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    <title>The Shape of Care</title>
    <description>The Shape of Care is a podcast that explores the world of caregiving. In this series, we hear stories from caregivers and the people they care for, and from experts and activists. There are so many of us doing this work, but we’re not talking to each other. We’re just trying to keep it together. This podcast is a platform for that conversation. Hopefully, one that helps people feel less alone.</description>
    <copyright>2019. The Shape of Care &amp; Mindy Fried</copyright>
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    <pubDate>Wed, 10 Sep 2025 04:00:00 +0000</pubDate>
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    <itunes:summary>The Shape of Care is a podcast that explores the world of caregiving. In this series, we hear stories from caregivers and the people they care for, and from experts and activists. There are so many of us doing this work, but we’re not talking to each other. We’re just trying to keep it together. This podcast is a platform for that conversation. Hopefully, one that helps people feel less alone.</itunes:summary>
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      <title>Sneak peek of Next Chapters podcast:  On the road</title>
      <description><![CDATA[Hello Friends from around the world!  If you've listened to Laura Barr on The Shape of Care, you'll want to hear this! It's a sneak peek clip from Episode 5 of Next Chapters, featuring Laura again with a great story. It's called:  On the road: Adventures in aging!  
Here's our website for Next Chapters:  https://ourbodiesourselves.org/next-chapters
And here's the Apple link, one of the channels where many of you listen:  
https://podcasts.apple.com/us/podcast/next-chapters/id1825387175
Happy listening!  
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      <pubDate>Wed, 10 Sep 2025 04:00:00 +0000</pubDate>
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      <itunes:summary>Hello Friends from around the world!  If you&apos;ve listened to Laura Barr on The Shape of Care, you&apos;ll want to hear this! It&apos;s a sneak peek clip from Episode 5 of Next Chapters, featuring Laura again with a great story. It&apos;s called:  On the road: Adventures in aging!  
Here&apos;s our website for Next Chapters:  https://ourbodiesourselves.org/next-chapters
And here&apos;s the Apple link, one of the channels where many of you listen:  
https://podcasts.apple.com/us/podcast/next-chapters/id1825387175
Happy listening! </itunes:summary>
      <itunes:subtitle>Hello Friends from around the world!  If you&apos;ve listened to Laura Barr on The Shape of Care, you&apos;ll want to hear this! It&apos;s a sneak peek clip from Episode 5 of Next Chapters, featuring Laura again with a great story. It&apos;s called:  On the road: Adventures in aging!  
Here&apos;s our website for Next Chapters:  https://ourbodiesourselves.org/next-chapters
And here&apos;s the Apple link, one of the channels where many of you listen:  
https://podcasts.apple.com/us/podcast/next-chapters/id1825387175
Happy listening! </itunes:subtitle>
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      <description><![CDATA[Welcome to an exclusive sneak peek of Episode 3 of Next Chapters - Relationships and sex: Don't be afraid of hard conversations.  
In this episode, we hear from musician and organizer, Sheryl Wiser, who found love again in her 60s with a “young 71-year-old man”. And we talk to Dr. Jane Fleishman, a certified sexuality educator who is on a mission to promote the sexual wellness of older adults.

If you're enjoying Next Chapters, please review it. That helps other people find the podcast. And check out our website:  https://ourbodiesourselves.org/next-chapters.  Each episode has "show notes", which include more info about the episode topics, guest bios and photos, essays by guest authors, and links to additional resources.  Happy listening - and reading!  
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      <pubDate>Mon, 25 Aug 2025 04:00:00 +0000</pubDate>
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      <itunes:title>Sneak peek:  Episode 3 of Next Chapters:  Relationships and sex</itunes:title>
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      <itunes:summary>Welcome to an exclusive sneak peek of Episode 3 of Next Chapters - Relationships and sex: Don&apos;t be afraid of hard conversations.  
In this episode, we hear from musician and organizer, Sheryl Wiser, who found love again in her 60s with a “young 71-year-old man”. And we talk to Dr. Jane Fleishman, a certified sexuality educator who is on a mission to promote the sexual wellness of older adults.

If you&apos;re enjoying Next Chapters, please review it. That helps other people find the podcast. And check out our website:  https://ourbodiesourselves.org/next-chapters.  Each episode has &quot;show notes&quot;, which include more info about the episode topics, guest bios and photos, essays by guest authors, and links to additional resources.  Happy listening - and reading! </itunes:summary>
      <itunes:subtitle>Welcome to an exclusive sneak peek of Episode 3 of Next Chapters - Relationships and sex: Don&apos;t be afraid of hard conversations.  
In this episode, we hear from musician and organizer, Sheryl Wiser, who found love again in her 60s with a “young 71-year-old man”. And we talk to Dr. Jane Fleishman, a certified sexuality educator who is on a mission to promote the sexual wellness of older adults.

If you&apos;re enjoying Next Chapters, please review it. That helps other people find the podcast. And check out our website:  https://ourbodiesourselves.org/next-chapters.  Each episode has &quot;show notes&quot;, which include more info about the episode topics, guest bios and photos, essays by guest authors, and links to additional resources.  Happy listening - and reading! </itunes:subtitle>
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      <description><![CDATA[We're thrilled to announce the release of our first episode of Next Chapters, a podcast about the remarkable landscape of growing older for women. In this episode, podcast host and co-producer, Mindy Fried, shares an unnerving set of experiences she had with a medical practitioner. Judith Graham, a journalist who writes about ageism in health care for major media outlets, shares her insights regarding how to address the problem. And sociologist Dr. Karen Bullock draws on her seminal research and experience in discussing the impact of racism on access to health care for older Black people. 
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      <pubDate>Wed, 13 Aug 2025 04:00:00 +0000</pubDate>
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      <itunes:title>Announcing first episode of Next Chapters:  Confronting discrimination in health care</itunes:title>
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      <title>Check out Next Chapters, my new podcast about growing older for women!</title>
      <description><![CDATA[Hello Friends of The Shape of Care!  Check out Next Chapters, my new podcast about growing older for women. It's a project of Our Bodies Ourselves, and the Trailer just launched. Episodes start on August 13th!   
]]></description>
      <pubDate>Wed, 30 Jul 2025 04:00:00 +0000</pubDate>
      <author>mindy@fried.net (MIndy Fried, Elizabeth White, Jane Fleishman, Toni Calasanti)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/check-out-next-chapters-my-new-podcast-about-growing-older-for-women-W1GhwpK2</link>
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      <itunes:summary>Hello Friends of The Shape of Care!  Check out Next Chapters, my new podcast about growing older for women. It&apos;s a project of Our Bodies Ourselves, and the Trailer just launched. Episodes start on August 13th!  </itunes:summary>
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      <title>Behind the scenes of The Shape of Care:  Lisa Mullins interviews Mindy Fried</title>
      <description><![CDATA[In this episode, Lisa Mullins, award-winning journalist and the podcast's advisor, interviews Mindy to get a behind the scenes look at The Shape of Care.  In this animated conversation, you learn more about what motivated Mindy to create the podcast, and how she put all the pieces together!  
]]></description>
      <pubDate>Mon, 8 Aug 2022 10:00:00 +0000</pubDate>
      <author>mindy@fried.net (Lisa Mullins, Mindy Fried)</author>
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      <itunes:summary>In this episode, Lisa Mullins, award-winning journalist and the podcast&apos;s advisor, interviews Mindy to get a behind the scenes look at The Shape of Care.  In this animated conversation, you learn more about what motivated Mindy to create the podcast, and how she put all the pieces together! </itunes:summary>
      <itunes:subtitle>In this episode, Lisa Mullins, award-winning journalist and the podcast&apos;s advisor, interviews Mindy to get a behind the scenes look at The Shape of Care.  In this animated conversation, you learn more about what motivated Mindy to create the podcast, and how she put all the pieces together! </itunes:subtitle>
      <itunes:keywords>immigrant workers, home care, social change, nursing homes, immigrant labor, feminist perspective, long term care policy, long term care services and supports, green house project, mass senior action, aging, crisis in care, seiu775, skilled nursing care, caregiving</itunes:keywords>
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      <description><![CDATA[<p>Check out www.theshapeofcare.org/episodes to see guest bios and photos, links to relevant articles and resources, and for Episode 4, you'll see an amazing essay by Ai-jen Poo, Director of Care Can't Wait, and Co-Director of Caring Across Generations. </p>
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      <pubDate>Tue, 19 Jul 2022 10:00:00 +0000</pubDate>
      <author>mindy@fried.net (U.S. Senator Bob Casey, Andrew Banoff, Rose Santiilli, Ai-jen Poo, Alex Spanko, Diane Santilli, Paula Fox)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/she-called-me-her-three-cs-compassion-caring-and-comfort-BDXVRtok</link>
      <content:encoded><![CDATA[<p>Check out www.theshapeofcare.org/episodes to see guest bios and photos, links to relevant articles and resources, and for Episode 4, you'll see an amazing essay by Ai-jen Poo, Director of Care Can't Wait, and Co-Director of Caring Across Generations. </p>
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      <itunes:title>She called me her three c’s:  compassion, caring and comfort</itunes:title>
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      <itunes:summary>This episode examines the critical role professional care workers play in guiding clients through the dying process. Ai-jen Poo, Co-Director of Caring Across Generations, weighs in on the long-term care crisis our country faces, and U.S. Senator Bob Casey discusses a series of long term care-related policies he’s fighting to pass. And Alex Spanko from the Green House Project puts out a call to action.</itunes:summary>
      <itunes:subtitle>This episode examines the critical role professional care workers play in guiding clients through the dying process. Ai-jen Poo, Co-Director of Caring Across Generations, weighs in on the long-term care crisis our country faces, and U.S. Senator Bob Casey discusses a series of long term care-related policies he’s fighting to pass. And Alex Spanko from the Green House Project puts out a call to action.</itunes:subtitle>
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      <description><![CDATA[<p>Check out www.theshapeofcare.org/episodes to see guest bios and photos, links to relevant articles and resources, and for Episode 3, you'll see an excerpt of an interview with Senator Bob Casey! </p>
]]></description>
      <pubDate>Tue, 12 Jul 2022 10:00:00 +0000</pubDate>
      <author>mindy@fried.net (Rose Santiilli, Diane Santilli, Andrew Banoff, Len Fishman, Alex Spanko, Vince Santilli, Paula Fox, Mindy Fried)</author>
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      <content:encoded><![CDATA[<p>Check out www.theshapeofcare.org/episodes to see guest bios and photos, links to relevant articles and resources, and for Episode 3, you'll see an excerpt of an interview with Senator Bob Casey! </p>
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      <itunes:title>Nursing assistants:  the heart and soul of nursing care</itunes:title>
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      <itunes:summary>This episode chronicles the powerful relationship between Paula Fox, a dynamic Certified Nursing Assistant who cares for 94-year-old Rose Santilli, a resident at the Jewish Home in Bridgeport, Connecticut. It also explores alternative models for skilled nursing care. </itunes:summary>
      <itunes:subtitle>This episode chronicles the powerful relationship between Paula Fox, a dynamic Certified Nursing Assistant who cares for 94-year-old Rose Santilli, a resident at the Jewish Home in Bridgeport, Connecticut. It also explores alternative models for skilled nursing care. </itunes:subtitle>
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      <description><![CDATA[<p>Check out www.theshapeofcare.org/episodes to see guest bios and photos, links to relevant articles and resources, and an essay by guest author, Dr. Sonya Michel, Professor Emerita of History and Women’s and Gender Studies at the University of Maryland, College Park. Her essay is entitled, <i><strong>Elder Care and Global Care Chains.</strong></i><strong> </strong></p>
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      <pubDate>Tue, 5 Jul 2022 10:00:00 +0000</pubDate>
      <author>mindy@fried.net (Dr. Ben Veghte, Mindy Fried, U.S. Senator Bob Casey, Darlen Wagenius, Sterling Harders, Shazia Anwar)</author>
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      <content:encoded><![CDATA[<p>Check out www.theshapeofcare.org/episodes to see guest bios and photos, links to relevant articles and resources, and an essay by guest author, Dr. Sonya Michel, Professor Emerita of History and Women’s and Gender Studies at the University of Maryland, College Park. Her essay is entitled, <i><strong>Elder Care and Global Care Chains.</strong></i><strong> </strong></p>
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      <itunes:title>Making a difference: From care work to home care activism</itunes:title>
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      <itunes:summary>This episode explores how Shazia Anwar helps Darlen Wagenius and her husband, Joe, address challenges in accessing quality long term care services. Shazia talks about her introduction to home care activism through her work with SEIU775.  And we look at an innovative policy in Washington state and policy efforts at the national level.</itunes:summary>
      <itunes:subtitle>This episode explores how Shazia Anwar helps Darlen Wagenius and her husband, Joe, address challenges in accessing quality long term care services. Shazia talks about her introduction to home care activism through her work with SEIU775.  And we look at an innovative policy in Washington state and policy efforts at the national level.</itunes:subtitle>
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      <description><![CDATA[<p>Check out www.theshapeofcare.org to see guest bios and photos, links to relevant articles and resources, and an essay by guest author,Fumilayo Showers, an Assistant Professor of Sociology and Africana Studies at the University of Connecticut. The essay is entitled, <i><strong>Immigrant Social Networks and the Little-Known Story of African Immigrants Providing Solutions to the “Crisis of Care” in the US.</strong></i></p><p> </p>
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      <pubDate>Tue, 28 Jun 2022 10:00:00 +0000</pubDate>
      <author>mindy@fried.net (Shazia Anwar, Darlen Wagenius, Adam Glickman, Mindy Fried)</author>
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      <content:encoded><![CDATA[<p>Check out www.theshapeofcare.org to see guest bios and photos, links to relevant articles and resources, and an essay by guest author,Fumilayo Showers, an Assistant Professor of Sociology and Africana Studies at the University of Connecticut. The essay is entitled, <i><strong>Immigrant Social Networks and the Little-Known Story of African Immigrants Providing Solutions to the “Crisis of Care” in the US.</strong></i></p><p> </p>
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      <itunes:title>Season 2, Episode 1:  From fear to love:  An evangelical Christian and a Muslim home care worker</itunes:title>
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      <itunes:summary>Nearly 2.3 million care workers provide personal assistance and health care support to older adults and people with disabilities in their homes. This episode illuminates the relationship between Shazia Anwar, a professional home care worker in Washington state, and the woman she cares for, Darlen Wagenius. Shazia becomes an advocate for Darlen,  and for all home care workers. </itunes:summary>
      <itunes:subtitle>Nearly 2.3 million care workers provide personal assistance and health care support to older adults and people with disabilities in their homes. This episode illuminates the relationship between Shazia Anwar, a professional home care worker in Washington state, and the woman she cares for, Darlen Wagenius. Shazia becomes an advocate for Darlen,  and for all home care workers. </itunes:subtitle>
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      <pubDate>Tue, 21 Jun 2022 10:00:00 +0000</pubDate>
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      <content:encoded><![CDATA[<p>Welcome to Season 2 of The Shape of Care, a podcast about caregiving. Over the next four episodes, we’ll bring you into the lives of two “care pairs”, two PAID workers and the people they care for. And we’ll focus on two very different worlds of care. Nursing homes, which many of us wouldn’t want for ourselves, let alone our loved ones.And home-based care – which is what most of us would want, right? To stay in our own homes, to get services as we need them, and stay close to everything and everyone that’s familiar… So that’s where we’re going to start.</p>
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      <itunes:title>Trailer for Season 2 of The Shape of Care</itunes:title>
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      <description><![CDATA[<p>In this episode, we talk with Robin Lipson, the Deputy Secretary of the Massachusetts Executive Office of Elder Affairs. Robin discusses some of the programs and policies for caregivers that her office manages. She notes the challenges that caregivers face, especially during this pandemic, as well as their creative and positive strategies to address them. Robin also describes the important work of the Massachusetts Caregiver Coalition, a group of employers led by the Massachusetts Business Roundtable. </p>
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      <content:encoded><![CDATA[<p>In this episode, we talk with Robin Lipson, the Deputy Secretary of the Massachusetts Executive Office of Elder Affairs. Robin discusses some of the programs and policies for caregivers that her office manages. She notes the challenges that caregivers face, especially during this pandemic, as well as their creative and positive strategies to address them. Robin also describes the important work of the Massachusetts Caregiver Coalition, a group of employers led by the Massachusetts Business Roundtable. </p>
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      <itunes:title>Government and Employers:  Key partners in supporting caregivers</itunes:title>
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      <itunes:summary>In this episode, we talk with Robin Lipson, the Deputy Secretary of the Massachusetts Executive Office of Elder Affairs. Robin discusses some of the programs and policies for caregivers that her office manages. She notes the challenges that caregivers face, especially during this pandemic, as well as their creative and positive strategies to address them. Robin also describes the important work of the Massachusetts Caregiver Coalition, a group of employers led by the Massachusetts Business Roundtable. </itunes:summary>
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      <description><![CDATA[<p>In this episode, we interview Donna Thomson, Canadian author, educator and advocate for family caregivers. She talks about a public scandal in nursing homes in Québec, Canada. And how government intervention resulted in some very positive changes for caregivers of nursing home residents and their loved ones..</p>
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      <pubDate>Tue, 26 May 2020 19:09:18 +0000</pubDate>
      <author>mindy@fried.net (Mindy Fried, Donna Thomson)</author>
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      <content:encoded><![CDATA[<p>In this episode, we interview Donna Thomson, Canadian author, educator and advocate for family caregivers. She talks about a public scandal in nursing homes in Québec, Canada. And how government intervention resulted in some very positive changes for caregivers of nursing home residents and their loved ones..</p>
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      <itunes:title>Following a public scandal in nursing homes in Quebec, Canada, some good news for caregivers...</itunes:title>
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      <itunes:summary>In this episode, we interview Donna Thomson, Canadian author, educator and advocate for family caregivers. She talks about a public scandal in nursing homes in Québec, Canada. And how government intervention resulted in some very positive changes for caregivers of nursing home residents and their loved ones.</itunes:summary>
      <itunes:subtitle>In this episode, we interview Donna Thomson, Canadian author, educator and advocate for family caregivers. She talks about a public scandal in nursing homes in Québec, Canada. And how government intervention resulted in some very positive changes for caregivers of nursing home residents and their loved ones.</itunes:subtitle>
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      <description><![CDATA[<p>In this episode, we interview Meg Flaherty-Griffith, a visiting geriatric physical therapist who does home visits with elders. What does it mean to provide high touch care during a pandemic? How has Meg's "job description" expanded to include simple tasks like buying milk for a client? And beyond what Meg does in the home with clients, how has this essential worker become the eyes and the ears for other medical practitioners who cannot see their patients?</p>
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      <pubDate>Mon, 18 May 2020 14:25:31 +0000</pubDate>
      <author>mindy@fried.net (Meg Flaherty-Griffith, Mindy Fried)</author>
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      <content:encoded><![CDATA[<p>In this episode, we interview Meg Flaherty-Griffith, a visiting geriatric physical therapist who does home visits with elders. What does it mean to provide high touch care during a pandemic? How has Meg's "job description" expanded to include simple tasks like buying milk for a client? And beyond what Meg does in the home with clients, how has this essential worker become the eyes and the ears for other medical practitioners who cannot see their patients?</p>
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      <itunes:title>Physical therapy with elders:  What&apos;s it look like in a pandemic?</itunes:title>
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      <itunes:summary>In this episode, we interview Meg Flaherty-Griffith, a visiting geriatric physical therapist who does home visits with elders. What does it mean to provide high touch care during a pandemic? How has Meg&apos;s &quot;job description&quot; expanded to include simple tasks like buying milk for a client? And beyond what Meg does in the home with clients, how has this essential worker become the eyes and the ears for other medical practitioners who cannot see their patients?</itunes:summary>
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      <title>Caregiving in the Time of Corona:  An interview with Roberta Rosenberg</title>
      <description><![CDATA[<p>In this episode, Roberta Rosenberg speaks openly about the traumatic accident her son experienced 2 1/2 years ago and his successful healing journey, with support from family. And how, more recently, she has taken her mother out of a senior living facility, and moved her into her family's home. Roberta brings creativity and joy to this "new normal", as she spends 24/7 with her mother, engaging in creative projects and a lot of reminiscing. She also shares an epiphany that she's recently had about her many caregiving experiences.</p>
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      <pubDate>Sun, 10 May 2020 18:25:19 +0000</pubDate>
      <author>mindy@fried.net (Roberta Rosenberg, Mindy Fried)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/caregiving-in-the-time-of-corona-an-interview-with-roberta-rosenberg-f99H_x5Z</link>
      <content:encoded><![CDATA[<p>In this episode, Roberta Rosenberg speaks openly about the traumatic accident her son experienced 2 1/2 years ago and his successful healing journey, with support from family. And how, more recently, she has taken her mother out of a senior living facility, and moved her into her family's home. Roberta brings creativity and joy to this "new normal", as she spends 24/7 with her mother, engaging in creative projects and a lot of reminiscing. She also shares an epiphany that she's recently had about her many caregiving experiences.</p>
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      <itunes:title>Caregiving in the Time of Corona:  An interview with Roberta Rosenberg</itunes:title>
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      <itunes:duration>00:12:54</itunes:duration>
      <itunes:summary>In this episode, Roberta Rosenberg speaks openly about the traumatic accident her son experienced 2 1/2 years ago and his successful healing journey, with support from his family. And how, more recently, she has taken her mother out of a senior living facility, and moved her into her family&apos;s home. Roberta brings creativity and joy to this &quot;new normal&quot;, as she spends 24/7 with her mother, engaging in creative projects and a lot of reminiscing. She also shares an epiphany that she&apos;s recently had about her many caregiving experiences.</itunes:summary>
      <itunes:subtitle>In this episode, Roberta Rosenberg speaks openly about the traumatic accident her son experienced 2 1/2 years ago and his successful healing journey, with support from his family. And how, more recently, she has taken her mother out of a senior living facility, and moved her into her family&apos;s home. Roberta brings creativity and joy to this &quot;new normal&quot;, as she spends 24/7 with her mother, engaging in creative projects and a lot of reminiscing. She also shares an epiphany that she&apos;s recently had about her many caregiving experiences.</itunes:subtitle>
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      <title>Caregiving in the Time of Corona:  An interview with Taura Taylor</title>
      <description><![CDATA[<p>In this episode, we welcome sociologist Taura Taylor, a Visiting Lecturer at Georgia State University who teaches about race and resilience. Over the years, Taura has played a caregiver role to a number of family members, and three years ago, her mother moved in with her. Taura talks about the culture of caregiving in her family, and how that has influenced choices she has made. She speaks candidly and with humor about the challenges of supporting her mother, while juggling her own teaching schedule, and how that routine has changed during the pandemic. </p>
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      <pubDate>Mon, 4 May 2020 16:12:21 +0000</pubDate>
      <author>mindy@fried.net (Taura Taylor, Mindy Fried)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/caregiving-in-the-time-of-corona-an-interview-with-taura-taylor-SHmfjdE1</link>
      <content:encoded><![CDATA[<p>In this episode, we welcome sociologist Taura Taylor, a Visiting Lecturer at Georgia State University who teaches about race and resilience. Over the years, Taura has played a caregiver role to a number of family members, and three years ago, her mother moved in with her. Taura talks about the culture of caregiving in her family, and how that has influenced choices she has made. She speaks candidly and with humor about the challenges of supporting her mother, while juggling her own teaching schedule, and how that routine has changed during the pandemic. </p>
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      <itunes:title>Caregiving in the Time of Corona:  An interview with Taura Taylor</itunes:title>
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      <itunes:summary>In this episode, we welcome sociologist Taura Taylor, a Visiting Lecturer at Georgia State University who teaches about race and resilience. Over the years, Taura has played a caregiver role to a number of family members, and three years ago, her mother moved in with her. Taura talks about the culture of caregiving in her family, and how that has influenced choices she has made. She speaks candidly and with humor about the challenges of supporting her mother, while juggling her own teaching schedule, and how that routine has changed during the pandemic. </itunes:summary>
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      <description><![CDATA[<p>Elder care expert, Karen Wasserman, shares both tragic and uplifting stories based on her work with elders and their families during this difficult time. In sharing how her Boston-based agency helps elders and their families, she provides a powerful roadmap for caregivers to help them find services and support in their own localities - which will, in turn, help them navigate "care systems", and the kinds of services they can expect to find. </p>
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      <content:encoded><![CDATA[<p>Elder care expert, Karen Wasserman, shares both tragic and uplifting stories based on her work with elders and their families during this difficult time. In sharing how her Boston-based agency helps elders and their families, she provides a powerful roadmap for caregivers to help them find services and support in their own localities - which will, in turn, help them navigate "care systems", and the kinds of services they can expect to find. </p>
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      <itunes:title>Caregiving in the Time of Corona: An interview with elder care expert, Karen Wasserman</itunes:title>
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      <description><![CDATA[How are caregivers coping during this global health crisis? The Shape of Care podcast is releasing a series of interviews with people who are caring for a loved one right now. In this episode, Mindy brings back a guest from Season 1 - Laura Barr - whose wife, Jean, has Alzheimer's Disease.  In an honest and heartfelt conversation, Laura talks about some of the realities she and her kids are facing with Jean living in a nursing home now. She also talks about a support group she created for LGBTQ caregivers, and where she finds joy these days! 
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      <pubDate>Sat, 21 Mar 2020 15:59:34 +0000</pubDate>
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      <description><![CDATA[<p>This is our final episode for Season 1!  In this episode, Mindy interviews Karen Wasserman, a national elder care expert, and the Director of Your Elder Care Experts.  Karen responds to a series of important questions and comments listeners sent in through voice and email messages. These include: how to help a loved one in need who is resisting support; where to find community-based resources to help navigate the care system; the role of aging life care managers, where to find support for caregivers; and how to negotiate care with siblings.</p><p> </p>
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      <pubDate>Tue, 26 Nov 2019 06:00:11 +0000</pubDate>
      <author>mindy@fried.net (Mindy Fried, Karen Wasserman)</author>
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      <content:encoded><![CDATA[<p>This is our final episode for Season 1!  In this episode, Mindy interviews Karen Wasserman, a national elder care expert, and the Director of Your Elder Care Experts.  Karen responds to a series of important questions and comments listeners sent in through voice and email messages. These include: how to help a loved one in need who is resisting support; where to find community-based resources to help navigate the care system; the role of aging life care managers, where to find support for caregivers; and how to negotiate care with siblings.</p><p> </p>
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      <description><![CDATA[<p>This episode explores homophobia in elder care, and features several people, including Dale Mitchell from Ethos and the LGBT Aging Project; Rebekah Levit, the Executive Director of Rogerson House, who brought in training via the LBGT Aging Project to sensitize her staff to issues facing LGBT elders; and Laura Barr, who reflects on her concerns about how Jean may be treated as a lesbian living in a long-term care institution.</p>
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      <pubDate>Tue, 19 Nov 2019 06:00:07 +0000</pubDate>
      <author>mindy@fried.net (Laura Barr, Mindy Fried, Rebekah Levit, Dale Mitchell)</author>
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      <content:encoded><![CDATA[<p>This episode explores homophobia in elder care, and features several people, including Dale Mitchell from Ethos and the LGBT Aging Project; Rebekah Levit, the Executive Director of Rogerson House, who brought in training via the LBGT Aging Project to sensitize her staff to issues facing LGBT elders; and Laura Barr, who reflects on her concerns about how Jean may be treated as a lesbian living in a long-term care institution.</p>
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      <content:encoded><![CDATA[<p>This episode features Laura Barr talking about caring for her wife, Jean, who has Alzheimer’s Disease. Laura tells the story of Jean’s diagnosis and decline and reflects on the decisions she has had to make along the way around Jean’s care. This episode also brings listeners into the world of institutional care, as Jean moves into Rogerson House, a dementia facility in the Jamaica Plain neighborhood of Boston. We also meet Dr. Adam Burrows, the Medical Director of PACE, a program designed to support frail elders so they can remain in their homes, but also supports people if they require institutional care. And Miss Lygia Angel, a Recreation Assistant at Rogerson House, has a cameo, reflecting on the activities she runs that engage residents.</p>
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      <itunes:title>Alzheimer’s Disease:  Holding onto joy</itunes:title>
      <itunes:author>Mindy Fried, Adam Burrows, Laura Barr, Lygia Angel</itunes:author>
      <itunes:duration>00:15:17</itunes:duration>
      <itunes:summary>Laura Barr talks with humor and openness about caring for her wife, Jean, who has Alzheimer’s Disease, from when Jean was diagnosed to when she moved into a dementia facility. We also meet Dr. Adam Burrows, who runs an innovative program designed to support frail elders so they can remain in their own homes.
</itunes:summary>
      <itunes:subtitle>Laura Barr talks with humor and openness about caring for her wife, Jean, who has Alzheimer’s Disease, from when Jean was diagnosed to when she moved into a dementia facility. We also meet Dr. Adam Burrows, who runs an innovative program designed to support frail elders so they can remain in their own homes.
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      <title>Linking quality care jobs and quality of care</title>
      <description><![CDATA[<p>This episode features Rick Surpin, founder of Cooperative Home Care Associates, who shares disturbing stories from his childhood that drives his passion for supporting person-centered care. Rick talks about why it’s so important that care workers are paid well and respected on the job, if they are to provide quality care to frail elders. He also makes the distinction between care work provided through agencies versus through independent networks. The episode also features Tutu, a veteran care worker, who began as an agency worker, and now has her own business providing care to elders and their families. We include a teaser from Laura Barr, who is featured in Episode 4. Laura is caring for her wife, Jean, who has Alzheimer’s Disease.  </p>
]]></description>
      <pubDate>Tue, 5 Nov 2019 06:00:10 +0000</pubDate>
      <author>mindy@fried.net (Rick Surpin, Tutu Cherif, Mindy Fried)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/linking-quality-care-jobs-and-quality-of-care-LgR_NQTx</link>
      <content:encoded><![CDATA[<p>This episode features Rick Surpin, founder of Cooperative Home Care Associates, who shares disturbing stories from his childhood that drives his passion for supporting person-centered care. Rick talks about why it’s so important that care workers are paid well and respected on the job, if they are to provide quality care to frail elders. He also makes the distinction between care work provided through agencies versus through independent networks. The episode also features Tutu, a veteran care worker, who began as an agency worker, and now has her own business providing care to elders and their families. We include a teaser from Laura Barr, who is featured in Episode 4. Laura is caring for her wife, Jean, who has Alzheimer’s Disease.  </p>
]]></content:encoded>
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      <itunes:title>Linking quality care jobs and quality of care</itunes:title>
      <itunes:author>Rick Surpin, Tutu Cherif, Mindy Fried</itunes:author>
      <itunes:duration>00:15:15</itunes:duration>
      <itunes:summary>Rick Surpin, founder of Cooperative Home Care Associates, talks about some disturbing early experiences that drive his passion for supporting person-centered care. And he describes why it’s so important that care workers are paid well and respected on the job, if they are to provide quality care to frail elders.
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      <itunes:subtitle>Rick Surpin, founder of Cooperative Home Care Associates, talks about some disturbing early experiences that drive his passion for supporting person-centered care. And he describes why it’s so important that care workers are paid well and respected on the job, if they are to provide quality care to frail elders.
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      <title>Ai-jen Poo and Sarita Gupta:  Reimagining Caregiving Policies</title>
      <description><![CDATA[<p>This episode features Ai-jen Poo, Director of the National Domestic Workers Alliance, and Sarita Gupta, who co-directs Caring Across Generations with Ai-jen. These powerhouse activists lay out an agenda that addresses the lack of a comprehensive and coherent caregiving policy in the U.S.  They also share their own challenges they’ve faced caring for elders in their families, as well as juggling caring for parents and a child, in Sarita’s case. At the end of the episode, you'll hear a “teaser” from Episode 3, with Rick Surpin. Rick founded Cooperative Home Care Associates, the first worker-owned home care agency, based in NYC.</p><p> </p>
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      <pubDate>Tue, 29 Oct 2019 05:00:15 +0000</pubDate>
      <author>mindy@fried.net (Sarita Gupta, Ai-jen Poo)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/ai-jen-poo-and-sarita-gupta-reimagining-caregiving-policies-vb7FPLTI</link>
      <content:encoded><![CDATA[<p>This episode features Ai-jen Poo, Director of the National Domestic Workers Alliance, and Sarita Gupta, who co-directs Caring Across Generations with Ai-jen. These powerhouse activists lay out an agenda that addresses the lack of a comprehensive and coherent caregiving policy in the U.S.  They also share their own challenges they’ve faced caring for elders in their families, as well as juggling caring for parents and a child, in Sarita’s case. At the end of the episode, you'll hear a “teaser” from Episode 3, with Rick Surpin. Rick founded Cooperative Home Care Associates, the first worker-owned home care agency, based in NYC.</p><p> </p>
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      <itunes:title>Ai-jen Poo and Sarita Gupta:  Reimagining Caregiving Policies</itunes:title>
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      <itunes:summary>Ai-jen Poo and Sarita Gupta, call for a comprehensive caregiving policy in the  U.S. Ai-jen is the Director of the National Domestic Workers Alliance, and she and Sarita co-direct Caring Across Generations.
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      <itunes:keywords>juggling work and family, crisis-tunity, care grid, care workforce, care infrastructure, multigenerational family, frail elders, long-term care, paid care work, long-term care policy, caregiving</itunes:keywords>
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      <title>When your romantic partner has Parkinson&apos;s Disease</title>
      <description><![CDATA[<p>This episode features Laurie Sheridan, who speaks candidly with warmth and humor as she describes what it’s like caring 24/7 for her husband, Ira, who has Parkinson’s Disease. Rick Surpin has a cameo in this episode. Rick is the Founder of Cooperative Home Care Associates, a worker-owned home care agency in New York City. At the end of the episode, we hear a “teaser” from Ai-jen Poo who is featured, along with Sarita Gupta, in Episode 2. Ai-jen directs the National Domestic Workers Alliance, and Ai-jen and Sarita Co-Direct Caring Across Generations.</p>
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      <pubDate>Tue, 22 Oct 2019 05:00:13 +0000</pubDate>
      <author>mindy@fried.net (Mindy Fried, Ai-jen Poo, Laurie Sheridan, Rick Surpin)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/when-your-romantic-partner-has-parkinsons-disease-KCQbQ1_W</link>
      <content:encoded><![CDATA[<p>This episode features Laurie Sheridan, who speaks candidly with warmth and humor as she describes what it’s like caring 24/7 for her husband, Ira, who has Parkinson’s Disease. Rick Surpin has a cameo in this episode. Rick is the Founder of Cooperative Home Care Associates, a worker-owned home care agency in New York City. At the end of the episode, we hear a “teaser” from Ai-jen Poo who is featured, along with Sarita Gupta, in Episode 2. Ai-jen directs the National Domestic Workers Alliance, and Ai-jen and Sarita Co-Direct Caring Across Generations.</p>
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      <itunes:title>When your romantic partner has Parkinson&apos;s Disease</itunes:title>
      <itunes:author>Mindy Fried, Ai-jen Poo, Laurie Sheridan, Rick Surpin</itunes:author>
      <itunes:duration>00:21:12</itunes:duration>
      <itunes:summary>Laurie Sheridan speaks candidly with warmth and humor, as she describes what it’s like caring 24/7 for her husband, Ira, who has Parkinson’s Disease. </itunes:summary>
      <itunes:subtitle>Laurie Sheridan speaks candidly with warmth and humor, as she describes what it’s like caring 24/7 for her husband, Ira, who has Parkinson’s Disease. </itunes:subtitle>
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      <title>Trailer: Introducing The Shape of Care</title>
      <description><![CDATA[<p><i>The Shape of Care </i>explores the world of caregiving. In this series, we look at who does the caregiving in the U.S. and why it’s so important. You’ll hear stories of caregivers and the people they care for, and from experts and activists tackling these issues, trying to improve conditions for workers and the care they provide.</p>
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      <pubDate>Thu, 26 Sep 2019 01:53:25 +0000</pubDate>
      <author>mindy@fried.net (Mindy Fried, Josh Rosen, Adam Burrows, Sarita Gupta, Stan Strickland, Laurie Sheridan)</author>
      <link>https://the-shape-of-care.simplecast.com/episodes/trailer-introducing-the-shape-of-care-Vr32_A2f</link>
      <content:encoded><![CDATA[<p><i>The Shape of Care </i>explores the world of caregiving. In this series, we look at who does the caregiving in the U.S. and why it’s so important. You’ll hear stories of caregivers and the people they care for, and from experts and activists tackling these issues, trying to improve conditions for workers and the care they provide.</p>
]]></content:encoded>
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      <itunes:title>Trailer: Introducing The Shape of Care</itunes:title>
      <itunes:author>Mindy Fried, Josh Rosen, Adam Burrows, Sarita Gupta, Stan Strickland, Laurie Sheridan</itunes:author>
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      <itunes:summary>The Shape of Care explores the world of caregiving. In this series, we look at who does the caregiving in the U.S. and why it’s so important.</itunes:summary>
      <itunes:subtitle>The Shape of Care explores the world of caregiving. In this series, we look at who does the caregiving in the U.S. and why it’s so important.</itunes:subtitle>
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