her sobriety journey.  In this discussion, Noah courageously shares his difficult journey with pills. He nearly died. He offers advice, hope, and solidarity to others facing similar struggles. His powerful narrative underscores the transformative power of sharing personal experiences in the hopes of helping others. 

Resources

National Harm Reduction Coalition

https://www.cdc.gov/opioids/basics/fentanyl.html: 

https://www.cdc.gov/drugoverdose/prevention/index.html

Fentanyl Test Strips

Find Narcan Near You

If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. 

Related Episodes of Wisdom Shared

Addiction to Sobriety: A Mother's Journey: Noah's mom shares her own addiction story

Anonymous Sister

Overdose Awareness: A Sister's Tribute

Retired FBI Agent Reflects On Opioid Crisis

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Idle Hands Are the Devil's Playground: Drugs, Overdose, and Recovery Noah, Carole Blueweiss 00:29:55 pain, substance use, percocet, drug withdrawal, fentanyl, withdrawal, opioid epidemic, substance use disorder, drug addictions, overdose, narcan, opioids, addiction, addictive personality, drugs false full 11 3 dd379997-6149-4653-b9d5-6091c67ad563 Bible Mistranslations and LGBTQ Marginalization: A Pastor's Daughter Speaks Out Episode Summary

 Sharon "Rocky" Roggio is my special guest - the producer and director of the award-winning documentary "1946: The Mistranslation that Shifted Culture." This film explores the profound impact of a mistaken biblical translation of the word "homosexual" and its consequences on culture, religion, and the LGBTQ community. Rocky shares her personal journey as a Christian lesbian, discussing her efforts to seek acceptance and understanding from her father, a church pastor. Through these conversations, listeners gain insight into Rocky's experiences and the broader implications of this pivotal mistranslation.

About Sharon "Rocky" Roggio

1946’s director, Sharon “Rocky” Roggio is no stranger to the implications of a life completely affected by the predominant modern interpretations of the Bible. Growing up lesbian in a Christian household, with a pastor for a father, has prepared her for this expansive undertaking. Rocky’s experience, of anti-gay biblical teachings, has been incredibly traumatic. She is a strong voice, among the growing chorus of LGBTQIA+ Christians who want to cure the world of this damaging narrative. Once Roggio learned of Kathy and Ed’s work, she was compelled to tell this story. This film is part of her attempts to reconcile a relationship with her family and begin to heal.

Sharon “Rocky” Roggio  is an multi award-winning film producer and director living in Los Angeles, CA. She has been a member of three IATSE unions nationwide and has a Bachelor’s degree in Communications with a focus in Radio, Television and Film Her background includes large budget physical production on award winning shows and films such as House of Cards, Parks and Recreation, With Bob and David, Whip It and Red Dawn.   In 2016, Roggio associate produced and production designed GOOK, a feature film that premiered at Sundance in 2017 and Won the Audience Award in the Next Category.   In 2018 when she heard about the 1946 mistranslation in the Bible, Roggio immediately quit all her other endeavors and has focused all her time, money, and resources on producing and creating this documentary. 1946 is Roggio’s directorial debut.

About 1946: The Mistranslation that Shifted Culture

1946: The Mistranslation That Shifted Culture is a feature documentary that follows the story of tireless researchers who trace the origins of the anti-gay movement among Christians to a grave mistranslation of the Bible in 1946. It chronicles the discovery of never-before-seen archives at Yale University which unveil astonishing new revelations, and casts significant doubt on any biblical basis for LGBTQIA+ prejudice. Featuring commentary from prominent scholars as well as opposing pastors, including the personal stories of the film’s creators, 1946 is at once challenging, enlightening, and inspiring.  

Watch the trailer.

Watch the full feature film today.

https://www.1946themovie.com/

1946 Roadtrip Across America - We are THRILLED to announce our plan to utilize the award-winning documentary, 1946: The Mistranslation That Shifted Culture, as a tool for civic engagement and to drive voter registration for the 2024 election. Our mission is to organize 14 free public conferences in US cities impacted by extremist ideologies. The primary objective of these assemblies is to activate the audience to vote as we advocate for the rights of the LGBTQIA+ community, standing up for democracy and promoting equality for everyone. We will discuss the power of civic engagement to stop evangelical and legislative domination and provide people with a sustainable narrative of compassion founded on research, history, and facts.  AND - We will SHOW THE FILM - followed by a Q&A with the filmmakers and director Sharon Roggio! 

From This Episode

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 16 Jun 2024 04:00:00 +0000 clevpt@gmail.com (Sharon Roggio, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/bible-lgbtq-mistranslation-YDB8IcEg Episode Summary

 Sharon "Rocky" Roggio is my special guest - the producer and director of the award-winning documentary "1946: The Mistranslation that Shifted Culture." This film explores the profound impact of a mistaken biblical translation of the word "homosexual" and its consequences on culture, religion, and the LGBTQ community. Rocky shares her personal journey as a Christian lesbian, discussing her efforts to seek acceptance and understanding from her father, a church pastor. Through these conversations, listeners gain insight into Rocky's experiences and the broader implications of this pivotal mistranslation.

About Sharon "Rocky" Roggio

1946’s director, Sharon “Rocky” Roggio is no stranger to the implications of a life completely affected by the predominant modern interpretations of the Bible. Growing up lesbian in a Christian household, with a pastor for a father, has prepared her for this expansive undertaking. Rocky’s experience, of anti-gay biblical teachings, has been incredibly traumatic. She is a strong voice, among the growing chorus of LGBTQIA+ Christians who want to cure the world of this damaging narrative. Once Roggio learned of Kathy and Ed’s work, she was compelled to tell this story. This film is part of her attempts to reconcile a relationship with her family and begin to heal.

Sharon “Rocky” Roggio  is an multi award-winning film producer and director living in Los Angeles, CA. She has been a member of three IATSE unions nationwide and has a Bachelor’s degree in Communications with a focus in Radio, Television and Film Her background includes large budget physical production on award winning shows and films such as House of Cards, Parks and Recreation, With Bob and David, Whip It and Red Dawn.   In 2016, Roggio associate produced and production designed GOOK, a feature film that premiered at Sundance in 2017 and Won the Audience Award in the Next Category.   In 2018 when she heard about the 1946 mistranslation in the Bible, Roggio immediately quit all her other endeavors and has focused all her time, money, and resources on producing and creating this documentary. 1946 is Roggio’s directorial debut.

About 1946: The Mistranslation that Shifted Culture

1946: The Mistranslation That Shifted Culture is a feature documentary that follows the story of tireless researchers who trace the origins of the anti-gay movement among Christians to a grave mistranslation of the Bible in 1946. It chronicles the discovery of never-before-seen archives at Yale University which unveil astonishing new revelations, and casts significant doubt on any biblical basis for LGBTQIA+ prejudice. Featuring commentary from prominent scholars as well as opposing pastors, including the personal stories of the film’s creators, 1946 is at once challenging, enlightening, and inspiring.  

Watch the trailer.

Watch the full feature film today.

https://www.1946themovie.com/

1946 Roadtrip Across America - We are THRILLED to announce our plan to utilize the award-winning documentary, 1946: The Mistranslation That Shifted Culture, as a tool for civic engagement and to drive voter registration for the 2024 election. Our mission is to organize 14 free public conferences in US cities impacted by extremist ideologies. The primary objective of these assemblies is to activate the audience to vote as we advocate for the rights of the LGBTQIA+ community, standing up for democracy and promoting equality for everyone. We will discuss the power of civic engagement to stop evangelical and legislative domination and provide people with a sustainable narrative of compassion founded on research, history, and facts.  AND - We will SHOW THE FILM - followed by a Q&A with the filmmakers and director Sharon Roggio! 

From This Episode

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Bible Mistranslations and LGBTQ Marginalization: A Pastor's Daughter Speaks Out Sharon Roggio, Carole Blueweiss 00:37:03 filmmaking, homosexual, kathy baldock, homosexuality, religion, documentary, lgbtq, lgbtqia, gay, 1946 film, judaism, politics, bible, father daughter, lgbt, sharon rocky roggio, sharon roggio, church, rocky roggio, gay rights, lesbian, queer false full 10 3 4cc63706-a3e4-4846-b6e5-8812524511f5 Left Alone Rhapsody: Behind the Lens With Filmmaker Stewart Schulman Episode Summary

In this conversation with filmmaker and self-described Renaissance Man Stewart Schulman, we discuss his multifaceted career and his collaborations with John Bayless, highlighting projects like One Hand One Heart and the award-winning feature documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. Schulman shares  Bayless' life from childhood illness and genius piano playing at age four to Julliard as Leonard Bernstein's protege; from his Baptist upbringing to conversion to Judaism; and from playing the piano around the world as a Steinway then Yamaha artist with two hands to his re-invented life post-stroke re-learning to play the piano with his non-dominant left hand.  Stewart's stories about his life and the filmmaking process are delightfully accented by John's music and one-man show, One Hand One Heart.  I hope this episode (and John Bayless episode!) inspires you to see the fabulous film, Left Alone Rhapsody.

About Stewart Schulman

I love stories. Watching them.  Telling them. They’re journeys that open our minds—our hearts—and show us new ways of thinking.  

I aim for my work to be entertaining and socially relevant—challenging perceptions and inspiring ‘change’.  It’s how we grow.  

People I work with have called me a “Renaissance Man”—because I’ve explored many different creative mediums to broaden my skills as a writer, director and producer. They also tell me I bring an even-keeled temperament to the table, keep my work environments professional and enjoyable, and get the job done right.    

Contact me with questions.  I look forward to working with you in the future.  

https://www.stewartschulman.com/

Act Two MediaWorks

From This Episode

Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless

  • Watch the trailer for Left Alone Rhapsody.
  • Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets Here
  • Watch at the Sarasota Film Festival on April 10th Tickets Here
  • Watch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets Here
  • Watch the Long Island Premiere on May 9th at the Jeanne Rimsky Theater , with a live performance by John Bayless

John Bayless – One Hand One Heart: My Life & My Music This new ‘one-man-one-hand only’ play—with music by Gershwin, Bernstein, Puccini, Mancini, Rachmaninoff, Rodgers, Legrand and the world-renowned concert pianist, John Bayless, himself—takes audiences on the journey of John’s remarkable life. John talks openly about his highs and lows, and his determination to create a second act for himself as an artist.

The play begins with a 4-year-old John becoming a musical prodigy in his hometown of Borger, Texas, which sets him on a life-long adventure and a 30-year career as a concert pianist, which is suddenly halted by a debilitating stroke. John shares the "hell" he faced, post-stroke, trying desperately to journey back to life  to be an artist in a new way. His spiritual awakening led him to his unbelievable comeback, concertizing with his left hand all alone!  This inspiring one-man show evokes laughter and tears, showcasing John’s astonishing musicianship, as he shares his amazing life-story.

Music featured in the episode:

  • That's It! composed by John Bayless  with Robert Freedman, featured in One Hand One Heart
  • Winter Tableau  composed by John Bayless, used in collaboration with choreographer Heidi Latsky
  • Rhapsody in Blue by George Gershwin, reimagined for one hand by John Bayless

Heidi Latsky Dance

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Wed, 3 Apr 2024 01:00:00 +0000 clevpt@gmail.com (Stewart Schulman, John Bayless, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/filmmaker-stewart-schulman-GrFmFTDW Episode Summary

In this conversation with filmmaker and self-described Renaissance Man Stewart Schulman, we discuss his multifaceted career and his collaborations with John Bayless, highlighting projects like One Hand One Heart and the award-winning feature documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. Schulman shares  Bayless' life from childhood illness and genius piano playing at age four to Julliard as Leonard Bernstein's protege; from his Baptist upbringing to conversion to Judaism; and from playing the piano around the world as a Steinway then Yamaha artist with two hands to his re-invented life post-stroke re-learning to play the piano with his non-dominant left hand.  Stewart's stories about his life and the filmmaking process are delightfully accented by John's music and one-man show, One Hand One Heart.  I hope this episode (and John Bayless episode!) inspires you to see the fabulous film, Left Alone Rhapsody.

About Stewart Schulman

I love stories. Watching them.  Telling them. They’re journeys that open our minds—our hearts—and show us new ways of thinking.  

I aim for my work to be entertaining and socially relevant—challenging perceptions and inspiring ‘change’.  It’s how we grow.  

People I work with have called me a “Renaissance Man”—because I’ve explored many different creative mediums to broaden my skills as a writer, director and producer. They also tell me I bring an even-keeled temperament to the table, keep my work environments professional and enjoyable, and get the job done right.    

Contact me with questions.  I look forward to working with you in the future.  

https://www.stewartschulman.com/

Act Two MediaWorks

From This Episode

Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless

  • Watch the trailer for Left Alone Rhapsody.
  • Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets Here
  • Watch at the Sarasota Film Festival on April 10th Tickets Here
  • Watch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets Here
  • Watch the Long Island Premiere on May 9th at the Jeanne Rimsky Theater , with a live performance by John Bayless

John Bayless – One Hand One Heart: My Life & My Music This new ‘one-man-one-hand only’ play—with music by Gershwin, Bernstein, Puccini, Mancini, Rachmaninoff, Rodgers, Legrand and the world-renowned concert pianist, John Bayless, himself—takes audiences on the journey of John’s remarkable life. John talks openly about his highs and lows, and his determination to create a second act for himself as an artist.

The play begins with a 4-year-old John becoming a musical prodigy in his hometown of Borger, Texas, which sets him on a life-long adventure and a 30-year career as a concert pianist, which is suddenly halted by a debilitating stroke. John shares the "hell" he faced, post-stroke, trying desperately to journey back to life  to be an artist in a new way. His spiritual awakening led him to his unbelievable comeback, concertizing with his left hand all alone!  This inspiring one-man show evokes laughter and tears, showcasing John’s astonishing musicianship, as he shares his amazing life-story.

Music featured in the episode:

  • That's It! composed by John Bayless  with Robert Freedman, featured in One Hand One Heart
  • Winter Tableau  composed by John Bayless, used in collaboration with choreographer Heidi Latsky
  • Rhapsody in Blue by George Gershwin, reimagined for one hand by John Bayless

Heidi Latsky Dance

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Left Alone Rhapsody: Behind the Lens With Filmmaker Stewart Schulman Stewart Schulman, John Bayless, Carole Blueweiss 00:36:24 filmmaking, disability, john bayless, documentary, left alone rhapsody, pianist, piano, stroke, rhapsody in blue, disklavier, stewart schulman, brain research, yamaha, dance false full 9 3 117a7d08-b625-4f91-a309-c172b3235aec Keys to Resilience: John Bayless Episode Summary

My special guest for this episode is pianist John Bayless, whose story is featured in the incredible documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. In our conversation, John reflects on life before and after his stroke.  Post-stroke, John's resilience shines through as he embarks on a remarkable path of self-recovery and discovery. Teaching himself to play with just his left hand, he defied the odds and embraced a new chapter. John's story and music  make this episode a must-listen, just as the documentary is a must-watch.

About John Bayless

John Bayless is an internationally renowned concert pianist, composer, improviser, and prolific recording artist.  A protégé of Leonard Bernstein and a Yamaha artist, John is a crossover artist known for how he blends classical training and piano technique with popular music in imaginative improvisations. Despite a debilitating stroke halting his illustrious 30-year career, John refused to surrender. Instead, he embarked on a second act, teaching himself to play with just his left hand. This story is brilliantly shared in Stewart Schulman's documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. 

From This Episode

Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless

  • Watch the trailer for Left Alone Rhapsody.
  • Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets Here
  • Watch at the Sarasota Film Festival on April 10th Tickets Here
  • Watch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets Here
  • Watch the Long Island Premiere on May 9th at the Jeanne Rimsky Theater , with a live performance by John Bayless

The John Bayless Fund for Brain Research

Yamaha's Disklavier

Music featured in the episode:

  • Circle of Life, from the album "Circle of Life: The Music of Elton John in the Style of Bach"
  • Goodbye Yellow Brick Road,  from the album "Circle of Life: The Music of Elton John in the Style of Bach"

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Mon, 25 Mar 2024 00:00:00 +0000 clevpt@gmail.com (Carole Blueweiss, John Bayless, Stewart Schulman) https://wisdom-shared.simplecast.com/episodes/keys-to-resilience-john-bayless-wdOqBND_ Episode Summary

My special guest for this episode is pianist John Bayless, whose story is featured in the incredible documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. In our conversation, John reflects on life before and after his stroke.  Post-stroke, John's resilience shines through as he embarks on a remarkable path of self-recovery and discovery. Teaching himself to play with just his left hand, he defied the odds and embraced a new chapter. John's story and music  make this episode a must-listen, just as the documentary is a must-watch.

About John Bayless

John Bayless is an internationally renowned concert pianist, composer, improviser, and prolific recording artist.  A protégé of Leonard Bernstein and a Yamaha artist, John is a crossover artist known for how he blends classical training and piano technique with popular music in imaginative improvisations. Despite a debilitating stroke halting his illustrious 30-year career, John refused to surrender. Instead, he embarked on a second act, teaching himself to play with just his left hand. This story is brilliantly shared in Stewart Schulman's documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. 

From This Episode

Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless

  • Watch the trailer for Left Alone Rhapsody.
  • Watch at Reel Abilities Film Festival in New York City on April 4th, with a live performance by John Bayless on April 8th Free Tickets Here
  • Watch at the Sarasota Film Festival on April 10th Tickets Here
  • Watch at the Jewish Film Festival of Pittsburgh on May 2nd, with a live performance by John Bayless Tickets Here
  • Watch the Long Island Premiere on May 9th at the Jeanne Rimsky Theater , with a live performance by John Bayless

The John Bayless Fund for Brain Research

Yamaha's Disklavier

Music featured in the episode:

  • Circle of Life, from the album "Circle of Life: The Music of Elton John in the Style of Bach"
  • Goodbye Yellow Brick Road,  from the album "Circle of Life: The Music of Elton John in the Style of Bach"

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Keys to Resilience: John Bayless Carole Blueweiss, John Bayless, Stewart Schulman 00:37:01 urinary tract, hatikvah, composer, steinway, disability, carnegie hall, leonard bernstein, beatles, john bayless, documentary, left alone rhapsody, pianist, piano, judaism, stroke, disklavier, musician, brain injury, improvisation, music, southern baptist, kidney, yamaha, paralysis false full 8 3 703e9e2a-211d-453d-a338-0dc3ee677f41 One More Day: A Father's Gratitude Episode Summary

In this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. The episode explores how Jacob and his wife support each other and prioritize time for their other children. Jacob also talks about his company, which offers genetic testing for preventative illness, and we discuss the ethical considerations surrounding the use of DNA analysis for family planning. Despite the challenges, Jacob reflects on the profound impact Samuel has had on their lives, considering him an enormous blessing. This episode offers  a powerful exploration of the unique challenges and love that characterize Jacob's journey as a parent of a child with special needs.

About Jacob Moench

Jacob Moench is an entrepreneur in the medical industry devoted to preventative genetic testing.  He is a devoted husband to his wife of 12 years.  He and his wife have four beautiful children, including their oldest, Samuel, who has Autism and Epilepsy. Jacob enjoys playing with his children, basketball, hiking, piano, cooking, and creative writing.

Jacob's blog: https://fathertospecialneeds.blogspot.com/

Jacob's business: https://physiogenomic.com/

Contact Jacob

From This Episode

Finding Cooper's Voice

Forever Boy: A Mother's Memoir of Autism and Finding Joy

Mark Rober's Video about his autistic son

Steele's Army - Facebook page  of an epilepsy family that Jacob recommends

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 3 Mar 2024 05:05:00 +0000 clevpt@gmail.com (Carole Blueweiss, Jacob Moench) https://wisdom-shared.simplecast.com/episodes/one-more-day-Tzw1vn7W Episode Summary

In this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. The episode explores how Jacob and his wife support each other and prioritize time for their other children. Jacob also talks about his company, which offers genetic testing for preventative illness, and we discuss the ethical considerations surrounding the use of DNA analysis for family planning. Despite the challenges, Jacob reflects on the profound impact Samuel has had on their lives, considering him an enormous blessing. This episode offers  a powerful exploration of the unique challenges and love that characterize Jacob's journey as a parent of a child with special needs.

About Jacob Moench

Jacob Moench is an entrepreneur in the medical industry devoted to preventative genetic testing.  He is a devoted husband to his wife of 12 years.  He and his wife have four beautiful children, including their oldest, Samuel, who has Autism and Epilepsy. Jacob enjoys playing with his children, basketball, hiking, piano, cooking, and creative writing.

Jacob's blog: https://fathertospecialneeds.blogspot.com/

Jacob's business: https://physiogenomic.com/

Contact Jacob

From This Episode

Finding Cooper's Voice

Forever Boy: A Mother's Memoir of Autism and Finding Joy

Mark Rober's Video about his autistic son

Steele's Army - Facebook page  of an epilepsy family that Jacob recommends

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> One More Day: A Father's Gratitude Carole Blueweiss, Jacob Moench 00:42:13 In this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. In this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. home schooling, seizures, seizure, mark rober, neurotypical, faith, neurodiverse, epileptic, epilepsy, dna, neurodiversity, genetic testing, genetics, special needs, physical therapy, neurodivergent, autistic, autism, sibling false full 7 3 cdf552a9-0f7d-4d28-9f49-f86b5eb7fdcb A Taxi With Dyslexia? Episode Summary

In this episode, Lynn Greenberg and her son Jonathan, co-authors of Robby the Dyslexic Taxi and the Airport Adventure, share insights into Jon's journey with dyslexia. Emphasizing the transformative impact of education post-diagnosis, they discuss the power of creativity and the hidden gifts of neurodiversity. Jon, who views dyslexia as a superpower, aims, along with his mother, to inspire and empower neurodiverse children through their storytelling. This episode is a valuable resource for parents and teachers, offering insights and guidance for a more inclusive and understanding approach.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube:  https://youtu.be/qYBVQJqdfo8

From This Episode

About Lynn and Jonathan

Lynn Greenberg is the happiest wife, mom, and grandma. A very retired attorney who loves to cook, exercise, and read, she has seen how positivity with feelings and differences can allow children to grow into happy, productive adults. During COVID-19, when many families were living together with an abundance of unscheduled free time, Lynn and her son Jonathan, who has dyslexia, began to work on the concepts and ideas for Robby. As ideas developed, they became increasingly invested in the character, his story, and the impact this endeavor could have on others. 

Born with dyslexia, Jonathan Greenberg could not read and write like many other children his age. So, instead of giving in to frustration, Jonathan used his struggle as a catalyst for creativity, expressing his ideas through art. Having overcome his learning difficulty, Jonathan has fallen in love with reading. Robby the Dyslexic Taxi And The Airport Adventure exemplify Jonathan’s passion for writing and illustration. Together with Lynn, his mother, and his writing partner, they are already thinking of other stories featuring neurodiverse characters that complement this book. 

Facebook: Creative Cab Co.

Instagram: @creativecabcompany

Website: robbythetaxi.com

Buy the Book:

Robby the Dyslexic Taxi and the Airport Adventure on Amazon

Robby the Dyslexic Taxi and the Airport Adventure on Bookshop.org

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 14 Jan 2024 05:05:00 +0000 clevpt@gmail.com (Lynn Greenberg, Jonathan Greenberg, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/a-taxi-with-dyslexia-RClHSSyk Episode Summary

In this episode, Lynn Greenberg and her son Jonathan, co-authors of Robby the Dyslexic Taxi and the Airport Adventure, share insights into Jon's journey with dyslexia. Emphasizing the transformative impact of education post-diagnosis, they discuss the power of creativity and the hidden gifts of neurodiversity. Jon, who views dyslexia as a superpower, aims, along with his mother, to inspire and empower neurodiverse children through their storytelling. This episode is a valuable resource for parents and teachers, offering insights and guidance for a more inclusive and understanding approach.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube:  https://youtu.be/qYBVQJqdfo8

From This Episode

About Lynn and Jonathan

Lynn Greenberg is the happiest wife, mom, and grandma. A very retired attorney who loves to cook, exercise, and read, she has seen how positivity with feelings and differences can allow children to grow into happy, productive adults. During COVID-19, when many families were living together with an abundance of unscheduled free time, Lynn and her son Jonathan, who has dyslexia, began to work on the concepts and ideas for Robby. As ideas developed, they became increasingly invested in the character, his story, and the impact this endeavor could have on others. 

Born with dyslexia, Jonathan Greenberg could not read and write like many other children his age. So, instead of giving in to frustration, Jonathan used his struggle as a catalyst for creativity, expressing his ideas through art. Having overcome his learning difficulty, Jonathan has fallen in love with reading. Robby the Dyslexic Taxi And The Airport Adventure exemplify Jonathan’s passion for writing and illustration. Together with Lynn, his mother, and his writing partner, they are already thinking of other stories featuring neurodiverse characters that complement this book. 

Facebook: Creative Cab Co.

Instagram: @creativecabcompany

Website: robbythetaxi.com

Buy the Book:

Robby the Dyslexic Taxi and the Airport Adventure on Amazon

Robby the Dyslexic Taxi and the Airport Adventure on Bookshop.org

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> A Taxi With Dyslexia? Lynn Greenberg, Jonathan Greenberg, Carole Blueweiss 00:36:53 learning differences, orton gillingham approach, robby the dyslexic taxi, windward school, neurodiverse, dysgraphia, neurodiversity, creative cab company, discalculia, language-based learning differences, dyslexia, dyslexic false full 6 3 e6dbc464-99ab-4b9b-bb96-3d6ba5ed9da4 The Covid That Wasn't: Surviving Toxic Shock Syndrome Episode Summary

Join me as I welcome back Amy and her daughter, Lizzie, for an insightful discussion. In this episode, we delve into Lizzie's harrowing encounter with toxic shock syndrome (TSS), exploring the severe implications and her journey to recovery. Amy shares the critical moments that led to her life-saving discovery of Lizzie's condition and her quick response. We also discuss Lizzie's candid reflections on managing her menstrual health post-TSS, the challenges she faced during her recovery, and the significant changes in her life post-illness, including the recommendation to avoid tampon use. This episode serves as an eye-opener on the crucial aspects of TSS and menstrual health awareness.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube: https://youtu.be/F_rYxdV3Qwc

Resources

Days for Girls

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 3 Dec 2023 05:10:00 +0000 clevpt@gmail.com (Carole Blueweiss, Lizzie Nichols, Amy Nichols) https://wisdom-shared.simplecast.com/episodes/surviving-toxic-shock-syndrome-hZyd0nZq Episode Summary

Join me as I welcome back Amy and her daughter, Lizzie, for an insightful discussion. In this episode, we delve into Lizzie's harrowing encounter with toxic shock syndrome (TSS), exploring the severe implications and her journey to recovery. Amy shares the critical moments that led to her life-saving discovery of Lizzie's condition and her quick response. We also discuss Lizzie's candid reflections on managing her menstrual health post-TSS, the challenges she faced during her recovery, and the significant changes in her life post-illness, including the recommendation to avoid tampon use. This episode serves as an eye-opener on the crucial aspects of TSS and menstrual health awareness.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube: https://youtu.be/F_rYxdV3Qwc

Resources

Days for Girls

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> The Covid That Wasn't: Surviving Toxic Shock Syndrome Carole Blueweiss, Lizzie Nichols, Amy Nichols 00:19:39 tss awareness, toxic shock syndrome, tampons, toxic shock awareness, menstruation, periods, toxic shock, menstrual health awareness, days for girls, menstrual health, tss false full 5 3 892d0870-4de6-4f9d-be30-b5c57b6f4414 The Dye-lemma: Autism, Behavior, and Food Episode Summary

Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vY

Resources

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 12 Nov 2023 05:05:00 +0000 clevpt@gmail.com (Carole Blueweiss, Amy Nichols, Lizzie Nichols) https://wisdom-shared.simplecast.com/episodes/autism-food-dye-behavior-edgmuev8 Episode Summary

Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vY

Resources

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> The Dye-lemma: Autism, Behavior, and Food Carole Blueweiss, Amy Nichols, Lizzie Nichols 00:29:53 intellectual disability, blue 1, diet and behavior, yellow 6, decreased white matter, cognitive delay, special needs, behavioral challenges, autism spectrum disorder, autism, food dye, red 40 false full 4 3 2b52ca26-84ef-4fdc-9709-0bdce8469a51 Tough Love: A Blind Man Tells His Story (Replay) EPISODE SUMMARY

This is a  replay of a previously released episode, for Blindness Awareness Month. In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. 

Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver"  which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=SIy4DpLWE94

RESOURCES:

PEOPLE MENTIONED:

FIND AND FOLLOW JOSH: 

FIND AND FOLLOW JULIE:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 29 Oct 2023 17:47:59 +0000 clevpt@gmail.com (Carole Blueweiss, Josh Burch, Julie Burch) https://wisdom-shared.simplecast.com/episodes/tough-love-a-blind-man-tells-his-story-replay-IgqY_TwR EPISODE SUMMARY

This is a  replay of a previously released episode, for Blindness Awareness Month. In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. 

Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver"  which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=SIy4DpLWE94

RESOURCES:

PEOPLE MENTIONED:

FIND AND FOLLOW JOSH: 

FIND AND FOLLOW JULIE:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Tough Love: A Blind Man Tells His Story (Replay) Carole Blueweiss, Josh Burch, Julie Burch 00:53:16 This is a replay of a previously released episode, for Blindness Awareness Month. This is a replay of a previously released episode, for Blindness Awareness Month. vision, braille, blindness, optic nerve hypoplasia, blind, blindness awareness, seeing eye dog, vision impairment, accessibility false bonus 3 d82624d9-2ecd-43d5-8470-d64ac40ef1e7 Blind from Birth: A Stepmother Shares (Replay) EPISODE SUMMARY

This is a  replay of a previously released episode, for Blindness Awareness Month. Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment,  and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here:  https://www.youtube.com/watch?v=8PNWizDEn30

In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people.

FIND AND FOLLOW JULIE

Julie's Mindfulness Art Facebook Page
https://www.facebook.com/julieburch4art

Julie's Author Facebook page
https://www.facebook.com/Jbrileeauthor

Julie's Author Website
https://julietbrilee.com/

Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh.

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 15 Oct 2023 04:00:00 +0000 clevpt@gmail.com (Julie Burch, Josh Burch, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/blindness-awareness-cP44gPV4 EPISODE SUMMARY

This is a  replay of a previously released episode, for Blindness Awareness Month. Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment,  and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here:  https://www.youtube.com/watch?v=8PNWizDEn30

In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people.

FIND AND FOLLOW JULIE

Julie's Mindfulness Art Facebook Page
https://www.facebook.com/julieburch4art

Julie's Author Facebook page
https://www.facebook.com/Jbrileeauthor

Julie's Author Website
https://julietbrilee.com/

Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh.

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Blind from Birth: A Stepmother Shares (Replay) Julie Burch, Josh Burch, Carole Blueweiss 00:55:29 This is a replay of a previously released episode, for Blindness Awareness Month. This is a replay of a previously released episode, for Blindness Awareness Month. vision, braille, mindfulness, sight, blindness, stepparent, parenting, blind, blindness awareness, seeing eye dog, visual impairment, guide dog false bonus 3 9c2422dc-4c23-4e69-b722-e609f3d9c311 FBI Stories From Retired Agent Episode Summary

In part 2 of my conversation with retired FBI Special Agent Aaron Weeter, we learn more about life as an FBI agent. Aaron explains how he got started, what it was like to work on high-profile cases like 9/11, the DC Sniper, and January 6th, and how he ultimately specialized in drug-related crimes for most of his career. It was fascinating to learn about how Aaron and his colleagues used informants and undercover officers to take down doctors in the opioid epidemic.

Be sure to listen to the previous episode with Aaron to learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today: Retired FBI Agent Reflects On Opioid Crisis

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/sDVbaz9FHbM

Related Episodes

Retired FBI Agent Reflects On Opioid Crisis

Overdose Awareness: A Sister's Tribute

Addiction to Sobriety: A Mother's Journey

Anonymous Sister

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 10 Sep 2023 07:00:00 +0000 clevpt@gmail.com (Carole Blueweiss, Aaron Weeter) https://wisdom-shared.simplecast.com/episodes/fbi-stories-from-retired-agent-1qDLuhKn Episode Summary

In part 2 of my conversation with retired FBI Special Agent Aaron Weeter, we learn more about life as an FBI agent. Aaron explains how he got started, what it was like to work on high-profile cases like 9/11, the DC Sniper, and January 6th, and how he ultimately specialized in drug-related crimes for most of his career. It was fascinating to learn about how Aaron and his colleagues used informants and undercover officers to take down doctors in the opioid epidemic.

Be sure to listen to the previous episode with Aaron to learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today: Retired FBI Agent Reflects On Opioid Crisis

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/sDVbaz9FHbM

Related Episodes

Retired FBI Agent Reflects On Opioid Crisis

Overdose Awareness: A Sister's Tribute

Addiction to Sobriety: A Mother's Journey

Anonymous Sister

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> FBI Stories From Retired Agent Carole Blueweiss, Aaron Weeter 00:28:12 fentanyl, opioid epidemic, law enforcement, fbi false full 3 3 21e487dd-70b8-4b3f-bdfa-ba85e85c633d Overdose Awareness: A Sister's Tribute Episode Summary

Since 1999, more than one million people have died from a drug overdose in the United States. On International Overdose Awareness Day, we reflect on these senseless preventable deaths. Today, we hear from previous Wisdom Shared guest Anne Pratt on the loss of her brother Daniel from an accidental overdose. May this powerful personal story help spread awareness and compassion for all those affected by the devastating impact of today's out of control epidemic.

Resources

How to use Narcan training video: https://www.anonymoussister.com/resources

Find Naloxone near you

Fentanyl Test Strips

If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. 

Related Episodes

Addiction to Sobriety: A Mother's Journey

Anonymous Sister

Retired FBI Agent Reflects On Opioid Crisis

Anne's previous episode: A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral Palsy

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Social Media and Marketing Coordinator: Kayla Nelson
  • Production Intern: Cassidy Rozencwaig

Find and Follow Carole and Wisdom Shared:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Fri, 1 Sep 2023 00:00:00 +0000 clevpt@gmail.com (Carole Blueweiss, Anne Pratt) https://wisdom-shared.simplecast.com/episodes/overdose-awareness-_Vv5d43o Episode Summary

Since 1999, more than one million people have died from a drug overdose in the United States. On International Overdose Awareness Day, we reflect on these senseless preventable deaths. Today, we hear from previous Wisdom Shared guest Anne Pratt on the loss of her brother Daniel from an accidental overdose. May this powerful personal story help spread awareness and compassion for all those affected by the devastating impact of today's out of control epidemic.

Resources

How to use Narcan training video: https://www.anonymoussister.com/resources

Find Naloxone near you

Fentanyl Test Strips

If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. 

Related Episodes

Addiction to Sobriety: A Mother's Journey

Anonymous Sister

Retired FBI Agent Reflects On Opioid Crisis

Anne's previous episode: A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral Palsy

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Social Media and Marketing Coordinator: Kayla Nelson
  • Production Intern: Cassidy Rozencwaig

Find and Follow Carole and Wisdom Shared:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Overdose Awareness: A Sister's Tribute Carole Blueweiss, Anne Pratt 00:07:31 heroin, fentanyl overdose, fentanyl, opioid epidemic, overdose awareness day, overdose, narcan, cocaine, addiction, drugs false bonus 3 cca50ccb-d103-4477-8531-c4544c488005 Retired FBI Agent Reflects On Opioid Crisis Episode Summary

Our last episode explored addiction from the perspective of loved ones. In this episode, we are looking at the opioid crisis from the point of view of a retired FBI agent, Aaron Weeter, who spent 25 years specializing in drug-related crimes. From his frontline perspective, we learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today. 

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oXq6XJ_z-HI

About Aaron Weeter

Beginning in 1998, Aaron served for over 23 years as a Special Agent in the Federal Bureau of Investigation's Washington, D.C. Field Office.  He served for twenty years as a case agent and three years as a supervisor investigating matters primarily involving white-collar/financial crimes in the areas of healthcare fraud and prescription drug diversion and distribution.  During this time, Aaron also worked on a variety of national/office-wide cases including the 9-11, D.C. Sniper and January 6th investigations among others.  Aaron is a licensed Certified Public Accountant (CPA) and a Certified Fraud Examiner.  He retired from the FBI in late 2021 and recently started a fraud consulting business.  Much of Aaron's FBI investigative work focused on the illegal distribution of pharmaceutical narcotics and other controlled substances by physicians, pharmacists and street-level dealers.  He opened his first "pill case" in early 1999 in the early stages of what would become the pill epidemic and through dozens of cases thereafter, had a window into the evolution of the pill epidemic and its influence on the current fentanyl epidemic gripping the U.S.  

More to Watch and Read

Chasing the Dragon: The Life of an Opiate Addict - a documentary made by the FBI & DEA

Dr. Feelgood: Dealer or Healer? - a documentary about Dr. William Hurwitz, a Virginia physician who served nearly five years in prison for drug trafficking

Anonymous Sister - a documentary where director Jamie Boyle explores her family's collision with the opioid epidemic

All the Beauty and the Bloodshed - a documentary about artist and activist Nan Goldin and her personal fight to hold the Sackler family accountable for the opioid overdose crisis

Demon Copperhead by Barbara Kingsolver - a novel that shows the devastating impact of the opioid epidemic on a young boy in Appalachia

Dopesick: Dealers, Doctors, and the Drug Company that Addicted America by Beth Macy - the definitive account of America's opioid epidemic

Raising Lazarus: Hope, Justice, and the Future of America’s Overdose Crisis by Beth Macy - a sequel to Dopesick

Dopesick - Hulu limited series remake of Beth Macy's book 

Empire of Pain: The Secret History of the Sackler Dynasty by Patrick Radden Keefe - a book that describes the Sackler family and their role in the opioid epidemic

The Family That Built an Empire of Pain - article by Patrick Radden Keefe that led to the book

What Can Be Done?

Words Matter - Terms to Use and Avoid When Talking About Addiction

https://www.cdc.gov/opioids/basics/fentanyl.html: 

https://www.cdc.gov/drugoverdose/prevention/index.html

Fentanyl Test Strips

Find Narcan Near You

If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. 

How opioid addiction occurs - Mayo Clinic

List of Treatment Facilities and Support Groups

Drug Takeback Programs

Safe Drug Disposal

Related Episodes

Addiction to Sobriety: A Mother's Journey

Anonymous Sister

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 6 Aug 2023 04:05:00 +0000 clevpt@gmail.com (Aaron Weeter, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/fbi-opioids-MEbGRBmK Episode Summary

Our last episode explored addiction from the perspective of loved ones. In this episode, we are looking at the opioid crisis from the point of view of a retired FBI agent, Aaron Weeter, who spent 25 years specializing in drug-related crimes. From his frontline perspective, we learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today. 

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oXq6XJ_z-HI

About Aaron Weeter

Beginning in 1998, Aaron served for over 23 years as a Special Agent in the Federal Bureau of Investigation's Washington, D.C. Field Office.  He served for twenty years as a case agent and three years as a supervisor investigating matters primarily involving white-collar/financial crimes in the areas of healthcare fraud and prescription drug diversion and distribution.  During this time, Aaron also worked on a variety of national/office-wide cases including the 9-11, D.C. Sniper and January 6th investigations among others.  Aaron is a licensed Certified Public Accountant (CPA) and a Certified Fraud Examiner.  He retired from the FBI in late 2021 and recently started a fraud consulting business.  Much of Aaron's FBI investigative work focused on the illegal distribution of pharmaceutical narcotics and other controlled substances by physicians, pharmacists and street-level dealers.  He opened his first "pill case" in early 1999 in the early stages of what would become the pill epidemic and through dozens of cases thereafter, had a window into the evolution of the pill epidemic and its influence on the current fentanyl epidemic gripping the U.S.  

More to Watch and Read

Chasing the Dragon: The Life of an Opiate Addict - a documentary made by the FBI & DEA

Dr. Feelgood: Dealer or Healer? - a documentary about Dr. William Hurwitz, a Virginia physician who served nearly five years in prison for drug trafficking

Anonymous Sister - a documentary where director Jamie Boyle explores her family's collision with the opioid epidemic

All the Beauty and the Bloodshed - a documentary about artist and activist Nan Goldin and her personal fight to hold the Sackler family accountable for the opioid overdose crisis

Demon Copperhead by Barbara Kingsolver - a novel that shows the devastating impact of the opioid epidemic on a young boy in Appalachia

Dopesick: Dealers, Doctors, and the Drug Company that Addicted America by Beth Macy - the definitive account of America's opioid epidemic

Raising Lazarus: Hope, Justice, and the Future of America’s Overdose Crisis by Beth Macy - a sequel to Dopesick

Dopesick - Hulu limited series remake of Beth Macy's book 

Empire of Pain: The Secret History of the Sackler Dynasty by Patrick Radden Keefe - a book that describes the Sackler family and their role in the opioid epidemic

The Family That Built an Empire of Pain - article by Patrick Radden Keefe that led to the book

What Can Be Done?

Words Matter - Terms to Use and Avoid When Talking About Addiction

https://www.cdc.gov/opioids/basics/fentanyl.html: 

https://www.cdc.gov/drugoverdose/prevention/index.html

Fentanyl Test Strips

Find Narcan Near You

If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov. 

How opioid addiction occurs - Mayo Clinic

List of Treatment Facilities and Support Groups

Drug Takeback Programs

Safe Drug Disposal

Related Episodes

Addiction to Sobriety: A Mother's Journey

Anonymous Sister

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Retired FBI Agent Reflects On Opioid Crisis Aaron Weeter, Carole Blueweiss 00:40:03 drug diversion, fentanyl, opioid epidemic, purdue pharma, oxycodone, pills, fbi, oxy, opioids, oxycontin, prescription pills, addiction, prescription, drugs, sackler family, opioid crisis false full 2 3 750206dc-b789-427c-9bd2-15c5a0fec000 Anonymous Sister Episode Summary

In this episode, I'm joined by two special guests, harm reduction activist Julie Stampler and award-winning documentary filmmaker Jamie Boyle.  We discuss the opioid epidemic through the frame of the incredible documentary Anonymous Sister, directed by Jamie Boyle, produced by Marilyn Ness, and executive produced by Julie Stampler. This is the story of one American family, but what happened to them could happen to any family.  We learn about Julie's brother, Jonathan,  who died from a heroin overdose, and how his death led Julie into her life of activism and harm reduction work. We see two different paths to managing addiction and substance abuse disorder. This is a story told by two women who watched their siblings suffer.  This show is dedicated to all the siblings out there who are anonymous witnesses.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oD0vVqw-w6w

About Anonymous Sister

When a young woman turns to the camera for refuge, she ends up with a firsthand account of what will become the deadliest man-made epidemic in United States history. From the producers of Dick Johnson Is Dead and Summer of Soul, Anonymous Sister is two-time Emmy Award winner Jamie Boyle's chronicle of her family's collision with the opioid epidemic.

Anonymous Sister will be playing at IFC Center in New York June 2nd - 8th and Laemmle Theater in Los Angeles June 16th - 22nd, with more cities to follow.  

Select screenings will be accompanied by special events and panels. For details and info about upcoming events: 

About Jamie Boyle

Jamie Boyle is a two-time Emmy Award winning documentary filmmaker. Her work has played at Sundance, Tribeca, and SXSW. In 2019, she was part of the inaugural Sundance Talent Forum & Catalyst Lab and on DOC NYC’s 40 Under 40 list. She is the writer and editor of BREAKING THE NEWS, premiering Tribeca Film Festival in June 2023. She is the director and editor of ANONYMOUS SISTER, a personal feature documentary coming to theaters in summer 2023 and produced by Big Mouth Productions (DICK JOHNSON IS DEAD, CAMERAPERSON) and Vulcan Productions (SUMMER OF SOUL, THE REASON I JUMP). She was the editor, producer, and cinematographer of JACKSON (Showtime), winner of the 2018 Emmy® Award. She was the editor of TRANS IN AMERICA: TEXAS STRONG, winner of the 2019 Emmy® for Outstanding Short Documentary and two Webby Awards. TEXAS STRONG premiered at SXSW and launched on them. She was the associate editor and production manager of E-­TEAM (Netflix), which won the 2014 Sundance Cinematography Award and was nominated for two News & Documentary Emmys®, including Best Documentary. She was the director, cinematographer, and editor of the short documentary TAKE A VOTE, which premiered at DOC NYC in 2020. She was the in-house editor for The American Civil Liberties Union and Human Rights Watch. She taught at the Bronx Documentary Center, as a guest lecturer at Columbia University, and served as a judge for the News & Documentary Emmy Awards.

https://www.jamielboyle.com/

About Julie Stampler

Julie Stampler is a voiceover actress and harm reduction activist who is a National Harm Reduction Coalition Board Member. Julie's harm reduction advocacy work aims to help people who use drugs stay alive rather than pushing for abstinence-only approaches. She advocates for the importance of overdose prevention programs, training people on when and how to use and distribute naloxone/Narcan, and advocating for overdose prevention centers that focus on keeping people alive with access to social service resources. Julie's life-saving work stems from her brother Jonathan's untimely death from a heroin overdose 20 years ago. In a twist of irony, her stepfather Jack Fishman was the scientist credited with inventing naloxone which can reverse an overdose from heroin, fentanyl, and prescription opioid medications—when given in time. 

https://juliestampler.com/

From This Episode

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 21 May 2023 04:00:00 +0000 clevpt@gmail.com (Carole Blueweiss, Jamie Boyle, Julie Stampler) https://wisdom-shared.simplecast.com/episodes/anonymous-sister-3jNmxIAM Episode Summary

In this episode, I'm joined by two special guests, harm reduction activist Julie Stampler and award-winning documentary filmmaker Jamie Boyle.  We discuss the opioid epidemic through the frame of the incredible documentary Anonymous Sister, directed by Jamie Boyle, produced by Marilyn Ness, and executive produced by Julie Stampler. This is the story of one American family, but what happened to them could happen to any family.  We learn about Julie's brother, Jonathan,  who died from a heroin overdose, and how his death led Julie into her life of activism and harm reduction work. We see two different paths to managing addiction and substance abuse disorder. This is a story told by two women who watched their siblings suffer.  This show is dedicated to all the siblings out there who are anonymous witnesses.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oD0vVqw-w6w

About Anonymous Sister

When a young woman turns to the camera for refuge, she ends up with a firsthand account of what will become the deadliest man-made epidemic in United States history. From the producers of Dick Johnson Is Dead and Summer of Soul, Anonymous Sister is two-time Emmy Award winner Jamie Boyle's chronicle of her family's collision with the opioid epidemic.

Anonymous Sister will be playing at IFC Center in New York June 2nd - 8th and Laemmle Theater in Los Angeles June 16th - 22nd, with more cities to follow.  

Select screenings will be accompanied by special events and panels. For details and info about upcoming events: 

About Jamie Boyle

Jamie Boyle is a two-time Emmy Award winning documentary filmmaker. Her work has played at Sundance, Tribeca, and SXSW. In 2019, she was part of the inaugural Sundance Talent Forum & Catalyst Lab and on DOC NYC’s 40 Under 40 list. She is the writer and editor of BREAKING THE NEWS, premiering Tribeca Film Festival in June 2023. She is the director and editor of ANONYMOUS SISTER, a personal feature documentary coming to theaters in summer 2023 and produced by Big Mouth Productions (DICK JOHNSON IS DEAD, CAMERAPERSON) and Vulcan Productions (SUMMER OF SOUL, THE REASON I JUMP). She was the editor, producer, and cinematographer of JACKSON (Showtime), winner of the 2018 Emmy® Award. She was the editor of TRANS IN AMERICA: TEXAS STRONG, winner of the 2019 Emmy® for Outstanding Short Documentary and two Webby Awards. TEXAS STRONG premiered at SXSW and launched on them. She was the associate editor and production manager of E-­TEAM (Netflix), which won the 2014 Sundance Cinematography Award and was nominated for two News & Documentary Emmys®, including Best Documentary. She was the director, cinematographer, and editor of the short documentary TAKE A VOTE, which premiered at DOC NYC in 2020. She was the in-house editor for The American Civil Liberties Union and Human Rights Watch. She taught at the Bronx Documentary Center, as a guest lecturer at Columbia University, and served as a judge for the News & Documentary Emmy Awards.

https://www.jamielboyle.com/

About Julie Stampler

Julie Stampler is a voiceover actress and harm reduction activist who is a National Harm Reduction Coalition Board Member. Julie's harm reduction advocacy work aims to help people who use drugs stay alive rather than pushing for abstinence-only approaches. She advocates for the importance of overdose prevention programs, training people on when and how to use and distribute naloxone/Narcan, and advocating for overdose prevention centers that focus on keeping people alive with access to social service resources. Julie's life-saving work stems from her brother Jonathan's untimely death from a heroin overdose 20 years ago. In a twist of irony, her stepfather Jack Fishman was the scientist credited with inventing naloxone which can reverse an overdose from heroin, fentanyl, and prescription opioid medications—when given in time. 

https://juliestampler.com/

From This Episode

Find and Follow Carole and Wisdom Shared:

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  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Production Assistant and Marketing Coordinator: Kayla Nelson

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Anonymous Sister Carole Blueweiss, Jamie Boyle, Julie Stampler 01:13:21 opioid use disorder, fentanyl, documentary, opioid epidemic, purdue pharma, anonymous sister, medication-assisted treatment, anonymous sister film, substance use disorder, marilyn ness, pills, rehab, overdose, narcan, naloxone, whistle blower, addiction, prescription, harm reduction false full 1 3 6740afa4-454f-4fdf-abc7-6c96e15895cc Addiction to Sobriety: A Mother's Journey Episode Summary

Melissa Conrey shares her story of living with drug and alcohol addiction and now, sobriety. A single mom of two, she worries about her children who have been exposed to so much. She went back to school to earn her degrees and is now a registered dietician. Melissa speaks openly about her challenges and her victories. 

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/yTUuE_L-L8g

From This Episode

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Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 26 Mar 2023 04:00:00 +0000 clevpt@gmail.com (Carole Blueweiss, Melissa Conrey) https://wisdom-shared.simplecast.com/episodes/addiction-aq1VpuNv Episode Summary

Melissa Conrey shares her story of living with drug and alcohol addiction and now, sobriety. A single mom of two, she worries about her children who have been exposed to so much. She went back to school to earn her degrees and is now a registered dietician. Melissa speaks openly about her challenges and her victories. 

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/yTUuE_L-L8g

From This Episode

Find and Follow Melissa:

Find and Follow Carole and Wisdom Shared:

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  • Audio Engineering by Steve Heatherington of Good Podcasting Works
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Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Addiction to Sobriety: A Mother's Journey Carole Blueweiss, Melissa Conrey 00:46:06 alcoholics anonymous, sobriety, alcoholism, a.a., recovery, overdose, 12-step program, roller derby, aa, drug addiction, addiction false full 14 2 7fc81190-59e9-4a6b-94e9-e76e1f16bd40 A Little Perspective Makes a Big Difference Episode Summary

This episode features mother and daughter Bobbie and Angela Singletary. This dynamic duo shares their story, full of hardship, resilience, joy, love, and support. Bobbie, Angela, and two of Angela's kids all have achondroplasia, a form of dwarfism, as did Angela's late sister Cindy. Listen how Cindy’s life at 33 could not be saved despite the huge sacrifices made by her mom and sister. We will hear how the Medicaid system failed them and how in spite of life challenges, including discrimination, systemic inequity, and personal struggles with alcohol,  these women continue to advocate for others.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=1qFpEPqzdD0

About Angela and Bobbie

From This Episode

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Find and Follow Carole and Wisdom Shared:

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  • Audio Engineering by Steve Heatherington of Good Podcasting Works
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]]> Sun, 29 Jan 2023 05:00:00 +0000 clevpt@gmail.com (Bobbie Singletary, Angela Singletary, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/angela-bobbi-vElaXsgs Episode Summary

This episode features mother and daughter Bobbie and Angela Singletary. This dynamic duo shares their story, full of hardship, resilience, joy, love, and support. Bobbie, Angela, and two of Angela's kids all have achondroplasia, a form of dwarfism, as did Angela's late sister Cindy. Listen how Cindy’s life at 33 could not be saved despite the huge sacrifices made by her mom and sister. We will hear how the Medicaid system failed them and how in spite of life challenges, including discrimination, systemic inequity, and personal struggles with alcohol,  these women continue to advocate for others.

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=1qFpEPqzdD0

About Angela and Bobbie

From This Episode

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Find and Follow Carole and Wisdom Shared:

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  • Co-Producer and Marketing Coordinator: Kayla Nelson
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]]> A Little Perspective Makes a Big Difference Bobbie Singletary, Angela Singletary, Carole Blueweiss 00:51:28 disability, resilience, dwarfism, alcoholism, inspiration porn, lpa, advocate, ada, siblings, life coach, wired on development, social justice, little people, advocacy, achondroplasia, wellness coaching, accessibility false full 13 2 f00c1dc0-0cfa-4df2-94ba-a8e0e823da50 Lisa Greer: A Mother's Transparent Perspective EPISODE SUMMARY

Lisa Greer is a mother of five, a former executive and business owner, a convener of charitable events, and the author of Philanthropy Revolution.  We discuss her childrens' diagnoses with cancer and adolescent-onset epilepsy and how that affected the whole family. Lisa explains how transparency fosters trust, something that applies to the worlds of charitable giving, healthcare, and parenting.  There are so many impactful takeaways from this wide-ranging conversation with Lisa, as the wisdom she has gained in her variety of roles interconnect in sometimes surprising ways. 

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/KE1KrICHEPM

ABOUT LISA GREER

FROM THIS EPISODE

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Find and Follow Carole and Wisdom Shared:

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]]> Sun, 4 Dec 2022 05:00:00 +0000 clevpt@gmail.com (Lisa Greer, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/lisa-greer-WHJAE4JX EPISODE SUMMARY

Lisa Greer is a mother of five, a former executive and business owner, a convener of charitable events, and the author of Philanthropy Revolution.  We discuss her childrens' diagnoses with cancer and adolescent-onset epilepsy and how that affected the whole family. Lisa explains how transparency fosters trust, something that applies to the worlds of charitable giving, healthcare, and parenting.  There are so many impactful takeaways from this wide-ranging conversation with Lisa, as the wisdom she has gained in her variety of roles interconnect in sometimes surprising ways. 

For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/KE1KrICHEPM

ABOUT LISA GREER

FROM THIS EPISODE

Find and Follow Carole and Wisdom Shared:

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Find and Follow Carole and Wisdom Shared:

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  • Co-Producer and Marketing Coordinator: Kayla Nelson
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]]> Lisa Greer: A Mother's Transparent Perspective Lisa Greer, Carole Blueweiss 00:43:08 crohn's disease, facial differences, community, fundraising, newyork-presbyterian hospital, cedars-sinai medical center, challange, myface, cancer, epilepsy, connection, philanthropy, healthcare, philanthropy revolution, parenting, charitable giving, feldenkrais method, adolescent medicine, adolescent-onset epilepsy, childhood cancer false full 12 2 2e158d76-aff4-4c5c-bbe1-65814d3e4098 Special Ed Teacher & Foster Parent Patty Speaks About Adoption Episode Summary

In this episode, we meet Patty Braendel, a special education teacher who is an adoptive mom, a birth mom, and also a foster mom. We hear about her journey to parenthood with all its ups and downs and learn how her experiences as a parent have helped her work in special education. 

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/6gINmxyiQ5o

Resources

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]]> Sun, 9 Oct 2022 04:05:00 +0000 clevpt@gmail.com (Patty Braendel, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works) https://wisdom-shared.simplecast.com/episodes/patty-adoption-fostering-ZfwWV_pz Episode Summary

In this episode, we meet Patty Braendel, a special education teacher who is an adoptive mom, a birth mom, and also a foster mom. We hear about her journey to parenthood with all its ups and downs and learn how her experiences as a parent have helped her work in special education. 

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/6gINmxyiQ5o

Resources

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]]> Special Ed Teacher & Foster Parent Patty Speaks About Adoption Patty Braendel, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works 00:59:56 family, attachment, race, special ed, parenting, adoption, special education teacher, diversity, foster parents, adoptive parents, multiracial family, special education, fostering, foster care false full 11 2 0fd7cf78-355c-468f-ac4a-34c0adbdfa04 Kathryn Paylor-Bent: Disability Meets Fashion EPISODE SUMMARY

Kathryn Paylor-Bent has a lot of wisdom to share and we cover a lot of ground in this conversation. We talk about her experiences as a disabled woman, wheelchair user, and the CEO of two successful businesses. She uses her disability as inspiration for her successful career as an adaptive fashion designer and as a consultant to other organizations.

She shares her experiences with ableism, including medical and digital ableism like shadow banning on social media and examples from her personal life. In light of some of these negative experiences, she also shares solutions as an advocate and suggests how we can better understand the disability community.  Another important part of Kathryn's story is being a mother to Tom, her son with autism and mental health challenges.  She shares her vision for Tom's future as well as the future of other young people with disabilities through her business Seated Sewing.  

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/rpJslXjawTk

FROM THIS EPISODE + RESOURCES

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]]> Sun, 11 Sep 2022 04:00:00 +0000 clevpt@gmail.com (Kathryn Paylor-Bent, Audio Engineering by Steve Heatherington of Good Podcasting Works, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/kat-6GVEqepF EPISODE SUMMARY

Kathryn Paylor-Bent has a lot of wisdom to share and we cover a lot of ground in this conversation. We talk about her experiences as a disabled woman, wheelchair user, and the CEO of two successful businesses. She uses her disability as inspiration for her successful career as an adaptive fashion designer and as a consultant to other organizations.

She shares her experiences with ableism, including medical and digital ableism like shadow banning on social media and examples from her personal life. In light of some of these negative experiences, she also shares solutions as an advocate and suggests how we can better understand the disability community.  Another important part of Kathryn's story is being a mother to Tom, her son with autism and mental health challenges.  She shares her vision for Tom's future as well as the future of other young people with disabilities through her business Seated Sewing.  

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/rpJslXjawTk

FROM THIS EPISODE + RESOURCES

FIND AND FOLLOW KATHRYN

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]]> Kathryn Paylor-Bent: Disability Meets Fashion Kathryn Paylor-Bent, Audio Engineering by Steve Heatherington of Good Podcasting Works, Carole Blueweiss 01:00:24 cauda equina, catheter, adaptive fashion, feeding tubes, disability, dwarfism, tommy hilfiger, mental health, accessible fashion, service dog, weighted blankets, adhd, functional neurological disorder, autism, wheelchair, advocacy, fashion, ableism, accessibility false full 10 2 de032672-13b2-4ccc-82cf-e9bef7dfc677 Children's Anxiety With Hospital Procedures: A Father's Digital Solution Episode Summary:

In this episode, we meet Dom Raban, a designer, software developer, and father of Issy.  Issy underwent cancer treatment at age 13. While Issy is now a young adult and cancer-free, the lack of information given to Issy during her treatments prompted her father to create a child-centered app called  Xploro. This amazing app was designed to improve the health literacy of children, to decrease procedural anxiety, and  to improve the hospital experience for all children and their families.

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/5evWmZZ4BS8

From This Episode:

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]]> Sun, 7 Aug 2022 04:00:00 +0000 clevpt@gmail.com (Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works, Dom Raban) https://wisdom-shared.simplecast.com/episodes/xploro-e8H2k2fs Episode Summary:

In this episode, we meet Dom Raban, a designer, software developer, and father of Issy.  Issy underwent cancer treatment at age 13. While Issy is now a young adult and cancer-free, the lack of information given to Issy during her treatments prompted her father to create a child-centered app called  Xploro. This amazing app was designed to improve the health literacy of children, to decrease procedural anxiety, and  to improve the hospital experience for all children and their families.

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/5evWmZZ4BS8

From This Episode:

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  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Children's Anxiety With Hospital Procedures: A Father's Digital Solution Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works, Dom Raban 00:44:14 patient experience, digital therapeutic, app, cancer, xploro, ewing sarcoma, children's health, virtual reality, tumor, childhood cancer, anxiety, augmented reality, health app, child life specialist false full 9 2 dcbb74b4-c392-4eb8-a900-b18dc2aa0aad A boy and his mom: passions, dreams and spina bifida Eleven-year-old Easton and his mother Jennifer are a great son-mom team. In this episode, we will hear from both and learn about support dogs, supercars, playgrounds, pregnancy, birth, and spina bifida. 

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/yVwx-zwqNhM

FIND AND FOLLOW JENNIFER:

ABOUT SPINA BIFIDA:

FROM THIS EPISODE:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 10 Jul 2022 04:05:00 +0000 clevpt@gmail.com (Jennifer Crofoot, Easton Gonzalez, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works) https://wisdom-shared.simplecast.com/episodes/easton-jennifer-iUNSpMjT Eleven-year-old Easton and his mother Jennifer are a great son-mom team. In this episode, we will hear from both and learn about support dogs, supercars, playgrounds, pregnancy, birth, and spina bifida. 

For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/yVwx-zwqNhM

FIND AND FOLLOW JENNIFER:

ABOUT SPINA BIFIDA:

FROM THIS EPISODE:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> A boy and his mom: passions, dreams and spina bifida Jennifer Crofoot, Easton Gonzalez, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works 00:50:45 Eleven-year-old Easton and his mother Jennifer are a great son-mom team. In this episode, we will hear from both and learn about support dogs, supercars, playgrounds, pregnancy, birth, and spina bifida. Eleven-year-old Easton and his mother Jennifer are a great son-mom team. In this episode, we will hear from both and learn about support dogs, supercars, playgrounds, pregnancy, birth, and spina bifida. playgrounds, spina bifida, accessible playground, service dog, myelomeningocele, wheelchair, accessibility false full 8 2 2300c569-2d30-4d8c-9c7f-ba9d2d94846e George Estreich: A father speaks about Down syndrome and biotechnology George Estreich is an award-winning writer whose work includes poetry, memoir, and non-fiction. He is also a musician who plays with the band Mule On Fire. In addition to writing and music. George is an activist, storyteller, husband, and father to Ellie and Laura.  George talks about raising his daughter, Laura, who was born with Down syndrome. And then he talks about biotechnology, disability, and the stories we tell ourselves. He discusses how all people are more than a single identity and not only are stereotypes untrue, but they are also incomplete.

For more information about Down syndrome, see here.

Find and follow George: https://georgeestreich.com/

Laura's episode video with transcript: https://youtu.be/Su9LTiwiyGQ

Video with transcript of this episode: https://youtu.be/A5GHuyOK608

FROM THIS EPISODE:

The Shape of the Eye by George Estreich

Fables and Futures: Biotechnology, Disability, and the Stories We Tell Ourselves by George Estreich

Unexpected: Parenting, Prenatal Testing, and Down Syndrome by Alison Piepmeier with George Estreich and Rachel Adams

No Pity: People with Disabilities Forging a New Civil Rights Movement by Joseph P. Shapiro

What Can a Body Do?: How We Meet the Built World by Sara Hendren

Alison Piepmeier

Alison's blog archive: http://alisonpiepmeier.blogspot.com/

Unified Sports - Special Olympics

Individuals with Disabilities Education Act (IDEA)

Report from the Hastings Center about the marketing of NIPT: Bias and Inaccuracy in Marketing Noninvasive Prenatal Tests

College of Charleston

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 5 Jun 2022 04:00:00 +0000 clevpt@gmail.com (Audio Engineering by Steve Heatherington of Good Podcasting Works, Carole Blueweiss, George Estreich) https://wisdom-shared.simplecast.com/episodes/george-estreich-a-father-down-syndrome-and-biotechnology-lw19KzNS George Estreich is an award-winning writer whose work includes poetry, memoir, and non-fiction. He is also a musician who plays with the band Mule On Fire. In addition to writing and music. George is an activist, storyteller, husband, and father to Ellie and Laura.  George talks about raising his daughter, Laura, who was born with Down syndrome. And then he talks about biotechnology, disability, and the stories we tell ourselves. He discusses how all people are more than a single identity and not only are stereotypes untrue, but they are also incomplete.

For more information about Down syndrome, see here.

Find and follow George: https://georgeestreich.com/

Laura's episode video with transcript: https://youtu.be/Su9LTiwiyGQ

Video with transcript of this episode: https://youtu.be/A5GHuyOK608

FROM THIS EPISODE:

The Shape of the Eye by George Estreich

Fables and Futures: Biotechnology, Disability, and the Stories We Tell Ourselves by George Estreich

Unexpected: Parenting, Prenatal Testing, and Down Syndrome by Alison Piepmeier with George Estreich and Rachel Adams

No Pity: People with Disabilities Forging a New Civil Rights Movement by Joseph P. Shapiro

What Can a Body Do?: How We Meet the Built World by Sara Hendren

Alison Piepmeier

Alison's blog archive: http://alisonpiepmeier.blogspot.com/

Unified Sports - Special Olympics

Individuals with Disabilities Education Act (IDEA)

Report from the Hastings Center about the marketing of NIPT: Bias and Inaccuracy in Marketing Noninvasive Prenatal Tests

College of Charleston

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> George Estreich: A father speaks about Down syndrome and biotechnology Audio Engineering by Steve Heatherington of Good Podcasting Works, Carole Blueweiss, George Estreich 01:06:50 George Estreich is an award-winning writer. In this episode, George talks about raising his daughter, Laura, who was born with Down syndrome. George Estreich is an award-winning writer. In this episode, George talks about raising his daughter, Laura, who was born with Down syndrome. intellectual disability, disability, biotechnology, prenatal testing, down syndrome false full 7 2 f4078476-b9e8-4072-a87b-8110a276306a Laura E Video with transcript: https://youtu.be/Su9LTiwiyGQ

Laura, a young woman with Down syndrome talks about her life and goals.

 For more information about Down syndrome, see here.

FROM THIS EPISODE:

DEC - Disability Equity Center

WINGS Transition Program

Unified Sports - Special Olympics

Oregon Health & Science University

George Estreich

BOOK:

The Shape of the Eye by George Estreich

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 22 May 2022 04:05:00 +0000 clevpt@gmail.com (Laura Estreich, George Estreich, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works) https://wisdom-shared.simplecast.com/episodes/laura-e-b2_A_FiP Video with transcript: https://youtu.be/Su9LTiwiyGQ

Laura, a young woman with Down syndrome talks about her life and goals.

 For more information about Down syndrome, see here.

FROM THIS EPISODE:

DEC - Disability Equity Center

WINGS Transition Program

Unified Sports - Special Olympics

Oregon Health & Science University

George Estreich

BOOK:

The Shape of the Eye by George Estreich

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Laura E Laura Estreich, George Estreich, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works 00:15:17 Laura, a young woman with Down syndrome speaks about her life and goals. She graduated from a general education program, went on to become an advocate, an athlete, an activist for the disabled community and an educator. This is the first in a series of three episodes. Laura, a young woman with Down syndrome speaks about her life and goals. She graduated from a general education program, went on to become an advocate, an athlete, an activist for the disabled community and an educator. This is the first in a series of three episodes. intellectual disability, disability, trisomy 21, down's syndrome, down syndrome false full 6 2 708b3f0b-0974-4d9b-bc3c-07dd65d8a359 Tough Love: A Blind Man tells his story EPISODE SUMMARY

In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. 

Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver"  which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy.

RESOURCES:

PEOPLE MENTIONED:

FIND AND FOLLOW JOSH: 

FIND AND FOLLOW JULIE:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 17 Apr 2022 04:05:00 +0000 clevpt@gmail.com (Josh Burch, Julie Burch, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works) https://wisdom-shared.simplecast.com/episodes/blind-man-tells-his-story-yiyCDD_j EPISODE SUMMARY

In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. 

Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver"  which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy.

RESOURCES:

PEOPLE MENTIONED:

FIND AND FOLLOW JOSH: 

FIND AND FOLLOW JULIE:

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Tough Love: A Blind Man tells his story Josh Burch, Julie Burch, Carole Blueweiss, Audio Engineering by Steve Heatherington of Good Podcasting Works 00:53:16 independence, vision, braille, stepmom, bullying, stepparent, optic nerve hypoplasia, blind, seeing eye dog, vision impairment, anxiety, lighthouse, guide dogs, accessibility false full 5 2 1420923d-e3ae-447a-ac37-ce8a811bd019 Blind from Birth: A Stepmother Shares EPISODE SUMMARY

Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment,  and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice.

In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people.

FIND AND FOLLOW JULIE

Julie's Mindfulness Art Facebook Page
https://www.facebook.com/julieburch4art

Julie's Author Facebook page
https://www.facebook.com/Jbrileeauthor

Julie's Author Website
https://julietbrilee.com/

Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh.
 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 13 Mar 2022 05:05:00 +0000 clevpt@gmail.com (Julie Burch, Josh Burch, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/blind-from-birth-oPKigJ5O EPISODE SUMMARY

Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment,  and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice.

In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people.

FIND AND FOLLOW JULIE

Julie's Mindfulness Art Facebook Page
https://www.facebook.com/julieburch4art

Julie's Author Facebook page
https://www.facebook.com/Jbrileeauthor

Julie's Author Website
https://julietbrilee.com/

Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh.
 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Blind from Birth: A Stepmother Shares Julie Burch, Josh Burch, Dr. Carole Blueweiss 00:55:30 independence, vision, braille, stepmom, mindfulness, sight, spatial, stepparent, mind mapping, parenting, blind, seeing eye dog, stepmother, senses, guide dog false full 4 2 ac4c1f52-adb7-475c-9c22-40ba7245d1ef Dwarfism: A Mother-Daughter Conversation EPISODE SUMMARY

In  this episode  Jillian and Audrey, mother and daughter, share their perspectives about dwarfism  and offer helpful advice and wisdom along the way. They  speak about topics ranging from the "sport" of dwarf-tossing to some very enlightening and evolved perspectives on disability, advocacy, decision-making, overcoming challenges, and thriving in a world that does not make it easy to live without being stared at and  photographed without consent. Dwarfism is relatively rare so most of us have never met a little person. In this episode, you will gain a new appreciation for the challenges, gifts, and wisdom of one little person and her mom.

FROM THIS EPISODE

Dwarf Tossing
https://en.wikipedia.org/wiki/Dwarf-tossing

Recent Dinklage/Disney Statements onSnow White and the Seven Dwarfs
https://www.npr.org/2022/01/26/1075761231/peter-dinklage-disney


RESOURCES
Books

Far from the Tree: Parents, Children and the Search for Identity by Andrew Solomon

http://andrewsolomon.com/books/far-from-the-tree/

Thinking Big: The Story of a Young Dwarf , by Susan Kuklin
https://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264

The Missing Piece by Shel Silverstein– (animated)
https://www.youtube.com/watch?v=4gEjCJOzqXc

The Cracked Pot Children’s Story
https://alltimeshortstories.com/life-the-cracked-pot/


Associations

Little People of America
https://www.lpaonline.org
American Association of People with Disabilities
https://www.aapd.com


People

Rebecca Cokely, Ford Foundation Program Officer, U.S. Disability Rights
https://www.fordfoundation.org/about/people/rebecca-cokley/

Judy Heumann, Lifelong Advocate for the rights of disabled people
https://judithheumann.com


FOLLOW AND CONTACT JILLIAN

Podcast:https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385

Instagram:
@jill_ilana, @alwayslookingup.podcast

Website:
https://www.jillianilana.com

Email:
alwayslookingup227@gmail.com

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 6 Feb 2022 05:00:00 +0000 clevpt@gmail.com (Dr. Carole Blueweiss, Jillian Curwin, Audrey Curwin) https://wisdom-shared.simplecast.com/episodes/dwarfism3-3G7WXBWp EPISODE SUMMARY

In  this episode  Jillian and Audrey, mother and daughter, share their perspectives about dwarfism  and offer helpful advice and wisdom along the way. They  speak about topics ranging from the "sport" of dwarf-tossing to some very enlightening and evolved perspectives on disability, advocacy, decision-making, overcoming challenges, and thriving in a world that does not make it easy to live without being stared at and  photographed without consent. Dwarfism is relatively rare so most of us have never met a little person. In this episode, you will gain a new appreciation for the challenges, gifts, and wisdom of one little person and her mom.

FROM THIS EPISODE

Dwarf Tossing
https://en.wikipedia.org/wiki/Dwarf-tossing

Recent Dinklage/Disney Statements onSnow White and the Seven Dwarfs
https://www.npr.org/2022/01/26/1075761231/peter-dinklage-disney


RESOURCES
Books

Far from the Tree: Parents, Children and the Search for Identity by Andrew Solomon

http://andrewsolomon.com/books/far-from-the-tree/

Thinking Big: The Story of a Young Dwarf , by Susan Kuklin
https://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264

The Missing Piece by Shel Silverstein– (animated)
https://www.youtube.com/watch?v=4gEjCJOzqXc

The Cracked Pot Children’s Story
https://alltimeshortstories.com/life-the-cracked-pot/


Associations

Little People of America
https://www.lpaonline.org
American Association of People with Disabilities
https://www.aapd.com


People

Rebecca Cokely, Ford Foundation Program Officer, U.S. Disability Rights
https://www.fordfoundation.org/about/people/rebecca-cokley/

Judy Heumann, Lifelong Advocate for the rights of disabled people
https://judithheumann.com


FOLLOW AND CONTACT JILLIAN

Podcast:https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385

Instagram:
@jill_ilana, @alwayslookingup.podcast

Website:
https://www.jillianilana.com

Email:
alwayslookingup227@gmail.com

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Dwarfism: A Mother-Daughter Conversation Dr. Carole Blueweiss, Jillian Curwin, Audrey Curwin 00:41:47 midget, difference, disability, disney, dwarfism, little, ada, dinklage, cokely, height, dwarf, heumann, achondroplasia, ableism, accessibility false full 3 2 7528ce91-0232-4ca4-b4f5-b6059c6c8deb Dwarfism: Life as a Little Person EPISODE SUMMARY

Jillian Curwin, an advocate for dwarfism and disability awareness, is the host of the podcast, “Always Looking Up."  She was born with achondroplasia—a form of dwarfism. On the previous episode of Wisdom Shared, I spoke with her mother, Audrey. You can listen to that episode here: https://wisdom-shared.simplecast.com/episodes/audrey.

In this episode, Jillian talks about what it’s like navigating this world that is primarily designed for average-height people when she herself is a little person. Her commentary on films and TV is eye-opening as she shares her frustrations, solutions, and creative visions. All these ideas can go a long way toward accessibility and inclusion if we as a society change our own perspectives and see life from other points of view.

I learned a lot from speaking with Jillian for this episode, and from speaking with her mom Audrey in my last episode. Most of us take our average height for granted. Jillian helps expand our understanding with humor, intelligence, and most of all, first-hand experience as a little person.

FROM THIS EPISODE

Achondroplasia
Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/

 

Jillian’s Disney Project (includes photos)
https://cripplemedia.com/waiting-for-my-disney-princess/

 

Thinking Big: The Story of a Young Dwarf  Children’s Book
https://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264

 

Little People, Big World  TV Show
https://go.tlc.com/show/little-people-big-world-tlc

 

Nancy Volpe Beringer: Fashion Design for Sustainability and Adaptability
https://www.nancyvolpeberinger.com

 

Little People of America
https://www.lpaonline.org

 

American Association of People with Disabilities
https://www.aapd.com

 

Rebecca Cokely, Ford Foundation Program Officer, U.S. Disability Rights
https://www.fordfoundation.org/about/people/rebecca-cokley/

 

Maria Town, American Association of People with Disabilities, President and CEO
https://www.aapd.com/about/maria-town/

 

Wigs and Wishes
https://www.wigsandwishes.org

 

FOLLOW AND CONTACT JILLIAN 

Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385

Instagram:
@jill_ilana, @alwayslookingup.podcast

Website:
https://www.jillianilana.com

Email:
 alwayslookingup227@gmail.com

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 23 Jan 2022 05:05:00 +0000 clevpt@gmail.com (Jillian Curwin, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/jillian-gKrUPWtB EPISODE SUMMARY

Jillian Curwin, an advocate for dwarfism and disability awareness, is the host of the podcast, “Always Looking Up."  She was born with achondroplasia—a form of dwarfism. On the previous episode of Wisdom Shared, I spoke with her mother, Audrey. You can listen to that episode here: https://wisdom-shared.simplecast.com/episodes/audrey.

In this episode, Jillian talks about what it’s like navigating this world that is primarily designed for average-height people when she herself is a little person. Her commentary on films and TV is eye-opening as she shares her frustrations, solutions, and creative visions. All these ideas can go a long way toward accessibility and inclusion if we as a society change our own perspectives and see life from other points of view.

I learned a lot from speaking with Jillian for this episode, and from speaking with her mom Audrey in my last episode. Most of us take our average height for granted. Jillian helps expand our understanding with humor, intelligence, and most of all, first-hand experience as a little person.

FROM THIS EPISODE

Achondroplasia
Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/

 

Jillian’s Disney Project (includes photos)
https://cripplemedia.com/waiting-for-my-disney-princess/

 

Thinking Big: The Story of a Young Dwarf  Children’s Book
https://www.amazon.com/Thinking-Big-Story-Young-Dwarf/dp/0688058264

 

Little People, Big World  TV Show
https://go.tlc.com/show/little-people-big-world-tlc

 

Nancy Volpe Beringer: Fashion Design for Sustainability and Adaptability
https://www.nancyvolpeberinger.com

 

Little People of America
https://www.lpaonline.org

 

American Association of People with Disabilities
https://www.aapd.com

 

Rebecca Cokely, Ford Foundation Program Officer, U.S. Disability Rights
https://www.fordfoundation.org/about/people/rebecca-cokley/

 

Maria Town, American Association of People with Disabilities, President and CEO
https://www.aapd.com/about/maria-town/

 

Wigs and Wishes
https://www.wigsandwishes.org

 

FOLLOW AND CONTACT JILLIAN 

Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385

Instagram:
@jill_ilana, @alwayslookingup.podcast

Website:
https://www.jillianilana.com

Email:
 alwayslookingup227@gmail.com

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Dwarfism: Life as a Little Person Jillian Curwin, Dr. Carole Blueweiss 01:01:15 midget, difference, disability, disney, dwarfism, little, abelism, ada, dinklage, dwarf, podcast, achondroplasia, accessibility false full 2 2 77aea694-b4c1-4f18-8549-430804e5e1a9 Dwarfism: Raising a Little Person EPISODE SUMMARY

Audrey Curwin is the mother of two adult children, Jillian and Benjamin. Audrey was the Assistant Prosecutor in Gloucester County, New Jersey, supervising the domestic violence and sexual assault unit until her retirement in 2006. She was married for 23 years to Michael Curwin, and together, they were the only husband and wife team of first assistant prosecutors in New Jersey.  

Audrey does not shy away from calling out what she considers unacceptable attitudes and common preconceptions. She delves into her experience of raising her eldest child, Jillian, who was born with achondroplasia, which is a form of dwarfism. Audrey, her late husband, Michael, and their son, Ben were all born average height. Jillian's diagnosis brought with it a lot of unknowns and fears and opened a window into the world of labels, accessibility, advocacy, alternate perspectives, and unique challenges. Michael and Audrey were always deeply committed to the idea that Jillian should not be defined by her stature, disability, or diagnosis, but by who she was as a human being

Today, Jillian is a strong, witty, intelligent, fashionable, creative advocate. She is host of the podcast, “Always Looking Up.” In this episode, we will hear from Audrey how words matter, the many ways that the entertainment industry has marginalized little people, and how people diagnosed with dwarfism are often left out of the accessibility formula.

FROM THIS EPISODE

Osteogenesis Imperfecta 
Osteogenesis imperfecta (OI) is an inherited (genetic) bone disorder that is present at birth. It is also known as brittle bone disease. 

https://www.hopkinsmedicine.org/health/conditions-and-diseases/osteogenesis-imperfecta

 

Skeletal Displaysia
Skeletal dysplasia is the medical term for a group of about 400 conditions that affect bone development, neurological function, and cartilage growth, including its most common form, achondroplasia.

https://www.hopkinsmedicine.org/health/conditions-and-diseases/skeletal-dysplasia

 

Achondroplasia
Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/

 

Little People of America
https://www.lpaonline.org

 

The Missing Piece – Animated Shel Silverstein:
https://www.youtube.com/watch?v=4gEjCJOzqXc

 

The Cracked Pot Children’s Story
https://alltimeshortstories.com/life-the-cracked-pot/

 

Crip Camp: The Film
https://www.youtube.com/watch?v=XRrIs22plz0

 

Crip Camp: The Revolution
https://cripcamp.com

 

FINDING JILLIAN 

Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385

Instagram:@jill_ilana, @alwayslookingup.podcast

Website:https://www.jillianilana.com

Email:alwayslookingup227@gmail.com

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 9 Jan 2022 05:05:00 +0000 clevpt@gmail.com (Audrey Curwin, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/audrey-efWAHDf_ EPISODE SUMMARY

Audrey Curwin is the mother of two adult children, Jillian and Benjamin. Audrey was the Assistant Prosecutor in Gloucester County, New Jersey, supervising the domestic violence and sexual assault unit until her retirement in 2006. She was married for 23 years to Michael Curwin, and together, they were the only husband and wife team of first assistant prosecutors in New Jersey.  

Audrey does not shy away from calling out what she considers unacceptable attitudes and common preconceptions. She delves into her experience of raising her eldest child, Jillian, who was born with achondroplasia, which is a form of dwarfism. Audrey, her late husband, Michael, and their son, Ben were all born average height. Jillian's diagnosis brought with it a lot of unknowns and fears and opened a window into the world of labels, accessibility, advocacy, alternate perspectives, and unique challenges. Michael and Audrey were always deeply committed to the idea that Jillian should not be defined by her stature, disability, or diagnosis, but by who she was as a human being

Today, Jillian is a strong, witty, intelligent, fashionable, creative advocate. She is host of the podcast, “Always Looking Up.” In this episode, we will hear from Audrey how words matter, the many ways that the entertainment industry has marginalized little people, and how people diagnosed with dwarfism are often left out of the accessibility formula.

FROM THIS EPISODE

Osteogenesis Imperfecta 
Osteogenesis imperfecta (OI) is an inherited (genetic) bone disorder that is present at birth. It is also known as brittle bone disease. 

https://www.hopkinsmedicine.org/health/conditions-and-diseases/osteogenesis-imperfecta

 

Skeletal Displaysia
Skeletal dysplasia is the medical term for a group of about 400 conditions that affect bone development, neurological function, and cartilage growth, including its most common form, achondroplasia.

https://www.hopkinsmedicine.org/health/conditions-and-diseases/skeletal-dysplasia

 

Achondroplasia
Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/

 

Little People of America
https://www.lpaonline.org

 

The Missing Piece – Animated Shel Silverstein:
https://www.youtube.com/watch?v=4gEjCJOzqXc

 

The Cracked Pot Children’s Story
https://alltimeshortstories.com/life-the-cracked-pot/

 

Crip Camp: The Film
https://www.youtube.com/watch?v=XRrIs22plz0

 

Crip Camp: The Revolution
https://cripcamp.com

 

FINDING JILLIAN 

Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385

Instagram:@jill_ilana, @alwayslookingup.podcast

Website:https://www.jillianilana.com

Email:alwayslookingup227@gmail.com

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Dwarfism: Raising a Little Person Audrey Curwin, Dr. Carole Blueweiss 00:57:27 midget, story, difference, disability, disney, dwarfism, little, osteogenesis, abelism, storyteller, charlie and the chocolate factory, crip, ada, camp kent, dinklage, parenting, wizard of oz, silverstein, dwarf, cripcamp, dysplagia, podcast, achondroplasia, accessibility true full 1 2 9e0820ea-e7c0-43a3-a15d-c83b320eefec Carole's Wisdom Shared: Movement and Aging EPISODE SUMMARY

In this 14th episode of Wisdom Shared, Dr. Carole Blueweiss shares her own wisdom in an interview by Kathy Cocks for her podcast, Knowledge for Caregivers. In the episode, Carole brings her expertise as a Doctor of Physical Therapy to offer thoughts on movement, exercise, and wellness for older patients discharged from the hospital  who are being cared for by family or home health aides. Carole also shares about life with her mother who has experienced challenges as she ages. As her daughter, Carole says that she has witnessed many changes, "and yet she inspires me every day." Dr. Blueweiss reframes growing older as a blessing, despite the unpredictable challenges that often arise. And she believes that there is more we can control as we age than we are led to believe. In this episode, learn why we owe it to ourselves to become more aware of the changing bodies every day and we learn from Kathy, in her amazing podcast, Knowledge for Caregivers, how encouragement and support can go a long way to helping our loved ones as they age with compassion and dignity.

Kathy Cocks, Podcaster and Interviewer
Kathy has been a registered nurse for over 30 years, working in intensive care, with disabled school children, dialysis, and now in the community with the geriatric population. She works with families and their loved ones to find the right solutions for their situation and maintains an active network of partners to help navigate the eldercare journey.

Knowledge for Caregivers Podcast
https://www.kathysconsulting.com/podcast

Contact Kathy:
Website: https://www.kathysconsulting.com
Email: info@kathysconsulting.com

School of Life Book Collection:
https://www.theschooloflife.com

Contact Carole Blueweiss:
Website: caroleblueweiss.com
Email: clevpt@gmail.com

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 26 Dec 2021 05:05:00 +0000 clevpt@gmail.com (Kathy Cocks, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/aging-O__42Rh5 EPISODE SUMMARY

In this 14th episode of Wisdom Shared, Dr. Carole Blueweiss shares her own wisdom in an interview by Kathy Cocks for her podcast, Knowledge for Caregivers. In the episode, Carole brings her expertise as a Doctor of Physical Therapy to offer thoughts on movement, exercise, and wellness for older patients discharged from the hospital  who are being cared for by family or home health aides. Carole also shares about life with her mother who has experienced challenges as she ages. As her daughter, Carole says that she has witnessed many changes, "and yet she inspires me every day." Dr. Blueweiss reframes growing older as a blessing, despite the unpredictable challenges that often arise. And she believes that there is more we can control as we age than we are led to believe. In this episode, learn why we owe it to ourselves to become more aware of the changing bodies every day and we learn from Kathy, in her amazing podcast, Knowledge for Caregivers, how encouragement and support can go a long way to helping our loved ones as they age with compassion and dignity.

Kathy Cocks, Podcaster and Interviewer
Kathy has been a registered nurse for over 30 years, working in intensive care, with disabled school children, dialysis, and now in the community with the geriatric population. She works with families and their loved ones to find the right solutions for their situation and maintains an active network of partners to help navigate the eldercare journey.

Knowledge for Caregivers Podcast
https://www.kathysconsulting.com/podcast

Contact Kathy:
Website: https://www.kathysconsulting.com
Email: info@kathysconsulting.com

School of Life Book Collection:
https://www.theschooloflife.com

Contact Carole Blueweiss:
Website: caroleblueweiss.com
Email: clevpt@gmail.com

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Carole's Wisdom Shared: Movement and Aging Kathy Cocks, Dr. Carole Blueweiss 00:33:12 elderly, health, abelism, aging, movement, caretaker, hospital, parents, older, geriatric, disablity, awareness, caregiver, physical therapy, homecare, walking speed, wellness, senior false full 14 1 ad52c39e-7072-4a5b-9d9c-f2b05114ab64 Anorexia: A Father's Perspective EPISODE SUMMARY

Dr. Blueweiss speaks with Nafiz Cekirge, a father in central New Jersey who  speaks candidly about the impact that anorexia has had on his oldest daughter and on the family. There are a lot of unknowns to do with eating disorders and Nafiz helps us to understand the complexity of anorexia  and the importance of listening to your instincts if you suspect your child is struggling.

You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 13, Anorexia: A Father's Perspective", Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

Mentioned in this Episode

TREATMENTS & TREATMENT PROGRAMS

Family-Based Treatment

A type of therapy which involves all family members in treatment of the individual with the disorder. Currently considered the gold standard approach for addressing anorexia nervosa. Views food as medicine, and places responsibility for all meal decisions, shopping, and preparation with caretaker in early phases of this modality. 
https://www.feast-ed.org/what-is-family-based-treatment/

 

FAMILY THERAPIST

Amy Begel

https://www.amybegel.com/

 

ADOLESCENT MEDICINE EATING DISORDER SPECIALIST

Dr. Jennifer Northridge

https://doctors.hackensackmeridianhealth.org/provider/Jennifer+L.+Northridge/1317171

 

TREATMENT FACILITIES MENTIONED IN THIS EPISODE

Princeton Center for Eating Disorders at Penn Medicine

https://www.princetonhcs.org/care-services/center-for-eating-disorders-care

Hidden River, Chester NJ

https://hiddenriverhealing.com

 

LEVELS OF CARE

Inpatient: patient acutely ill, and requires medical stabilization.

Residential: highly structured live-in environment for medically stable patients; offers 24X7 support.

Partial Hospitalization (PHP): a step-down treatment-based day program; offers recovery-based therapies and support along with opportunities to practice recovery outside of program.

Intensive Outpatient (IOP): flexible treatment program; assumes patient is able to participate in school, work, and so on. Treatment team (therapist, nutritionist) providing regular support.

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 21 Nov 2021 05:05:00 +0000 clevpt@gmail.com (Nafiz Cekirge, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/anorexia1-dCzPWFKG EPISODE SUMMARY

Dr. Blueweiss speaks with Nafiz Cekirge, a father in central New Jersey who  speaks candidly about the impact that anorexia has had on his oldest daughter and on the family. There are a lot of unknowns to do with eating disorders and Nafiz helps us to understand the complexity of anorexia  and the importance of listening to your instincts if you suspect your child is struggling.

You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 13, Anorexia: A Father's Perspective", Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

Mentioned in this Episode

TREATMENTS & TREATMENT PROGRAMS

Family-Based Treatment

A type of therapy which involves all family members in treatment of the individual with the disorder. Currently considered the gold standard approach for addressing anorexia nervosa. Views food as medicine, and places responsibility for all meal decisions, shopping, and preparation with caretaker in early phases of this modality. 
https://www.feast-ed.org/what-is-family-based-treatment/

 

FAMILY THERAPIST

Amy Begel

https://www.amybegel.com/

 

ADOLESCENT MEDICINE EATING DISORDER SPECIALIST

Dr. Jennifer Northridge

https://doctors.hackensackmeridianhealth.org/provider/Jennifer+L.+Northridge/1317171

 

TREATMENT FACILITIES MENTIONED IN THIS EPISODE

Princeton Center for Eating Disorders at Penn Medicine

https://www.princetonhcs.org/care-services/center-for-eating-disorders-care

Hidden River, Chester NJ

https://hiddenriverhealing.com

 

LEVELS OF CARE

Inpatient: patient acutely ill, and requires medical stabilization.

Residential: highly structured live-in environment for medically stable patients; offers 24X7 support.

Partial Hospitalization (PHP): a step-down treatment-based day program; offers recovery-based therapies and support along with opportunities to practice recovery outside of program.

Intensive Outpatient (IOP): flexible treatment program; assumes patient is able to participate in school, work, and so on. Treatment team (therapist, nutritionist) providing regular support.

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Anorexia: A Father's Perspective Nafiz Cekirge, Dr. Carole Blueweiss 00:53:53 family, eating disorder, ed, mental health, arfid, anorexia, parents, recovery, behavioral health, psychiatric, therapy, fbt, ana, father, daughter, special needs, nutrition, teenager, ocd, food, anorexia nervosa, treatment false full 13 1 3015b5c9-0ef8-4cab-97db-2bc862506c42 Jewel and her Tribe FOLLOW IVANA
Facebook: @mauimovementlessons
LinkedIn: https://www.linkedin.com/in/ivana-gadient-8b21a536/

CONTACT VERENA
email: vera9nyc@yahoo.com


RESOURCES recommended by Ivana

"Wheelchairs are a HUGE conversation. It is best to create a trusted, knowledgable and openminded team that you hand pick to help you successfully seat your loved one"
https://aci.health.nsw.gov.au/networks/spinal-cord-injury/spinal-seating/module-6/wheelchair-seating-a-complex-puzzle


TALK TOOLS: for finding a therapist, and continuing education.
https://talktools.com
 

FEEDING MATTERS: Parent Support Network
"Feeding Matters is a great organization, started by two moms. They pursued chasing the CDC for a stand alone diagnosis and code called PFD pediatric feeding disorder. They dedicated five years to this and it came to pass this year. They have a lot of free resources and supports for parents."
https://www.feedingmatters.org
 

JABBERMOUTHS: Speech, Oral-Motor, and Feeding Therapy
"This is Jewel's latest SLP who is amazing!  I highly recommend Jenn, she is licensed in HI and AZ and does Zoom lessons. Highly skilled, highly educated, great instinct, grew up around disability and very comfortable around our families. She can teach premature babies to latch on to both breast and bottle!"
https://jabbermouths.com/

 

THERAPISTS AND THERAPIES in episode

ARLENE WARD is the owner of Genesis Rehabilitation Ltd., a vocational rehabilitation and disability management company based in Nanaimo, BC. Their goal is to keep workers at work. She is also an Adjunct Professor at the University of Northern BC Canada.
https://www.linkedin.com/in/arleneatgenesis/


JUDITH HEUMANN is an internationally recognized disability advocate who served in the Clinton and Obama Administration and was a Senior Fellow at the Ford Foundation.
https://judithheumann.com


KAREN ERICKSON, PH.D. is the Director of the Center for Literacy and Disability Studies, a Professor in the Division of Speech and Hearing Sciences, and the Yoder Distinguished Professor in the Department of Allied Health Sciences, School of Medicine at the University of North Carolina at Chapel Hill.
https://www.med.unc.edu/ahs/clds/directory/karen-erickson/


JENNIFER BUCK, MA, CCC-SLP, owner of Jabbermouths Therapy, is a licensed and certified Speech-Language Pathologist with over a decade of experience in working with individuals with disabilities. 
https://jabbermouths.com


NEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®)
Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.
Read more about the Nine Essentials:
https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials


HIPPOTHERAPY: an approach to physical therapy where the patient rides horses in order to address physical health.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5175116/


AYSO VIP: provides a quality soccer experience for individuals whose physical or mental disabilities.
https://ayso.org/play/vip/


PRODUCTS

KINDERPACK produces baby carriers that are small-batch made, exclusively in the USA in sizes to fit infants, toddlers, and even preschool sized children.
https://mykinderpack.com

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sat, 30 Oct 2021 04:00:00 +0000 clevpt@gmail.com (Ivana Gadient, Makena Gadient, Verena Kurz, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/jewel-rRHnmBVO FOLLOW IVANA
Facebook: @mauimovementlessons
LinkedIn: https://www.linkedin.com/in/ivana-gadient-8b21a536/

CONTACT VERENA
email: vera9nyc@yahoo.com


RESOURCES recommended by Ivana

"Wheelchairs are a HUGE conversation. It is best to create a trusted, knowledgable and openminded team that you hand pick to help you successfully seat your loved one"
https://aci.health.nsw.gov.au/networks/spinal-cord-injury/spinal-seating/module-6/wheelchair-seating-a-complex-puzzle


TALK TOOLS: for finding a therapist, and continuing education.
https://talktools.com
 

FEEDING MATTERS: Parent Support Network
"Feeding Matters is a great organization, started by two moms. They pursued chasing the CDC for a stand alone diagnosis and code called PFD pediatric feeding disorder. They dedicated five years to this and it came to pass this year. They have a lot of free resources and supports for parents."
https://www.feedingmatters.org
 

JABBERMOUTHS: Speech, Oral-Motor, and Feeding Therapy
"This is Jewel's latest SLP who is amazing!  I highly recommend Jenn, she is licensed in HI and AZ and does Zoom lessons. Highly skilled, highly educated, great instinct, grew up around disability and very comfortable around our families. She can teach premature babies to latch on to both breast and bottle!"
https://jabbermouths.com/

 

THERAPISTS AND THERAPIES in episode

ARLENE WARD is the owner of Genesis Rehabilitation Ltd., a vocational rehabilitation and disability management company based in Nanaimo, BC. Their goal is to keep workers at work. She is also an Adjunct Professor at the University of Northern BC Canada.
https://www.linkedin.com/in/arleneatgenesis/


JUDITH HEUMANN is an internationally recognized disability advocate who served in the Clinton and Obama Administration and was a Senior Fellow at the Ford Foundation.
https://judithheumann.com


KAREN ERICKSON, PH.D. is the Director of the Center for Literacy and Disability Studies, a Professor in the Division of Speech and Hearing Sciences, and the Yoder Distinguished Professor in the Department of Allied Health Sciences, School of Medicine at the University of North Carolina at Chapel Hill.
https://www.med.unc.edu/ahs/clds/directory/karen-erickson/


JENNIFER BUCK, MA, CCC-SLP, owner of Jabbermouths Therapy, is a licensed and certified Speech-Language Pathologist with over a decade of experience in working with individuals with disabilities. 
https://jabbermouths.com


NEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®)
Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.
Read more about the Nine Essentials:
https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials


HIPPOTHERAPY: an approach to physical therapy where the patient rides horses in order to address physical health.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5175116/


AYSO VIP: provides a quality soccer experience for individuals whose physical or mental disabilities.
https://ayso.org/play/vip/


PRODUCTS

KINDERPACK produces baby carriers that are small-batch made, exclusively in the USA in sizes to fit infants, toddlers, and even preschool sized children.
https://mykinderpack.com

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Jewel and her Tribe Ivana Gadient, Makena Gadient, Verena Kurz, Dr. Carole Blueweiss 01:04:05 Ivana Gadient is a poet, activist, and mother of three grown daughters: Makena, Raven, and Jewel. She is an Anat Baniel NeuroMovement®(ABM) practitioner who lives in Hawaii. In this episode, Dr. Carole Blueweiss is joined by Ivana and her eldest daughter Makena. Together, they share about life in Maui with Julianna, now 20 years old, who was born 3 months early, diagnosed with cerebral palsy, and lives a full life with her mother despite her challenges. Jewel's ABM Practitioner, Verena Kurz, is also a guest. She lives in Brooklyn, NY and was originally from Austria. She is also trained as an occupational therapist. The Gadient Girls, as they call themselves, are dreamers, writers, fighters, and lovers. Ivana homeschooled her daughters in Maui, HI. They spend summers together in the sun, talking about books with dragons, playing dolls, and baking good food. All of them are involved in the disability community in some way, all are artists, and all believe in inclusion and community support. Jewel would like to remind listeners of the furry Gadient Girl, Luna Psyche, who is a Maine Coon cat adored by all. Ivana Gadient is a poet, activist, and mother of three grown daughters: Makena, Raven, and Jewel. She is an Anat Baniel NeuroMovement®(ABM) practitioner who lives in Hawaii. In this episode, Dr. Carole Blueweiss is joined by Ivana and her eldest daughter Makena. Together, they share about life in Maui with Julianna, now 20 years old, who was born 3 months early, diagnosed with cerebral palsy, and lives a full life with her mother despite her challenges. Jewel's ABM Practitioner, Verena Kurz, is also a guest. She lives in Brooklyn, NY and was originally from Austria. She is also trained as an occupational therapist. The Gadient Girls, as they call themselves, are dreamers, writers, fighters, and lovers. Ivana homeschooled her daughters in Maui, HI. They spend summers together in the sun, talking about books with dragons, playing dolls, and baking good food. All of them are involved in the disability community in some way, all are artists, and all believe in inclusion and community support. Jewel would like to remind listeners of the furry Gadient Girl, Luna Psyche, who is a Maine Coon cat adored by all. community, disability, fixing, speech tehrapy, ability, connection, anat baniel, feeding, kinderpack, disablity, cerebral palsy, special needs, ayso, physical therapy, occupational therapy, wheelchair, hippotherapy, feldenkrais, advocacy, cp, neuromovement, maui, special education false full 12 1 5db479b3-f481-4067-bee7-e09d415e7a7d Anniversary Reflection Wisdom Shared NEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®)

Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.

Read more about the Nine Essentials:

https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials

 

THE PODCASTING WORKSHOP WITH SETH GODIN: how I learned to podcast!

https://akimbo.com/thepodcastingworkshop

 

 

 

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 17 Oct 2021 12:00:00 +0000 clevpt@gmail.com (Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/anniversary-reflection-wisdom-shared-2de5ckw4 NEUROMOVEMENT THERAPY: Anat Baniel and NeuroMovement® (ABMN®)

Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from 30+ years of experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.

Read more about the Nine Essentials:

https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials

 

THE PODCASTING WORKSHOP WITH SETH GODIN: how I learned to podcast!

https://akimbo.com/thepodcastingworkshop

 

 

 

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Anniversary Reflection Wisdom Shared Carole Blueweiss 00:03:56 In this Anniversary Mini-Episode, Dr. Carole Blueweiss reflects on her first year of producing her podcast, Wisdom Shared. Thanks for being with us on this ride. Thank you to all guests, and listeners and to those of you who have helped to make it possible . In this Anniversary Mini-Episode, Dr. Carole Blueweiss reflects on her first year of producing her podcast, Wisdom Shared. Thanks for being with us on this ride. Thank you to all guests, and listeners and to those of you who have helped to make it possible . false bonus 1 59f3d4e5-6341-4216-bfc0-f51a80b685b4 Type 1 Diabetes:Art & Science EPISODE SUMMARY

JoAnne Robb is a psychotherapist from Oakland, California, who counsels adults and parents of children with Type 1 Diabetes. She is a mother of three. Her oldest and youngest have diabetes and her middle child does not, although as you'll learn through our conversation, he is still very much impacted by the disease. In this episode, JoAnne shares first-hand knowledge and personal stories. We learn why managing  Type 1 Diabetes is as much an art as a science; why children and  teenagers have their own dynamics, how technology can be a double-edged sword when it comes to managing the disorder, and how support is available if you know where to look.  

JoAnne explains why Type 1 is a family disease and the importance of finding support and community. She speaks of the advantages and disadvantages  of different insulin delivery systems, the role food plays, the intense financial implications of managing Diabetes, and much more. 

Select Quotes

You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 11, JoAnne Robb, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

“When we first were diagnosed—you'll see that I'm using the word ‘we’; I think of [Type 1] as a family disease in a lot of ways, especially when kids are young. It's too much for the kids to carry by themselves.”

“When I thought about what would be hard for a kid around diabetes management, I would have thought of the shots and the needles and the pokes, but really what's hard is having this constant numbers game.”

“There's a lot of anxiety about being a parent of a kid with Type 1. And I feel like some of the information out there kind of heightens that anxiety. I feel like my contribution to this dialogue is to say, there's a way to do this more calmly.”

"Pump supplies are really expensive, CGM is really expensive, insulin is really expensive."

“How we approach [Type 1 Diabetes] emotionally truly makes a difference in our relationship to the disease…and ultimately in our children's relationship to the disease.”

"And the other thing that's been completely invaluable, which I could not pitch more strongly, is diabetes camp...we went to family camp and we gained a lot of community, but also a lot of information.

“Restricting food too much can have a mental health boomerang effect that you really don’t want.”

"This is not just a medical condition, even though it seems like it is, It's also an emotional condition...and a lowercase t trauma."

"I do think that the way that parents talk about this trauma of diabetes makes a difference in the child's relationship to the disease."

“Learning Diabetes is like drinking from a fire hose.”

“The Diabetes community in general is very generous about wanting to help each other because we all know exactly what we're going through.”

“My biggest piece of advice is that you will learn this and your child will be okay and you will be okay. And that doesn't mean everything will be good all the time, but this is survivable.”

Resources from this Episode

SUPPORT RESOURCES

CAMPS

LEARN MORE ABOUT THE HIGH PRICE OF INSULIN

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 1 Aug 2021 04:05:00 +0000 clevpt@gmail.com (JoAnne Robb, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/type1-diabetes-5uwFHFPV EPISODE SUMMARY

JoAnne Robb is a psychotherapist from Oakland, California, who counsels adults and parents of children with Type 1 Diabetes. She is a mother of three. Her oldest and youngest have diabetes and her middle child does not, although as you'll learn through our conversation, he is still very much impacted by the disease. In this episode, JoAnne shares first-hand knowledge and personal stories. We learn why managing  Type 1 Diabetes is as much an art as a science; why children and  teenagers have their own dynamics, how technology can be a double-edged sword when it comes to managing the disorder, and how support is available if you know where to look.  

JoAnne explains why Type 1 is a family disease and the importance of finding support and community. She speaks of the advantages and disadvantages  of different insulin delivery systems, the role food plays, the intense financial implications of managing Diabetes, and much more. 

Select Quotes

You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 11, JoAnne Robb, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

“When we first were diagnosed—you'll see that I'm using the word ‘we’; I think of [Type 1] as a family disease in a lot of ways, especially when kids are young. It's too much for the kids to carry by themselves.”

“When I thought about what would be hard for a kid around diabetes management, I would have thought of the shots and the needles and the pokes, but really what's hard is having this constant numbers game.”

“There's a lot of anxiety about being a parent of a kid with Type 1. And I feel like some of the information out there kind of heightens that anxiety. I feel like my contribution to this dialogue is to say, there's a way to do this more calmly.”

"Pump supplies are really expensive, CGM is really expensive, insulin is really expensive."

“How we approach [Type 1 Diabetes] emotionally truly makes a difference in our relationship to the disease…and ultimately in our children's relationship to the disease.”

"And the other thing that's been completely invaluable, which I could not pitch more strongly, is diabetes camp...we went to family camp and we gained a lot of community, but also a lot of information.

“Restricting food too much can have a mental health boomerang effect that you really don’t want.”

"This is not just a medical condition, even though it seems like it is, It's also an emotional condition...and a lowercase t trauma."

"I do think that the way that parents talk about this trauma of diabetes makes a difference in the child's relationship to the disease."

“Learning Diabetes is like drinking from a fire hose.”

“The Diabetes community in general is very generous about wanting to help each other because we all know exactly what we're going through.”

“My biggest piece of advice is that you will learn this and your child will be okay and you will be okay. And that doesn't mean everything will be good all the time, but this is survivable.”

Resources from this Episode

SUPPORT RESOURCES

CAMPS

LEARN MORE ABOUT THE HIGH PRICE OF INSULIN

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Type 1 Diabetes:Art & Science JoAnne Robb, Dr. Carole Blueweiss 00:58:41 health, cgm, carbohydrates, injection, diabetes, disease, diet, prick, pump, sugar, therapist, disorder, insulin, type 1, blood, blood sugar, eating, ketonic, pancreas, a1c false full 11 1 4b93b29d-9668-4afb-9c03-0f95765e8b06 Labels Schmabels: A Mom’s Take On Her Daughter’s Humanity Ariana Speyer is an experienced editor, writer, and copywriter turned Anat Baniel Method NeuroMovement® (ABMN®) practitioner. She lives in New York City with her husband Pat and their nine-year-old daughter, Calliope. In this episode, Ariana shares about life with Calliope, who has a rare genetic syndrome called Sturge Weber Syndrome, and how ABMN® has made a difference in their health and well-being. Ariana underscores that people are more multidimensional than their diagnosis, and reminds us how isolating it can be to live outside of society’s so-called norms. When you break it all down, we’re all seeking to belong and to be part of a welcoming community. Learn more about Ariana and her work at arianaspeyer.com.

You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 10, Ariana Speyer, Courtesy of Wisdom Shared Podcast with Carole Blueweiss._”

In my conversation with Ariana, we covered a lot of ground. Here are some of the highlights.

  1. Parenting a child with special needs in some ways prepared Ariana and her husband for the COVID-19 pandemic, “Because risk-benefit analysis is something we've been very used to doing since my daughter was very little, and that's something people are grappling with a lot of: Is this worth it? Does this make sense? Is the benefit worth the risk? You know, all of those questions we have to ask ourselves now all the time we were already pretty used to asking ourselves, like, is it worth it to have an MRI?”
  2. We discuss labels, and how the bureaucratic drive to quantify every special needs child is an ongoing challenge for parents. “If I were to talk about her as a human, as somebody that I love, I would say she's silly. She loves to dance. She's nine years old. She enjoys all kinds of music and hanging out with her grandparents and watching movies. If I was going to talk about her labels, I would say that she's non-ambulatory, non-verbal, and she has multiple disabilities.”
  3. Bedside manner isn’t something every doctor is trained in, but it can make all the difference. “Ideally, a doctor will come with a certain amount of positivity and kind of connectedness. That makes you feel safe and like you're working together collaboratively to figure out the next best thing.”
  4. The Anat Baniel Method, or ABM Method, provided a transformational, movement-based way of working with Calliope and a new career and community for Ariana. “From the very beginning, I just felt a visceral response to the ABM approach, which is so gentle. And so hard to describe—giving Calliope movement experiences that she wouldn't have on her own in a way that would develop her own potential.”
  5. In ABM, resting is part of learning. “Rest is so essential to how ABM operates in every movement lesson. There's so much resting and that's a time when you can kind of notice differences and noticing differences in our work is the fundamental unit of learning. So having intensive practice time, and then resting in between to see what happens with how the system takes that information in is an interesting model. And it's been shown to work pretty powerfully.”
  6. It’s hard not to compare your neurodiverse child’s development to “typical” children. “Every birthday was incredibly painful and the uncertainty felt more overwhelming than it does now. There's something to be said just for the passage of time and it not being so fresh, but…there's always going to be grief.”
  7. Having a community of other special needs parents can be really good medicine. “The support of that community is essential for mitigating or at least bonding over all of these challenges so that they feel less isolating and also less scary.”
  8. I always ask parents who I interview how they take care of themselves. For Ariana, it’s a combination: “ABM movement lessons saved my sanity and my body during the pandemic. I've become very dependent on them in a way that I hadn't anticipated would be possible. Going for walks has been another thing that I've found incredibly therapeutic. And then other than that, you know, trashy TV, ice cream, and beer.” 

TERMS, TREATMENT MODALITIES, and RESOURCES in this EPISODE

ARIANA SPEYER
https://www.arianaspeyer.com

ANAT BANIEL AND NEUROMOVEMENT®
https://www.anatbanielmethod.com

EMDR
https://www.emdr.com

EQUINE THERAPY
https://www.goodtherapy.org/learn-about-therapy/types/equine-assisted-therapy

FRUIT-EZE
https://www.fruiteze.com

MUSIC THERAPY
https://www.musictherapy.org

SUZANNE MORRIS, Speech Therapist, Virginia
https://www.new-vis.com 
 

STURGE-WEBER SYNDROME
https://rarediseases.info.nih.gov/diseases/7706/sturge-weber-syndrome

THE WORLD’S BIGGEST PIANO MAT by SMART PLANET
Search for this product online and purchase from your preferred retailer.
 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 27 Jun 2021 14:15:00 +0000 clevpt@gmail.com (Dr. Carole Blueweiss, Calliope Sullivan, Ariana Speyer, Patrick Sullivan) https://wisdom-shared.simplecast.com/episodes/labels-schmabels-lGOXAn8R Ariana Speyer is an experienced editor, writer, and copywriter turned Anat Baniel Method NeuroMovement® (ABMN®) practitioner. She lives in New York City with her husband Pat and their nine-year-old daughter, Calliope. In this episode, Ariana shares about life with Calliope, who has a rare genetic syndrome called Sturge Weber Syndrome, and how ABMN® has made a difference in their health and well-being. Ariana underscores that people are more multidimensional than their diagnosis, and reminds us how isolating it can be to live outside of society’s so-called norms. When you break it all down, we’re all seeking to belong and to be part of a welcoming community. Learn more about Ariana and her work at arianaspeyer.com.

You are welcome to share the wisdom from this episode. Please be sure to credit: “_Ep. 10, Ariana Speyer, Courtesy of Wisdom Shared Podcast with Carole Blueweiss._”

In my conversation with Ariana, we covered a lot of ground. Here are some of the highlights.

  1. Parenting a child with special needs in some ways prepared Ariana and her husband for the COVID-19 pandemic, “Because risk-benefit analysis is something we've been very used to doing since my daughter was very little, and that's something people are grappling with a lot of: Is this worth it? Does this make sense? Is the benefit worth the risk? You know, all of those questions we have to ask ourselves now all the time we were already pretty used to asking ourselves, like, is it worth it to have an MRI?”
  2. We discuss labels, and how the bureaucratic drive to quantify every special needs child is an ongoing challenge for parents. “If I were to talk about her as a human, as somebody that I love, I would say she's silly. She loves to dance. She's nine years old. She enjoys all kinds of music and hanging out with her grandparents and watching movies. If I was going to talk about her labels, I would say that she's non-ambulatory, non-verbal, and she has multiple disabilities.”
  3. Bedside manner isn’t something every doctor is trained in, but it can make all the difference. “Ideally, a doctor will come with a certain amount of positivity and kind of connectedness. That makes you feel safe and like you're working together collaboratively to figure out the next best thing.”
  4. The Anat Baniel Method, or ABM Method, provided a transformational, movement-based way of working with Calliope and a new career and community for Ariana. “From the very beginning, I just felt a visceral response to the ABM approach, which is so gentle. And so hard to describe—giving Calliope movement experiences that she wouldn't have on her own in a way that would develop her own potential.”
  5. In ABM, resting is part of learning. “Rest is so essential to how ABM operates in every movement lesson. There's so much resting and that's a time when you can kind of notice differences and noticing differences in our work is the fundamental unit of learning. So having intensive practice time, and then resting in between to see what happens with how the system takes that information in is an interesting model. And it's been shown to work pretty powerfully.”
  6. It’s hard not to compare your neurodiverse child’s development to “typical” children. “Every birthday was incredibly painful and the uncertainty felt more overwhelming than it does now. There's something to be said just for the passage of time and it not being so fresh, but…there's always going to be grief.”
  7. Having a community of other special needs parents can be really good medicine. “The support of that community is essential for mitigating or at least bonding over all of these challenges so that they feel less isolating and also less scary.”
  8. I always ask parents who I interview how they take care of themselves. For Ariana, it’s a combination: “ABM movement lessons saved my sanity and my body during the pandemic. I've become very dependent on them in a way that I hadn't anticipated would be possible. Going for walks has been another thing that I've found incredibly therapeutic. And then other than that, you know, trashy TV, ice cream, and beer.” 

TERMS, TREATMENT MODALITIES, and RESOURCES in this EPISODE

ARIANA SPEYER
https://www.arianaspeyer.com

ANAT BANIEL AND NEUROMOVEMENT®
https://www.anatbanielmethod.com

EMDR
https://www.emdr.com

EQUINE THERAPY
https://www.goodtherapy.org/learn-about-therapy/types/equine-assisted-therapy

FRUIT-EZE
https://www.fruiteze.com

MUSIC THERAPY
https://www.musictherapy.org

SUZANNE MORRIS, Speech Therapist, Virginia
https://www.new-vis.com 
 

STURGE-WEBER SYNDROME
https://rarediseases.info.nih.gov/diseases/7706/sturge-weber-syndrome

THE WORLD’S BIGGEST PIANO MAT by SMART PLANET
Search for this product online and purchase from your preferred retailer.
 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Labels Schmabels: A Mom’s Take On Her Daughter’s Humanity Dr. Carole Blueweiss, Calliope Sullivan, Ariana Speyer, Patrick Sullivan 00:52:13 kids, sturge-weber, anat baniel, parenting, special needs, abmn, neuromovement, labels true full 10 1 ab792282-e8af-41f0-a2b7-24e1fffe2cc4 The Gift Of Adversity: A Father’s CFS, His Daughter’s Dravet Syndrome RESOURCES MENTIONED IN THIS EPISODE

Dravet Syndrome (aka “severe myoclonic epilepsy of infancy”)
https://www.epilepsy.com/learn/types-epilepsy-syndromes/dravet-syndrome

https://www.dravetfoundation.org

Chronic Fatigue Recovery Program: ANS Rewire
https://ansrewire.com/

Simon’s Podcast: Turning the Tables
https://www.podpage.com/turning-the-tables/    

Simon’s website
https://www.brandwithsimon.com/


SIMON'S RECOMMENDED BOOKS

A New Earth by Ekhart Tolle

The Surrender Experiment by Michael A Singer


EXCERPTS FROM THE INTERVIEW
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 9, Simon Ratcliffe, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

It isn't a straight line to recovery from Chronic Fatigue Syndrome

We're in the middle of COVID right now. There are many people experiencing very different symptoms and no one has the answer.

To get through a chronic illness, you have to completely reframe what the idea of recovery is.

It takes a long time for your brain to recondition itself or retrain itself around positive thoughts.

Every time I had a negative thought, I would reframe it in my head.

It was clear that a developmental delay would mean that she would need in a special school.

Lot of kids with conditions have a lot of potential, but because of the resources needed to bring that out in a child, they end up settling for good average.

Education is more geared around helping with independence, which is fine, but a lot of children like Francesca will not be able to live an independent life. 

People with special needs, need  to be categorized as important as any other diverse group.

Recognize that the situation you are in, if you have a child with special needs, puts much greater pressure on you.

We need to see individuals not labels.

It took the chronic fatigue to enable me to completely re reboot my mental state, my life, my priorities, my thinking.

Why don't we live life with rose-tinted spectacles on? Why is it a good idea to be painfully realistic about everything?

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 23 May 2021 03:00:00 +0000 clevpt@gmail.com (Simon Ratcliffe, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/the-gift-of-adversity-Tc9hYp86 RESOURCES MENTIONED IN THIS EPISODE

Dravet Syndrome (aka “severe myoclonic epilepsy of infancy”)
https://www.epilepsy.com/learn/types-epilepsy-syndromes/dravet-syndrome

https://www.dravetfoundation.org

Chronic Fatigue Recovery Program: ANS Rewire
https://ansrewire.com/

Simon’s Podcast: Turning the Tables
https://www.podpage.com/turning-the-tables/    

Simon’s website
https://www.brandwithsimon.com/


SIMON'S RECOMMENDED BOOKS

A New Earth by Ekhart Tolle

The Surrender Experiment by Michael A Singer


EXCERPTS FROM THE INTERVIEW
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 9, Simon Ratcliffe, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

It isn't a straight line to recovery from Chronic Fatigue Syndrome

We're in the middle of COVID right now. There are many people experiencing very different symptoms and no one has the answer.

To get through a chronic illness, you have to completely reframe what the idea of recovery is.

It takes a long time for your brain to recondition itself or retrain itself around positive thoughts.

Every time I had a negative thought, I would reframe it in my head.

It was clear that a developmental delay would mean that she would need in a special school.

Lot of kids with conditions have a lot of potential, but because of the resources needed to bring that out in a child, they end up settling for good average.

Education is more geared around helping with independence, which is fine, but a lot of children like Francesca will not be able to live an independent life. 

People with special needs, need  to be categorized as important as any other diverse group.

Recognize that the situation you are in, if you have a child with special needs, puts much greater pressure on you.

We need to see individuals not labels.

It took the chronic fatigue to enable me to completely re reboot my mental state, my life, my priorities, my thinking.

Why don't we live life with rose-tinted spectacles on? Why is it a good idea to be painfully realistic about everything?

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> The Gift Of Adversity: A Father’s CFS, His Daughter’s Dravet Syndrome Simon Ratcliffe, Dr. Carole Blueweiss 00:41:51 In this episode, I had the privilege of speaking with Simon Ratcliffe—a former advertising executive, husband, father, and podcaster who lives in the UK with his wife and their three children. His podcast, “Turning the Tables,” offers candid and inspiring stories from people who have turned adversity into advantage. It was born out of Simon’s own life experiences, including a severely debilitating bout of Chronic Fatigue Syndrome, and his desire to help listeners find new purpose and fulfillment in life. Simon shares about life as a successful businessman and about parenting his 20-year old daughter Francesca who was diagnosed at age three with Dravet syndrome. Since then, Francesca has taught him so much—from how greeting people with warmth opens the heart, to how unconventional approaches can lead to amazing outcomes. And his own bout and recovery from Chronic Fatigue has given him tremendous insight into—and compassion for—the experience of adversity and the possibility for transformation that it unlocks. I ran into some adversity myself when I had to rely on the backup audio when putting together this episode. Sometimes wisdom can be found amidst the messy reality. That’s certainly true for this episode, because this story was meant to be told. In this episode, I had the privilege of speaking with Simon Ratcliffe—a former advertising executive, husband, father, and podcaster who lives in the UK with his wife and their three children. His podcast, “Turning the Tables,” offers candid and inspiring stories from people who have turned adversity into advantage. It was born out of Simon’s own life experiences, including a severely debilitating bout of Chronic Fatigue Syndrome, and his desire to help listeners find new purpose and fulfillment in life. Simon shares about life as a successful businessman and about parenting his 20-year old daughter Francesca who was diagnosed at age three with Dravet syndrome. Since then, Francesca has taught him so much—from how greeting people with warmth opens the heart, to how unconventional approaches can lead to amazing outcomes. And his own bout and recovery from Chronic Fatigue has given him tremendous insight into—and compassion for—the experience of adversity and the possibility for transformation that it unlocks. I ran into some adversity myself when I had to rely on the backup audio when putting together this episode. Sometimes wisdom can be found amidst the messy reality. That’s certainly true for this episode, because this story was meant to be told. overcome, seizure, mindfulness, epilepsy, reframe, infant, chronic fatigue syndrome, adversity, dravet, diversity, brain training, illness, special needs, wisdom, education, advertising, special education false full 9 1 2ad46c54-5b41-4b03-849f-0488b954347a Hidden Rituals: Living with OCD Rosemary Bushey currently lives in New Hampshire with her husband and two daughters, Lauren 16 and Amelia 13. She is a 49-year-old runner, coach, and vegan Instagram influencer. Rosemary was born in Columbia, South America and has lived in New York for most of her life. She is currently completing a master’s degree to work as a bilingual Clinical Mental Health Counselor. She is pursuing this degree because her older daughter was diagnosed with Obsessive-Compulsive Disorder (OCD) at age 14. Rosemary has always been passionate about food, fitness, and the body/mind connection. Two years ago, she adopted a vegan lifestyle, and is avidly exploring the connection between mental health and nutrition. She shares vegan recipes and gorgeous photos of the food she has prepared on her Instagram page, @simplyveggielicious. Lauren loves to write, draw, and sing.

https://www.instagram.com/simplyveggielicious/

Song credit: "idontwannabeyouanymore" by Billie Eilish, sung by Lauren Bushey

 

RESOURCES MENTIONED IN THIS EPISODE

FOUNDATIONS

International OCD Foundation
https://iocdf.org

 

TREATMENT FACILITIES

Bradley Hospital
https://www.lifespan.org/centers-services/intensive-program-obsessive-compulsive-disorder

 

Rogers Hospital
https://rogersbh.org

 

McLean Hospital 
https://www.mcleanhospital.org

 

HOUSING FOR FAMILIES

Ronald McDonald House
https://www.rmhc.org

 

APPROACHES

Integrative Medicine

 

Cognitive Behavioral Therapy

 

Exposure Therapy

 

EXCERPTS FROM THE INTERVIEW
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 8, Rosemary Bushey, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.

 

QUOTES FROM LAUREN:

I always struggled with my OCD, so I always knew something was wrong, but it was so normal for me that I was kind of used to it 

OCD feeds off of stress. So whenever I'm stressed out about something, the OCD just gets much worse.

I always had urges to ritualize. And when I felt uncomfortable, I'd have to fix things a certain way.

I had these fears of my family dying. If I didn't move something a certain way in my room, I couldn't leave my room until I fixed everything a certain way, which took a while. 

For the kids that are struggling with this, you know, trust your parents, they're trying to help you 

You have to help yourself and you have to work towards bettering yourself and you can't give up.

Stop refusing to take other people's help. I was refusing to take my medicine because I was too scared. Even the smallest steps can make such a big difference. You have to think of the future you want for yourself. You have to think about how it's going to help you in the end. It might hurt now, but push yourself.

It gives you more power over your mental illness by feeling free to talk about it with other people, like to be able to learn about it and inform others about it, and really just know everything about what you're going through.

I feel like the foods that are in the vegan cuisine are much better for your mental health.

 

QUOTES FROM ROSEMARY:

When she was diagnosed with OCD, I had to jump through so many hoops in order to find help.

A lot of her OCD started manifesting in the way her shoes needed to be in certain way.

We had no clue that we were dealing with OCD… it was exhausting.

She would come home and do homework for hours and hours in a way that wasn't normal. She kept erasing. If a letter wasn't completely perfect, she had to erase it and do it again. 

I kept seeing the compulsions but I didn't see the obsessions. The obsessions were hidden.

As parents, the most difficult thing we had to deal with was feeling guilty. The feeling of guilt because I kept saying, “Oh my God, how could I ignore the signs?” I knew they were there, but she was functional. And all her doctors said, “there's no way you could have known. There's no way anybody could have known she had OCD,” but I kept blaming myself and saying, “Oh my God, I wish I would have found help before.”

She was looking for me to repeat the same phrase in the same tone of voice exactly the same way I said it before. There were times that she needed to repeat or make me repeat things three times or five times.

There was no way anybody could communicate with her. There was no conversation, no communication. 

She couldn't dress herself. She couldn't choose what to put on. She was overwhelmed by choosing what to wear. And then it got to a point where she couldn't help herself dress. She would be very stiff and we would have to dress her, but she couldn't help. She would scream and get into a panic and anxiety because she wanted her pants put on a certain way. But she couldn't move her legs. She had to be stiff. It was extremely weird, bizarre behavior. Then she couldn't brush her teeth because she wasn't supposed to move her arm.

For Hispanic people, it is a huge stigma mental illness. They don't talk about mental illness. In this country too, there's a lot of stigma related to mental illness.

Last year, I put her basically on a plant-based diet and its helping her and she feels better. She feels good about what she's putting in her body.

She is so mature and so knowledgeable about her disorder. It really makes me proud.

My beliefs were aligned with my nutrition, with my choices. 

As a parent, and I could say to any parent, we are the best advocates for our children. 

Just knowing other parents are going through the same or similar situations can be very comforting and can help a lot.

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Mon, 26 Apr 2021 03:45:41 +0000 clevpt@gmail.com (Rosemary Bushey, Lauren Bushey, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/hidden-rituals-Hgk6ucvG Rosemary Bushey currently lives in New Hampshire with her husband and two daughters, Lauren 16 and Amelia 13. She is a 49-year-old runner, coach, and vegan Instagram influencer. Rosemary was born in Columbia, South America and has lived in New York for most of her life. She is currently completing a master’s degree to work as a bilingual Clinical Mental Health Counselor. She is pursuing this degree because her older daughter was diagnosed with Obsessive-Compulsive Disorder (OCD) at age 14. Rosemary has always been passionate about food, fitness, and the body/mind connection. Two years ago, she adopted a vegan lifestyle, and is avidly exploring the connection between mental health and nutrition. She shares vegan recipes and gorgeous photos of the food she has prepared on her Instagram page, @simplyveggielicious. Lauren loves to write, draw, and sing.

https://www.instagram.com/simplyveggielicious/

Song credit: "idontwannabeyouanymore" by Billie Eilish, sung by Lauren Bushey

 

RESOURCES MENTIONED IN THIS EPISODE

FOUNDATIONS

International OCD Foundation
https://iocdf.org

 

TREATMENT FACILITIES

Bradley Hospital
https://www.lifespan.org/centers-services/intensive-program-obsessive-compulsive-disorder

 

Rogers Hospital
https://rogersbh.org

 

McLean Hospital 
https://www.mcleanhospital.org

 

HOUSING FOR FAMILIES

Ronald McDonald House
https://www.rmhc.org

 

APPROACHES

Integrative Medicine

 

Cognitive Behavioral Therapy

 

Exposure Therapy

 

EXCERPTS FROM THE INTERVIEW
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 8, Rosemary Bushey, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.

 

QUOTES FROM LAUREN:

I always struggled with my OCD, so I always knew something was wrong, but it was so normal for me that I was kind of used to it 

OCD feeds off of stress. So whenever I'm stressed out about something, the OCD just gets much worse.

I always had urges to ritualize. And when I felt uncomfortable, I'd have to fix things a certain way.

I had these fears of my family dying. If I didn't move something a certain way in my room, I couldn't leave my room until I fixed everything a certain way, which took a while. 

For the kids that are struggling with this, you know, trust your parents, they're trying to help you 

You have to help yourself and you have to work towards bettering yourself and you can't give up.

Stop refusing to take other people's help. I was refusing to take my medicine because I was too scared. Even the smallest steps can make such a big difference. You have to think of the future you want for yourself. You have to think about how it's going to help you in the end. It might hurt now, but push yourself.

It gives you more power over your mental illness by feeling free to talk about it with other people, like to be able to learn about it and inform others about it, and really just know everything about what you're going through.

I feel like the foods that are in the vegan cuisine are much better for your mental health.

 

QUOTES FROM ROSEMARY:

When she was diagnosed with OCD, I had to jump through so many hoops in order to find help.

A lot of her OCD started manifesting in the way her shoes needed to be in certain way.

We had no clue that we were dealing with OCD… it was exhausting.

She would come home and do homework for hours and hours in a way that wasn't normal. She kept erasing. If a letter wasn't completely perfect, she had to erase it and do it again. 

I kept seeing the compulsions but I didn't see the obsessions. The obsessions were hidden.

As parents, the most difficult thing we had to deal with was feeling guilty. The feeling of guilt because I kept saying, “Oh my God, how could I ignore the signs?” I knew they were there, but she was functional. And all her doctors said, “there's no way you could have known. There's no way anybody could have known she had OCD,” but I kept blaming myself and saying, “Oh my God, I wish I would have found help before.”

She was looking for me to repeat the same phrase in the same tone of voice exactly the same way I said it before. There were times that she needed to repeat or make me repeat things three times or five times.

There was no way anybody could communicate with her. There was no conversation, no communication. 

She couldn't dress herself. She couldn't choose what to put on. She was overwhelmed by choosing what to wear. And then it got to a point where she couldn't help herself dress. She would be very stiff and we would have to dress her, but she couldn't help. She would scream and get into a panic and anxiety because she wanted her pants put on a certain way. But she couldn't move her legs. She had to be stiff. It was extremely weird, bizarre behavior. Then she couldn't brush her teeth because she wasn't supposed to move her arm.

For Hispanic people, it is a huge stigma mental illness. They don't talk about mental illness. In this country too, there's a lot of stigma related to mental illness.

Last year, I put her basically on a plant-based diet and its helping her and she feels better. She feels good about what she's putting in her body.

She is so mature and so knowledgeable about her disorder. It really makes me proud.

My beliefs were aligned with my nutrition, with my choices. 

As a parent, and I could say to any parent, we are the best advocates for our children. 

Just knowing other parents are going through the same or similar situations can be very comforting and can help a lot.

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Hidden Rituals: Living with OCD Rosemary Bushey, Lauren Bushey, Dr. Carole Blueweiss 00:50:23 In Episode 8 of Wisdom Shared, I sit down with my friend, Rosemary Bushey, and her 15-year-old daughter Lauren who was diagnosed with a mental illness in 2018. Signs and symptoms appeared much earlier but Rosemary and her husband assumed it was typical teenage defiance. It was only after witnessing a decline in grades, unusual behaviors and what they refer to as The Crisis that led to Lauren’s hospitalization, that they finally received a diagnosis of Obsessive-Compulsive Disorder (OCD). A staunch advocate for her daughter and removing the stigma around mental illness, Rosemary is currently getting her master’s in Clinical Mental Health Counseling. In this episode, she shares some of the behaviors and activities Lauren engaged in, how the family responded, her guilt over not recognizing the patterns sooner, and how she and other parents can advocate for their children and take care of themselves. Lauren speaks openly about what it’s like to be diagnosed with OCD, and she offers up her wisdom to other kids and parents and emphasizes how important it is to talk about what’s going on and not to be ashamed. In Episode 8 of Wisdom Shared, I sit down with my friend, Rosemary Bushey, and her 15-year-old daughter Lauren who was diagnosed with a mental illness in 2018. Signs and symptoms appeared much earlier but Rosemary and her husband assumed it was typical teenage defiance. It was only after witnessing a decline in grades, unusual behaviors and what they refer to as The Crisis that led to Lauren’s hospitalization, that they finally received a diagnosis of Obsessive-Compulsive Disorder (OCD). A staunch advocate for her daughter and removing the stigma around mental illness, Rosemary is currently getting her master’s in Clinical Mental Health Counseling. In this episode, she shares some of the behaviors and activities Lauren engaged in, how the family responded, her guilt over not recognizing the patterns sooner, and how she and other parents can advocate for their children and take care of themselves. Lauren speaks openly about what it’s like to be diagnosed with OCD, and she offers up her wisdom to other kids and parents and emphasizes how important it is to talk about what’s going on and not to be ashamed. vegan, mental illness, compulsive, obsessive, integrative, teen, nutrition, ocd, exposure, cognitive behavioral therapy, wellness false full 8 1 6ea1f069-be67-47ae-a4a3-7b3c4849c588 I am Free Now ABOUT BERIL TOKCAN
After studying graphic design in Milan and visual communication in Sydney respectively, Beril Tokcan returned to her homeland Turkey in 2003 and founded her design studio in Istanbul.

She came across the Anat Baniel Method® NeuroMovement (ABMNM) in 2012, while in search for a method to help her son, who was diagnosed with PVL /CP due to premature birth.

She completed the ABMNM Professional Training in 2015 and consecutively all the ABMNM Mastery Programs (for Children with Special Needs, for Vitality and Anti-Aging, and for High Performers). She also completed Kids Yoga, Yoga Therapy and Jeremy Krauss Approach trainings and participates in the ABMNM Professional Trainings as an assistant.

She works with children and adults at her practise in Istanbul, offering private lessons, group classes and workshops, with the mission of transforming the impossible into possibie and making positive changes in people’s lives.

Beril is the author of ‘I Am Free Now’.

www.beriltokcan.com

Instagram: beriltokcan
@devinim

Anat Baniel Method® NeuroMovement® Practitioner
www.beriltokcan.com
www.devinim.ist
 

RECOMMENDED RESOURCES
(list compiled by Beril)

BOOKS

Awareness Through Movement,  Moshe Feldenkrais

Hardwiring Happiness, Rick Hanson

Hold Onto Your Kids, Dr.Gordon Neufold & Dr.Gabor Maté

Kids Beyond Limits, Anat Baniel

Move Into Lİfe, Anat Baniel

Parenting from the Inside Out, Daniel Siegel and Mary Hartzell

Positive Discipline for Children with Special Needs, Jane Elsen, Steven Foster & Arlene Raphael

Rising Strong, Brené Brown

Soft Wired, Michael Merzenich

The Brain That Changes Itself, Norman Doidge

The Brain’s Way of Healing, Norman Doidge

The Whole Brain Child, Daniel Siege and Tina Payne Bryson

Train Your Mind, Change Your Brain, Sharon Begley

Trauma-Proofing Your Kids, Peter A.Levine, Maggie Kline

 

HEALTHCARE PRACTITONERS

Dr.Paul Jordan
drjordan@drpauljordan.net
https://drpauljordan.godaddysites.com/

Dr.Roy Nuzzo 
Overlook Hospital, Summit NJ
973-306-9388
video.popc@gmail.com

Dr.Joseph C. D’Amico
212-757-6440
Info@drjosephcdamico.com

SPML
http://www.podopediatrics.net/spml
Facebook Group: SPML - Selective Percutaneous Myofascial Lengthening

Anat Baniel
415-847-1311
scheduling@anatbanielmethod.com

Judith Dack
judithdack@uptownstudio.ca
416-481-2381

Beril Tokcan
www.beriltokcan.com
Instagram: beriltokcan

EXCERPTS FROM THE INTERVIEW
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 7, Beril Tokcan, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

You have all these dreams about what's next in your life.. ... suddenly it's all washed away and you're left with a big unknown.

The gap was getting larger and larger every day. Our doctors kept telling me .... “They were born prematurely. We should wait a little more.”

There's that motherly instinct saying, “something is wrong,” but you're hoping it's all fine because the doctor is saying it's all fine.

There should be a more humane way to connect with him and see where he's at and to help him get to the next step, not go 50 steps ahead. I had no idea what it could be, but I knew there should be a way so that’s when I started doing my research,

I had no idea how much movement has influence on the brain's potential to learn and change it.

It[ABMN] works in different ways with each child because each brain is unique.

I was feeling very alone and isolated. I thought no one got what I was going through. I built these big walls around me and I just wanted to be inside with the two kids I just didn't want to have anything to do with the outside world.

I started to see a psychologist. And one of the things that she told me really struck me. She said, “You have to put the oxygen mask to yourself first,” which I found out to be very true. 

I said out loud that I have a child with special needs. And that was the breaking point for me because before that, you know, of course I have a special needs child, but I couldn't verbalize it. 

The ABM training was wonderful because you could look into each other's eye and understand each other and feel each other without, without needing for words, it was such a safe place to be. 

I went to the[ABMN] training to learn the tools to help my son and other children, but I had no idea how much it would change me as a person. 

We need to see where the child is and offer different ways for him to figure out how to get to the next step.

He's a child with confidence and determination and motivation because he figured things out for himself. And by me slowing down and by me connecting with him and by me giving him the space, he figured things out.

At one point he left his walker and started taking steps. And there was more fluidity in his walk and he opened up his arms and he said, “I'm free now.”

When he was diagnosed, we went to see a couple of neurologists and all of them basically gave similar answers of what he will never be able to do in life. 

How come they can speak so firmly about things that my son will never be able to do in life? He's only one year old. It's just that motherly instinct saying, I'm going to do everything in my power to help him improve his potential.

Sports has been a part of our journey, a big part of our journey because that's where he likes to challenge himself and wants to play together with his friends. And I see that as the best therapy.

Trust your intuition in whichever path you want to take. And do a lot of research. Not everything will be useful for your child, but find your own rhythm and pace and what works for you. Don’t wait for answers to come to you.

No one has a magic wand. It's a long process and it can be hard. But it can also be joyful and fun. Just embrace it all and take care of yourself. I wish I had started taking care of myself and helping me heal earlier. 

Find parents that are going through similar journey and process because you do need someone to walk this path with. 

I don't believe in labels and I don't think we need words like special or unique or extraordinary. I think each child is unique and special and extraordinary..... By labeling them, you're pushing them outside of the circle. 

Be open enough to listen, but then listen to your intuition and let that be the guide in your decision-making process. 

The most important thing is that the child can learn and if they can learn, they can always learn more. 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sat, 6 Mar 2021 20:00:00 +0000 clevpt@gmail.com (Dr. Carole Blueweiss, Beril Tokcan) https://wisdom-shared.simplecast.com/episodes/i-am-free-now-bxt74nI7 ABOUT BERIL TOKCAN
After studying graphic design in Milan and visual communication in Sydney respectively, Beril Tokcan returned to her homeland Turkey in 2003 and founded her design studio in Istanbul.

She came across the Anat Baniel Method® NeuroMovement (ABMNM) in 2012, while in search for a method to help her son, who was diagnosed with PVL /CP due to premature birth.

She completed the ABMNM Professional Training in 2015 and consecutively all the ABMNM Mastery Programs (for Children with Special Needs, for Vitality and Anti-Aging, and for High Performers). She also completed Kids Yoga, Yoga Therapy and Jeremy Krauss Approach trainings and participates in the ABMNM Professional Trainings as an assistant.

She works with children and adults at her practise in Istanbul, offering private lessons, group classes and workshops, with the mission of transforming the impossible into possibie and making positive changes in people’s lives.

Beril is the author of ‘I Am Free Now’.

www.beriltokcan.com

Instagram: beriltokcan
@devinim

Anat Baniel Method® NeuroMovement® Practitioner
www.beriltokcan.com
www.devinim.ist
 

RECOMMENDED RESOURCES
(list compiled by Beril)

BOOKS

Awareness Through Movement,  Moshe Feldenkrais

Hardwiring Happiness, Rick Hanson

Hold Onto Your Kids, Dr.Gordon Neufold & Dr.Gabor Maté

Kids Beyond Limits, Anat Baniel

Move Into Lİfe, Anat Baniel

Parenting from the Inside Out, Daniel Siegel and Mary Hartzell

Positive Discipline for Children with Special Needs, Jane Elsen, Steven Foster & Arlene Raphael

Rising Strong, Brené Brown

Soft Wired, Michael Merzenich

The Brain That Changes Itself, Norman Doidge

The Brain’s Way of Healing, Norman Doidge

The Whole Brain Child, Daniel Siege and Tina Payne Bryson

Train Your Mind, Change Your Brain, Sharon Begley

Trauma-Proofing Your Kids, Peter A.Levine, Maggie Kline

 

HEALTHCARE PRACTITONERS

Dr.Paul Jordan
drjordan@drpauljordan.net
https://drpauljordan.godaddysites.com/

Dr.Roy Nuzzo 
Overlook Hospital, Summit NJ
973-306-9388
video.popc@gmail.com

Dr.Joseph C. D’Amico
212-757-6440
Info@drjosephcdamico.com

SPML
http://www.podopediatrics.net/spml
Facebook Group: SPML - Selective Percutaneous Myofascial Lengthening

Anat Baniel
415-847-1311
scheduling@anatbanielmethod.com

Judith Dack
judithdack@uptownstudio.ca
416-481-2381

Beril Tokcan
www.beriltokcan.com
Instagram: beriltokcan

EXCERPTS FROM THE INTERVIEW
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 7, Beril Tokcan, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

You have all these dreams about what's next in your life.. ... suddenly it's all washed away and you're left with a big unknown.

The gap was getting larger and larger every day. Our doctors kept telling me .... “They were born prematurely. We should wait a little more.”

There's that motherly instinct saying, “something is wrong,” but you're hoping it's all fine because the doctor is saying it's all fine.

There should be a more humane way to connect with him and see where he's at and to help him get to the next step, not go 50 steps ahead. I had no idea what it could be, but I knew there should be a way so that’s when I started doing my research,

I had no idea how much movement has influence on the brain's potential to learn and change it.

It[ABMN] works in different ways with each child because each brain is unique.

I was feeling very alone and isolated. I thought no one got what I was going through. I built these big walls around me and I just wanted to be inside with the two kids I just didn't want to have anything to do with the outside world.

I started to see a psychologist. And one of the things that she told me really struck me. She said, “You have to put the oxygen mask to yourself first,” which I found out to be very true. 

I said out loud that I have a child with special needs. And that was the breaking point for me because before that, you know, of course I have a special needs child, but I couldn't verbalize it. 

The ABM training was wonderful because you could look into each other's eye and understand each other and feel each other without, without needing for words, it was such a safe place to be. 

I went to the[ABMN] training to learn the tools to help my son and other children, but I had no idea how much it would change me as a person. 

We need to see where the child is and offer different ways for him to figure out how to get to the next step.

He's a child with confidence and determination and motivation because he figured things out for himself. And by me slowing down and by me connecting with him and by me giving him the space, he figured things out.

At one point he left his walker and started taking steps. And there was more fluidity in his walk and he opened up his arms and he said, “I'm free now.”

When he was diagnosed, we went to see a couple of neurologists and all of them basically gave similar answers of what he will never be able to do in life. 

How come they can speak so firmly about things that my son will never be able to do in life? He's only one year old. It's just that motherly instinct saying, I'm going to do everything in my power to help him improve his potential.

Sports has been a part of our journey, a big part of our journey because that's where he likes to challenge himself and wants to play together with his friends. And I see that as the best therapy.

Trust your intuition in whichever path you want to take. And do a lot of research. Not everything will be useful for your child, but find your own rhythm and pace and what works for you. Don’t wait for answers to come to you.

No one has a magic wand. It's a long process and it can be hard. But it can also be joyful and fun. Just embrace it all and take care of yourself. I wish I had started taking care of myself and helping me heal earlier. 

Find parents that are going through similar journey and process because you do need someone to walk this path with. 

I don't believe in labels and I don't think we need words like special or unique or extraordinary. I think each child is unique and special and extraordinary..... By labeling them, you're pushing them outside of the circle. 

Be open enough to listen, but then listen to your intuition and let that be the guide in your decision-making process. 

The most important thing is that the child can learn and if they can learn, they can always learn more. 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> I am Free Now Dr. Carole Blueweiss, Beril Tokcan 00:55:35 Beril Tokcan was a designer in Italy before moving back to Turkey to raise her family. Sooner than expected, she gave birth to twins, Emre and Denise. They spent the first five weeks in the neonatal intensive care unit while Beril, a single mother, traveled back and forth from her home multiple times a day to be with them. And when at 13 months Emre was diagnosed with Cerebral Palsy and she told by two doctors that he would never walk or talk, Beril decided to take matters into her own hands. The one method she intuitively felt would allow Emre to reach his potential, The Anat Baniel Method of Neuromovement, was not available in Turkey so she traveled to Canada. After seeing profound changes in her son, she decided to become a certified ABMN practitioner. Once Beril was certified, she returned to Turkey and opened up a clinic in Istanbul. Practitioners come from all over the world to work in her clinic, helping families from all over Turkey. Beril is one of the most determined, passionate, honest, and articulate women I have ever met.She describes how she guided Emre's teachers to give her son agency. She insisted that Emre learn to stand up for himself when bullied, to follow his passions, and to believe in himself. He recently earned his brown belt in judo. Beril wrote a book (soon to be published in the United States) called "I Am Free Now," something Emre said while in Barnes and Noble after receiving an ABMN lesson. Beril Tokcan was a designer in Italy before moving back to Turkey to raise her family. Sooner than expected, she gave birth to twins, Emre and Denise. They spent the first five weeks in the neonatal intensive care unit while Beril, a single mother, traveled back and forth from her home multiple times a day to be with them. And when at 13 months Emre was diagnosed with Cerebral Palsy and she told by two doctors that he would never walk or talk, Beril decided to take matters into her own hands. The one method she intuitively felt would allow Emre to reach his potential, The Anat Baniel Method of Neuromovement, was not available in Turkey so she traveled to Canada. After seeing profound changes in her son, she decided to become a certified ABMN practitioner. Once Beril was certified, she returned to Turkey and opened up a clinic in Istanbul. Practitioners come from all over the world to work in her clinic, helping families from all over Turkey. Beril is one of the most determined, passionate, honest, and articulate women I have ever met.She describes how she guided Emre's teachers to give her son agency. She insisted that Emre learn to stand up for himself when bullied, to follow his passions, and to believe in himself. He recently earned his brown belt in judo. Beril wrote a book (soon to be published in the United States) called "I Am Free Now," something Emre said while in Barnes and Noble after receiving an ABMN lesson. abm, the feldenkrais method, anat baniel method, prematurity, parents, pvl, cerebral palsy, hope, special needs, psychodrama, physical therapy, periventricular leukomalacia, judo, abmn, cp, neuromovement, learning false full 7 1 74ab5833-b85c-4c39-9387-1cf661e59897 Jill Bolte Taylor: Energy Beings You can follow Dr. Jill on Twitter 
@drjbt

Visit Dr. Jill Bolte Taylor's website
http://drjilltaylor.com

Dr. Jill's Ted Talk, "My Stroke of Insight"
https://www.ted.com/talks/jill_bolte_taylor_my_stroke_of_insight

The Harvard Brain Bank
https://hbtrc.mclean.harvard.edu

Fifty Trillion Molecular Geniuses Musical Composition
Cecelia Chorus of NY commissioned The Brothers Balliett for a musical composition, Fifty Trillion Molecular Geniuses, with texts drawn from Dr. Jill Bolte Taylor’s book and TED Talk My Stroke of Insight. The piece was performed at Carnegie Hall on Dr. Jill's 60th birthday.

Read more: https://ceciliachorusny.org/updates-contact/brad-doug-balliett-composing-fifty-trillion-molecular-geniuses

Moshe Feldenkrais and The Feldenkrais Method®
The Feldenkrais Method® of somatic education was developed by Dr. Moshe Feldenkrais. It is a powerful  approach to improving life that uses gentle, mindful movement to bring new awareness and possibility into every aspect. The Feldenkrais Method is based on principles of physics, biomechanics, and an empirical understanding of learning and human development.Since how you move is how you move through life, these improvements will often enhance your thinking, emotional regulation, and problem-solving capabilities. Read more: https://feldenkrais.com

Anat Baniel and NeuroMovement®
Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from  30+ years of  experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.

The Nine Essentials
Essential 1 – Movement with Attention; Wake up to Life
Essential 2 – Slow; Luxuriate in the Richness of Feeling
Essential 3 – Variation; Enjoy Abundant Possibilities
Essential 4 – Subtlety; Experience the Power of Gentleness
Essential 5 – Enthusiasm; Turn the Small into the Great
Essential 6 – Flexible Goals; Make the Impossible Possible
Essential 7 – The Learning Switch; Bring in the New
Essential 8 – Imagination & Dreams; Create your Life
Essential 9 – Awareness; Thrive with True Knowledge

Read more about the Nine Essentials: 
https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials

Recommended Reading:

My Stroke of Insight by Dr. Jill Bolte Taylor

Whole Brain Living by Dr. Jill Bolte Taylor (Available May 2021, published by Hay House)

The Feldenkrais Method by Staffan Elgelid, Chrish Kresge, with forward by Jerry Karzen, this book includes  perspective from 26 leaders and experts in the Feldenkrais field. It explains the importance of learning through movement with the brain’s attention as a means for physical and cognitive improvement and transformation. (Available May, 2021, published by Handspring.) Pre-order at feldenkraismovementbook.com to receive 10% off and free shipping in the US/UK. 

Awareness Through Movement by Moshe Feldenkrais

The Potent Self by Moshe Feldenkrais

Kids Beyond Limits by Anat Baniel

_______________________________
Notable Quotes from This Episode
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 6, Dr. Jill Bolte Taylor, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

"How does our brain create our perception of reality?"

"I could not walk, talk, read, write, or recall any of my life. I became a complete infant in a woman’s body. I was minutes from death."

"I knew nothing. I had no information in my left brain… I had no perception of my past. I was isolated completely in the present moment. It took eight years to recover all function of my left brain."

"I was nothing but a breathing body in a bed. That’s how my mother described me."

"I don’t use the term “victim” because I survived that day. I prefer that instead of calling people stroke victims—the victims died, the survivors survive—I encourage people to call us stroke survivors. It makes a difference. Words have power."

"If you’re going to be a good teacher, you have to go to the level of the student."

"When I experienced the stroke, I had incredible right brain ability. I was completely turned on to body language, physical language—all kinds of gifts of the right brain—far beyond the normal person. I could tell in an instant if someone was telling the truth or telling a lie, because the cells that could distract me from being able to tell that someone was telling a lie were turned off."

"I was very blessed. And this is one of the greatest gifts Gigi gave me. From day to day, I couldn’t remember yesterday or the day before because all I had was the present moment. She kept reminding me of what I couldn’t do yesterday. She was enthusiastic about my ability to get better."

"Every step is a celebration. I had to stay focused on what I could do, not on what I couldn’t do. So much of our society focuses on the disability. Let’s focus on and enthusiastically say YAY to what’s working, and then 'what’s the next thing I can learn?'"

 

WISDOM SHARED PRODUCTION TEAM:
Produced by: Dr. Carole Blueweiss
Audio Engineering: Keith Pyatt
Marketing and Promotion: Coby Green-Rifkin

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 7 Feb 2021 00:03:28 +0000 clevpt@gmail.com (Dr. Jill Taylor, Dr. Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/energy-beings-u0ypq4oF You can follow Dr. Jill on Twitter 
@drjbt

Visit Dr. Jill Bolte Taylor's website
http://drjilltaylor.com

Dr. Jill's Ted Talk, "My Stroke of Insight"
https://www.ted.com/talks/jill_bolte_taylor_my_stroke_of_insight

The Harvard Brain Bank
https://hbtrc.mclean.harvard.edu

Fifty Trillion Molecular Geniuses Musical Composition
Cecelia Chorus of NY commissioned The Brothers Balliett for a musical composition, Fifty Trillion Molecular Geniuses, with texts drawn from Dr. Jill Bolte Taylor’s book and TED Talk My Stroke of Insight. The piece was performed at Carnegie Hall on Dr. Jill's 60th birthday.

Read more: https://ceciliachorusny.org/updates-contact/brad-doug-balliett-composing-fifty-trillion-molecular-geniuses

Moshe Feldenkrais and The Feldenkrais Method®
The Feldenkrais Method® of somatic education was developed by Dr. Moshe Feldenkrais. It is a powerful  approach to improving life that uses gentle, mindful movement to bring new awareness and possibility into every aspect. The Feldenkrais Method is based on principles of physics, biomechanics, and an empirical understanding of learning and human development.Since how you move is how you move through life, these improvements will often enhance your thinking, emotional regulation, and problem-solving capabilities. Read more: https://feldenkrais.com

Anat Baniel and NeuroMovement®
Anat Baniel, a student of Moshe Feldenkrais, developed and evolved NeuroMovement® from  30+ years of  experience with thousands of clients using practical applications of brain plasticity principles. The Anat Baniel Method® approach is founded in neuroscience and the biodynamics of the human body, and utilizes movement and the 9 Essentials to create conditions for the brain to wake up and upgrade its own functioning.

The Nine Essentials
Essential 1 – Movement with Attention; Wake up to Life
Essential 2 – Slow; Luxuriate in the Richness of Feeling
Essential 3 – Variation; Enjoy Abundant Possibilities
Essential 4 – Subtlety; Experience the Power of Gentleness
Essential 5 – Enthusiasm; Turn the Small into the Great
Essential 6 – Flexible Goals; Make the Impossible Possible
Essential 7 – The Learning Switch; Bring in the New
Essential 8 – Imagination & Dreams; Create your Life
Essential 9 – Awareness; Thrive with True Knowledge

Read more about the Nine Essentials: 
https://www.anatbanielmethod.com/about/neuromovement/neuromovement-and-9-essentials

Recommended Reading:

My Stroke of Insight by Dr. Jill Bolte Taylor

Whole Brain Living by Dr. Jill Bolte Taylor (Available May 2021, published by Hay House)

The Feldenkrais Method by Staffan Elgelid, Chrish Kresge, with forward by Jerry Karzen, this book includes  perspective from 26 leaders and experts in the Feldenkrais field. It explains the importance of learning through movement with the brain’s attention as a means for physical and cognitive improvement and transformation. (Available May, 2021, published by Handspring.) Pre-order at feldenkraismovementbook.com to receive 10% off and free shipping in the US/UK. 

Awareness Through Movement by Moshe Feldenkrais

The Potent Self by Moshe Feldenkrais

Kids Beyond Limits by Anat Baniel

_______________________________
Notable Quotes from This Episode
You are welcome to share the wisdom from this episode. Please be sure to credit: “Ep. 6, Dr. Jill Bolte Taylor, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

"How does our brain create our perception of reality?"

"I could not walk, talk, read, write, or recall any of my life. I became a complete infant in a woman’s body. I was minutes from death."

"I knew nothing. I had no information in my left brain… I had no perception of my past. I was isolated completely in the present moment. It took eight years to recover all function of my left brain."

"I was nothing but a breathing body in a bed. That’s how my mother described me."

"I don’t use the term “victim” because I survived that day. I prefer that instead of calling people stroke victims—the victims died, the survivors survive—I encourage people to call us stroke survivors. It makes a difference. Words have power."

"If you’re going to be a good teacher, you have to go to the level of the student."

"When I experienced the stroke, I had incredible right brain ability. I was completely turned on to body language, physical language—all kinds of gifts of the right brain—far beyond the normal person. I could tell in an instant if someone was telling the truth or telling a lie, because the cells that could distract me from being able to tell that someone was telling a lie were turned off."

"I was very blessed. And this is one of the greatest gifts Gigi gave me. From day to day, I couldn’t remember yesterday or the day before because all I had was the present moment. She kept reminding me of what I couldn’t do yesterday. She was enthusiastic about my ability to get better."

"Every step is a celebration. I had to stay focused on what I could do, not on what I couldn’t do. So much of our society focuses on the disability. Let’s focus on and enthusiastically say YAY to what’s working, and then 'what’s the next thing I can learn?'"

 

WISDOM SHARED PRODUCTION TEAM:
Produced by: Dr. Carole Blueweiss
Audio Engineering: Keith Pyatt
Marketing and Promotion: Coby Green-Rifkin

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Jill Bolte Taylor: Energy Beings Dr. Jill Taylor, Dr. Carole Blueweiss 00:53:08 Jill Bolte Taylor, a Harvard trained neuroanatomist, experienced a major left sided stroke in 1996. In this episode, she tells her story of resilience, perseverance, and the power of the connection and attention her mother bestowed on her. She gives us insight into her eight years of being differently abled, her inability to communicate like everyone else around her, and her feelings of vulnerability and vitality. Jill asks us to question the concept of "normal" and believes that to look at (and celebrate!) one's abilities is powerful and essential. She speaks to all parents, healthcare workers and educators. Dr. Taylor is Author of "My Stroke of Insight," and "Whole Brain Living," and one of Time Magazine’s 100 Most Influential People in the World for 2008. She is the Founder of Jill Bolte Taylor BRAINS, Inc, a not for profit organization. Jill Bolte Taylor, a Harvard trained neuroanatomist, experienced a major left sided stroke in 1996. In this episode, she tells her story of resilience, perseverance, and the power of the connection and attention her mother bestowed on her. She gives us insight into her eight years of being differently abled, her inability to communicate like everyone else around her, and her feelings of vulnerability and vitality. Jill asks us to question the concept of "normal" and believes that to look at (and celebrate!) one's abilities is powerful and essential. She speaks to all parents, healthcare workers and educators. Dr. Taylor is Author of "My Stroke of Insight," and "Whole Brain Living," and one of Time Magazine’s 100 Most Influential People in the World for 2008. She is the Founder of Jill Bolte Taylor BRAINS, Inc, a not for profit organization. abm, health, survivor, disability, pt, anat, neurodiversity, connection, stroke, recovery, brain, wellbeing, parent, special needs, awareness, doctor, caregiver, physical therapy, feldenkrais, baniel false full 6 1 90994dd9-e365-4bad-8f79-4b7b17ba444e Man Up: Parenting a Child Born with a Rare Genetic Syndrome FOR MORE INFORMATION:

The 5P- Society (Cri du Chat)
https://fivepminus.org/

Cri du Chat Society Facebook Page
https://www.facebook.com/CriDuChatSociety

National Organization for Rare Disorders 
https://rarediseases.org/rare-diseases/cri-du-chat-syndrome

 

NOTABLE QUOTES FROM THIS EPISODE:

You are welcome you to share the wisdom from this episode. Please be sure to credit: “Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

22:30 “When you’re hurt, you hurt others”

30:59 “If empathy was the first point of reference for people, that would go a long way”

39:07 - “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.”

44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.”

50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.”

51: “Kindness doesn’t mean weakness. Kindness means strength.”

 

EDITOR’S NOTE: 
Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021) 

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 10 Jan 2021 11:11:04 +0000 clevpt@gmail.com (Damas Manderson, Dina Manderson, Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/man-up-ne7uyOEl FOR MORE INFORMATION:

The 5P- Society (Cri du Chat)
https://fivepminus.org/

Cri du Chat Society Facebook Page
https://www.facebook.com/CriDuChatSociety

National Organization for Rare Disorders 
https://rarediseases.org/rare-diseases/cri-du-chat-syndrome

 

NOTABLE QUOTES FROM THIS EPISODE:

You are welcome you to share the wisdom from this episode. Please be sure to credit: “Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

22:30 “When you’re hurt, you hurt others”

30:59 “If empathy was the first point of reference for people, that would go a long way”

39:07 - “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.”

44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.”

50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.”

51: “Kindness doesn’t mean weakness. Kindness means strength.”

 

EDITOR’S NOTE: 
Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021) 

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Man Up: Parenting a Child Born with a Rare Genetic Syndrome Damas Manderson, Dina Manderson, Carole Blueweiss 00:56:19 “What does it mean to ‘Man Up’? It actually means to stand down, take a good look at the situation, and stand from a platform of humbleness. Stand from a platform where strength comes from saying, I actually don't know it all. Maybe I had to have a special needs daughter to understand all of that.” —Damas Manderson In this fifth episode of Wisdom Shared, we hear from a New Zealand father, husband and entrepreneur who gave up his career, country, and everything he knew for the opportunity to help his daughter and sustain his family. Damas Manderson’s daughter, now 17, was diagnosed at an early age with Cri du Chat (also known as 5p- syndrome), a rare genetic disorder. In this interview, Damas opens up about what he has learned while raising Kennedy Rose, whose condition includes a range of developmental challenges including autism, severe ADHD, aggressive behavior, lax ligaments, seizures, heart issues, and the possibility of sudden death. Damas describes his journey with conventional and unconventional therapies, navigating well-intended advice, religion and spirituality, and the power of vulnerability and kindness. His story is one of perseverance, hope, compassion, and love. All parents, healthcare professionals and teachers can learn from this father who shares his wisdom so generously. “What does it mean to ‘Man Up’? It actually means to stand down, take a good look at the situation, and stand from a platform of humbleness. Stand from a platform where strength comes from saying, I actually don't know it all. Maybe I had to have a special needs daughter to understand all of that.” —Damas Manderson In this fifth episode of Wisdom Shared, we hear from a New Zealand father, husband and entrepreneur who gave up his career, country, and everything he knew for the opportunity to help his daughter and sustain his family. Damas Manderson’s daughter, now 17, was diagnosed at an early age with Cri du Chat (also known as 5p- syndrome), a rare genetic disorder. In this interview, Damas opens up about what he has learned while raising Kennedy Rose, whose condition includes a range of developmental challenges including autism, severe ADHD, aggressive behavior, lax ligaments, seizures, heart issues, and the possibility of sudden death. Damas describes his journey with conventional and unconventional therapies, navigating well-intended advice, religion and spirituality, and the power of vulnerability and kindness. His story is one of perseverance, hope, compassion, and love. All parents, healthcare professionals and teachers can learn from this father who shares his wisdom so generously. abm, new zealand, alternative therapy, empathy, manhood, genetic disorder, mental illness, man up, genetic syndrome, complimentary medicine, neurodiversity, la port, man, spirituality, 5pminus, vulnerability, parenting, fatherhood, indiana, adhd, father, depression, special needs, physical therapy, autism, occupational therapy, cri du chat, 5p-, feldenkrais false full 5 1 11c104c4-28fc-4c74-bb4e-118f795a57c9 Found in Transition: A Conversation with Mother, Pediatrician and Author Paria Hassouri ABOUT PARIA HASSOURI

Website: www.PariaHassouri.com

Book: Found in Transition

Facebook: www.facebook.com/paria.hassouri

Instagram: @laparia

Twitter: @pariahassouri

 

LINKS FROM INTERVIEW 

https://themoth.org/storytellers/cybele-abbett

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 13 Dec 2020 05:00:00 +0000 clevpt@gmail.com (Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/found-4eq7_uws ABOUT PARIA HASSOURI

Website: www.PariaHassouri.com

Book: Found in Transition

Facebook: www.facebook.com/paria.hassouri

Instagram: @laparia

Twitter: @pariahassouri

 

LINKS FROM INTERVIEW 

https://themoth.org/storytellers/cybele-abbett

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Found in Transition: A Conversation with Mother, Pediatrician and Author Paria Hassouri Carole Blueweiss 01:00:06 Paria Hassouri admits to being blindsided when the child she gave birth to and called her son announced at 13 1/2 years old that she identified as a girl and wanted to be recognized and acknowledged as her mother’s daughter. In this episode, we explore the topic of gender identity and a parent's journey from doubt to acceptance. Paria opens up about her personal transformation and how she learned who her daughter is from the inside out, realizing that the way forward is not to judge, but to listen; not to try and fix, but to connect and love. Paria Hassouri admits to being blindsided when the child she gave birth to and called her son announced at 13 1/2 years old that she identified as a girl and wanted to be recognized and acknowledged as her mother’s daughter. In this episode, we explore the topic of gender identity and a parent's journey from doubt to acceptance. Paria opens up about her personal transformation and how she learned who her daughter is from the inside out, realizing that the way forward is not to judge, but to listen; not to try and fix, but to connect and love. listen, mental health, tomboy, kids, categories, clothes, top surgery, spectrum, cis, lgbtqia, bullying, ignorance, acceptance, advocate, gender, cisgender, transition, mothering, puzzles, therapy, lgbt, advice, parenting, transgender, activist, puberty, personal pronouns, bully, identity, childhood, normal, awareness, toys, pronouns, autism, uniforms, judgement, labels, hormones false full 4 1 2082b29d-8e02-4ea6-84a0-8675de979635 A Mother Shares Her Journey Parenting a Newborn Diagnosed with a Stroke ABOUT MARA YALE

Website: www.marayale.com
Facebook Page: www.facebook.com/yalemaram
Instagram: @maramyale
Blog: www.marazoemia.net

ABOUT REGAME-VR LAB AT NORTHEASTERN UNIVERSITY

Research in the Rehabilitation Games and Virtual Reality Laboratory at Northeastern University focuses on the sustainable, evidence-based integration of virtual reality (VR) and active video games into rehabilitation practice for children with neuromotor impairments such as cerebral palsy. 

Website: www.web.northeastern.edu/regamevrlab
Facebook: www.facebook.com/regamevrlab
Twitter:@regamevr  

Audio from ReGame-VR lab interviews produced by Benjamin Bertsch and Adam Fischer.

LINKS FROM INTERVIEW 

I-ACQUIRE: www.nihstrokenet.org/i-acquire/family-resources
I-ACQUIRE clinical trial for constraint induced movement therapy: www.clinicaltrials.gov/ct2/show/NCT03910075
Cerebral Palsy Soccer: www.cpsoccer.us
Hand in Hand Parenting: www.handinhandparenting.org
The Reading Promise: www.makeareadingpromise.com
Dr. Karen Pape: www.karenpapemd.com
Children's Hemiplegia and Stroke Association (CHASA): www.chasa.org
International Alliance for Pediatric Stroke: www.iapediatricstroke.org
Sheryl Field, Field Center for Integrated Development: www.thefieldcenter.org
Feldenkrais: www.feldenkrais.com
Somatic Experiencing: www.traumahealing.org/about-us

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sun, 8 Nov 2020 05:30:00 +0000 clevpt@gmail.com (Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/a-mother-shares-her-journey-parenting-a-newborn-diagnosed-with-a-stroke-2ZGnTTZD ABOUT MARA YALE

Website: www.marayale.com
Facebook Page: www.facebook.com/yalemaram
Instagram: @maramyale
Blog: www.marazoemia.net

ABOUT REGAME-VR LAB AT NORTHEASTERN UNIVERSITY

Research in the Rehabilitation Games and Virtual Reality Laboratory at Northeastern University focuses on the sustainable, evidence-based integration of virtual reality (VR) and active video games into rehabilitation practice for children with neuromotor impairments such as cerebral palsy. 

Website: www.web.northeastern.edu/regamevrlab
Facebook: www.facebook.com/regamevrlab
Twitter:@regamevr  

Audio from ReGame-VR lab interviews produced by Benjamin Bertsch and Adam Fischer.

LINKS FROM INTERVIEW 

I-ACQUIRE: www.nihstrokenet.org/i-acquire/family-resources
I-ACQUIRE clinical trial for constraint induced movement therapy: www.clinicaltrials.gov/ct2/show/NCT03910075
Cerebral Palsy Soccer: www.cpsoccer.us
Hand in Hand Parenting: www.handinhandparenting.org
The Reading Promise: www.makeareadingpromise.com
Dr. Karen Pape: www.karenpapemd.com
Children's Hemiplegia and Stroke Association (CHASA): www.chasa.org
International Alliance for Pediatric Stroke: www.iapediatricstroke.org
Sheryl Field, Field Center for Integrated Development: www.thefieldcenter.org
Feldenkrais: www.feldenkrais.com
Somatic Experiencing: www.traumahealing.org/about-us

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> A Mother Shares Her Journey Parenting a Newborn Diagnosed with a Stroke Carole Blueweiss 00:59:19 Eleven years ago Mara Yale’s daughter, Mia, had a stroke at birth. In this episode, we hear how Mara’s research, advocacy, self-education, and curiosity informed her approach to parenting and contributed to her daughter’s remarkable recovery. Mara shares considerations that apply across the board for all kids, regardless of age, diagnosis, severity of injury, or track in development as well as information on both the unconventional and conventional therapies she chose for Mia. Eleven years ago Mara Yale’s daughter, Mia, had a stroke at birth. In this episode, we hear how Mara’s research, advocacy, self-education, and curiosity informed her approach to parenting and contributed to her daughter’s remarkable recovery. Mara shares considerations that apply across the board for all kids, regardless of age, diagnosis, severity of injury, or track in development as well as information on both the unconventional and conventional therapies she chose for Mia. self-care, alternative therapy, kids, pediatric stroke, northeastern, mara yale, early intervention, hockey, falling, neuromotor impairments, stroke, mothering, therapy, advice, childbirth, conventional therapy, parenting, playground, play, hand-in-hand parenting, chasa, cerebral palsy, virtual reality, goalie, somatic experiencing, special needs, vr, regame-vr, physical therapy, occupational therapy, constraint therapy, monkey bars, feldenkrais, splints, children's stroke, rehabilitation false full 3 1 fec5e53e-e29e-44ee-8b07-913c5beabae3 A Mother Shares Her Journey Raising Her 20-Year-Old Daughter who was Diagnosed With Autism as a Young Child. About Claude Winn

website: http://claudewinn.com

Insta: @cwinnart

 

Song Credits

How Far I'll Go
written by Auliʻi Cravalho
© 2016 Walt Disney Records

 

 

LINKS FROM THE INTERVIEW

http://anatbanielmethod.com

http://suzingreen.com

http://yogalambertville.com

http://theclass.com

http://ramahdarom.com

https://www.autismspeaks.org/verbal-behavior-therapy

https://www.autismspeaks.org/floortime-0

 

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Sat, 17 Oct 2020 04:00:00 +0000 clevpt@gmail.com (Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/a-mother-shares-her-journey-of-the-joys-and-challenges-of-raising-a-child-diagnosed-with-autism-BFPspcOW About Claude Winn

website: http://claudewinn.com

Insta: @cwinnart

 

Song Credits

How Far I'll Go
written by Auliʻi Cravalho
© 2016 Walt Disney Records

 

 

LINKS FROM THE INTERVIEW

http://anatbanielmethod.com

http://suzingreen.com

http://yogalambertville.com

http://theclass.com

http://ramahdarom.com

https://www.autismspeaks.org/verbal-behavior-therapy

https://www.autismspeaks.org/floortime-0

 

 

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> A Mother Shares Her Journey Raising Her 20-Year-Old Daughter who was Diagnosed With Autism as a Young Child. Carole Blueweiss 00:43:57 In this episode, Claude Winn shares her journey raising her twenty-year-old daughter, Maya, who was diagnosed at an early age as being on the autism spectrum. Claude talks about learning how best to support her extraordinary child; her explorations into alternative therapies; the advocacy needed to ensure Maya’s right to participate in activities available to so-called typical students; and the importance of trusting and caring for herself all throughout the process. In this episode, Claude Winn shares her journey raising her twenty-year-old daughter, Maya, who was diagnosed at an early age as being on the autism spectrum. Claude talks about learning how best to support her extraordinary child; her explorations into alternative therapies; the advocacy needed to ensure Maya’s right to participate in activities available to so-called typical students; and the importance of trusting and caring for herself all throughout the process. @anat baniel method neuromovement, @autism, @yogalambertville, @singing, @floortime, @mohana, @adolescance, @inclusion, @exclusion, @mothering, @choir, @feldenkrais, @the class, @special education, @dance, @verbal behaviour, @aba, @special needs, @painter, @parenting, @cheerleading, @ramah daron false full 2 1 33516804-21d6-490d-bb75-0d1164739864 A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral Palsy ABOUT ANNE PRATT

Website: www.indymovevolution.com

Email: anne@indymovevolution.com

LINKS FROM INTERVIEW

Treatment Modalities

Therapies

Tools & Equipment


Defining the Body

The corpus callosum is the primary commissural region of the brain consisting of white matter tracts that connect the left and right cerebral hemispheres. https://www.ncbi.nlm.nih.gov/books/NBK448209/

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> Mon, 7 Sep 2020 13:25:26 +0000 clevpt@gmail.com (Carole Blueweiss) https://wisdom-shared.simplecast.com/episodes/a-mother-shares-her-story-of-what-its-like-to-raise-her-son-who-was-diagnosed-with-cerebral-palsy-KpC__R3v ABOUT ANNE PRATT

Website: www.indymovevolution.com

Email: anne@indymovevolution.com

LINKS FROM INTERVIEW

Treatment Modalities

Therapies

Tools & Equipment


Defining the Body

The corpus callosum is the primary commissural region of the brain consisting of white matter tracts that connect the left and right cerebral hemispheres. https://www.ncbi.nlm.nih.gov/books/NBK448209/

Find and Follow Carole and Wisdom Shared:

The Wisdom Shared Team

  • Audio Engineering by Steve Heatherington of Good Podcasting Works
  • Co-Producer and Marketing Coordinator: Kayla Nelson
  • Production Assistant: Becki Leigh

]]> A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral Palsy Carole Blueweiss 00:36:38 Anne Pratt, from Indianapolis, Indiana is an ABM practitioner and scientist whose 4 year-old son Charlie was diagnosed with cerebral palsy when he was 7 months old. Anne describes her experience with traditional and non-traditional approaches to Charlie’s individual needs, the challenges that her family faced, and how they found their current team of doctors, therapists, and support network. Anne also talks about her ongoing advocacy for Charlie, her own self-care, and offers wisdom to families with unique children. Her point of view is inspiring, informative, and deeply moving. Anne Pratt, from Indianapolis, Indiana is an ABM practitioner and scientist whose 4 year-old son Charlie was diagnosed with cerebral palsy when he was 7 months old. Anne describes her experience with traditional and non-traditional approaches to Charlie’s individual needs, the challenges that her family faced, and how they found their current team of doctors, therapists, and support network. Anne also talks about her ongoing advocacy for Charlie, her own self-care, and offers wisdom to families with unique children. Her point of view is inspiring, informative, and deeply moving. abm, stem cell therapy, disability, kids, anat, speech therapy, eye tracking device, children, 9 essentials, anat baniel method, support groups, advocate, unique, indianapolis, mothering, therapy, advice, nine essentials, special, conventional therapy, parenting, point of view, indiana, alternative therapies, typical, cerebral palsy, extraordinary, communication therapy, special needs, nutrition, physical therapy, hyperbaric oxygen therapy, occupational therapy, riley cp clinic, hippotherapy, functional medicine, feldenkrais, neuromovement false full 1 1