https://simplecast.com People of Precision Health: A Series by Vibrent Health Research leaders who are building genomics or precision health programs know that it’s important to engage and enroll large numbers of participants to build a human cohort that offers diversity, objectivity, and statistical relevance. People of Precision Health interviews leaders in precision health who are facing – and solving – real challenges as they build population genomics programs. We explore the obstacles and opportunities along the path that get us closer to real novel discoveries and the future of healthcare. en Thu, 19 Oct 2023 04:00:00 +0000 Thu, 19 Oct 2023 04:00:11 +0000 https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com People of Precision Health: A Series by Vibrent Health https://image.simplecastcdn.com/images/f15708ed-6b5a-43f6-b5e5-079eed7a8407/6eebccda-f940-4c28-b1e7-82edb9ea02c4/3000x3000/vbh-podcast-cover-art-final.jpg?aid=rss_feed https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com episodic Research leaders who are building genomics or precision health programs know that it’s important to engage and enroll large numbers of participants to build a human cohort that offers diversity, objectivity, and statistical relevance. People of Precision Health interviews leaders in precision health who are facing – and solving – real challenges as they build population genomics programs. We explore the obstacles and opportunities along the path that get us closer to real novel discoveries and the future of healthcare. Vibrent Health no https://feeds.simplecast.com/JmI_uRJV healthcare, life science, precision health Vibrent Health info@vibrenthealth.com 5a7ebadf-67f7-4d42-95cc-ded47b8e4aad How Community Engagement Drives Health Disparities Research in Cancer Listen to this episode of People of Precision Health to learn about: 

  • How to engage communities in health disparities research with underserved communities
  •  A shift in thinking about how researchers should address health disparities research
  •  How defining catchment areas can hold community hospitals accountable in their resourcing of cancer care and cancer research

 Learn about the Chickahominy TRUTH research project

Watch a video about the Chickahominy TRUTH project

]]> Thu, 19 Oct 2023 04:00:00 +0000 info@vibrenthealth.com (Vibrent Health) https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com/episodes/how-community-engagement-drives-health-disparities-research-in-cancer-U7M0sicU Listen to this episode of People of Precision Health to learn about: 

  • How to engage communities in health disparities research with underserved communities
  •  A shift in thinking about how researchers should address health disparities research
  •  How defining catchment areas can hold community hospitals accountable in their resourcing of cancer care and cancer research

 Learn about the Chickahominy TRUTH research project

Watch a video about the Chickahominy TRUTH project

]]> How Community Engagement Drives Health Disparities Research in Cancer Vibrent Health 00:45:38 How do you approach underserved communities for collaboration in your health research? With humility and flexibility, says Dr. Katherine Tossas, a cancer epidemiologist and Director of Catchment Area Data Access and Alignment at Virginia Commonwealth University (VCU) Massey Cancer Center. As part of our People of Precision Health Podcast, Vibrent Health recently interviewed Dr. Tossas in her work engaging communities and catchment areas in cancer research as it relates to health disparities. As a native Puerto Rican, she has used her experience to develop some incredibly useful perspectives and approaches in approaching underserved communities. Some of these included sharing resources with communities, not having preconceptions about communities, understanding the limitations of research data in telling the full story, and more. How do you approach underserved communities for collaboration in your health research? With humility and flexibility, says Dr. Katherine Tossas, a cancer epidemiologist and Director of Catchment Area Data Access and Alignment at Virginia Commonwealth University (VCU) Massey Cancer Center. As part of our People of Precision Health Podcast, Vibrent Health recently interviewed Dr. Tossas in her work engaging communities and catchment areas in cancer research as it relates to health disparities. As a native Puerto Rican, she has used her experience to develop some incredibly useful perspectives and approaches in approaching underserved communities. Some of these included sharing resources with communities, not having preconceptions about communities, understanding the limitations of research data in telling the full story, and more. healthcare research, precision medicine, health disparities, cancer research, community engagement no full 7 e1ead029-e734-4fb5-8f4d-5c033bf09c64 Addressing Barriers to Cancer Research Participation For Underserved Populations Listen to this episode of People of Precision Health to learn about:

  • Community approaches to address cultural disparities and underrepresentation in research 
  • Understanding and addressing cultural challenges and other barriers to research participation
  • How to create and nurture partnerships with research participants
  • The value of diversity in the medical research community
  • Many interesting use cases for technology in the research space
  • Where precision medicine is going and how we can get there
]]> Thu, 31 Aug 2023 04:00:00 +0000 info@vibrenthealth.com (Vibrent Health) https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com/episodes/addressing-barriers-to-cancer-research-participation-for-underserved-populations-s21DB8Tp Listen to this episode of People of Precision Health to learn about:

  • Community approaches to address cultural disparities and underrepresentation in research 
  • Understanding and addressing cultural challenges and other barriers to research participation
  • How to create and nurture partnerships with research participants
  • The value of diversity in the medical research community
  • Many interesting use cases for technology in the research space
  • Where precision medicine is going and how we can get there
]]> Addressing Barriers to Cancer Research Participation For Underserved Populations Vibrent Health 00:37:54 Getting participants to participate in your research is difficult, especially in oncology. Throw in the diverse perspectives, experiences, and the complexity of navigating cancer care, and it’s clear that there is no one-size-fits-all approach. So, how do we address the barriers to cancer research participation among patients, especially underrepresented populations? How do we create partnerships with underserved communities to foster more trust, greater recruitment, and better retention rates among these populations? Should participation in research be discussed in tandem with front line treatments as a patient begins their care journey in assessing and treating malignancy? In this episode of People of Precision Health, we sat down with Porscha Johnson, PharmD, CPGx to address these questions. Getting participants to participate in your research is difficult, especially in oncology. Throw in the diverse perspectives, experiences, and the complexity of navigating cancer care, and it’s clear that there is no one-size-fits-all approach. So, how do we address the barriers to cancer research participation among patients, especially underrepresented populations? How do we create partnerships with underserved communities to foster more trust, greater recruitment, and better retention rates among these populations? Should participation in research be discussed in tandem with front line treatments as a patient begins their care journey in assessing and treating malignancy? In this episode of People of Precision Health, we sat down with Porscha Johnson, PharmD, CPGx to address these questions. precision health, cancer research, digital health, precision medicine, pharmacogenomics, genomics research, patient education, patient diversity no full 6 11e925a9-0a7f-49ec-bc35-082ba0d9176a Improving Survey Completion with Skillful Methodology Watch this episode of People of Precision Health to find out what makes a good health research survey, and learn about:  

  • Common missteps in health survey data collection
  • How to ensure the validity and reliability of survey questions
  • Addressing survey fatigue / respondent burden
  • Reasons for non-response and inaccurate answers
  • Managing change to research surveys
  • Selecting the right digital survey tools
]]> Thu, 10 Aug 2023 04:00:00 +0000 info@vibrenthealth.com (Vibrent Health) https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com/episodes/improving-survey-completion-with-skillful-methodology-xAW0ko8D Watch this episode of People of Precision Health to find out what makes a good health research survey, and learn about:  

  • Common missteps in health survey data collection
  • How to ensure the validity and reliability of survey questions
  • Addressing survey fatigue / respondent burden
  • Reasons for non-response and inaccurate answers
  • Managing change to research surveys
  • Selecting the right digital survey tools
]]> Improving Survey Completion with Skillful Methodology Vibrent Health 00:58:47 How do health researchers design surveys that make it easy for participants to answer? How do we avoid survey fatigue, non-response, and inaccurate answers? In our latest episode of People of Precision Health, our resident Survey Methodologist Megan Ruxton, PhD, addresses these questions and more to show us the science behind asking questions and gaining responses. How do health researchers design surveys that make it easy for participants to answer? How do we avoid survey fatigue, non-response, and inaccurate answers? In our latest episode of People of Precision Health, our resident Survey Methodologist Megan Ruxton, PhD, addresses these questions and more to show us the science behind asking questions and gaining responses. health research, digital survey tools, health research surveys, data collection, survey validity, digital surveys, survey fatigue, research surveys, survey reliability, digital health research no full 5 28b592f9-0ad5-4c10-abc5-d783a97ce60d Increasing Patient Access to Cancer Research, Care, and Pharmacogenomics For our fourth episode of People of Precision Health, Dr. Jai Patel at Atrium Health Levine Cancer Institute describes their pharmacogenomics program and how it folds into their activities in comprehensive cancer care and research activity. Listen now to hear insights on:

  • Providing decentralized patient access to top-notch cancer care and research
  • Integrating into cancer clinician workflows to enhance cancer patient experiences
  • How distress screening and nurse navigators can improve outcomes
  • Increasing access for clinicians and their patients to cancer research
  • Standardizing cancer pharmacogenomics to support patients
]]> Tue, 20 Jun 2023 17:35:41 +0000 info@vibrenthealth.com (Vibrent Health) https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com/episodes/dr-jai-patel-K2xIvFIs For our fourth episode of People of Precision Health, Dr. Jai Patel at Atrium Health Levine Cancer Institute describes their pharmacogenomics program and how it folds into their activities in comprehensive cancer care and research activity. Listen now to hear insights on:

  • Providing decentralized patient access to top-notch cancer care and research
  • Integrating into cancer clinician workflows to enhance cancer patient experiences
  • How distress screening and nurse navigators can improve outcomes
  • Increasing access for clinicians and their patients to cancer research
  • Standardizing cancer pharmacogenomics to support patients
]]> Increasing Patient Access to Cancer Research, Care, and Pharmacogenomics Vibrent Health 00:44:04 How can the latest insights in pharmacogenomics be folded into clinical cancer care? According to Dr. Jai Patel on our latest episode of People of Precision Health, it’s a matter of integrating data into clinical workflows, empowering patients with access to research participation and resources, providing clear and actionable results, and breaking down barriers that have made cancer research and care traditionally difficult. How can the latest insights in pharmacogenomics be folded into clinical cancer care? According to Dr. Jai Patel on our latest episode of People of Precision Health, it’s a matter of integrating data into clinical workflows, empowering patients with access to research participation and resources, providing clear and actionable results, and breaking down barriers that have made cancer research and care traditionally difficult. health research, genetic counseling, precision health, cancer genomics, cancer research, cancer pharmacogenomics, cancer genomics research, patient education no full 4 8895e4a3-527f-4d65-932c-cd14658699de Engaging Elderly Populations in Genomics Research with Digital and Multi-modal Methods On this episode of People of Precision Health, we sat down with Dr. Sofiya Milman, Associate Professor of Endocrinology and Genetics at Albert Einstein College of Medicine to talk about the SuperAgers Family Study. She discussed how she and her collaborators have cultivated several strategies and digital tools to power their recruitment, data collection, cross-institutional collaboration, and participant engagement. Listen now to hear insights on:

  • Finding the right mix of recruitment strategies
  • How recruiting family can help to engage elderly populations
  • Why consent videos speed up the enrollment process
  • How digital tools can increase research team effectiveness
  • Creating a community for study participants to foster engagement

To learn more or to enroll in the SuperAgers Family Study, visit: https://www.superagersstudy.org/

]]> Tue, 23 May 2023 04:00:00 +0000 info@vibrenthealth.com (Vibrent Health) https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com/episodes/with-guest-sofiya-milman-md-moqX_zcP On this episode of People of Precision Health, we sat down with Dr. Sofiya Milman, Associate Professor of Endocrinology and Genetics at Albert Einstein College of Medicine to talk about the SuperAgers Family Study. She discussed how she and her collaborators have cultivated several strategies and digital tools to power their recruitment, data collection, cross-institutional collaboration, and participant engagement. Listen now to hear insights on:

  • Finding the right mix of recruitment strategies
  • How recruiting family can help to engage elderly populations
  • Why consent videos speed up the enrollment process
  • How digital tools can increase research team effectiveness
  • Creating a community for study participants to foster engagement

To learn more or to enroll in the SuperAgers Family Study, visit: https://www.superagersstudy.org/

]]> Engaging Elderly Populations in Genomics Research with Digital and Multi-modal Methods Vibrent Health 00:44:18 Can digital and multi-modal approaches succeed in engaging aging populations for eConsent and data collection? According to Dr. Sofiya Milman, Associate Professor of Endocrinology and Genetics at Albert Einstein College of Medicine, the answer is yes. We sat down with Dr. Milman for this episode of People of Precision Health to talk about the SuperAgers Family Study, and how she and her collaborators have cultivated several strategies and digital tools to power their recruitment, data collection, cross-institutional collaboration, and participant engagement. Can digital and multi-modal approaches succeed in engaging aging populations for eConsent and data collection? According to Dr. Sofiya Milman, Associate Professor of Endocrinology and Genetics at Albert Einstein College of Medicine, the answer is yes. We sat down with Dr. Milman for this episode of People of Precision Health to talk about the SuperAgers Family Study, and how she and her collaborators have cultivated several strategies and digital tools to power their recruitment, data collection, cross-institutional collaboration, and participant engagement. precision health, genomics, genomics in routine, digital health, precision medicine, genomics research, patient education no full 3 9b34fb7d-155f-464a-b4b4-1cb9a61b1c19 To Translate Genomics to Clinical Care, Get Practical In this episode of our People of Precision Health podcast series, guest Dr. Daniel Judge discusses the “In Our DNA SC” study, which focuses on sequencing the genes of South Carolina’s incredibly diverse patient population. Listen now to hear insights on:

  • The nuances of good genetic counseling
  • Navigating ambiguity in genetic testing
  • Translating research discoveries into clinical practice
  • How genetic testing could impact pharmacogenomics
  • Prioritizing diversity to unlock greater population health insights

Learn more about the In Our DNA SC community health research project by visiting the Medical
University of South Carolina (MUSC) website here: https://web.musc.edu/inourdnasc

]]> Tue, 25 Apr 2023 04:00:00 +0000 info@vibrenthealth.com (Vibrent Health) https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com/episodes/to-translate-genomics-to-clinical-care-get-practical-L79b1pCy In this episode of our People of Precision Health podcast series, guest Dr. Daniel Judge discusses the “In Our DNA SC” study, which focuses on sequencing the genes of South Carolina’s incredibly diverse patient population. Listen now to hear insights on:

  • The nuances of good genetic counseling
  • Navigating ambiguity in genetic testing
  • Translating research discoveries into clinical practice
  • How genetic testing could impact pharmacogenomics
  • Prioritizing diversity to unlock greater population health insights

Learn more about the In Our DNA SC community health research project by visiting the Medical
University of South Carolina (MUSC) website here: https://web.musc.edu/inourdnasc

]]> To Translate Genomics to Clinical Care, Get Practical Vibrent Health 00:40:30 Key to understanding how genetics impacts healthcare is understanding its effect for every patient involved. In this episode of People of Precision Health, guest Dr. Daniel Judge discusses the “In Our DNA SC” study sequencing the genes of South Carolina’s incredibly diverse patient population—sharing the challenges of such an effort and the importance of genetic counseling for improving healthcare and patient wellbeing. Key to understanding how genetics impacts healthcare is understanding its effect for every patient involved. In this episode of People of Precision Health, guest Dr. Daniel Judge discusses the “In Our DNA SC” study sequencing the genes of South Carolina’s incredibly diverse patient population—sharing the challenges of such an effort and the importance of genetic counseling for improving healthcare and patient wellbeing. genetic counselors, precision health, genomics in routine clinical practice, diversity, digital health, precision medicine, genomics research, patient education, genetic couseling no full 2 180de62e-9b8a-403f-992f-5a0692e58713 Population Genomics is a Lifelong Relationship In the premiere episode of People of Precision Health, Howard McLeod of Intermountain Healthcare shares details from the HerediGene program, a study which seeks to sequence over 500,000 participants’ genes to better understand, predict, and prevent gene-related diseases. Listen now to hear insights on: 

  • Building infrastructure for a population health sequencing study 
  • Marketing the study to potential participants 
  • How precision health and genomics research inform clinical care 
  • Lessons learned about informed consent 
  • How to best disseminate return of results 

Learn how the HerediGene program built a communications and patient data infrastructure to handle genetic sequencing and population health here: https://www.mdpi.com/2075-4426/12/11/1867

]]> Fri, 17 Mar 2023 13:42:42 +0000 info@vibrenthealth.com (Vibrent Health) https://people-of-precision-health-a-series-by-vibrent-health.simplecast.com/episodes/population-genomics-is-a-lifelong-relationship-54u7Jf0v In the premiere episode of People of Precision Health, Howard McLeod of Intermountain Healthcare shares details from the HerediGene program, a study which seeks to sequence over 500,000 participants’ genes to better understand, predict, and prevent gene-related diseases. Listen now to hear insights on: 

  • Building infrastructure for a population health sequencing study 
  • Marketing the study to potential participants 
  • How precision health and genomics research inform clinical care 
  • Lessons learned about informed consent 
  • How to best disseminate return of results 

Learn how the HerediGene program built a communications and patient data infrastructure to handle genetic sequencing and population health here: https://www.mdpi.com/2075-4426/12/11/1867

]]> Population Genomics is a Lifelong Relationship Vibrent Health 00:46:49 Imagine if we could predict serious diseases years before they occur—what would be the impact for patient care? The key is in understanding genetics. In this premiere episode of the Vibrent Health podcast series, People of Precision Health, our guest Howard McLeod discusses the HerediGene program and its mission to sequence the genes of over 500,000 participants toward predicting and preventing disease. Imagine if we could predict serious diseases years before they occur—what would be the impact for patient care? The key is in understanding genetics. In this premiere episode of the Vibrent Health podcast series, People of Precision Health, our guest Howard McLeod discusses the HerediGene program and its mission to sequence the genes of over 500,000 participants toward predicting and preventing disease. precision health, genomics, heredigene, healthcare, life science no full 1