Arthritis Life

Body Weather: Making Sense of Chronic Illness in an Unpredictable Body

info@myarthritislife.net (Cheryl Crow) — Tue, 21 Apr 2026 15:07:58 +0000

She shares her complex diagnostic journey across multiple autoimmune and inflammatory conditions, highlighting the uncertainty and overlap many patients experience. Cheryl and Lorraine discuss shifting from a “cure” mindset to one focused on management, the role of community (including Rheum to THRIVE), and how writing can be a powerful tool for processing and meaning-making.

Together, they explore how reframing expectations, finding connection, and letting go of the illusion of control can help people feel less alone and more capable. If you’re newly diagnosed, this conversation offers both validation and a gentle reminder that, over time, navigating your health and your life can become more manageable.

Episode at a glance:

00:00–03:00 Introduction + Lorraine’s background
03:00–08:30 Diagnostic journey across multiple conditions
08:30–12:30 Coping, loss of identity, and community support
12:30–16:00 The “acceptance paradox” and letting go of cure culture
16:00–20:00 Writing as a processing tool
20:00–28:00 The concept of “body weather” and chaotic systems
28:00–33:00 Environmental parallels and climate connections
33:00–41:00 Inside the book’s metaphors and structure
41:00–50:00 Writing advice and creative process
50:00–54:00 Advice for newly diagnosed patients
54:00–58:00 Tools, quotes, and recommendations
58:00–End Thriving with chronic illness + closing thoughts

Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details

and join the program or waitlist now!

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Introducing New Rheum to THRIVE Facilitators Gittel Aguilar & Eileen!

info@myarthritislife.net (Cheryl Crow) — Wed, 15 Apr 2026 16:00:00 +0000

Eileen and Gittel talk about why they’re passionate about leading support spaces, what those groups are really like (spoiler: welcoming, not intimidating), and how connection can make a huge difference. You’ll also hear gentle, practical advice for those early days like pacing yourself, adapting as you go, and redefining what it means to thrive.

It’s a comforting reminder that even with chronic illness, you can still build a full, meaningful life and you don’t have to figure it out alone. And if you’d like to join one of the latest Rheum to THRIVE groups, you can do so here.

Episode at a glance:

00:00 Meet the New Facilitators
01:13 Diagnoses and Comorbidities
04:35 Why Eileen Facilitates
08:06 Why Gittel (GT) Facilitates
12:09 Why Support Groups Matter
15:27 Program Structure Highlights
22:43 GT’s Teaching Style
23:32 Creating Safe Space
24:28 Alumni Group Exploration
25:46 Eileen’s Facilitation Style
33:42 Common Support Group Worries Addressed
37:48 Importance of Diversity In Groups
41:41 Reflections on Thriving With Arthritis

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Making Movement Accessible with Inflammatory Arthritis, with Jamie Boder

info@myarthritislife.net (Cheryl Crow) — Thu, 2 Apr 2026 16:00:00 +0000

The conversation also dives into the emotional side of chronic illness, including fear of movement, the importance of interoception (body awareness), and how to avoid the boom–bust cycle of overdoing it. Cheryl and Jamie reflect on the shift from a “warrior” mindset to one rooted in acceptance, adaptability, and long-term self-care. Ultimately, this episode offers a hopeful, realistic perspective: that thriving with arthritis isn’t about pushing harder, it’s about finding what works for your body and building a life alongside it, not in spite of it.

Episode at a glance:

01:27 Jamie’s Diagnosis Journey
05:41 Processing The Reality Online
07:05 Gender And Community Support
11:50 From Isolation To Teaching
19:12 Why Accessibility Matters
22:59 Adaptations And Safer Strength
31:58 Interoception Explained
33:23 Proprioception and Arthritis
36:02 When Awareness Becomes Sensitivity
36:57 Progression Beyond Rehab Sheets
39:55 Progressive Overload in Flares
42:45 Just Right Challenge
43:09 Accessible Training Tools
45:47 Acceptance and Thriving
48:58 Community and Uncertainty

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: Myths and Misconceptions About Arthritis Research: What Patients Should Know

info@myarthritislife.net (Cheryl Crow) — Thu, 26 Mar 2026 16:00:00 +0000

Together, we walk through how to find reputable research, what “peer-reviewed” really means, and why one exciting study doesn’t equal a proven treatment. Dr. Li also explains key concepts like plain language summaries, the hierarchy of evidence, and how to spot common traps like cherry-picking data or misleading headlines.

Our goal on this episode is to give you some practical tools so you can feel more confident, informed, and supported in your health decisions. Because learning how to interpret research helps you build realistic, evidence-based hope that actually serves you long-term.

Episode at a glance:

Why “doing your own research” can feel empowering, but also confusing without the right tools
Trusted places to start when looking for arthritis information (so you’re not relying on random posts or headlines)
What “peer-reviewed research” means in plain language
How plain language summaries make research more accessible (and why to look for them)
Why not everything published in a journal is high-quality (and what “predatory journals” are)
The truth about “one study says…” and why science is built over time
What cherry-picking data looks like—and how it can lead to misleading conclusions
The difference between correlation and causation (and why it matters for treatment decisions)
Red flags to watch for when you see bold claims online
Simple ways to feel more confident evaluating research, without necessarily needing a science degree

Medical disclaimer:

All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

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What’s it Like to be on Methotrexate for Autoimmune Arthritis? (Encore Episode)

info@myarthritislife.net (Cheryl Crow) — Thu, 19 Mar 2026 15:51:35 +0000

They also reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences.

Paulina, Jenny, Ali, and Ananthi each share wisdom that has guided them along this nonlinear journey; encouraging self-care, advocating, celebrating small victories, and approaching life one day at a time. They conclude with a discussion about how to balance acceptance and adapting with a “fixing” mindset.

Episode at a glance:

Methotrexate and treatment plans: what’s changed and what’s stayed the same?
Pregnancy and medication decisions: Jenny and Cheryl discuss how their pregnancies affected their treatments, as methotrexate is unsafe during pregnancy
The impact of a supportive community: the panel reflects on how important it’s been to find others who “get it”
The coexistence of joy and grief: the panel reflects on how important it is to make space for both joy and grief
Coping toolbox: each panelists shares what’s in her coping toolbox, including reflections on how living “one day at a time” helps cope with unpredictability
Balancing Chronic Illness and Identity: Some participants share the challenge of balancing their identity with chronic illness. They expressed the importance of finding a balance between addressing health needs and living a full life.
Social Media and Mental Health: The discussion touched on the impact of social media on mental health. Participants shared their experiences of navigating online spaces, stressing the need to set boundaries and avoid being consumed by the negativity that can sometimes arise.
Acceptance and Adaptation: The conversation delved into the journey of acceptance and adaptation to life with chronic illness. Participants shared personal strategies for navigating challenges, such as making choices that enable a better quality of life and adjusting plans based on energy levels

Medical disclaimer:

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Building a Healthier Relationship with Food while Living with Rheumatoid Arthritis (with Dietitian Cristina Montoya)

info@myarthritislife.net (Cheryl Crow) — Thu, 12 Mar 2026 16:00:00 +0000

Cristina and Cheryl also discuss Cristina’s new GLOW framework: Grow gut diversity, Lower inflammation, Optimize energy, and Work with your body compassionately. The conversation also covers gut health, the risks of overly restrictive diets, mindful eating, and how to aim for progress over perfection, even on flare days.

Episode at a glance:

02:02 Diagnosis and Acceptance
05:25 Medications Plus Lifestyle
06:48 Why Cristina Became a Dietitian
13:59 GLOW Framework Explained
29:16 Defining Gut Health
36:10 Healing Your Food Relationship
38:20 Why Restriction Backfires
40:05 Mindful Treats and Less Stress
41:37 Sustainable Habits Over Time
43:01 Progress Over Perfection
43:49 Shifting Priorities with Illness
49:12 Living a Good Life with RA
51:43 Where to Find Cristina’s Spanish Podcast

Medical disclaimer:

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RA, Cancer, and Starting Over: Yasmin’s Story of Resilience

info@myarthritislife.net (Cheryl Crow) — Thu, 5 Mar 2026 16:32:03 +0000

Yasmin also shares what it was like to navigate multiple major health crises at once, including serious GI symptoms and an unexpected breast cancer diagnosis, and how it all impacted her mental health and anxiety. Together, Cheryl and Yasmin explore the tools that helped her cope and rebuild: therapy (CBT/talking therapy), journaling, poetry, mindfulness, support groups, pacing, and learning to advocate for herself.

Yasmin’s message is clear and hopeful: life may change after diagnosis, but it doesn’t end. You can still pursue dreams, create meaning, and build a full, beautiful life.

Episode at a glance:

01:43 Misdiagnosis Then RA
03:32 Lockdown Flare And Meds
04:34 Why Early Treatment Matters
09:55 Breast Cancer Diagnosis
15:46 Therapy Journaling And Art
21:02 Support Groups And Pacing
24:52 Self Compassion And Boundaries
26:56 Learning Self Advocacy
30:24 Pushing for Imaging
33:48 Handling Dismissal

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Introducing Chrissy, the newest Rheum to THRIVE Certified Facilitator!

info@myarthritislife.net (Cheryl Crow) — Thu, 26 Feb 2026 16:30:27 +0000

Cheryl and Chrissy also do a deep dive into the Rheum to THRIVE program and discuss their excitement over Chrissy taking on a new role as the lead facilitator of an upcoming cohort. Chrissy’s facilitation style is flexible and responsive, letting the group’s needs guide the conversation while keeping it grounded in the weekly theme. If you want a supportive, stigma-free space that helps you feel less alone, more informed, and more capable of building a full life with arthritis, Chrissy’s Rheum to THRIVE group might be just right for you - learn more here.

Episode at a glance:

00:00 Welcome Back, Chrissy! Quick Catch-Up & Arthritis Background
11:23 Big Announcement: Training New Rheum to Thrive Facilitators
12:13 Why Chrissy Wanted to Facilitate (and What Participants Gain)
18:40 What a Typical Rheum to Thrive Meeting Looks Like (THRIVE Breakdown)
35:26 Rheum to Thrive Explained: Cohort Learning + Alumni Support (and Why Topics Help)
39:41 On the Fence About Support Groups? Privacy, Intimidation & Finding the Right Fit
42:30 Myths, Doom Spirals & Misinformation: What Good Facilitation Looks Like
45:45 Participation Your Way: Cameras Off, Chat-Only, Discord, and Asking for Help
51:34 Words of Wisdom: “Life Is Different, But It’s Not Over” + Acceptance & Adapting Goals

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: Weight, GLP-1 and Arthritis

info@myarthritislife.net (Cheryl Crow) — Thu, 19 Feb 2026 17:00:00 +0000

They also discuss safe, realistic strategies that support joint health, including tailored exercise and strength training, plus the emerging evidence on GLP-1 medications (like semaglutide/Ozempic/Wegovy) for people with obesity and arthritis. The key message: obesity is a treatable chronic condition, and care should be compassionate, individualized, and evidence-based.

*Content note/ trigger warning: This episode includes discussion of body weight, obesity, BMI, and weight-loss medications (including GLP-1 drugs). We approach this topic from a stigma-free, evidence-based perspective, as well as lived experience, but we know conversations about weight can be sensitive or activating, especially for those with a history of weight stigma, eating disorders, or body image challenges. Listener discretion encouraged.

Episode at a glance:

Weight and arthritis: inflammation + joint load (OA and inflammatory arthritis)
Why adipose tissue can worsen pain and disease activity
BMI limits: muscle loss, fat distribution, and rheumatoid cachexia
Exercise myth-busting: movement helps when it’s tailored and gradual
Strength training for knee support and better joint mechanics
GLP-1 medications (semaglutide, tirzepatide): what research shows so far
Stigma-free framing: obesity is chronic, not a personal failure
Practical next steps and trusted resources (Arthritis Research Canada webinar)

Medical disclaimer:

Episode Sponsors

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Understanding Rheumatoid Arthritis: Diagnosis, Medications, and Hope from Dr. Julius Birnbaum

info@myarthritislife.net (Cheryl Crow) — Thu, 12 Feb 2026 17:00:00 +0000

Dr. Birnbaum also addresses common early fears, including confusion about autoimmune disease and anxiety around immunosuppressive medications, reframing treatment as dialing down an overactive immune response rather than taking away your immune system.

Throughout the episode, he encourages self-advocacy, realistic hope, and partnership with your care team, and shares insights from his book“Living well with autoimmune diseases” A Rheumatologist's Guide to Taking Charge of Your Health. The takeaway is empowering and hopeful: we’re living in a “golden era” of RA care, with more effective treatments and real reason to believe a full, meaningful life is possible alongside this diagnosis.

Episode at a glance:

00:20 Dr. Burnbaum's Background and Passion for Arthritis & Neurology
05:19 The Diagnostic Process in Rheumatology
08:59 Understanding Inflammatory Arthritis
15:22 Explaining Autoimmune Diseases and Inflammation
23:11 The Role of Immunosuppressive Therapies
28:16 Personalized Treatment Plans in Rheumatology
30:50 Understanding Diagnostic Criteria and Nuances
31:31 Dealing with Diagnostic Ambiguity
32:57 Empowerment Through Patient-Doctor Partnership
38:10 Practical Tips for Patient Empowerment
46:03 Realistic Hope and Coping Strategies
56:34 Concluding Thoughts and Resources

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: How to Build Sustainable Exercise Habits With Arthritis

info@myarthritislife.net (Cheryl Crow) — Thu, 5 Feb 2026 16:15:48 +0000

Listeners will learn how to reframe movement as something personal, enjoyable, and adaptable, because sustainable behavior change comes from doing what fits your life, not from chasing perfect routines. The biggest benefits come from starting small, not from hitting rigid guidelines like 10,000 steps or 150 minutes per week.

Episode at a glance:

Why movement matters (and what counts): How physical activity supports pain, stiffness, fatigue, mood, and mental health, and why movement doesn’t have to mean gym workouts, strict guidelines, or 10,000 steps to be beneficial.
How to move with arthritis - realistically: Practical guidance on starting (or restarting) movement during flares, fatigue, anxiety, or depression, including pacing, rest vs. movement, muscle soreness vs. joint pain, and why short “movement snacks” can be both effective and sustainable.
How to make it stick: Building lasting movement habits by keeping them personal, flexible, enjoyable, and supportive, plus a walkthrough of the free, arthritis-friendly Just One Move resource, including flare-friendly options and habit-building tools.

Medical disclaimer:

Episode Sponsors

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The Power of Poetry, Storytelling and Art in Life with RA

info@myarthritislife.net (Cheryl Crow) — Thu, 29 Jan 2026 17:00:00 +0000

Tori also highlights the vital role of creative expression, through painting and poetry, in coping with chronic illness and reclaiming parts of her life. Listeners will be inspired by her powerful poems, descriptions of her artistic adaptations, and advice for living a meaningful, purpose-driven life despite chronic health challenges. This episode is particularly resonant for those recently diagnosed with RA and looking for ways to find healing and joy in their new reality.

Episode at a glance:

00:00 Welcome and Introduction
00:20 Tori's Background and Diagnosis Journey
10:49 Creative Expressions as a Lifeline
13:36 Poetry and Personal Reflections
18:09 Cultural and Familial Challenges
24:40 Redefining Healing and the Hero's Journey
25:57 The Rollercoaster of Life with RA
27:28 Creativity as a Form of Healing
28:35 Adapting Artistic Practices
32:52 The Power of Letting Emotions Out
33:35 A Poem: Not That Girl
37:59 Words of Wisdom for the Newly Diagnosed
45:33 Conclusion and Where to Find More

Medical disclaimer:

Episode Sponsors

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Busting Fibromyalgia Myths with Dr Christine Stamatos

info@myarthritislife.net (Cheryl Crow) — Thu, 22 Jan 2026 16:27:54 +0000

Dr. Stamatos explains why fibromyalgia is absolutely real, how it commonly overlaps with inflammatory diseases like RA, and what’s actually happening in the brain, nerves, and spinal fluid of people with fibromyalgia. She offers practical guidance for telling the difference between an RA flare and a fibromyalgia flare, explains why opioids often make fibromyalgia pain worse, and reframes treatment as a whole-person, multi-tool approach, not a single pill, diet, or supplement.

This conversation is especially powerful if you’ve ever felt dismissed, blamed, or overwhelmed by mixed messages about pain, fatigue, brain fog, sleep, or mental health. You’ll walk away feeling validated, better informed, and more confident in navigating life with both conditions.

Episode at a glance:

Why fibromyalgia is a real, biologically based condition (and what the science actually shows)
How common fibromyalgia is in people with RA and other chronic illnesses
What functional MRI, nerve studies, and spinal fluid research reveal about fibromyalgia pain
Why opioids often worsen pain sensitivity in fibromyalgia instead of helping
How trauma, prolonged untreated pain, and stress can “turn on” fibromyalgia
Practical ways to tell the difference between RA inflammation vs fibromyalgia pain
The critical role of sleep, mental health, and stress regulation in pain management
Why fibromyalgia treatment is a constellation of strategies, not a magic fix
A compassionate explanation of catastrophizing — and how to work with uncertainty
How to explain fibromyalgia to friends and family (including the Spoon Theory)
Trusted resources for learning more, including The Chronic Pain Reset by Dr Afton Hassett

Medical disclaimer:

Episode Sponsors

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You’re Not Alone: What I’ve Learned from 200 Stories of Hope, Uncertainty, and Finding Your New Normal

info@myarthritislife.net (Cheryl Crow) — Thu, 15 Jan 2026 16:39:07 +0000

Cheryl shares the origin story of the podcast, how it has evolved over time, and why storytelling remains at the center of her mission: helping people feel less alone, more informed, and more empowered to live well alongside chronic illness.

Cheryl then walks through nine core themes that keep resurfacing across these conversations, including: validation and belonging, coping with uncertainty, the power of community, navigating medication decisions, redefining “normal,” and why self-compassion, acceptance, identity, and joy still matter after diagnosis.

This episode is an honest reflection on what it really means to “thrive” with arthritis, not as a one-size-fits-all outcome, but as a deeply personal, evolving process rooted in realistic hope, credible information, and human connection.

Episode at a glance:

01:31 The Origin Story of the Podcast
06:27 Challenges and Reflections on Running the Podcast
13:50 Nine Core Themes from 200 Episodes
14:04 Theme 1: You Are Not Alone
17:12 Theme 2: The Challenge of Uncertainty
20:28 Theme 3: The Power of Community
22:41 Theme 4: The Importance of Credible Education
26:35 Theme 5: Emotional Medication Decisions
29:01 Theme 6: Redefining Normal
30:52 Theme 7: Acceptance and Self-Compassion
32:58 Theme 8: RA as a Whole Life Condition
33:59 Theme 9: Identity, Purpose, and Joy

Medical disclaimer:

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Running with Bionic Hips: Carrie Bradshaw's Marathon Milestone

info@myarthritislife.net (Cheryl Crow) — Thu, 11 Dec 2025 14:23:03 +0000

Cheryl and Carrie discuss Carrie's diagnosis of hip dysplasia which led to osteoarthritis, her hip replacement surgeries in 2022 and 2023, and her experience running the Boston Marathon. Carrie emphasizes the importance of self-advocacy, having a strong support and care team, and setting mini goals during recovery.

They also candidly talk about the emotional struggle with post-marathon blues and how time, support, and new goals helped Carrie overcome it. Overall, Carrie aims to give hope to others facing similar medical challenges.

Episode at a glance:

Carrie’s Arthritis and Double Hip Replacement Journey: Cheryl and Carrie discuss Carrie’s arthritis diagnosis and how that led to having double hip replacements.
Carrie’s Experience Running the Boston Marathon: Carrie shares her experience of running in the Boston Marathon in April 2025.
The Importance of Self-Advocacy and a Support Team: Cheryl and Carrie discuss the importance of advocating for yourself and having a strong support system to help you overcome challenges.

Medical disclaimer:

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Rheumer Has It: The Science of Exercise & RA

info@myarthritislife.net (Cheryl Crow) — Thu, 4 Dec 2025 16:08:05 +0000

Together, they break down common myths about fragility, rest, and “wear and tear,” while explaining why tailored exercise programs are not only safe but essential. Dr. Andonian also offers practical guidance for managing fatigue, using slow progression, and finding trustworthy exercise resources. This episode is a must-listen for anyone looking to understand how movement can improve whole-body health with RA.

Episode at a glance:

1. Exercise is far more than “movement” - it directly supports immune health, slows accelerated aging, and improves disease activity in RA.
Dr. Andonian explains how aerobic and strength training influence inflammation, cellular metabolism, and mitochondrial function in ways that go far beyond joint comfort.
2. RA is a whole-body immune disease, so exercise must be tailored, not avoided.
Listeners learn why joints are actually a secondary issue in RA, why “too fragile to exercise” is a myth, and how the right mix of aerobic, strength, and mobility work can support the cardiovascular, respiratory, and immune systems.
3. There is no one-size-fits-all exercise plan; successful programs must be personalized.
Dr. Andonian breaks down how arthritis type, disease location, comorbidities, and fatigue shape exercise prescriptions, and why slow progression and “exercise snacks” are essential for many patients.

Medical disclaimer:

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Developing Resilience With Axial Spondyloarthritis: Cayla’s Story

info@myarthritislife.net (Cheryl Crow) — Wed, 26 Nov 2025 15:08:08 +0000

She explains the key role nurse practitioners play in rheumatology and highlights the lifestyle habits, like movement and nutrition, that have made a real difference in her own health. Cayla also offers practical advice for communicating with healthcare providers and supporting yourself after a new diagnosis.

Her story is an inspiring reminder that living well with a chronic illness is not only possible, but achievable.

Episode at a glance:

Cayla’s personal journey with axial spondyloarthritis and the challenges of getting diagnosed young
How nurse practitioners support patients in rheumatology
Lifestyle tools Cayla uses to manage her condition, including exercise and nutrition
Tips for communicating effectively with healthcare providers
Encouragement and practical advice for those newly diagnosed
Insight into living a full, meaningful life while managing chronic illness

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: Our Most Exciting Takeaways from the ACR 2025 Rheumatology Conference

info@myarthritislife.net (Cheryl Crow) — Thu, 20 Nov 2025 15:37:53 +0000

They also reflect on new insights into mental health, cognitive dysfunction, and the importance of the microbiome as part of lifestyle interventions. This episode offers hope, practical advice, and the latest research to help manage your condition more effectively.

Episode at a glance:

00:00 Introduction to Rheumer Has It
00:30 Importance of the ACR Annual Conference
03:02 Sessions on Patient Health Literacy and Support Groups
07:10 Dietary Interventions and Microbiome Research
10:54 Mental Health and Fatigue in Rheumatic Diseases
15:50 Innovative Treatments: CAR T-Cell Therapy and Vagus Nerve Stimulation
19:50 GLP-1 Medications and Their Benefits
25:23 Cognitive Dysfunction in Rheumatic Diseases
29:22 Spotlight on Sjogren's Disease
31:50 Conclusion and Key Takeaways

Medical disclaimer:

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Helen’s “Gloriously Imperfect” Journey with Arthritis

info@myarthritislife.net (Cheryl Crow) — Thu, 13 Nov 2025 15:23:27 +0000

They share words of wisdom for individuals newly diagnosed with rheumatoid arthritis, emphasizing kindness, self-compassion, and love. Helen also discusses the highlights of her experience in the Rheum to THRIVE program and how it helped her adjust to her new normal.

Helen also shares how using the PERMA model from positive psychology (Positive emotions, Engagement, Relationships, Meaning & Accomplishment) helps keep her life and condition manageable. She encourages taking it day by day and continuously asking oneself how to love and support oneself through the journey.

This episode is a great reminder for anyone with chronic illnesses to focus on self-love to navigate the challenges of the condition.

Episode at a glance:

Helen’s Journey with Arthritis: Helen describes diagnosis and treatment journey as gloriously imperfect.
Self Compassion: Helen and Cheryl discuss how having self-compassion is a great coping mechanism for those with chronic illnesses.
PERMA Model: Cheryl and Helen discuss what the PERMA model is and how it can be helpful in chronic illness management.
Rheum to THRIVE: Cheryl and Helen discuss Helen’s experience with the Rheum to THRIVE support group.

Medical disclaimer:

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Patient Voices: Reflections from Rheum Champions

info@myarthritislife.net (Cheryl Crow) — Thu, 6 Nov 2025 16:26:56 +0000

They discuss how they became Rheum Champions, their personal journeys with conditions like rheumatoid arthritis, lupus, PCOS, and more, and the importance of community and support. The episode also highlights significant takeaways from the meeting, including research updates, the passion of the researchers, and the heartwarming sense of community.

This podcast serves as a powerful reminder of how important it is to integrate the patient voice into rheumatology research.

*This episode was originally recorded for the My Spoonie Sisters podcast.

Episode at a glance:

00:00 Welcome to the Rheum Champions Tell All
01:59 Introducing the Rheum Champions
03:55 Sharing Our Stories: The Journey to Advocacy
07:13 The Impact of Community and Support
10:55 Becoming a Rheum Champion
16:09 Highlights from the 2025 Investigators Meeting
24:52 Final Thoughts and How to Get Involved

Medical disclaimer:

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Finding my Purpose while Living with Osteonecrosis and Osteoarthritis: Deb Andio’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 30 Oct 2025 15:30:35 +0000

Beyond her personal battle, Deb has established a global support group for those with osteonecrosis and actively participates in the Arthritis Foundation's Live Yes! Connect groups.

Highlighting the power of community support and advocacy, Deb's story is an inspiring testament to resilience and the importance of helping others navigate similar health challenges.

Episode at a glance:

Deb’s Journey: Cheryl and Deb discuss Deb’s journey with osteoarthritis and osteonecrosis.
The Power of Community: Deb shares how having a community is important for support and connection in the chronic illness world.
Deb’s Support Groups: Cheryl and Deb discuss Deb’s global support groups and the Arthritis Foundation’s Live Yes! Connect groups.

Medical disclaimer:

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Rheumer Has It: Vaccines and Rheumatic Disease, with Dr Cuoghi Edens

info@myarthritislife.net (Cheryl Crow) — Thu, 23 Oct 2025 02:00:58 +0000

Dr. Edens debunks common misconceptions, such as vaccines causing autoimmune diseases or always triggering flares. She explains that while mild immune responses are normal, serious complications are extremely rare and the benefits far outweigh the risks.

Dr Edens emphasizes that vaccines not only prevent infections but also certain cancers, making them an essential part of care for immunosuppressed patients. The discussion also explores vaccine timing with medications, the dangers of misinformation, and how to talk about vaccine hesitancy with empathy and evidence.

Episode at a glance:

Guest Expert: Dr. Cuoghi Edens, dual-trained adult and pediatric rheumatologist at the University of Chicago.
Myth #1: “Natural is better than vaccines” — Debunked; vaccines dramatically reduce child and adult mortality from infectious diseases.
Myth #2: “Vaccines cause autoimmune diseases” — Overwhelming evidence shows they do not.
Myth #3: “Vaccines always cause flare-ups” — Possible but uncommon; most patients tolerate vaccines well, and disease prevention outweighs brief discomfort.
Risk–Benefit Balance: Vaccines protect against infections and cancers (HPV, hepatitis B) that can worsen or complicate autoimmune diseases.
Timing & Medications: ACR guidelines suggest coordination with treatments like rituximab and high-dose steroids, but partial protection is better than none.
Health Literacy Tip: “Doing research” means reviewing credible scientific evidence—not social-media opinions or cherry-picked studies.
Social Stigma: Addresses misinformation, polarization, and “anti-vax” rhetoric, highlighting the need for compassion and critical thinking.
Trusted Resources: Children’s Hospital of Philadelphia vaccine education site and American College of Rheumatology guidelines.
Key Takeaway: Vaccines are safe, vital, and empowering tools for people with autoimmune diseases.

Medical disclaimer:

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Full Episode Show Notes:

Go to the episode page on the Arthritis Life website for full details including a transcript and video!

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Autoimmune Nutrition Made Easier: Practical Tips from Dr. Saimun Singla

info@myarthritislife.net (Cheryl Crow) — Thu, 16 Oct 2025 14:53:28 +0000

Together, they unpack common myths surrounding food and autoimmune conditions and share practical, real-life strategies for self-management. It’s a conversation packed with practical advice and empowering insights for anyone looking to make nutrition more manageable while living with an autoimmune condition.

Episode at a glance:

Common misconceptions about diet and autoimmune diseases: Cheryl and Dr. Singla discuss common myths about diet and nutrition for autoimmune diseases.
How Dr. Singla adapts her kitchen for comfort and efficiency: Organizing items to avoid reaching or bending, using pre-chopped ingredients to reduce strain, utilizing assistive kitchen tools (many available on Amazon)
Creative, real-life kitchen strategies: Wearing weightlifting gloves for cutting tough vegetables, prepping water ahead of time to avoid lifting heavy pots

Medical disclaimer:

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Rheumer Has It: How to Spot Misinformation Online

info@myarthritislife.net (Cheryl Crow) — Thu, 9 Oct 2025 16:00:00 +0000

They share examples of how misinformation can lead to physical harm, wasted money, and delayed treatment, and emphasize the importance of critical thinking and media literacy. The hosts introduce practical tools such as the “CRAAP test” for evaluating sources and encourage listeners to seek balanced, evidence-based hope rather than false promises of cures.

Episode at a Glance — Main Themes

🌐 Why misinformation spreads: Emotional vulnerability after diagnosis, grief, and the appeal of “quick fixes.”
⚠️ Common myths: “Natural is better,” “medications are worse than the disease,” “vaccines cause autoimmune issues,” and “dietary cures can reverse disease.”
💊 Real risks: Financial loss, physical harm (e.g., liver damage from supplements), and worsening disease due to delayed or stopped treatment.
🧠 Critical thinking tools: Using the CRAAP test, recognizing cherry-picking and predatory journals, and assessing conflicts of interest.
💬 Empowered decision-making: Encouragement to “go to the source,” value science-based hope, and stay informed through credible experts and patient advocates.

Medical disclaimer:

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“Make It Count:" Dani’s Journey With Severe RA, Acceptance, and Strength

info@myarthritislife.net (Cheryl Crow) — Thu, 2 Oct 2025 16:00:00 +0000

Cheryl and Dani dig into the diagnosis saga, evolving RA treatments, the role of acceptance, and why movement is essential to living well with rheumatic disease. For Dani, “movement” isn’t only physical; it’s emotional, spiritual, and educational. If you’re newly diagnosed, this conversation is a powerful reminder to make every day count.

Episode at a glance:

Dani’s Diagnosis Journey: Cheryl and Dani discuss Dani’s journey to being diagnosed with rheumatoid arthritis.
How Dani Rebuilt her Life: Dani recounts how she rebuilt her life after her diagnosis by slowly reintroducing weights and working through mental health challenges.
The Importance of Movement: Cheryl and Dani discuss the importance of movement for those with arthritis, beyond physical movement.
Make it Count for Dani: Dani and Cheryl delve into Dani’s non-profit organization which provides support and hope for those living with RA.

Medical disclaimer:

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Remission Myths and Misconceptions, with Dr. Loreto Carmona

info@myarthritislife.net (Cheryl Crow) — Tue, 23 Sep 2025 14:11:18 +0000

On this special episode* of 'Rheumer has It', hosts Eileen and Cheryl are joined by renowned rheumatologist Dr. Loreto Carmona from Spain. The discussion centers around the concept of remission in rheumatoid arthritis (RA), highlighting the differences between medical and patient perspectives on what constitutes remission. Dr. Carmona emphasizes the importance of communication between patients and doctors, the role of medications and lifestyle factors, and the myths surrounding RA remission.

This insightful conversation is part of the Canadian Talk Over RA campaign, aimed at providing hope and clear knowledge to those living with RA. See the full show notes on the Arthritis Life website for more details.

Episode at a glance:

00:31 Meet Dr. Loreto Carmona
01:31 Defining Remission in Rheumatoid Arthritis
04:26 Misconceptions About Remission
07:38 Factors Influencing Remission
11:30 The Importance of Communication
14:48 Historical Perspectives on RA Treatment
16:12 Final Thoughts and Resources

Medical disclaimer:

Episode Sponsors

**Special Episode Sponsor: Talk Over RA Campaign

AD - Talk Over RA is more than a campaign — it’s a call to action. This podcast episode is part of the Talk Over RA 2025 campaign and is sponsored by AbbVie Canada. All content and opinions are Eileen Davidson, Cheryl Crow and Dr. Loreto’s own and are not intended to promote any specific pharmaceutical products.

Rheumatoid arthritis doesn’t just speak through pain and fatigue — it interrupts plans, drains energy, and creates uncertainty even when symptoms are quiet. The Talk Over RA initiative encourages people living with RA to take back control by speaking up, sharing their experiences, and working with healthcare providers to set meaningful treatment goals.

Eileen’s role in this campaign is to provide tools that help you prepare for appointments, explore what remission could look like, and connect with others who truly understand.

Don’t let RA speak louder than you. Explore the campaign and download the guide here.

For full episode show notes

Go to the episode page on the Arthritis Life Website here.

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“It’s a Moving Target:” From Athlete to ER Nurse to Life with RA, Emily’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 18 Sep 2025 14:25:35 +0000

On this episode, Emily and Cheryl discuss how they've come to terms with the fluctuating, non-linear, dynamic nature of rheumatoid arthritis.

After being a fierce athlete and playing Division 1 water polo, Emily was diagnosed with rheumatoid arthritis at age 22. She shares lessons learned while working as a night shift nurse for 12 years and having three children.

Emily opens up about using cannabis as part of her care, the importance of mental health support, and why community has been so vital, especially through Cheryl’s Rheum to THRIVE program. Together, Cheryl and Emily reflect on coping with uncertainty, redefining identity, and what it means to live a good life with RA.

This is an encore presentation of episode 85, which first appeared in December, 2022.

Medical disclaimer:

Episode Sponsors

For full episode show notes:

Go to the episode page on the Arthritis Life Website.

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Finding Strength after JIA and Macrophage Activation Syndrome: Zac’s Story of Tenacity

info@myarthritislife.net (Cheryl Crow) — Thu, 11 Sep 2025 16:00:00 +0000

Diagnosed at just 15, Zac opens up about the difficult shift from being an active athlete to facing disability caused by arthritis and its complications. He shares how strength training became a turning point and helped him regain mobility, lose weight, and rebuild a fulfilling life. He also explores how his background in strength training helped him survive a near death experience with macrophage activation syndrome.

Together, Cheryl and Zac explore the role of exercise in managing arthritis, offering practical tips, tools, and encouragement for others navigating similar challenges. Zac highlights the importance of pairing medical treatment with disciplined strength training to enhance both health and quality of life.

Episode at a glance:

Zac’s Diagnosis Journey: Zac Spinosa, 28-year-old personal trainer living with Juvenile Idiopathic Arthritis (JIA), shares the challenges of shifting from active athlete to living with disability.
Turning Point: How strength training helped Zac regain mobility, lose weight, and rebuild his life
Practical Takeaways: Tips, tools, and advice for using exercise to manage arthritis effectively
Holistic Approach: The importance of combining medical treatment with disciplined strength training
Inspiration for Listeners: Finding resilience, strength, and quality of life while navigating chronic illness

Medical disclaimer:

Episode Sponsors

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Finding Joy and Purpose: Cheryl’s Rheumatoid Arthritis Story

info@myarthritislife.net (Cheryl Crow) — Thu, 4 Sep 2025 14:27:29 +0000

Cheryl shares her powerful journey of being diagnosed with rheumatoid arthritis (RA) at just 21 years old and reflects on what it was like to go from being a healthy, athletic college student to suddenly navigating pain, fatigue, and disbelief from doctors. She opens up about the emotional toll of feeling dismissed, the relief of finally getting a diagnosis, and the lessons she’s learned about acceptance, self-compassion, and living fully despite chronic illness. She also shares how her experiences led her to create the Rheum to THRIVE educational program and support group, so that no one has to navigate life with RA alone.

Cheryl and Dr. Hassett explore the realities of RA that often go misunderstood, from unpredictable flare-ups, invisible symptoms, and the mental health challenges of chronic illness. Cheryl also shares the strategies that help her thrive today: pacing her energy, building community, protecting sleep, and seeking out moments of joy. If you’re feeling lost or overwhelmed after your own diagnosis, this conversation will remind you that you’re not alone, and that it is possible to find purpose, hope, and connection while living with RA.

This conversation originally occurred in 2024 and first appeared on the "Chronic Pain Reset” podcast, hosted by pain psychologist Dr. Afton Hassett.

Medical disclaimer:

Episode Sponsors

For full episode details

Go to the show notes page on the Arthritis Life Website.

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Mindful Social Media and Chronic Illness: Gittel and Cheryl's Journeys

info@myarthritislife.net (Cheryl Crow) — Thu, 28 Aug 2025 14:28:42 +0000

Cheryl and Gittel explore the importance of being mindful with our social media use. While they highlight the risks of falling into negative patterns that can lead to isolation, they also emphasize social media’s powerful potential for connection and support among those living with chronic illness.

Gittel shares how participating in online support communities like Rheum to THRIVE has strengthened her self-management and coping strategies. Together, Cheryl and Gittel stress the importance of setting intentional goals for social media use, fostering connection, protecting mental health, and ultimately avoiding the trap of isolation.

Episode at a glance:

Milestone guest return: Gittel joins the podcast for her fifth appearance and reflections on her journey with Crohn’s disease and ankylosing spondylitis.
Rheum To Thrive: Gittel reflects on how her relationship with the Rheum to Thrive program has grown over time.
Mindful social media use: Comparing patterns of use, misuse, and abuse to drug use.
The double-edged sword of social media: Exploring both its risks (isolation, negative cycles) and benefits (connection, support).
Personal impact: Gittel’s story of how online support communities improved her coping and self-management.
Practical takeaways: Setting intentional goals for social media to foster connection, protect mental health, and avoid isolation.

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: Axial Spondyloarthritis Myths v. Facts with Dr. Jean Liew

info@myarthritislife.net (Cheryl Crow) — Thu, 21 Aug 2025 16:00:00 +0000

Dr. Liew shares her personal journey to becoming a rheumatologist inspired by a friend's diagnosis. She then discusses the condition in detail, addressing common misconceptions such as it being exclusive to white men and always showing up on imaging.

Listeners will gain invaluable insights into the challenges of diagnosing this condition, social determinants affecting diagnosis, and reliable resources for further information. This episode is a must-listen for anyone navigating the labyrinth of rheumatic diseases, providing hope and knowledge to help you thrive.

Episode at a glance:

00:00 Introduction to Rheumer Has It Podcast
00:26 Meet Dr. Jean Liew: Expert on Axial Spondyloarthritis
00:40 Understanding Axial Spondyloarthritis
01:41 Dr. Liew's Journey into Rheumatology
04:16 Busting Myths: Axial Spondyloarthritis and Demographics (it’s not just men!)
06:50 Challenges in Diagnosing Axial Spondyloarthritis
10:27 The Role of HLAB 27 in Axial Spondyloarthritis
12:26 Imaging and Axial Spondyloarthritis
14:38 Final Thoughts and Resources

Medical disclaimer:

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From Frustration to Inspiration: Melissa’s Journey of Self-Advocacy, Diagnostic Purgatory and Life with Scleroderma

info@myarthritislife.net (Cheryl Crow) — Thu, 14 Aug 2025 16:00:00 +0000

Cheryl and Melissa discuss her experiences in the healthcare system, driven by frustration to become a self-advocate. This led Melissa to write the book Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease, aiming to provide validation and resources for others facing similar struggles.

Cheryl and Melissa also touch on the challenges of advocating for oneself, misconceptions in the medical field, the impact of invisible illnesses, and the importance of finding purpose and joy while living with chronic conditions.

Episode at a glance:

Melissa’s Journey: Cheryl and Melissa discuss Melissa’s long diagnosis journey.
Navigating the Healthcare System: Melissa shares what it was like to navigate the healthcare system as a nurse turned patient.
Self-Advocacy: Cheryl and Melissa discuss the importance of self advocacy.
Melissa’s Book: Melissa shares her journey of writing her new book, Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease.

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: Separating Myth from Reality for Nutrition and Rheumatic Disease

info@myarthritislife.net (Cheryl Crow) — Thu, 7 Aug 2025 16:00:00 +0000

Drawing from personal experiences and expert insights, they dispel common myths such as the notion that diet alone can treat RA, and also highlight the evidence for some nutrition approaches like the Mediterranean diet as a reliable starting point.

The episode underscores the importance of integrating diet and other lifestyle approaches alongside medications for optimal well-being. Whether you're newly diagnosed or navigating your journey, this episode offers clarity on an often confusing topic.

Episode at a glance:

Myth #1: Diet is all you need to treat / cure RA
Myth #2: Dietary interventions are more effective and safe than medications
Myth #3: It’s an either or - -you have to do diet OR medications

Medical disclaimer:

Episode Sponsors

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Coping with Rheumatoid Arthritis, PCOS and Scleritis: Chelsea’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 31 Jul 2025 16:00:00 +0000

In this honest and inspiring episode, Cheryl and Chelsea talk about the emotional toll of chronic illness, the power of having a solid support system, and how Chelsea went from feeling isolated to becoming a voice for others. Chelsea opens up about how sharing her story online, especially as a Hispanic woman, helped her find connection, purpose, and strength.

If you’re newly diagnosed and feeling overwhelmed, Chelsea’s story is the reminder you need: you’re not alone, and your voice matters. Tune in for talk on therapy, faith, coping tools, and how advocacy can become part of your healing.

Episode at a glance:

Chelsea’s Diagnosis Journey: Chelsea shares her experience being diagnosed with rheumatoid arthritis, scleritis, and PCOS all in her early 20s.
Emotional Rollercoaster: The mental toll of chronic illness and how it impacted Chelsea’s daily life.
The Power of Support: Why having a strong support system made all the difference in Chelsea’s chronic illness journey.
From Isolation to Advocacy: How sharing her journey online helped Chelsea find connection and purpose—especially as a Hispanic woman navigating the healthcare system.
Your Voice Matters: Encouragement for those newly diagnosed—you are not alone, and your story is powerful.
Coping Tools: Therapy, faith, and mindset shifts that helped Chelsea regain control.
Advocacy as Healing: How turning her pain into purpose became part of Chelsea’s recovery.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

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Rheumer Has it: Tips for Sleep, with Dr. Deb Da Costa

info@myarthritislife.net (Cheryl Crow) — Thu, 24 Jul 2025 15:47:56 +0000

On this episode, Cheryl & Eileen talk with sleep expert and researcher D. Deborah Da Costa about evidence based interventions to improve sleep in people with rheumatic conditions. Dr. Da Costa explores how sleep challenges are deeply entangled with social and emotional wellbeing as well as pain, fatigue and cognition for those living with rheumatoid arthritis and related conditions.

She also overviews Cognitive Behavioral Therapy for Insomnia (CBTI), which is the the gold standard for treating sleep disturbances. Whether it’s resisting social pressure to stay up late or coping with fatigue while caregiving, this episode explores sleep-related struggles and provides specific tips for improving sleep.

Episode at a glance:

Sleep Is a Critical Yet Underrecognized Component of Arthritis Care: Despite its profound impact, sleep is often neglected in both patient and provider conversations. Poor sleep can worsen arthritis symptoms such as pain, fatigue, depression, anxiety, and cognitive dysfunction—even when the disease is otherwise well-managed.
Cognitive Behavioral Therapy for Insomnia (CBTI) Is a Promising Non-Pharmacological Treatment: CBTI is considered the gold standard for treating insomnia without medication. It helps patients reframe negative beliefs about sleep and adopt healthier sleep behaviors, such as limiting screen time in bed and creating a relaxing pre-sleep routine. Internet-based CBTI programs tailored for arthritis patients are currently being piloted.
Sleep Challenges Are Deeply Intertwined with Social and Emotional Wellbeing: The podcast highlights how sleep difficulties affect social life, relationships, and self-advocacy. From navigating social pressure to stay up late to managing fatigue while caregiving, the conversation emphasizes the need for greater awareness and support around sleep in the context of chronic illness.

Medical disclaimer:

Episode Sponsors

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Never Give In, Never Give up, Never Let Go, and Just Keep Fighting: Estela Mata’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 17 Jul 2025 16:00:00 +0000

She and Cheryl also discuss the complexities of symptom tracking and diagnosis, challenges of treatment, and the importance of self-advocacy and support groups.

Estela also highlights her nonprofit organization, Looms for Lupus, which she co-founded with her sisters to provide advocacy, support, and educational resources for those affected by lupus and overlapping conditions.

The conversation covers personal coping strategies, the significance of community, and the multifaceted nature of living with chronic illness.

Episode at a glance:

Estela's Advocacy Journey: Estela's extensive experience in the healthcare industry, working as a medical assistant from a young age, and how her sister’s lupus diagnosis in 2009 propelled her into the world of autoimmune advocacy.
Estela’s Diagnosis Journey: Estela shares her long road to a rheumatoid arthritis diagnosis, touching on the difficulties of being seronegative and the importance of tracking and communicating symptoms effectively to healthcare providers.
Treatment Challenges: The conversation covers Estela's experience with various treatments, including her struggles with medications, weight gain, hair loss, and how she found resilience through these challenges.
Importance of Self-Advocacy: Advice and tips on the necessity of advocating for oneself within the medical system, and the impact it can have on receiving timely and accurate diagnoses.
Looms for Lupus: An in-depth look at the foundation Estela co-founded with her sister. They discuss the support groups, educational symposiums, and bilingual resources offered by Looms for Lupus, dedicated to supporting those with lupus, fibromyalgia, mental health challenges, and their caregivers.
Personal Coping Strategies: Estela highlights the strategies she employs to manage her health, such as mindfulness, spending time with family, painting, and journaling. She also emphasizes the importance of asking for help and giving oneself grace.
Inspirational Advice: Estela's key message to listeners: never give in, never give up, never let go, and just keep fighting. She also underscores the necessity of knitting a community of hope and the importance of laughter and friendship.

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: 6 Types of Unsolicited Advice and How We Respond

info@myarthritislife.net (Cheryl Crow) — Thu, 10 Jul 2025 16:00:00 +0000

Eileen and Cheryl break down six types of unsolicited advice, including lifestyle interventions, toxic positivity, unqualified medical advice, predatory marketing, wild suggestions, and even well-meaning but unsolicited solid advice.

They share their personal experiences and offer practical strategies for responding to these unsolicited suggestions, emphasizing the importance of evidence-based treatments and individualized care. The episode aims to empower listeners to assert their boundaries and make informed decisions about their health.

Episode at a glance:

Introduction to Rheumer Has It
The Impact of Unsolicited Advice
Types of Unsolicited Advice
Responding to Unsolicited Advice
Conclusion and Takeaways

Medical disclaimer:

Episode Sponsors

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Navigating Psoriatic Arthritis in Alaska: Dawn’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 3 Jul 2025 14:58:03 +0000

From navigating a complicated healthcare system to managing symptoms in a remote location, Dawn opens up about the real challenges she’s faced, and the tools that help her cope.

Together, Dawn and Cheryl explore what it takes to live well with arthritis, from finding the right medications and building an exercise routine, to advocating for yourself and embracing self-care. Dawn also reflects on the power of mindset, gratitude, and simplifying life to focus on what truly matters.

If you’re feeling overwhelmed by your diagnosis or unsure where to start, this conversation is full of down-to-earth wisdom, encouragement, and hope.

Episode at a glance:

Dawn’s Journey: Dawn shares her psoriatic arthritis diagnosis story.
Life in Alaska: Dawn and Cheryl discuss the unique challenges of managing healthcare in Alaska.
The Power of Exercise and Movement: Dawn shares how movement plays an important role in managing her symptoms.
Mental Strength and Resilience: Dawn and Cheryl discuss tools and strategies for mental strength and resilience.
Working in the Medical Field with Chronic Illness: Dawn shares her background in the medical field and how it shaped her approach to chronic illness.

Medical disclaimer:

Episode Sponsors

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Rheumer Has It: Busting Medication Myths with Dr. Hazelwood

info@myarthritislife.net (Cheryl Crow) — Thu, 26 Jun 2025 15:07:50 +0000

The discussion addresses concerns about medication side effects, the importance of treating rheumatic diseases early, and the false stigma that using advanced treatments indicates more severe disease or personal failure.

Dr. Hazelwood emphasizes the importance of balancing risks and benefits and provides insights into how modern treatments can significantly improve quality of life. The episode emphasizes the safety and necessity of these medications and highlights the benefits of starting treatment early to prevent long-term complications.

This episode is particularly valuable for anyone newly diagnosed with rheumatoid arthritis who is navigating the complexities and concerns surrounding medication.

Episode at a glance:

Meet Rheumatologist & Researcher Dr. Glenn Hazelwood:
Busting Myths About Medications
Challenging Stigmas Around Advanced Treatments
Addressing Misconceptions About Medication Use

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl Crow, OT created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

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Advocacy, Humor and Purpose: Seth’s Spondyloarthritis Story

info@myarthritislife.net (Cheryl Crow) — Thu, 19 Jun 2025 16:00:00 +0000

Seth discusses the challenges and lessons learned from his condition, emphasizing the importance of self-advocacy and humor as coping mechanisms. He also reflects on the 25-year journey of Creaky Joints, which began as a simple idea to connect arthritis sufferers and has grown into a significant patient advocacy and support organization.

Cheryl and Seth also discuss the importance of patient voices in research and healthcare policy, the role of advocacy in improving healthcare systems, and the power of community and proper information. This episode highlights the power of advocacy, sharing our stories and remembering you are not alone in your arthritis journey!

Episode at a glance:

Seth’s Diagnosis Journey: Seth shares his early diagnosis at age 13 with Spondyloarthropathy and how it shaped his perspective.
Creaky Joints and Global Healthy Living Foundation Origins: How a simple idea to connect arthritis patients evolved into a major advocacy and support organization over 25 years.
Coping Strategies: Cheryl and Seth bond over the value of self-advocacy, humor, and mindset in managing chronic illness.
Patient Empowerment and Advocacy: Why patient voices matter in research, healthcare systems, and policy-making.
The Power of Community: Cheryl and Seth discuss how connection and reliable information support well-being.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Turning Pain into Purpose, with RA Warrior Cristina Schaefer

info@myarthritislife.net (Cheryl Crow) — Thu, 12 Jun 2025 14:34:36 +0000

Cristina and Cheryl reflect on how RA has shaped their lives, and the deep sense of purpose they’ve found in supporting others on a similar path. They highlight the power of self-advocacy, the comfort of community, and the resilience it takes to live well with RA.

If you’re feeling overwhelmed or alone in your diagnosis, this honest and empowering conversation will remind you: you’re not in this alone—and your voice matters.

Episode at a glance:

Christina’s Journey with Rheumatoid Arthritis: Early symptoms and the relief of finally getting a diagnosis, coping with depression, chronic pain, and postpartum flare-ups, and navigating treatment options and finding the right doctor
The Power of Self-Advocacy and Community: How this helped Cristina feel more empowered and supported while managing chronic illness
Volunteer Work and Advocacy: How Cristina’s journey with RA has led to her work with the Arthritis Foundation
Turning pain into purpose: How RA has led both Cheryl and Cristina to have a passion for helping others and raising awareness

Medical disclaimer:

Episode Sponsors

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Redefining Thriving: Celebrating 5 Years of Rheum to THRIVE

info@myarthritislife.net (Cheryl Crow) — Fri, 6 Jun 2025 04:23:20 +0000

Cheryl, Marisa, Alice, Gittel, Meg and Annette reflect on the profound impact of community, the invaluable educational components, and the collective wisdom that has helped them cope and thrive.

The conversation highlights the importance of vulnerability, shared humor, and the supportive environment of the Rheum to THRIVE group, which empowers members to navigate their health challenges and advocate for themselves.

Episode at a glance:

Celebrating 5 Years of Thrive: Cheryl reflects on the origins of the Rheum to THRIVE program and members share how they found the group and what drew them in.
Support Group as Lifeline: Members describe Rheum to THRIVE as a uniquely supportive and safe space that offers emotional validation, practical advice, and deep connection.
Power of Peer Support & Representation: Cheryl and Rheum to Thrive members share how hearing others share similar stories helps members feel less alone and seeing others thrive with chronic illness is empowering and inspiring.
Tools for Thriving: Members reference helpful resources like the THRIVE Framework, webinars, and guest speakers.
The Joy of Community & Shared Identity: Cheryl and the Rheum to Thrive members discuss how inside jokes, celebrations, and shared experiences strengthen group bonds.
Lasting Impact of the Program: The Rheum to Thrive members tell Cheryl that they pursued careers in counseling or advocacy inspired by their journey and that Rheum to Thrive supports lifelong learning and personal growth. They also reflect on how the group has helped members through isolation and uncertainty.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Rheumer Has it: Arthritis Myths, Stigmas, and Misconceptions

info@myarthritislife.net (Cheryl Crow) — Thu, 29 May 2025 16:00:00 +0000

They clarify the differences between these terms and provide examples, such as the myth that only elderly people get arthritis, the stigma that people with arthritis are lazy, and the misconception that arthritis is merely mild joint pain.

Eileen and Cheryl also emphasize the importance of education and self-advocacy and share personal experiences to illustrate how these misunderstandings can affect mental health. They also highlight resources for further learning and empowerment so you can help bust these myths and bring awareness to the true impact of rheumatic diseases.

Episode at a glance:

Defining Myths, Stigmas, and Misconceptions: Cheryl and Eileen define the myths, stigmas, and misconceptions related to rheumatic diseases.
Personal Experiences with Misconceptions: Cheryl and Eileen delve into their personal experiences with misconceptions of rheumatic diseases.
Addressing Stigmas: Cheryl and Eileen address stigmas often associated with rheumatic diseases.
Common Myths About Rheumatic Diseases: Cheryl and Eileen discuss the common myths about rheumatic diseases.
Impact on Mental Health: Cheryl and Eileen discuss how this topic affects mental health.
Final Thoughts and Resources: Cheryl and Eileen highlight resources to help bust myths and bring awareness to rheumatic diseases.

Medical disclaimer:

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Finding Joy Amidst the Flare-Ups: Riley’s Journey with Multiple Conditions

info@myarthritislife.net (Cheryl Crow) — Thu, 22 May 2025 16:00:00 +0000

Riley details her complex and often delayed diagnostic journey, the challenges of navigating the healthcare system, and which treatments have worked best for her. She also shares how she navigates daily life while living almost exclusively at home due to limited mobility and energy.

Cheryl and Riley also discuss the adaptations and strategies Riley uses to manage her conditions and maintain her quality of life, including some special tips for RV living. Riley offers insights into finding peace in the moment, the importance of advocacy, and the reality of thriving in survival mode.

Riley challenges the traditional idea of what it means to thrive, redefining it as being present for micro-moments of connection, joy, or peace . Her story highlights both the physical toll of chronic illness and the emotional strength required to navigate a complex and often dismissive healthcare system.

Episode at a glance:

Riley's Diagnosis Journey: Riley shares her journey with multiple autoimmune conditions, including lupus, rheumatoid arthritis, and Sjögren’s syndrome.
Treatment Trials and Tribulations: Riley opens up about experiences of medical gaslighting and the emotional toll of being dismissed by providers.
The Importance of Advocacy and Self-Care: Riley and Cheryl discuss the power of symptom tracking as a tool for validation and self-advocacy in healthcare.
Daily Life Adaptations when you Don’t Leave Home Often: Riley shares her daily tools and strategies that work for her and her family.
Finding Micro-Moments of Joy and Redefining Thriving: Riley redefines what it means to thrive—finding value in micro-moments of connection, joy, or stillness.

Medical disclaimer:

Episode Sponsors

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Introducing Rheumer Has It: Busting Myths and Highlighting Evidence for Rheumatic Diseases

info@myarthritislife.net (Cheryl Crow) — Thu, 15 May 2025 15:50:29 +0000

In this candid intro episode, you’ll hear how they met online, bonded over the challenges of living with RA, and teamed up to make science-backed info more relatable and easier to understand. Their mission? To bust myths, share real stories, and offer practical tips to help you feel more in control of your health.

Whether you’re newly diagnosed, supporting someone with RA, or work in healthcare, this podcast is here to empower you with insights that actually make a difference.

Episode at a glance:

Cheryl's and Eileens’s Journey with Rheumatoid Arthritis: Both Cheryl and Eileen share their journeys with RA.
The Birth of Rheumer Has It Podcast: Cheryl and Eileen discuss how they first connected online through their advocacy work, which eventually led to the creation of Rheumer Has It.
What to Expect from Rheumer Has It: Compact, information-dense content from Cheryl, Eileen, and experts.
Debunking Myths and Misconceptions: Cheryl and Eileen discuss how this podcast will debunk myths and misconceptions about rheumatic diseases and spotlight scientific evidence in a down-to-earth, digestible format.

Medical disclaimer:

Episode Sponsors

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From Marriage to Friendships: Reflections on Support Systems with Alice Getchell

info@myarthritislife.net (Cheryl Crow) — Thu, 8 May 2025 16:00:00 +0000

They discuss the complexities of managing overlapping conditions and the importance of a strong support system. Alice highlights the invaluable support she receives from her family, friends, church community, and online groups. They also talk about the challenges of explaining chronic illness to others, dealing with unsolicited advice, and finding comfort in relationships. This episode serves as a guide for both patients and their loved ones on fostering understanding and meaningful support.

Alice also discusses the significance of finding specialized support groups, such as the 'Rheum to Thrive' community, led by Cheryl. Both Cheryl and Alice stress the importance of open communication, patience, and understanding in building effective support systems.

Episode at a glance:

Alice's Health Journey: Alice shares her experience living with and navigating multiple chronic conditions such as Rheumatoid arthritis, Sjogren’s syndrome, fibromyalgia, and chronic fatigue syndrome.
The Importance of Support from a Strong and Diverse Support System: Cheryl and Alice discuss the importance of support from family and friends, church community, and online support groups.
Finding and Building Support Systems: Cheryl and Alice discuss Cheryl’s Rheum to Thrive Program and how a specialized community is valuable in building a support system.
Dealing with Misunderstandings and Unsolicited Advice: Cheryl and Alice discuss how to maintain boundaries and navigate unsolicited advice.
Reflections on Long-Term Relationships: Alice shares insights from over 50 years marriage.

Medical disclaimer:

Episode Sponsors

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Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

info@myarthritislife.net (Cheryl Crow) — Thu, 1 May 2025 15:58:36 +0000

They discuss practical strategies for rebuilding trust in your body, the critical role of understanding your core values, and how to find the right support — whether through programs like Rheum to Thrive or events like the Virtual Sjögren’s Summit.

Together, they show how education, advocacy, and mindset shifts can help patients move from fear to confidence in managing their immune health.

Episode at a glance:

Sjogren’s and MCAS 101: what is Sjogren’s and MCAS?
Dr. Kara Wada’s personal journey: Sjögren’s Disease and mast cell activation syndrome (MCAS) and how it shaped her mission to empower patients.
Understanding "Immune Confidence": learning to trust your body again after autoimmune and allergic disease diagnoses.
The importance of patient advocacy and education: how Dr. Wada supports patients across multiple states through educational visits.
Healthcare system issues: why are complex patients being given the short end of the stick, and what are some creative solutions?
Upcoming events and opportunities: the Virtual Sjögren’s Summit and Cheryl’s evolving focus with Rheum to THRIVE.
Finding balance between personal life and professional advocacy while living with chronic illness.

Medical disclaimer:

Episode Sponsors

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Rheum Champions Tell All, with My Spoonie Sisters

info@myarthritislife.net (Cheryl Crow) — Thu, 24 Apr 2025 15:53:25 +0000

Jenni and Cheryl share the research highlights that stood out the most for them, from new research on POTS and Covid to the importance of sleep and fatigue management. We also shine a light on recent advancements in lupus treatment and managing stress and activity through "positive activity scheduling."

Cheryl and Jennifer also share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences. We also reflect on the importance of finding supportive communities.

*This episode was originally recorded as part of the My Spoonie Sisters podcast.

Episode at a glance:

Getting Involved: Patient advocacy and research as “Rheum Champions” with the Rheumatology Research Foundation
Research Highlights: New findings on POTS and Covid, the role of sleep and fatigue management in chronic illness, Advances in lupus treatment, Benefits of positive activity scheduling for stress and activity management
Personal Insights: Real-life strategies for improving sleep hygiene, Challenging the idea of what’s considered “normal,” The power of sensitive and inclusive language
Community & Support: The importance of finding and connecting with supportive communities, Encouragement for those looking to get involved in advocacy

Medical disclaimer:

Episode Sponsors

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Navigating the Shift: From Pediatric to Adult Rheumatology with Dr. Jenna Thomason

info@myarthritislife.net (Cheryl Crow) — Thu, 17 Apr 2025 15:58:39 +0000

Dr. Jenna breaks down the key differences between pediatric and adult care, and shares practical tips to help you feel more confident and prepared—whether it’s learning how to speak up during appointments, track your symptoms, or build a support system that really gets it.

They also get real about mindset, movement, rest, and how to keep living a full, active life even with rheumatoid arthritis, juvenile idiopathic arthritis or a similar condition in the mix. If you’re feeling unsure about what comes next, this conversation is full of encouragement, clarity, and little ways to start taking charge of your health journey.

Episode at a glance:

Why the Transition from Pediatric to Adult Rheumatology Care Matters: Understanding the key differences between pediatric and adult rheumatology care.
Common Challenges: Navigating new doctors, treatment plans, and increased self-management responsibilities.
Self-Advocacy Tips: How to confidently communicate with your new care team and take charge of your health.
Building a Support System: The importance of finding a community, whether through friends, family, or patient groups.
Finding the Right Rheumatologist: What to look for in a specialist who understands your needs and concerns.
Words of Encouragement: Reassurance that you're not alone in this transition and that smoother adjustments are possible with the right resources.

Medical disclaimer:

Episode Sponsors

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Managing Gout, Osteoporosis, and Arthritis: Insights from Dr. Arinola Dada

info@myarthritislife.net (Cheryl Crow) — Thu, 3 Apr 2025 15:36:35 +0000

Additionally, Cheryl & Dr Dada also explore how strength training—not to "bulk up," but to boost energy, focus, and joint stability—can be a game-changer for these diseases.

Dr. Dada reassures newly diagnosed individuals to avoid the anxiety of worst-case scenarios online and instead focus on reliable information and gradual, sustainable lifestyle changes.

She emphasizes that managing arthritis is a marathon, not a sprint, and that even 1% improvement each day adds up. With the right knowledge, support, and habits, you can take control of your health and live well with arthritis.

Episode at a glance:

Myths vs Facts for gout and osteoporosis
Strength Training Benefits: Cheryl and Dr. Dada discuss how strength training improves joint stability, reduces fatigue, and enhances focus for arthritis, gout, and osteoporosis.
Managing Anxiety: Cheryl and Dr. Dada discuss navigating the anxiety that comes with a new arthritis diagnosis, emphasizing the importance of reliable information.
Patience & Progress: The value of taking a gradual approach—small daily improvements can lead to significant changes in quality of life.
Empowering Patients: Dr. Dada emphasizes patient education and how it empowers individuals to make informed decisions about their care.

Medical disclaimer:

Episode Sponsors

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Mediterranean Diet, Gut Microbiome & More, with Arthritis Dietitian Cristina Montoya

info@myarthritislife.net (Cheryl Crow) — Thu, 27 Mar 2025 15:05:24 +0000

Together, they break down the latest research from the 2024 American College of Rheumatology conference, unpacking the science behind the gut microbiome and the Mediterranean diet. Cristina explains how these can impact inflammatory diseases like RA and Sjogren’s—and why it’s about more than just what’s on your plate.

They also tackle the big questions: Should you go gluten-free? Is the carnivore diet a miracle cure or just another fad? Is it worth having a restrictive diet if I’m stressed about food all the time? Cheryl and Cristina separate fact from fiction, debunking common diet myths so you can make informed choices without the confusion.

But this conversation isn’t just about food—it’s about the bigger picture. Cristina shares her “Five C’s” framework—Commitment, Consistency, Compassion, Courage, and Credibility—helping you stay on track while giving yourself grace. Plus, they dive into the importance of finding the right healthcare team and support system, so you never have to navigate RA alone.

If you’re looking for real talk, expert insights, and actionable tips to feel your best, this episode is a must-listen!

*Content warning: discussion of disordered eating from minute 10:40-14:40

Episode at a glance:

Cristina’s Journey: How dietitian Cristina was diagnosed with arthritis and Sjorgen’s Disease
Balanced Approach to Arthritis: Combine medication with smart lifestyle changes like diet and exercise for the best results.
Gut Microbiome Matters: The health of your gut microbiome plays a key role in managing inflammation and supporting overall health.
Cristina’s Five C’s Framework: Commitment, Consistency, Compassion, Courage, & Credibility
Build Your Healthcare Dream Team: Collaborate with trusted specialists (rheumatologists, dietitians, occupational therapists) for comprehensive care.
Avoid Quick Fixes: Don’t fall for miracle cures; rely on evidence-based practices for long-term success.
Specific Aspects of the Mediterranean Diet and Mediterranean Lifestyle: What makes it so helpful for inflammatory arthritis patients?

Medical disclaimer:

Episode Sponsors

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Finding Peace with Your Body: A Self-Compassionate Approach to RA

info@myarthritislife.net (Cheryl Crow) — Thu, 20 Mar 2025 15:54:17 +0000

They explore the tricky balance between wanting to “fix” your body and learning to accept where you are right now. Lindsay introduces a powerful framework for becoming your own loving companion—especially when flare-ups and uncertainty make life feel overwhelming.

You’ll also walk away with practical, everyday strategies, like how a simple tool like Dycem can make tasks easier. Because sometimes, the smallest changes can have the biggest impact.

If you’ve ever struggled with self-judgment or wished for a little more kindness—both from yourself and for yourself—this episode is for you.

Episode at a glance:

How do Occupational Therapists Help people with chronic illnesses?
The Importance of Self-Compassion: Lindsay highlights the value of acknowledging your humanity and giving yourself grace through the ups and downs of living with arthritis or chronic pain.
Aligning Your Time and Energy: Feeling more grounded comes from making sure your time and energy are aligned with what truly matters to you, even when living with a chronic illness.
Helpful Tools for Daily Life: Lindsay mentions Dycem as a versatile tool for improving grip and making everyday tasks easier.
Words of Encouragement: Lindsay encourages newly diagnosed individuals to remember they're not alone and don't have to figure everything out on their own.
Recommended Resources: Lindsay shares her appreciation for Sitting Pretty by Rebekah Taussig for its relatable insights and humor about living with a disability.

Medical disclaimer:

Episode Sponsors

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Why are Integrative Approaches (like nutrition and exercise) so important for RA? Insights from Dr. Diana Girnita

info@myarthritislife.net (Cheryl Crow) — Thu, 13 Mar 2025 15:52:20 +0000

Together, they break down the science behind why nutrition, exercise, and sleep play a crucial role in managing rheumatoid arthritis. Plus, they share practical tips on incorporating these key habits—along with stress management and social connection—into your treatment plan.

Dr. Girnita also highlights the importance of medication in arthritis management and discusses how lifestyle changes complement traditional treatments. She even delves into exciting advancements like CAR T-cell therapy, a cutting-edge approach that has shown promise in putting some rheumatic diseases into remission without immunosuppression.

Her philosophy? “I don’t treat diseases. I treat people.” This episode is all about finding a care plan that supports you as a whole person—because you deserve nothing less!

Episode at a glance:

What are integrative medicine and lifestyle medicine?
How does nutrition help RA?
Why is exercise important for people with RA?
Why is sleep so important for people with RA?
Why is stress management important for RA?
CAR-T treatment: an exciting new development in rheumatology
Dr. Diana’s Empowering Mantra: “I don’t treat diseases. I treat people.” Dr. Diana’s patient-centered approach focuses on treating the whole person, not just the diagnosis.

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Finding Music Again with RA and Sjogrens: Alice’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 6 Mar 2025 16:43:41 +0000

From singing to trying nine different medications in five years, to embracing the THRIVE framework from Cheryl’s Rheum to Thrive Program, Alice shares the ups and downs of life with rheumatoid arthritis. Ultimately, Alice reminds us that living fully with RA doesn’t mean giving up on what matters—it means finding new ways to engage, and finding a way to balance grief for what you’ve lost with gratitude for what you still have.

If you’re newly diagnosed, her story is a powerful reminder of the importance of connecting with what matters and striving to thrive, even if the path looks different than you expected.

Episode at a glance:

Adjusting to Life with RA: Alice shares her journey of adapting to a rheumatoid arthritis diagnosis and how it has impacted her daily life and passions.
Coping with medication ups and downs: Alice shares the emotional roller coaster of trying nine different medications in five years in search of one that would put her RA into a lasting remission.
Music & Resilience: How Alice found creative ways to stay connected to music, including learning Gaelic to sing a special song.
The THRIVE Framework: Practical strategies Alice uses to maintain joy and purpose despite physical challenges.
Redefining Limitations: Encouraging insights on shifting perspectives and embracing new ways to engage with what you love.
Message of Hope: Alice’s advice for newly diagnosed individuals: you can still live a full, meaningful life—it just may look different than expected.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

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Progress Over Perfection: Helen Jones on Thriving with Ankylosing Spondylitis

info@myarthritislife.net (Cheryl Crow) — Thu, 27 Feb 2025 16:37:49 +0000

Cheryl and Helen dive into the often-overlooked mental challenges of inflammatory arthritis, which can sometimes feel harder to navigate than the physical symptoms. They explore mindset strategies and mental tools that have helped them, including approaches from Acceptance and Commitment Therapy (ACT).

The conversation also highlights the importance of balance, such as steering clear of extreme “healthy” habits—like overly restrictive diets—that can add unnecessary stress. Cheryl and Helen share how they’ve learned to set boundaries and overcome the tendency to be people pleasers.

With insights on managing self-talk and practicing self-compassion, Helen offers a refreshing perspective for anyone navigating a chronic illness. Tune in to discover practical tips for embracing progress over perfection and living well with a chronic condition.

Episode at a glance:

Helen’s Journey with Ankylosing Spondylitis: Helen shares her diagnosis story, the challenges of managing a chronic condition, and how it shaped her coaching approach.
The Power of Balance and Listening to Your Body: Discover how Helen found relief by embracing balance in nutrition, self-care, and daily habits, prioritizing what feels good for her body.
Creative and Compassionate Stress Management: Learn Helen’s unique strategies for managing stress, including reframing thoughts, setting realistic expectations, and practicing self-compassion.
Practical Tools for Pain and Fatigue Relief: Helen discusses her go-to tools, like hot water bottles and ice packs, and explains how listening to her body guides her choices.
Inspiration for Thriving with Chronic Illness: Helen’s mantra, "Progress over perfection," and advice for newly diagnosed individuals provide hope and actionable steps to live a fulfilling life despite limitations.

Medical disclaimer:

Episode Sponsors

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How to Improve your Communication, Connection and Confidence, with Rheumatologist Dr. Ortiz

info@myarthritislife.net (Cheryl Crow) — Thu, 20 Feb 2025 16:35:03 +0000

Together, Cheryl and Dr. Ortiz debunk common myths about RA and tackle important topics like medication hesitancy, lifestyle interventions, and the balance between the two. Dr. Ortiz reassures listeners that while factors like nutrition, sleep, exercise, and stress management can help, “just because lifestyle can help doesn’t mean lifestyle caused it.”

They also discuss how to make the most of your doctor’s appointments—because being prepared can help you feel more confident and in control. Plus, they dive into the emotional side of living with a chronic illness and the uncertainty that comes with it. Dr. Ortiz shares strategies doctors can use to provide reassurance, even when the path forward isn’t always clear.

Finally, they explore concierge medicine and why Dr. Ortiz transitioned to this model of care. And as a reminder to anyone feeling overwhelmed, Cheryl and Dr. Ortiz leave listeners with this thought: “Everyone’s got something.” RA may be part of your story, but it doesn’t define you—you can still build a life that feels full and thriving.

Episode at a glance:

Why Dr Ortiz Became a Rheumatologist: The importance of building a long term relationship with your patients and searching for answers in the gray areas of medicine.
Tips for patients and doctors to communicate and connect better: Dr Ortiz shares practical tips for improving your connection with your doctor.
Medication Hesitancy and Lifestyle: Dr. Ortiz and Cheryl reflect on the importance of understanding medication efficacy, and how some evidence-based lifestyle interventions can be an important adjunct in your care.
Busting myths about rheumatoid arthritis: Dr. Ortiz and Cheryl address common misconceptions Dr. Ortiz has found in her Connected Rheumatology YouTube channel and Cheryl has found on her Arthritis Life social channels
Empowering Mindset for a New Diagnosis: Your diagnosis is not your fault, but you do have control over how you respond.
Shifting perspective: “Everyone’s got something” – you’re not alone in this journey.
Living a Full Life with RA: Thriving means building a life beyond your condition.

Medical disclaimer:

Episode Sponsors

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The Power of Creativity and Storytelling in Alison’s Chronic Illness Journey

info@myarthritislife.net (Cheryl Crow) — Thu, 13 Feb 2025 16:09:46 +0000

Alison and Cheryl also explore the impact of the pandemic on rediscovering creative passions and the power of storytelling in raising awareness. Alison’s new children’s book, Kenzie’s Little Tree, is not only a meaningful read but also a way to support arthritis and chronic illness foundations.

If you're newly diagnosed, this conversation offers reassurance, practical tips, and a reminder that you’re not alone in this journey.

Episode at a glance:

Alison’s Diagnosis Story: Alison shares how she got diagnosed with AS after the birth of her child
Creative Outlets & Chronic Illness: How writing, reading, and creative hobbies help manage symptoms and mental well-being.
Practical Comfort and Pain Relief Tools: Favorite small but effective tools like heating pads, cushions, and ergonomic adjustments.
Navigating Life Post-Diagnosis: The emotional impact of an IBD and ankylosing spondylitis diagnosis and finding ways to adapt.
The Power of Storytelling: How Alison’s book, Kenzie’s Little Tree, raises awareness and supports chronic illness communities.
Finding Connection & Support: Encouragement for those newly diagnosed, emphasizing that they’re not alone in this journey.

Medical disclaimer:

Episode Sponsors

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Tina’s Voice: Raising Awareness and Overcoming Stigmas with IBD and Inflammatory Arthritis

info@myarthritislife.net (Cheryl Crow) — Thu, 6 Feb 2025 17:00:00 +0000

Cheryl and Tina emphasize the need for increased education, representation, and awareness about autoimmune conditions and treatment options to reduce stigma and support patients globally.

Cheryl and Tina also discuss Tina’s advocacy work, including her blog Own Your Crohn’s and contributions to South Asian IBD Alliance (SAIA), focused on creating community and amplifying patient voices across diverse populations.

See full episode show notes including a transcript here!

Episode at a glance:

Tina's Diagnosis and Journey: Initial struggles with chronic illness and delayed acceptance of modern treatments like ostomies; challenges navigating cultural stigmas and family expectations in South Asian and other communities of color.
Addressing Stigma and Cultural Barriers: The impact of cultural stigmas on seeking timely medical care; Advocating for education, awareness, and representation in autoimmune and chronic illness spaces.
Advocacy Work: Founding Own Your Crohn’s to share her experiences and connect with others; Contributions to SAIA to amplify patient voices and support global IBD communities.
Key Messages: The importance of community, education, and acceptance in improving quality of life for patients; Breaking barriers and promoting inclusivity in chronic illness narratives.

Medical disclaimer:

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Full episode show notes

Click here for full episode show notes including a video of this conversation and transcript.

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Best Advice for People Newly Diagnosed with Rheumatoid Arthritis: Encore Episode

info@myarthritislife.net (Cheryl Crow) — Thu, 30 Jan 2025 23:19:18 +0000

A new RA diagnosis can be overwhelming, and it’s easy to feel lost in a sea of emotions and uncertainty. In this episode, I share my best advice for navigating this new reality—offering practical tips on mindset, building a strong support system, and avoiding the pitfalls of misinformation.

You'll also hear from fellow RA patients who share their personal insights and heartfelt encouragement, helping you approach your diagnosis with renewed hope—and, if you’re lucky, some evidence-based optimism.

Drawing from my 20+ years of living with RA and my expertise as an occupational therapist, I revisit key lessons from Episode 4 (originally released in 2020) and add fresh reflections from my last five years of running patient support groups and educational programs.

Tune in for a thoughtful, compassionate conversation designed to help you move forward with confidence and clarity.

For full episode details including a transcript:

Go to the episode page on the Arthritis Life website!

Episode at a Glance: Navigating Your RA Diagnosis

Coping with the Initial Shock – Practical tips to help you process the emotions that come with a new diagnosis and adjust to this new chapter of your life.
Educating Yourself Without Overwhelm – Learn how to find reliable information about RA without falling into endless internet rabbit holes or misinformation traps.
Building a Strong Support System – How to connect with the right people—both in real life and online—so you feel supported, understood, and less alone.
Working with Your Medical Team – Strategies for communicating effectively with your doctors and advocating for the care you deserve.
Finding the Right Treatment Path – A guide to exploring treatment options with confidence, so you can make informed decisions that fit your needs.
Managing Stress & Protecting Your Mental Health – Simple, effective ways to care for your mind and body while adjusting to life with RA.
A Message of Hope & Encouragement – You're not alone in this. Hear words of support and reassurance to help you move forward with confidence.

Medical disclaimer:

Episode Sponsors

For full episode details including a transcript:

Go to the episode page on the Arthritis Life website!

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Advocacy, Mindset and More: Chrissy’s Rheumatoid Arthritis Journey

info@myarthritislife.net (Cheryl Crow) — Thu, 23 Jan 2025 17:00:00 +0000

Chrissy recounts the challenges she faced seeking medical care for persistent swelling and joint pain. Despite visiting multiple doctors, she was repeatedly told she “wasn’t sick” before ultimately receiving her RA diagnosis. She reflects on the mix of emotions she felt—relief at finally having a treatment plan and the hope it brought, alongside fears about the long term implications of a progressive disease like RA.

Chrissy also dives into the importance of mindset. She explains how maintaining a positive outlook helps her navigate life with RA, while being careful to steer clear of the pitfalls of “toxic positivity.”

Her diagnosis, while life-changing, also brought unexpected opportunities. Chrissy discusses how it inspired her advocacy and fundraising efforts, including an incredible bike ride from San Francisco to Los Angeles to support the Arthritis Foundation.

This heartfelt conversation between Cheryl and Chrissy is a reminder that, even with a chronic illness diagnosis, it’s possible to thrive and find purpose in new and meaningful ways.

Episode at a glance:

Chrissy’s Journey to Diagnosis: From frustrating delays to finally being diagnosed with rheumatoid arthritis (RA).
Emotional Ups and Downs: The relief of finding a treatment plan and the challenges of accepting life with a chronic illness.
Mindset Matters: Balancing positivity while avoiding the pitfalls of "toxic positivity."
Advocacy in Action: How Chrissy turned her diagnosis into a mission, including fundraising for the Arthritis Foundation.
Inspiring Adventures: Chrissy’s empowering bike ride from San Francisco to Los Angeles to support RA awareness.
Finding Purpose and Adapting: Cheryl and Chrissy discuss thriving, adapting and finding purpose after an RA diagnosis.

Medical disclaimer:

Episode Sponsors

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Navigating College and Chronic Illness: Tips from Gabi’s Spondyloarthritis Journey

info@myarthritislife.net (Cheryl Crow) — Thu, 16 Jan 2025 17:00:00 +0000

Gabi highlights the accommodations that have been instrumental during her college experience, including adaptive tools and flexible scheduling. She shares how other young people with chronic illness can advocate for the accommodations they need to succeed in school.

Cheryl and Gabi also discuss the vital role of peer support groups, such as Cheryl’s Rheum to THRIVE program, and emphasize the importance of self-advocacy and maintaining a positive outlook.

For those newly diagnosed, Gabi offers invaluable advice: seek reputable resources, stay informed, and embrace the mindset that thriving with a chronic illness requires adapting, planning, and finding joy amidst challenges. This inspiring conversation celebrates resilience, community, and the power of living well with a chronic illness.

Episode at a glance:

Navigating Life with Spondyloarthritis and palatal tremor: Gabi shares her personal journey and how she manages the challenges of living with inflammatory arthritis. She also shares what it was like to try different medications and switch due to side effects.
Key Tips and Tools for School and Work: Cheryl and Gabi discuss accommodations available through organizations like the Arthritis Foundation and adaptive tools and strategies for daily life.
The Power of Self-Advocacy: Gabi highlights the importance of advocating for yourself in medical and personal settings.
Creating a Supportive Environment: Gabi shares about finding community and encouragement through groups like Rheum to THRIVE and about the importance of building a network of understanding family, friends, and peers..
Advice for the Newly Diagnosed: Lean on trustworthy resources, Stay informed and learn to adapt, and Focus on maintaining joy and living life fully despite the diagnosis.

Medical disclaimer:

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Riding the Chronic Illness Roller Coaster with Rheumatoid Arthritis, Endometriosis and Cancer: Stephanie’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 9 Jan 2025 17:00:00 +0000

Stephanie and Cheryl also reflect on the “roller coaster of acceptance,” or their journeys towards self compassion and acceptance in the face of fluctuating, unpredictable conditions. They also delve into the challenges of living with cognitive dysfunction or “brain fog” and Stephanie shares how she copes with this while serving as an adjunct professor.

Stephanie also shares resources that have helped her in her chronic illness journey, including her work with Atlas Assistance Dogs and her impactful writing on disability identity. Together, Cheryl and Stephanie show how living with chronic conditions can foster resilience, deepen self-awareness, and lead to a fulfilling life despite challenges.

Trigger warning: miscarriage

Episode at a glance:

Personal chronic illness Journeys: Stephanie shares her experiences of living with rheumatoid arthritis and the emotional challenges of a new diagnosis after surviving cancer and endometriosis.
Developing resilience and adapting to the ebb and flow of symptoms.
Building Community: The value of connecting with others who understand and the role of a support system in managing arthritis.
Practical Advice: Learn how adapting and being less rigid can improve quality of life despite chronic illness.
Coping with difficult symptoms like brain fog
Service animals: Stephanie shares the impact of animal assisted therapy and tips for caring for a dog when you have rheumatoid arthritis.

Medical disclaimer:

Episode Sponsors

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What’s it like to be a Counselor with Psoriatic Arthritis? Amber’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 2 Jan 2025 17:00:00 +0000

They also discuss the importance of support and community, and Amber shares her experience in Cheryl’s Rheum to THRIVE program. Cheryl and Amber emphasize the importance of adaptability, finding joy in everyday activities like cooking and cheering for their favorite sports teams, and embracing flexibility in the face of unpredictability.

Episode at a glance:

Personal Stories of Resilience: Amber shares her journey of managing psoriatic arthritis while balancing work, friendships, and her love for cooking and sports.
The Power of Adaptability: Embracing flexibility and pivoting when necessary is key to maintaining a fulfilling life despite chronic illness challenges.
Therapeutic Insights: Cheryl and Amber discuss the importance of therapy, setting boundaries, and giving up some control to better manage health and wellness.
Support Networks: Amber highlights resources like her counseling practice, the Welcome Project PA, and a peer support group for those living with chronic illness.
Lighthearted Moments: Fun anecdotes about Amber's Taylor Swift-themed party, her love for the Eagles, and her relatable Instagram posts featuring her dog and food.
Encouragement for Listeners: Cheryl and Amber leave listeners with hope, showing how living a good life with arthritis is possible by focusing on joy, adaptability, and meaningful connections.

Medical disclaimer:

Episode Sponsors

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Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis

info@myarthritislife.net (Cheryl Crow) — Thu, 19 Dec 2024 17:00:00 +0000

She discusses how she’s learned to adapt to life’s changes, uncover tools to improve her quality of life, and embrace creativity as a way to thrive. For instance, she shares how her power wheelchair allows her to explore her surroundings while conserving energy, and how her Spoonie Coloring Book brings joy and meaning to her daily life through art.

Carrie and Cheryl also dive into topics like self-acceptance, disability representation in media, and the role storytelling plays in processing challenges. With humor and vulnerability, they reflect on what it means to live a fulfilling life despite chronic illness, offering encouragement and inspiration for anyone newly diagnosed.

This episode is a heartfelt reminder that, while the journey may not go as planned, it can still be meaningful and empowering.

Episode at a glance:

Carrie's Diagnosis and Treatment Journey
The Power of Acceptance: Balancing grief for what’s lost with hope for what’s possible and finding empowerment in small, daily actions that improve quality of life.
Life on Wheels: Carrie shares how her power wheelchair helps her conserve energy and enables her to explore her environment in ways she wouldn’t if she had to walk.
The Importance of Art and Creativity: Living with rheumatic disease and adapting to life's changes and embracing creativity, such as publishing a coloring book for spoonies, as a means to thrive.
Books, Media, and Disability Representation: Discussion of favorite authors, including Jenny Lawson and Lisa See, and their openness about health challenges; highlighting the importance of disability representation in books, movies, and other media.
Encouragement for Thriving with Arthritis: "Keep on going" mindset and recognizing the value of being present and finding meaning in the life you have.

Medical disclaimer:

Episode Sponsors

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The 6 Ingredients to THRIVE with Rheumatoid Arthritis: a Peek Behind the Rheum to THRIVE Curtain

info@myarthritislife.net (Cheryl Crow) — Thu, 12 Dec 2024 17:00:00 +0000

Cheryl shares how the program has evolved based on participant feedback, offering flexible learning options including self-paced options for those who would like to learn the self management tools without the support group. Cheryl and Lauren also discuss the ways in which the program has offered essential education, community and realistic hope for people who previously felt lost and overwhelmed. They also share the support group schedule for 2025 and beyond!

Episode at a glance:

Introduction to the "Rheum to THRIVE" program: Cheryl shares the evolution and impact of her education and support program, designed for individuals with rheumatic disease.
Iterative improvements: Cheryl discusses how the program has evolved over time based on participant feedback, adding more resources like PDFs and flexible learning options.
Support group details: The program follows a consistent schedule, with 13 meetings each from February-June and September-January, and plans to expand with additional facilitators.
Testimonials and feedback: Cheryl and Lauren discuss common positive feedback from people who’ve taken the course and/or joined the support groups.
How to get involved: Cheryl explains how to join the support group or access the self-paced course, highlighting options for affordability.
Program fit: Cheryl clarifies who the program is ideal for and who it might not be suitable for, focusing on managing symptoms and improving quality of life.
Cheryl’s guest role: Normally the interviewer, Cheryl steps out of her usual role as the host to be interviewed by Lauren, adding a twist of fun to the episode.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

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It’s Not Just Joint Pain: Let’s Talk about Sleep, Fatigue, Cognitive Dysfunction, and Mental Health with Rheumatic Disease

info@myarthritislife.net (Cheryl Crow) — Thu, 5 Dec 2024 07:02:03 +0000

Cheryl and Eileen stress the value of self-advocacy, working with a multidisciplinary team, and accessing reliable resources to navigate life with confidence and care.

Episode at a glance:

Mental Health and Support Groups: Cheryl and Eileen explore the transformative power of support groups, not only for attendees but also for those facilitating them. They discuss how mental health practices, like therapy and mindfulness, can supplement traditional care and provide emotional resilience.
The Overlooked Impact of Sleep: Sleep disturbances, often dismissed as a symptom of rheumatic diseases, are addressed with actionable advice, including the need for sleep assessments to diagnose conditions like sleep apnea.
Nutrition’s Role in Managing Symptoms: Nutrition is examined as a key player in managing fatigue and overall well-being. Cheryl and Eileen discuss the benefits of a Mediterranean-style diet, the pitfalls of food shaming and misinformation, and how a positive, individualized approach to diet can support health without fostering food fear

Medical disclaimer:

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Full Episode Details

See the full episode show notes including a transcript and video on the episode page here.

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From Marathon Running to Double Hip Replacements and Back: Carrie’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 21 Nov 2024 17:00:00 +0000

Carrie shares how she managed being a mom to two young kids and returned to her passion of running after undergoing two hip replacement surgeries. Her story emphasizes the importance of getting second opinions, persevering through setbacks, listening to her body and asking for help.

Cheryl and Carrie discuss the challenges she faced and the mindset shifts that helped her return to running, including the importance of “staying in the mile you’re in” and remembering that “the comeback is bigger than the setback.” This episode serves as important representation for those looking for stories of younger or middle aged people returning to their passions after joint replacement surgery.

Episode at a glance:

Carrie's Remarkable Journey: Surviving hip dysplasia, osteoarthritis, and two hip replacements to become a marathon runner.
Carrie’s Journey from seeking a “miracle cure” to accepting the need for surgery
The importance of advocacy and second opinions: While most doctors said she could never run again, Carrier found one doctor who believed she could return to her passion post hip replacement surgery. Her surgeon had done over 6,000 surgeries for hip replacement, with only 3 patients ever returning to half marathons. She and her doctor worked together with the current (very small) set of data to decide what was best for her.
The Complexity of Parenting Small Kids while in Pain: Carrie shares the physical and emotional hurdles she faced post-surgery, including the difficulty of explaining her pain and limitations with small children. How do you balance the goal of being honest without giving your children false hope?
How Carrie recovered from Surgery: the power goal-setting, listening to her body, and pacing in Carrie’s recovery.
Community Support: Cheryl and Carrie discuss how a strong support system helped Carrie stay motivated and focused.
Mindset Matters: How Carrie developed resilience and adaptability in the face of limitations.
Takeaway Message: Embrace challenges and pursue passions despite obstacles!

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details

and join the program or waitlist now!

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How to Prevent and Cope with Rheumatic Disease Flare Ups (Re-Release)

info@myarthritislife.net (Cheryl Crow) — Thu, 7 Nov 2024 17:00:00 +0000

This is a re-release of Arthritis Life Podcast Episode 38, which pulled from a live webinar Cheryl presented in June 2021. To view the recording of the presentation which includes the slides, please go to bit.ly/flaretools (case sensitive).

Episode at a glance:

Updated intro from 2024: Cheryl introduces some additional resources for managing and preventing flare ups!
Definition of a Flare-Up of a rheumatic disease (which includes ankylosing spondylitis, psoriatic arthritis and rheumatoid arthritis)
What causes Flare-Ups, and why is it so important to discover our own unique flare triggers?
Focus on Pain: tools to prevent pain and reduce existing pain
Focus on Fatigue: tools to prevent and reduce fatigue
Focus on Stress: ways to decrease stress levels & cope with existing stress
Focus on symptom tracking & Concluding Thoughts: how symptom tracking helps you discover your triggers

Medical disclaimer:

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Supporting Black Women with Psoriatic Arthritis: Ayesha’s Story

info@myarthritislife.net (Cheryl Crow) — Wed, 30 Oct 2024 13:11:53 +0000

Cheryl and Ayesha also delve into the devastating impact fatigue can have on their lives and share tips for managing and preventing fatigue. Above all, they urge listeners to validate their own feelings and aim for full acceptance, with the hope that brighter days are ahead.

Episode at a glance:

Ayesha's Diagnosis Journey: Ayesha opens up about her personal experience living with psoriatic arthritis and reflects on the role of race and gender on her treatment. She, highlights the importance of advocating for yourself, especially when navigating a chronic illness without a medical background.
Advocacy for Black Women: As the founder of SistasWithPsoriasis and The PsoriaSis Collective, Ayesha has dedicated her platform to advocating for black women with psoriasis and psoriatic arthritis. She creates safe spaces for them to connect, support each other, and share their experiences.
The Role of Fatigue: Ayesha and Cheryl reflect on what fatigue feels like for them and how it impacts them on a daily basis.
Self-Care Tools: Ayesha’s favorite self-care tool? Her yoga mat! She starts every day with a stretch, using it as a moment of peace and wellness.
Empowering Words for Newly Diagnosed: She shares heartfelt advice for newly diagnosed individuals, stressing the importance of validating your own feelings and asserting yourself in medical situations.
Words to Live By: Ayesha's mantra, centers on putting your spiritual self first, believing that everything else will fall into place. She also encourages full acceptance of life’s challenges, reminding listeners that "the only way through is through."

Medical disclaimer:

Episode Sponsors

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What’s it Like to Run Your Own Business with Rheumatoid Arthritis? Sarah’s Story

info@myarthritislife.net (Cheryl Crow) — Mon, 21 Oct 2024 23:22:13 +0000

Cheryl and Sarah also discuss practical strategies for managing RA symptoms while maintaining productivity, from pacing your workday to leaning on support systems. They also explore how to prioritize self-care and flexibility, so you can successfully lead a business without compromising your health. This episode offers valuable insights for anyone navigating business ownership with RA.

Episode at a glance:

Sarah’s rheumatoid arthritis story: Sarah shared what it was like to get diagnosed in her 20s and overviews her up and down treatment journey over the years.
How Sarah’s Wedding Day Splint Led her to Develop a better joint support company: the story behind the popular Grace & Able joint support company!
Balancing RA Symptoms with Entrepreneurship: Sarah shares tips for managing flare-ups, joint pain, and fatigue while meeting business demands.
Practical Strategies for Productivity: Sarah shares tips including pacing during the workday, setting boundaries, and using tools to stay on top of tasks.
Importance of Support System: Cheryl and Sarah discuss the role of team members, outsourcing, and community support in sustaining a business.
Prioritizing Self-Care: Tips for integrating rest, stress management, and health routines into a busy schedule.

Medical disclaimer:

Episode Sponsors

For full episode show notes:

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What does Remission Mean to Patients? With Eileen Davidson

info@myarthritislife.net (Cheryl Crow) — Thu, 17 Oct 2024 16:00:00 +0000

After defining what remission is, Cheryl and Eileen take a deep dive into the importance of finding the right medical treatments and aiming for remission.They also dive into how small lifestyle changes, like setting boundaries and pacing yourself, can help you feel a sense of control over your symptoms.

If you're feeling overwhelmed by your diagnosis or like remission will never be in your reach, their stories will remind you that you're not alone, and life can be fulfilling with the right approach.

Disclosure: The “Talk Over RA” campaign is supported by Abbvie. Arthritis Life Podcast host Cheryl Crow receives no monetary compensation for this work, but Eileen, who is featured in this interview, does.

Episode at a glance:

Personal Journeys: Real stories from Cheryl and Eileen about their experiences with RA and how it has affected their lives.
Hope for Remission: Insightful discussions on what remission means and the steps towards achieving it.
Managing Symptoms: Tips on dealing with pain, fatigue, and emotional challenges associated with RA.
Self-Care Strategies: Practical advice on pacing oneself, setting boundaries, and building a supportive community.

Medical disclaimer:

Episode Sponsors

For full episode show notes:

Go to the episode page on the Arthritis Life Website: https://arthritis.theenthusiasticlife.com/2024/10/17/what-does-remission-mean-to-patients-with-eileen-davidson/

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Traveling the World with RA and AS: James Hollens’ Story

info@myarthritislife.net (Cheryl Crow) — Thu, 10 Oct 2024 13:40:49 +0000

Cheryl and James also touch on the emotional ups and downs of living with RA, and share practical tips for managing symptoms and staying active. Ultimately, they emphasize the importance of community and connection in navigating life with RA.

Episode at a glance:

James’ diagnosis story: James shares his journey to his rheumatoid arthritis and ankylosing spondylitis diagnosis
Traveling the World with Arthritis: James shares tips for traveling with arthritis.
Male Experience in Chronic Illness Community: James discusses his decision to share publicly and reflects on what it’s like being a male figure in the online chronic illness community.
Understanding the Emotional Impact: Cheryl and James reflect on the feelings of confusion and frustration that often accompany an RA diagnosis, emphasizing the need for self-compassion and patience during this transition.
Practical Strategies for Management: Cheryl and James share practical tips on managing symptoms, including dietary changes, incorporating gentle exercise, and utilizing mindfulness practices to help improve overall well-being.
Building a Support Network: The episode highlights the significance of connecting with others who understand the struggles of RA, discussing how forming a community can provide encouragement and shared experiences.

Medical disclaimer:

Episode Sponsors

For full episode show notes:

Go to the episode page on the Arthritis Life Website: https://arthritis.theenthusiasticlife.com/2024/10/10/traveling-the-world-with-ra-and-as-james-hollens-story/

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What's so Funny about Rheumatoid Arthritis? Insights from Comedian Jessica Michelle

info@myarthritislife.net (Cheryl Crow) — Thu, 3 Oct 2024 16:19:00 +0000

Episode at a glance:

Jessica’s Rheumatoid Arthritis Story: How Jessica got diagnosed and what her treatment journey has been like
Exploring different treatment options: Jessica shares the ups and downs of trying different diets and lifestyle methods to manage RA, along with medications
Humor as a Coping Mechanism: Jessica shares how she started improv and stand up comedy, and how humor helped her cope with rheumatoid arthritis. She also explores what it was like to have a joke about rheumatoid arthritis go viral on social media.
Ways to Manage Stress: Strategies for managing stress, maintaining a positive mindset, and connecting with others who understand life with RA.

Medical disclaimer:

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it like to be a Doctor with RA and Vasculitis?

info@myarthritislife.net (Cheryl Crow) — Thu, 26 Sep 2024 16:00:00 +0000

Elena also shares her favorite resources for living well with arthritis, including supportive footwear brands, arthritis gadgets, and inspirational books. Shes hares practical tips like finding the right shoes to support your joints, using dictation tools to reduce hand strain, and the importance of accepting that some pain may persist while still being able to live a fulfilling life.

Throughout the conversation, Dr Elena and Cheryl emphasize the value of prioritizing what's important and showing up for family, work, and health—even when symptoms make things challenging. If you're newly diagnosed with RA, this episode offers comforting, actionable advice and a reminder that you're not alone in navigating this journey.

DISCLAIMER FOR THIS EPISODE:

The views expressed are those of the author and do not reflect the official policy or position of the US Air Force, Department of Defense or the US Government*

Episode Themes:

Personal Challenges and Advice: Elena shares her experience with managing rheumatoid arthritis and vasculitis and discusses practical tips for newly diagnosed individuals.

Useful Products and Tools: Cheryl and Elena discuss favorite footwear brands and how they impact daily comfort and highlight dictation software as a game-changer for writing tasks.

Living Well with Rheumatoid Arthritis: Elena emphasizes focusing on doing what's most important, even with some discomfort, to achieve a fulfilling life.

Inspirational Mantras: Elena shares her favorite motivational sayings and discusses how this perspective helps her manage daily challenges.

Medical disclaimer:

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Power of Strength Training for Rheumatoid Arthritis, with Kinesiologist Dr. Jasmin Ma

info@myarthritislife.net (Cheryl Crow) — Sat, 21 Sep 2024 17:15:31 +0000

Dr. Ma advises people with rheumatoid arthritis to start small, listen to their body, and use her "START" guide to gradually build an active routine that feels right for you. She also explains how the START guide is a useful tool for clinicians like physiotherapists and occupational therapists to support patients in developing sustainable strength training routines.

Dr. Ma also shares her favorite mantra, "control the controllables and enjoy the enjoyables," which is a great reminder to focus on what you can manage and find joy in the little things. Plus, Cheryl and Dr. Ma dive into how having a supportive community—whether it’s big or just a few people—can make a huge difference in thriving with RA!

Episode Themes:

Physical Activity with RA: Dr. Ma shares how you should listen to your body’s needs and pace yourself to avoid overexertion. Physical activity is more than exercise; it’s about reducing sedentary time and increasing daily activity.

Kinesiologist’s Approach to Movement: Using the 24-Hour Movement Guidelines, Dr. Ma talks about the balance of physical activity, sleep, and reducing sedentary behavior, all while accounting for the challenges posed by RA.

The Importance of Community: Cheryl and Dr. Ma discuss how community is key for thriving with RA, but it looks different for everyone. Whether it’s a large group, one-on-one support, or reaching out to a healthcare professional, connection makes a difference.

Inspirational Mantra: Dr. Ma shares her favorite saying: "Control the controllables and enjoy the enjoyables." Focus on what you can manage and find joy in the present moment.

Empowering Mindset: Cheryl and Dr. Ma discuss how RA management is about becoming your own scientist and finding what works best for you.

Mental Shift on Exercise: Cheryl and Dr. Ma explore the idea of reframing exercise as something empowering, rather than just a necessity, and how staying active can contribute to feeling more in control of your health.

Medical disclaimer:

For full episode details include a transcript and video:

Go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Research, Resilience, and JIA: Dr. Kaleb’s Journey

info@myarthritislife.net (Cheryl Crow) — Fri, 13 Sep 2024 17:36:55 +0000

Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools.

He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb’s personal insights into balancing work and life offer hope for finding purpose and joy despite the challenges of living with arthritis. Together, they emphasize the importance of living meaningfully through activities like board games, time with family, and staying connected to a supportive community.

Episode Themes:

Personal Experiences and Resilience: Dr. Kaleb’s shares his personal journey with juvenile idiopathic arthritis, from diagnosis at age 3 to today.
Self-Management & Lifestyle: Cheryl & Dr. Kaleb discuss strategies for managing physical pain through ergonomic tools, proper footwear, and weight management.
Importance of Sleep: The critical role of good sleep in managing chronic illness, including the impact of sleep apnea and the benefits of CPAP therapy.
Managing a dual role of patient and researcher: Dr. Kaleb reflects on his decision to “go public” with his diagnosis of JIA after being known as an arthritis researcher, and discusses the pros and cons of sharing your story publicly
Cannabis and Pain Management: The evolving research and patient experiences with cannabis as a tool for managing chronic pain, despite its legal and research limitations.
Misinformation and Evidence-Based Care: The challenge of navigating biased or incomplete information about treatments and the importance of relying on evidence-based medicine.
Arthritis Research and the Role of Learning from the Patient’s lived experience: Dr Kaleb explains the importance of the FORWARD databank.com for ongoing research to improve patient outcomes.
Entertainment and Personal Interests: The role of hobbies, such as board games and movies, in providing enjoyment and coping with chronic illness.

Medical disclaimer:

For full episode details include a transcript and video:

Go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

“Healing is a Messy Process:” Sonia’s RA and Graves’ Disease Journey

info@myarthritislife.net (Cheryl Crow) — Sun, 1 Sep 2024 18:51:36 +0000

Sonia talks about how daily gratitude, yoga, medications, and the support of groups like Rheum to THRIVE have helped her pursue joy amidst the challenges of rheumatoid arthritis (RA), Graves’ disease and other chronic conditions.

Sonia shares how the Rheum to THRIVE support group provided her with the courage to be vulnerable and set boundaries. Cheryl and Sonia reflect on how these groups become sacred spaces where individuals can fully engage with their emotions, be witnessed without judgment, and sometimes find unexpected moments of humor and joy amidst the challenges.

The discussion offers valuable tips and relatable moments for anyone living with RA, with gentle reminders to take things one day at a time. Overall, Cheryl and Sonia encourage you to embrace acceptance and community so you can live a more empowered and fulfilling life with chronic illness.

Themes of the Episode

Self-Acceptance and Grace: Sonia emphasizes the importance of self-compassion, practicing grace, and ease with oneself, especially in dealing with the uncertainties and challenges of life with RA.
The Power of Social Media and Community Support: Cheryl talks about using social media as a tool for patient education and support, while Sonia highlights the significance of connecting with others, particularly through the Rheum to THRIVE support group, to share experiences and support one another.
Yoga, Mindfulness and Embracing the Present: Sonia shares the pivotal role yoga had in transforming her relationship to her body and helping her embrace th represent moment.
Coping with Rheumatoid Arthritis (RA) Through Humor: Both Cheryl and Sonia discuss the role of humor in coping with the challenges of RA, acknowledging that while it may not resonate with everyone, it provides them with a sense of normalcy and relief.
Daily Tools and Adaptations for Living with RA: The conversation touches on practical tools like ring splints, compression gloves, and supportive pillows that help manage the physical challenges of RA.
Sharing Personal Mantras and Wisdom: Both Cheryl and Sonia share how gratitude practices and self-forgiveness help them live more peacefully with rheumatoid arthritis.
The Impact of RA on Daily Life and Relationships: The conversation also explores how RA affects daily activities, relationships, and the emotional aspects of living with a chronic illness.

Medical disclaimer:

For full episode details include a transcript and video:

Go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it Like to Truly Partner with Your Doctor? The Power of Shared Decision Making, with Dr Liana Fraenkel

info@myarthritislife.net (Cheryl Crow) — Sat, 24 Aug 2024 15:55:42 +0000

In this episode, Cheryl Crow and Dr. Liana Fraenkel dive into the crucial concept of "Shared Decision Making" (SDM) in rheumatoid arthritis care. SDM is a collaborative approach where patients and doctors work together to develop a treatment plan. It empowers patients to express their preferences and values, while doctors listen actively and consider these when recommending treatments.

The discussion also touches on the role of education in SDM, especially when it comes to understanding the pros and cons of different medications. Cheryl and Dr. Fraenkel address medication hesitancy, highlighting research that shows how patients benefit from hearing not only from their doctors but also from others who have firsthand experience with rheumatic disease medications.

Finally, Dr. Fraenkel and Cheryl emphasize the importance of ongoing research in rheumatology and the need to strengthen the rheumatology workforce, given the current shortage. They explore the efforts of the Rheumatology Research Foundation and discuss ways for patients to get involved in supporting these vital initiatives.

Medical disclaimer:

Episode Sponsors

For full episode details including a video and transcript:

Go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

“It’s Like Managing a Circus”: How Maggie Thrives with Multiple Chronic Illnesses

info@myarthritislife.net (Cheryl Crow) — Mon, 19 Aug 2024 19:48:04 +0000

In this episode, Maggie shares valuable insights from life with axial spondyloarthritis, sjogren’s, osteoarthritis, hypermobility, migraine, and POTS. She also shares her treatment journey which she divides into a “discovery phase, treatment phase, and tinkering phase.”

Maggie and Cheryl discuss practical advice for managing multiple chronic illnesses, including the importance of social support and finding joy in daily experiences. They also discuss their best coping skills for times when managing your health feels like “orchestrating a circus.” Ultimately, Maggie and Cheryl discuss the importance of savoring life's moments and adapting to new ways of living, rather than trying solely to return to a pre-illness lifestyle.

Medical disclaimer:

Episode Sponsors

For full episode details including a video and transcript:

Go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

It’s not Just Joint Pain and 8 things Everyone who Loves Someone with Arthritis Should Know (Re-Release)

info@myarthritislife.net (Cheryl Crow) — Fri, 9 Aug 2024 18:17:13 +0000

Back in January 2021, I shared the eight most important things that loved ones should know, so they can best support people with autoimmune arthritis. This episode includes messages and insights from twenty-eight other patients!

Today, I’m re-releasing this episode with some additional insights I’ve gained after leading patient support and self-management groups over the last 4 years. Did I miss anything? Let me know in the comments!

Episode at a glance:

One – We want you to learn what the disease is and isn’t.
Two – The fatigue can be just as bad as the pain.
Three – It doesn’t just affect the body – it also affects the mind and emotions.
Four – It affects EACH person differently.
Five – Daily symptoms are often unpredictable.
Six – We want credit for how hard we’re fighting, even when we seem “normal.”
Seven – Sometimes we need problem solving, other times we need empathy.
Eight – Managing the disease itself is a job that takes time and energy.
Bonus point: Take care of YOUR needs as the caregiver/friend
Concluding thoughts

Medical disclaimer:

Episode Sponsors

For full episode details:

For a full transcript of this episode and detailed show notes, go to the episode page on the Arthritis Life website.

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Elevating the Patient Voice in Rheumatology Research: Cheryl and Jen’s Stories

info@myarthritislife.net (Cheryl Crow) — Sun, 21 Jul 2024 23:14:04 +0000

Cheryl and Jen share exciting trends in rheumatology research that will help improve quality of life and develop better targeted treatments for rheumatic disease. They also discuss the importance of involving patients at all levels of research, and shared simple ways that listeners can get involved. Additionally, Cheryl and Jen reflected on the importance of social support in their personal journeys living with rheumatoid arthritis, and the importance of support groups in navigating life with chronic conditions.

Medical disclaimer:

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Tackling Rheumatoid Arthritis with Obstinance and Humor: Stasha’s Story

info@myarthritislife.net (Cheryl Crow) — Fri, 12 Jul 2024 21:34:26 +0000

In this episode, Stasha shares her diagnosis journey for rheumatoid arthritis and reflects on what it was like being a parent to small children while learning how to adapt to rheumatoid arthritis.

Stasha also shares how her quest to merge science-based and natural methods led her to starting a blog. Cheryl and Stasha reflect on the role “obstinance” or stubbornness has played, and reflect on the therapeutic benefits of humor.They also discuss how they view assistive devices in a positive light, and discuss how their identities have been affected by chronic illness.

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“Joined at the Joints:” How Marissa Became a YA Romance Writer with RA

info@myarthritislife.net (Cheryl Crow) — Fri, 5 Jul 2024 20:18:24 +0000

Have you ever read a love story that features someone with chronic illness? In this episode, author Marissa Eller shares how living with RA led her to write her debut young adult (YA) romantic comedy book "Joined at the Joints." She and Cheryl discuss the importance of authentic representation in books and media, particularly for those with invisible disabilities.

Marissa also shares what it’s like to be an author with RA, including strategies to accommodate her needs and how writing can be a therapeutic form of expression. The conversation concludes with a discussion about the best advice for the newly diagnosed.

Medical disclaimer:

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“Bald Girl Big World:” Colleen’s Alopecia Story

info@myarthritislife.net (Cheryl Crow) — Mon, 17 Jun 2024 16:26:11 +0000

What’s it like to suddenly go bald at age 22? In this episode, Cheryl interviews Colleen Kydd, who speaks candidly about living with autoimmune alopecia. She shares how she went from covering her baldness with wigs to confidently, unapologetically embracing her identity as a “bald girl in a big world!” Colleen shares how she managed her alopecia in the corporate world, dating life, world travels and new role as an entrepreneur.

Throughout the episode, Cheryl and Colleen discuss acceptance, self compassion, and the crucial importance of connecting with others when we’re struggling. Cheryl and Colleen reflect on the transformative power of storytelling, and the importance of pursuing a meaningful life amidst the challenges of chronic illness.

Medical disclaimer:

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Comedy, Chronic Illness, and Coping: Katie’s Inflammatory Arthritis Story

info@myarthritislife.net (Cheryl Crow) — Tue, 4 Jun 2024 02:47:56 +0000

In this episode, Katie reflects on the crucial role that parental and patient advocacy played in her her journey to a diagnosis of juvenile idiopathic arthritis (JIA). She also shares her college experience, and discusses the roles that comedy and humor have played in helping her cope. Cheryl and Katie express the importance of accepting the need for assistive devices, setting boundaries, believing in oneself, prioritizing needs, and having a support system to thrive with chronic illness.

Medical disclaimer:

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Episode at a glance:

Kate’s Diagnosis Story at age 15: Katie shares her journey of being an active child and being diagnosed juvenile rheumatoid arthritis (juvenile idiopathic arthritis) at age 15 after experiencing symptoms for an extended period of time that were initially dismissed as “growing pains”.
Advocacy: Katie emphasizes the crucial role her mother played in advocating for her during medical appointments, highlighting the importance of having a supportive network. Katie shares advice on self-advocacy, encouraging patients to set firm boundaries and prioritize their needs, even if it means challenging expectations.
Support: The conversation emphasizes community and connection, and the benefit of having someone in your corner to help advocate with you.
Coping Strategies: Practical tips are shared, including the use of specialized tools and gadgets designed to make daily tasks easier for individuals with arthritis. Katie also shares her experience with medical marijuana.
Comedy: Katie shares the importance of comedy in her life, and how it helps her cope with her diagnosis and spread awareness of it.
Accommodations: Katie and Cheryl discuss access to accommodations, particularly in educational settings, such as extended test time and speech-to-text tools for students with chronic illnesses.
Living Authentically: Katie advocates for a balanced approach of embracing realism while maintaining a positive outlook, acknowledging both the challenges and opportunities for growth that come with chronic illness.
Advice to Newly Diagnosed Patients: Carry on, stick up for yourself, and believe in yourself. Write down three things that made you proud each day.

For full episode details:

Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!

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Creating a Better Future for Autoimmune Care With Rheumission’s Dr. Micah Yu & Bonnie Feldman

info@myarthritislife.net (Cheryl Crow) — Tue, 21 May 2024 01:25:29 +0000

Cheryl, Dr. Yu and Dr. Feldman share their patient experiences and exploring problems with current healthcare systems. They then share how these problems led them to form creative patient programs and services. Cheryl shares the origin story for her Rheum to THRIVE program, and Dr. Yu and Dr. Feldman share how they created Rheumission, a virtual first integrative Rheumatology and Lifestyle clinic for people living with autoimmune disease.

Overall, our passion for reimagining autoimmune care shines through as we highlight gaps in current treatment paradigms, and outline visions for a more inclusive, holistic and effective healthcare model that is proactive versus reactive.

The discussion concludes with an exploration of cutting-edge advancements in telemedicine and personalized medicine, and all speakers share their best advice for newly diagnosed patients.

Medical disclaimer:

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Episode at a Glance:

Importance of personalized care: we discuss the importance of personalized treatment plans tailored to individual needs, rather than one size fits all solutions.
Revolutionizing autoimmune care: we explore the potential positive impact of integrating biotech, digital health, and virtual-first approaches to enhance research, diagnostics, and treatment, with Rheumission as an example.
Multidisciplinary approach: we highlight the importance of team-based care in rheumatology and autoimmune care, where you can see not only a rheumatologist and rheumatology nurse but also get care from a multidisciplinary team (including registered dietitians, mental health therapists, physical and occupational therapists, etc).
Taking a holistic approach: we explore the interconnectedness of physical and mental health, addressing lifestyle factors, stress management, and environmental influences.
Exploring Mental Health: The conversation highlights the well-documented correlation between autoimmune diseases and mental health issues like anxiety and depression.
Why is accessibility important: we discuss the problem of long waiting times for rheumatology appointments and possible solutions.
Advocacy for patient involvement: Dr. Bonnie emphasizes the importance of empowering patients to take charge of their health and actively participate in decision-making processes.

For full episode details:

Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!

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What’s it like to run Half Marathons with Autoimmune Disease?

info@myarthritislife.net (Cheryl Crow) — Mon, 13 May 2024 20:48:23 +0000

After facing skepticism from some medical professionals who doubted her ability to run, Gretchen defied expectations and has completed over 100 half marathons, all while raising money and awareness for autoimmune causes.

She and Cheryl also discuss the importance of self compassion in their journeys with chronic autoimmune disease. Gretchen shares why she resonates with progress over perfection and encourages others to be gentle with themselves while navigating life with autoimmune diseases.

Gretchen shares how she found creative ways to raise awareness about autoimmune diseases, such as running two half-marathons on two coasts in two days to raise funds for autoimmune research at the Benaroya Research Institute. Through her experiences, Gretchen emphasizes the importance of perseverance, self-advocacy, and building a supportive community. By sharing her story and promoting resilience, Gretchen aims to inspire hope and empower individuals to find purpose and joy in their own health journeys.

Medical disclaimer:

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How Mindfulness Helped Paulina Reconnect with Her Body and Thrive with RA

info@myarthritislife.net (Cheryl Crow) — Thu, 2 May 2024 22:19:56 +0000

On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain.

Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in navigating emotions and thoughts, as well as acceptance. They also emphasize seeking support while navigating the challenges of chronic illness.

Medical disclaimer:

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See the episode page on the Arthritis Life website.

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What do People with Rheumatoid Arthritis Need to Know about COVID-19 in 2024?

info@myarthritislife.net (Cheryl Crow) — Mon, 22 Apr 2024 04:22:31 +0000

Dr Dave & Dr Campbell answer Cheryl’s burning questions about long COVID, vaccine efficacy and safety for people with autoimmune conditions, and potential links between autoimmunity and long COVID. They also talk about cutting edge research and new therapies including CAR T-cell therapy.

Dr. Campbell encourages participation in research studies to better understand these complex issues. Dr. Dave emphasizes the need for precision medicine approaches in treating autoimmune diseases like RA, where individualized treatment plans can be tailored to each patient's unique needs. Despite the challenges posed by autoimmune diseases and COVID-19, they express optimism about the future of treatment options and the ongoing medical advancements.

Medical disclaimer:

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“Disability is not a Dirty Word:” Catherine’s Story of Fierce Hope & Young Patient Advocacy

info@myarthritislife.net (Cheryl Crow) — Thu, 11 Apr 2024 17:40:48 +0000

Through sharing her own story publicly, Catherine learned the importance of disability representation and advocacy for young people. She also delves into why it is crucial to include the voices of young adults in the research and advocacy process.

Cheryl and Catherine explore the process of dismantling their own internalized ableism and challenging societal norms around what constitutes a "normal" life. They also challenge the idea that disability is necessarily a “bad” word. They emphasize the importance of self-care and finding joy in everyday activities, even if they require accommodation. For Catherine, participating in activities like surfing, albeit in an accommodated manner, brings fulfillment and contributes to her definition of living a good life with chronic illness. Throughout the conversation, Cheryl and Catherine underscore the values of self-advocacy, self-acceptance, and finding happiness on one's own terms.

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Overcoming Denial, Confronting Food Phobia, and Embracing Online Communities: Ray’s AS and OA Story

info@myarthritislife.net (Cheryl Crow) — Thu, 28 Mar 2024 03:03:03 +0000

Trigger warning: orthorexia / eating disorders; fear of foods

In Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family.

Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive community online. He also explains the importance of advocating for oneself and seeking out reliable information and resources, taking a proactive approach to managing his conditions, and finding the right balance between pushing through pain and listening to his body's needs.

Episode at a glance:

Diagnosis Story: Ray describes his diagnoses and experience living with rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA).
Navigating Multiple Conditions: Ray explains the complexities of living with multiple chronic illnesses, including challenges related to symptom management, accessing healthcare, and adjusting to lifestyle changes.
Social Support and Connection: Cheryl and Ray discuss the significance of social support networks, in providing connection and understanding for individuals living with rheumatic diseases.
Self-Advocacy and Empowerment: Ray emphasizes the importance of self-advocacy and seeking out reliable information and resources to empower oneself in managing chronic illnesses
Acceptance and Resilience: Ray shares insights into his journey from feelings of denial to acceptance and living a fulfilling life despite health challenges.

Medical disclaimer:

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Go to the episode page (coming soon) on the Arthritis Life website.

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Demystifying Chronic Pain, Fibromyalgia, Rheumatic Disease and Long Covid: with Christine Stamatos

info@myarthritislife.net (Cheryl Crow) — Tue, 19 Mar 2024 23:23:07 +0000

Christine highlights the importance of lifestyle methods to manage chronic conditions including sleep hygiene, stress management, anti inflammatory nutrition, exercise and more. They discuss the importance of focusing on what brings joy and meaning to one's life while managing chronic illness.

Overall, the conversation underscores the importance of a comprehensive approach to chronic pain management that addresses both the physical and emotional aspects of the patient's well-being.

Episode at a glance:

Chronic pain explained: Christine explains the 3 types of pain: nociceptive (as seen in active inflammation / tissue damage in RA), nociplastic (central sensitization, as in fibromyalgia) and neuropathic pain (nerve pain)
Lifestyle: The best lifestyle adjustments to manage rheumatic disease, fibromyalgia and long covid: sleep, stress management, exercise, nutrition and more
Mental health: The significance of addressing both the physical and emotional aspects of a patient's well-being in chronic pain management.
Acceptance: Utilizing Acceptance and Commitment Therapy (ACT) as a valuable tool for managing chronic pain and navigating uncertainty.
Joy: Focusing on finding joy and meaning in life while accepting the changes that come with chronic illness.
Patient-provider relationship: Tips for building a trusting relationship with your health provider
Long Covid and Fibromyalgia tips: Christine shares her best tips from her long covid and fibromyalgia clinic

Medical disclaimer:

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Go to the episode page on the Arthritis Life Website (episode page coming soon).

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What’s it like to be an Adult Living with Juvenile Idiopathic Arthritis? Rebecca Beesley’s Story

info@myarthritislife.net (Cheryl Crow) — Mon, 11 Mar 2024 23:28:03 +0000

Cheryl and Rebecca also share misconceptions and talk about the variability and fluctuations of symptoms, as well as reframing limitations and embracing flexibility. They explore the idea of living a "good life" with rheumatic diseases, acknowledging the challenges while emphasizing the possibility of thriving and pursuing one's dreams despite the condition.

Episode at a glance:

Advocacy and Awareness: Cheryl and Rebecca emphasize the importance of advocating for individuals with juvenile idiopathic arthritis (JIA) and raising awareness about the condition to combat misconceptions and promote understanding in various settings.
What happens when kids with JIA become adults? Rebecca clarifies common misconceptions such as that kids “outgrow” JIA. As an adult living with JIA, she explains how the diagnosis follows you to adulthood because it’s a different disease than adult rheumatoid arthritis.
Education and Work Accommodations: Cheryl & Rebecca discuss the need for accommodations, highlighting the importance of communication with employers, teachers, and peers.
Thriving with JIA: The conversation delves into the idea of living a fulfilling life despite the challenges of rheumatic diseases, emphasizing the importance of reframing limitations, embracing flexibility, and celebrating achievements and everyday joys.
Coping tools: Cheryl and Rebecca discuss the challenges faced by individuals and families dealing with JIA, as well as strategies for navigating life with chronic illness, including seeking support, staying informed, and fostering a positive mindset.
Favorite mantras: “It’s never too late to be who you might have been”, and it “always seems impossible until it’s done”.

Medical disclaimer:

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Coming soon on the Arthritis Life Website.

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Dancing Through Deformities: Christine’s Rheumatoid Arthritis Story

info@myarthritislife.net (Cheryl Crow) — Tue, 5 Mar 2024 00:19:07 +0000

Episode Summary

****Please see the episode trigger warning below. On episode 119 of the Arthritis Life Podcast, Christine Troyano shares her journey of living, traveling the world and dancing with rheumatoid arthritis. She also opens up about pressures she experienced as a young person to treat her arthritis without medication, and then shares her experiences navigating different treatments to manage her RA over the past 32 years.

Christine shares stories of her travels through South Korea and Indonesia, and her passion for dancing. She shares how she developed resilience during challenging situations, from insurance barriers and navigating healthcare disparities between countries, to adversity in relationships.

Christine explains how dance became a transformative force in her life, where she found a space for self-expression and physical release. Christine and Cheryl emphasize the importance of self-advocacy in managing chronic illness, building a supportive community, and finding joy through the challenges.

*Trigger warning for this episode*: Between minute 29:00-34:00 there is a discussion of emotional abuse, sexual assault, rape, and abortion.

Medical disclaimer:

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Rheum to THRIVE, an online empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

For full episode details including a video & transcript:

See the episode page on the Arthritis Life Website.

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Living through Diagnostic Purgatory and Rare Medication Side Effects: Rosemary’s Psoriatic Arthritis Story

info@myarthritislife.net (Cheryl Crow) — Sun, 25 Feb 2024 15:56:14 +0000

Rosemary also shares her experience with a mystery skin rash that ended up being a rare psoriatic arthritis medication side effect: leukocytoclastic vasculitis triggered by drug-induced lupus, and an eventual diagnosis of Palisaded Neutrophilic and Granulomatous Dermatitis.

Throughout the episode, Rosemary and Cheryl discuss the importance of coping skills for difficult medical experiences. They also emphasize the importance of finding the right medications, lifestyle strategies, and the role of psychosocial support. Uncertainty and setbacks can be overwhelming, but self-compassion, support systems, acceptance, and perseverance can help you pursue a fulfilling life despite health challenges.

Episode at a glance:

Chronic Illness Journey: The interview delves into Emily's journey of living with chronic illnesses, from psoriatic arthritis, to developing drug-induced lupus which triggered leukocytoclastic vasculitis, and eventually being diagnosed with Palisaded Neutrophilic and Granulomatous Dermatitis (PNGD).
Medication Management: Rosemary shares her experiences with various medications, including Enbrel, Humira, and Plaquenil, discussing their effectiveness in managing her symptoms and the decision-making process involved in discontinuing certain medications. They discuss the importance in recognizing adverse effects, while balancing this understanding with the benefits that medications do provide.
Lifestyle strategies: Rosemary emphasizes the importance of physical activity and wellness in her life, despite her health challenges.
Emotional Resilience: Navigating the emotional highs and lows with chronic illness can be overwhelming, from the initial relief of finding treatments to the grief and uncertainty of adjusting plans. Cheryl and Rosemary discuss self-advocacy, and pursuing fulfilling lives despite obstacles .
Adapting to Change: Rosemary and Cheryl discuss how to adapt to change, both in terms of treatment plans and mindset towards living with chronic illness, including exploring alternative treatments and embracing new perspectives.
Support: Rosemary reflects on the role of support from healthcare providers, online support groups, and in personal relationships - underscoring the importance of having a strong network when facing chronic illness.
Advice to Newly Diagnosed Patients: “You don't have control of the fact that that happened to you, and you didn't do anything wrong. All you can do now is choose how to react to it. Do the next right thing. Little by little by little, it'll start coming together. And you're going to be okay.”

Medical disclaimer:

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Go to the episode page on the Arthritis Life Website (transcript coming soon!).

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How Can Exercise reduce Pain and Fatigue in RA? With Dr. Kimberly Steinbarger, Physical Therapist

info@myarthritislife.net (Cheryl Crow) — Mon, 19 Feb 2024 18:33:21 +0000

Cheryl and Dr. Kimberly discuss the importance of pain science education to help patients better understand and manage their pain perception. The also explore the importance of building a network of health professionals and support groups to empower patients to advocate for themselves and navigate their treatment journey effectively. They conclude by discussing how to accept limitations while finding joy and adapting to new activities.

Episode at a glance:

Building Support Networks: Cheryl and Dr. Kimberly discuss the significance of building support networks, including health professionals, support groups, and reliable online resources to empower patients to advocate for themselves and navigate their treatment journey effectively.
Pain Perception: They explore the complexities of interpreting pain signals, and discuss strategies for managing pain perception through education and awareness.
Practical tips for Exercise for rheumatic disease: They share exercise tips, including to start slow, give yourself time to adjust, consider the pillars of physical activity, and try to be consistent. Some types of exercise to consider are aquatic exercise, hand exercise, or individually prescribed exercise from a physical therapist who understands your specific needs.
Which lifestyle interventions have the most scientific evidence: They discuss the 2022 ACR Integrative Guidelines for RA and how lifestyle interventions such as physical activity, nutrition, sleep, and stress management can help reduce arthritis pain and fatigue.
Acceptance and Adaptation: They address the importance of accepting limitations while finding joy and fulfillment in adapting to new activities and experiences, encouraging patients to focus on what is still possible despite challenges.
Individual needs: They highlight the need for patients to understand their own bodies' rhythms and balancing interventions based on their unique needs.

Medical disclaimer:

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Go to the episode page on the Arthritis Life Website.

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From Dog Training to Occupational Therapy: Lauren’s Ankylosing Spondylitis Journey

info@myarthritislife.net (Cheryl Crow) — Wed, 7 Feb 2024 23:34:58 +0000

In episode 116 of the Arthritis Life Podcast, Lauren Huffman shares her journey with Ankylosing Spondylitis, and how her passion for occupational therapy and dogs has brought her meaning even through challenges.

She and Cheryl give insight into the “behind the scenes” of Arthritis Life, and what resources are available. They discuss the importance of support in navigating rheumatic disease, and how the comprehensive approach of Rheum to THRIVE fills gaps in the healthcare system.

Episode at a glance:

Diagnosis Story: Lauren recounts her journey with ankylosing spondylitis, and how the diagnosis was both a relief and overwhelming. She and Cheryl discuss tools and strategies for managing symptoms, including medication management and communication with healthcare providers.
Occupational Therapy: Lauren, OT student and Cheryl, OT talk about what occupational therapy is, and how it’s holistic approach relates to management of rheumatic disease
Arthritis Life: Lauren and Cheryl discuss the “behind the scenes” of Arthritis Life and Rheum to THRIVE,
Dogs: Lauren reflects on her background in dog training, and how this passion has brought her joy despite challenges. She shares her experience with dog sports and raising service dogs in training, and how this has given her insight into adapting to make life with a furry friend possible and meaningful.
Mental Health and Identity: Sometimes the unpredictability and dynamic nature of chronic illness can rob your enthusiasm, but it’s possible to thrive through acceptance, adaptations, and management strategies. Lauren shares words of wisdom to show up for yourself on good days and bad days, and to take care of yourself in a way that helps you to be resilient.
Advice for Newly Diagnosed Patients: Lauren shares her perspective on Rheum to THRIVE, expressing the value of the comprehensive approach, connection to resources, and support from people who “get it”.

Medical disclaimer:

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Go to the show page on the Arthritis Life Website.

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From Confused to Confident with Psoriatic Arthritis: Chef Kate’s Story (Re-Release)

info@myarthritislife.net (Cheryl Crow) — Fri, 2 Feb 2024 18:39:53 +0000

In this episode, Kate shares her journey getting diagnosed with psoriatic arthritis while working as a chef in London. She opens up about her post-diagnosis emotional roller coaster and shares how joining Cheryl’s Rheum to THRIVE online support and education program helped her feel more confident, empowered and supported.

She also details other programs that helped her including a mindfulness course and CBT therapy. The episode ends with Kate sharing what it means to her to live a “good life” with rheumatic disease.

This conversation was first recorded and released as episode 79 in 2022.

Episode at a glance:

Kate’s psoriatic arthritis Diagnosis journey: being unable to hold a fork; MRI of her hands showed erosions and inflammatory arthritis
Emotional Aftermath of Kate’s diagnosis
Finding community & support: after feeling isolated and not being able to find good answers on her own, Kate joined Rheum to THRIVE and felt more comforted, empowered and supported
Two other things that helped kate: Mindfulness course and CBT therapy
How Kate learned to advocate for her needs with her rheumatologists
Kate’s favorite life hacks for being a chef with arthritis, including a discussion about what dietary interventions have helped her

Medical disclaimer:

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Go to the episode page on the Arthritis Life website.

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Living a Creative Life with Rheumatoid Arthritis: Julia’s Story of Dancing, Acting, Writing and More

info@myarthritislife.net (Cheryl Crow) — Wed, 24 Jan 2024 22:49:47 +0000

Episode at a glance:

For full episode show notes go to the episode page here.

Diagnosis story: Julia went from having a very active lifestyle, to becoming waking up with pain, fatigue, fever, and other symptoms. After initially thinking her symptoms were from a virus or pushing herself too hard in dance, she received a diagnosis of rheumatoid arthritis.
Creative Pursuits: Julia expresses joy in dancing, theater, and writing - She shares coping strategies such as planning ahead, giving herself permission to rest and take breaks, social support, and finding positivity through her passions. In addition to her published writing, she is currently working on a novel.
Resilience and Adaptability: The conversation delves into Julia's experiences as an actress, emphasizing the resilience and the ability to adapt to challenges in artistic pursuits.
Self-Awareness: Julia encourages listeners to take some time to know themselves and advocate for their feelings. She shares “don’t be afraid to say no”, and honor what you’re feeling each day.
Living in the Moment: Thriving with rheumatic disease includes being mindful of the present moment, honoring oneself, and finding joy despite the challenges.
Advice to newly diagnosed patients: Be patient with yourself. Understand how your condition works in your body, and be kind to yourself.

Medical disclaimer:

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Are We Out of the Woods Yet? Taylor Swift Songs that Capture the Chronic Illness Experience

info@myarthritislife.net (Cheryl Crow) — Sat, 13 Jan 2024 19:28:53 +0000

In this episode, Cheryl discusses the major themes in Taylor Swift’s music that relate to the chronic illness experience, from the “Haunting” experience of a medication not working anymore to my own “Anti Heroic” immune system to the constant question of “Are We Out of the Woods yet?” when in a flare up.

After weaving in and out her own experience with rheumatoid arthritis and anxiety with listener contributions, Cheryl concludes by exploring the the “State of Grace” we experience when we connect with the chronic illness community. Throughout, she shares how she’s learned to accept what’s out of her control and the empowerment of acknowledging that while my journey might have been rocky, “Long Story Short: I Survived.”

Medical disclaimer:

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Go to the episode page on the Arthritis Life Website!

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From Medical Gaslighting to a Sjogren’s Diagnosis: Dr. Rebecca Hosey’s Story

info@myarthritislife.net (Cheryl Crow) — Fri, 5 Jan 2024 15:51:36 +0000

Cheryl and Dr. Hosey delve into the importance of accepting the unpredictability of life with chronic illness and redefining what constitutes a "normal" life. This includes a discussion about resilience, mindfulness, and the potential for personal growth in the face of chronic health struggles.

Dr. Hosey's shares how she turned her pain into purpose, referencing her upcoming book, 'Girl on a Gurney: Trading my White Coat for a Hospital Gown’. She also provides tangible solutions for medical gaslighting, including medical student education in this phenomenon.

** Medical disclaimer:

** Episode Sponsor
Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

*For full episode show notes, go to the show page on the Arthritis Life website at: https://arthritis.theenthusiasticlife.com/2024/01/05/from-medical-gaslighting-to-a-sjogrens-diagnosis-dr-rebecca-hoseys-story/

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Five Things I wish I had Known When I was Diagnosed with Rheumatoid Arthritis: Update & Re-Release

info@myarthritislife.net (Cheryl Crow) — Fri, 15 Dec 2023 21:09:23 +0000

After discovering that episode 14 is the most downloaded of all my Arthritis Life Podcast episodes, I decided to release it with some additional insights from my perspective now. I also provide some updates after facilitating support groups for over 250 people in the last three years.

This episode includes a deep dive into how rheumatoid arthritis affects more than just joints – it affects people’s whole bodies, and whole lives. I reflect on the five things I wish I had known when I was first diagnosed, way back in 2003. I hope that these reflections help you feel less alone and more grounded as you try to manage the best life possible with inflammatory arthritis!

Episode at a glance:

#1 – Rheumatoid Arthritis affects more than just joints.
#2 – RA affects your social life in difficult ways (such as misconceptions) and positive ways (such as connections with a chronic illness community)
Tips for using websites and social in productive ways
#3 – Gray areas are the norm for autoimmune disease
#4 – Living with chronic illness will affect your mental health.
Cheryl’s experience with allowing herself to grieve her health
Medical gaslighting.
#5 – Managing RA is a job but you can learn how to do it!

Medical disclaimer:

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For full episode details including a transcript:

Go to the episode page on the Arthritis Life website.

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What’s it Like to be on Methotrexate for Autoimmune Arthritis? Panel Discussion #3

info@myarthritislife.net (Cheryl Crow) — Sat, 9 Dec 2023 17:07:23 +0000

This is a follow up to episode 45: “What’s it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?” Paulina, Jenny, Ali, and Ananthi share what’s changed and what has stayed the same with their medications, including whether they’re still on methotrexate. They also reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences.

Medical disclaimer:

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For full episode details including a transcript and video:

Go to the episode page on the Arthritis Life website.

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What is Remission for Rheumatoid Arthritis? With Dr. Isabelle Amigues

info@myarthritislife.net (Cheryl Crow) — Thu, 30 Nov 2023 19:42:19 +0000

Cheryl and Dr. Amigues touch upon the significance of accurately diagnosing RA and the potential for misdiagnosis, especially as this influences the ability to receive appropriate care. They give valuable insight into the journey of living with RA, and bring a positive perspective that thriving can be possible through effective medical interventions and lifestyle modifications.

For full episode details including a transcript and video, go to the episode page on the Arthritis Life Website.

Episode at a glance:

Being a rheumatologist: Dr. Amigues finds joy in her medical practice, especially in encouraging patients to live life to the fullest despite challenges. She emphasizes understanding the patient's perspective and asking thorough questions.
Importance of Accurate Diagnosis: The complexity of rheumatological conditions is acknowledged, with Dr. Amigues mentioning the importance of differentiating between various disorders for accurate diagnosis, while considering factors like comorbidities to create effective treatment plans.
Individualized Patient Care: Dr. Amigues emphasizes the importance for patients to find a rheumatologist they trust, fostering personalized, comprehensive care. Advocating for accurate information and addressing medication concerns are also important while navigating healthcare for rheumatic conditions.
Rheumatoid Arthritis (RA) Remission: Dr. Amigues shares the possibility of medicated remission in rheumatoid arthritis, highlighting advancements in treatment options and balancing these with lifestyle adjustments.
Management through lifestyle adaptations: The integration of lifestyle changes alongside medical treatments for managing RA is discussed, with a focus on using exercise and movement as beneficial strategies.
Mental Health and Self-Worth: The conversation explores psychological aspects of living with chronic diseases, addressing the concept of accepting and coping while acknowledging that life may present ongoing challenges that impact adaptability.
Language Matters: Being mindful of the language used with chronic illness makes a difference. For example, patients don't fail medications, rather, certain medications may not achieve the desired result. Terms like "difficult to treat" should not be applied to the patient but rather to the disease itself. The importance of using sensitive language when discussing rheumatoid arthritis and similar conditions is also expressed.

Medical disclaimer:

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For full episode details including a transcript and video:

For full episode details including a transcript, go to the episode page on the Arthritis Life Website.

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Episode 108 - Myalgic Encephalomyelitis / Chronic Fatigue Syndrome 101, with Emily Taylor from Solve ME

info@myarthritislife.net (Cheryl Crow) — Thu, 16 Nov 2023 20:07:41 +0000

Emily explains what post-exertional malaise is, and highlights the challenges associated with diagnosing and managing ME/CFS. Emily emphasizes the need for personalized care and the critical role of patients in advocating for their own health. This conversation underscores the significance of creating strong support networks for people living with ME/CFS, as well as the broader chronic illness community. They also highlight the value of sharing personal stories to raise awareness and bring about policy changes.

Episode at a glance:

Advocacy and awareness: Cheryl and Emily discuss the power of patient stories in driving advocacy efforts, and the importance of raising awareness of the complexities of living with chronic illness.
Symptom management: Post-exertional malaise, fatigue, pain, and cognitive issues often require a dynamic approach to management. This conversation delves into the importance of tailoring treatment to the specific condition/individual needs, and strategies such as pacing activity.
Coping strategies and mental health: Having self-compassion is a key part of coping with chronic illness. Additionally, emotional support aids well-being and therapy can be a useful resource.
Importance of having a support network: Cheryl and Emily emphasize the value of connecting with others who have similar conditions to create a sense of community, as well as accepting support from friends, family, and healthcare professionals.
Patient/healthcare provider relationship: Emily shares the challenges of obtaining accurate diagnoses and appropriate medical care for chronic illnesses, especially for lesser-known conditions like ME/CFS. Building collaborative, patient-centered relationships with healthcare providers who are willing to listen, learn, and explore treatment options can make a big difference in managing complex chronic illnesses.

Medical disclaimer:

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Speaker Bios:

Emily Taylor

Vice President of Advocacy and Engagement at Solve ME, Emily brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years’ experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation. Prior to joining the Solve M.E., Emily served as the director of policy and advocacy for an award-winning autism organization. There she spearheaded major overhauls in disability, early intervention, and education policies.

She is also a veteran of several successful electoral campaigns, where she trained others in effective social media and online organization. She received a B.A. with honors in politics and international relations from Scripps College in Claremont and earned her M.A. in American politics from Claremont Graduate University. Emily draws inspiration from her mother who has battled ME/CFS as well as chronic autoimmune and thyroid conditions since 1999.

Cheryl Crow

Cheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

For full episode details including a detailed transcript and video:

Coming soon on the Arthritis Life Website.

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The Benefits and Challenges of Publicly Sharing Your Chronic Illness Story: Insights from Brianna | Ep 107

info@myarthritislife.net (Cheryl Crow) — Thu, 26 Oct 2023 18:40:30 +0000

Cheryl and Brianna discuss the challenges and the benefits of sharing your chronic illness story publicly on social media, including how they deal with both positive and negative feedback from a growing audience. They also discuss the positive impact of finding support and inspiration online.

Brianna shares her involvement with the Arthritis Foundation and the Lupus Foundation, highlighting the importance of giving back and helping others in the community.

The role of support groups, camps, and patient advocacy organizations in providing a sense of community and connection for individuals living with chronic diseases is highlighted. Cheryl and Brianna also discuss the value of adapting and accepting one's condition to live a fulfilling life. Finally, they emphasize the importance of acceptance and adaptation in thriving with rheumatic diseases.

Medical disclaimer:

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Go to the episode page on the Arthritis Life website for full details!

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Art, Advocacy, Representation and Acceptance: Tyra Grove's Rheumatoid Arthritis Story

info@myarthritislife.net (Cheryl Crow) — Fri, 13 Oct 2023 15:59:36 +0000

Summary:

Cheryl and Tyra delve into Tyra's unique journey as a Black woman living with rheumatoid arthritis (RA) and her inspiring efforts to create a documentary about her experiences. Tyra, an actress and filmmaker, shared how her struggle with RA led her to embark on the documentary project. She discussed the challenges of living with chronic pain, the lack of representation for people of color with RA in media, and the need to make creative spaces more accessible.

Tyra emphasizes the importance of re-parenting oneself and adopting a compassionate attitude toward one's body when dealing with chronic illness. She also touches on the significance of finding joy in love, laughter, and supportive communities despite the pain. Cheryl and Tyra discussed the complexities of living with RA, including the physical and emotional challenges, and the importance of representation and empathy in media.

Medical disclaimer:

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For Full Episode Show Notes:

Go to the episode page on the Arthritis Life Website for detailed show notes including a full transcript and video of this conversation.

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Laura Simpson's Story and Autoimmune Community Summit Preview

info@myarthritislife.net (Cheryl Crow) — Fri, 29 Sep 2023 01:36:35 +0000

Summary:

Chery and Laura discuss the importance of connecting with others in the autoimmune community to create a sense of belonging and empowerment.

They delve into the diverse offerings at the Autoimmune Association’s upcoming event: the Autoimmune Community Summit. This includes sessions on managing pain and fatigue, communicating with healthcare teams, and exploring dietary strategies, all aimed at empowering patients with autoimmune conditions.

Throughout their conversation, Cheryl and Laura underscore the pivotal role of community and empowerment in thriving with autoimmune diseases, making it clear that the Autoimmune Association's annual summit is a place where patients can find connection, knowledge, empowerment and support on their autoimmune journey.

Medical disclaimer:

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For full episode details including transcript & Video

Go to the episode page on the Arthritis Life Website.

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What’s the latest in Autoimmune Research and How can You Get Involved?

info@myarthritislife.net (Cheryl Crow) — Fri, 22 Sep 2023 13:57:42 +0000

Episode summary

Rheumatologist Dr. Buckner emphasizes the importance of early diagnosis and reassures patients that, although there might not be a cure yet, advancements in treatments have significantly improved the quality of life for individuals with autoimmune diseases. She highlights the crucial role of patients in research partnerships, where their input and participation are highly valued, leading to better understanding and management of these conditions.

Dr. Mikacenic emphasizes the importance of viewing the patient-researcher relationship as a partnership. She discusses the potential benefits of participating in research studies, not only in drug trials but also through donating samples and providing clinical information.

Both doctors express optimism about the future, believing that a cure for autoimmune diseases is possible with the rapid growth of knowledge about the immune system and targeted treatments on the horizon. They emphasize the significance of teamwork between patients, caregivers, and researchers, fostering hope and improving the lives of those affected by autoimmune conditions.

Medical disclaimer:

This episode is brought to you by:

For full details including a video and transcript:

See the episode page on the Arthritis Life Website.

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What’s it Like to Run a Thriving Business with Chronic Illness? Nikita Williams’ Story

info@myarthritislife.net (Cheryl Crow) — Mon, 18 Sep 2023 13:56:18 +0000

Summary:

Nikita shares her personal journey of acceptance, self-compassion, and finding her center while navigating multiple conditions, including endometriosis, fibromyalgia, and Hashimoto’s. Their conversation delves into the power of mindset in managing chronic pain, the significance of self-love, and the need to let go of self-blame.

Cheryl and Nikita highlight the importance of community, finding joy in everyday moments, and the role of pets in providing companionship and comfort. Nikita's journey is characterized by embracing her authentic self and recognizing that, while challenges persist, she has the tools to thrive despite them. Her favorite mantra, "Do what you can when you can," encapsulates the empowerment of choices and resources.

Nikita invites listeners to connect with her on Thrive With Nikita and explore her podcast, Crafted to Thrive, which focuses on the experiences of entrepreneurs with chronic illnesses. For a supportive community and to hone skills for living well despite chronic illness, Cheryl also welcomes listeners to her Rheum to THRIVE program.

Medical disclaimer:

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Show Page - for Full Transcript, Show Notes & Video

Go to the episode page on the Arthritis Life Website for full details and hyperlinks.

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Episode 102 - What’s it Like to Live and Work with Axial Spondyloarthritis? Stella Levy’s Story

info@myarthritislife.net (Cheryl Crow) — Fri, 1 Sep 2023 16:04:56 +0000

Episode at a glance:

Navigating Diagnosis and Treatment: Stella shares her journey of being diagnosed with axial spondyloarthritis at a young age and the challenges of finding effective treatments. Cheryl emphasizes the importance of advocating for oneself and seeking alternatives if a treatment is not the right fit.
Using Mobility Aids and Devices: Stella and Cheryl discuss the use of mobility aids to help manage the impact that symptoms have on daily life. Stella highlights how using a cane helped her receive better care and awareness, while Cheryl mentions the benefit of finding tools that reduce the impact on joints and make tasks easier.
Reclaiming Identity and Self-Expression: Personalizing mobility aids and turning them into accessories can help them feel more comfortable and reduce the stigma associated with them.
Internalized Ableism: Their conversation brings up the topic of internalized ableism and emphasizes the importance of challenging these perceptions.
Self-Advocacy and Communication: Stella and Cheryl discuss the necessity for advocacy when interacting with healthcare professionals. They encourage being thorough about symptoms, side effects, and concerns. Additionally, they recommend taking notes, bringing a friend or support person, and having a list of questions ready during appointments.
Knowing Your Rights and Accommodations: Stella talks about obtaining a letter from her doctor to protect her rights in the workplace. Knowing legal protections for people with disabilities can be essential in navigating work environments and seeking proper accommodations.
Finding joy despite limitations: Despite the challenges of chronic illness, Stella and Cheryl emphasize the importance of seeking joy, pursuing passions, and participating in activities that bring happiness, including using adaptations and coping strategies when needed.
Community and Support: Stella and Cheryl discuss the value of being involved in a supportive community, such as Rheum to THRIVE where individuals with chronic illnesses can share experiences, insights, and mutual understanding.

Medical disclaimer:

Episode Sponsors

For full episode details including a transcript and video:

See the episode page on the Arthritis Life website.

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Climbing the Mountain of Chronic Pain: Dr Furlan on Pain

info@myarthritislife.net (Cheryl Crow) — Fri, 25 Aug 2023 16:30:45 +0000

Episode at a glance:

Relation to autoimmune arthritis: Dr. Furlan is a physician at a pain clinic, a scientist at the rehab institute, and assistant faculty at the University of Toronto. She is a physiatrist who specializes in pain.
Understanding Pain: Dr. Furlan explains how pain science is continually advancing and more information about how the brain processes pain is being discovered. There are different types of pain, and multiple systems in the body involved with the sensation/perception of pain.
Your pain is valid: Some people might not see your pain, and you may be stigmatized, but what you say is pain, IS pain. If other people say you’re not in pain, it’s because they don’t understand the pain system.
Language around pain: The words we use about pain can make a difference too. Cheryl and Dr. Furlan discusses different ways of approaching words like “conquer” or “defeat” in the context of living with a painful autoimmune condition.
8 steps for living better with pain: Dr Furlan explains strategies for exercise, sleep and more. For example, she recommends breaking up exercise into smaller “snacks” or movement breaks. She also shares the importance of quality sleep is important too, since it gives you energy for other lifestyle factors. Investigate if you have a treatable sleep condition (like sleep apnea), and then address your sleep hygiene/routines - including making sure you’re not sleeping too little or too much. Lifestyle factors are often interconnected, and taking care of your mental health and nutrition can also support sleep and exercise.
Dr. Furlan’s best advice for newly diagnosed: Doing it alone is HARD. Find support, someone knowledgeable who’s climbed their mountain or helped others do it, who’ve traveled this road before - they can be your guide.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, an online course and group support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

Full Episode Details plus Audio Transcription:

Please go to the episode page on the Arthritis Life website for all the details!

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Cheryl's Diagnosis Story Twenty Years Later: Featuring Cheryl's Parents

info@myarthritislife.net (Cheryl Crow) — Mon, 7 Aug 2023 18:02:52 +0000

Episode Summary:

🛑Trigger warning: discussion of eating disorders (I did not have one but was accused of lying about causing my weight loss and hiding an ED) 🛑

In this episode, my parents and I share our memories of my diagnosis story, which covers roughly 2001-2004.This includes a discussion about the profound confusion we all experienced when I went from a healthy, robust student athlete to having a “mystery illness” that doctors keep insinuating is “just anxiety” (or an eating disorder). We also share how we lost faith and trust in some doctors after experiencing medical gaslighting, yet we also found hope in the competency and empathetic care of other doctors (particularly in rheumatology).

We share our mixed reactions to the diagnosis of rheumatoid arthritis, and my parents open up about what it’s like to have a child get sick who’s a young adult - not a kid anymore but not a fully independent adult either.

My parents also share their advice to other parents of children or young adults who are sick but not yet diagnosed, as well as their best advice for newly diagnosed people with rheumatic diseases. This is a must listen!

Episode at a glance:

Introduction to my parents and discussion about my early life (healthy, active lifestyle, no drugs or risky behaviors).
Cheryl’s Early diagnosis story (2001-3): Going down the gastroenterology path. We initially addressed systemic symptoms (stomach issues, eye issues and fatigue). The gastroenterologist did many procedures (including an endoscopy, barium swallow and pH manometry) then said nothing was wrong other than “the relationship between mom and daughter” (insinuating we were too close or perhaps both “too anxious”). He then did a gastric emptying scan and diagnosed me with gastroparesis (slow motility - a form of dysautonomia) but still said nothing else was wrong.
Medical Gaslighting: My parents dilemma of whether to believe me or the gastroenterologist and others who accused me of having “nothing wrong” and just being a hypochondriac: how they chose to believe me despite the medical gaslighting from docs; how it was confusing that i could just get sick out of seemingly nowhere, it just didn’t make sense. My dad knew I didn’t have an eating disorder.
2003: Hiring a concierge doctor who initially thought it was just anxiety, but eventually in summer 2003 once my joints were hurting more she ran more bloodwork and preliminarily diagnosed me with RA.
Immediately after diagnosis - memories of the first trip to the rheumatologist and starting meds: relief, confusion, a whiplash from feeling not believed to feeling believed and that this is very serious; discussions about whether to start medications or not; my mom opened up about realizing she could advocate for me but wasn’t the expert in the medications;
Cheryl returns to New York for final year of undergrad and experiences medicated remission for 6 years - end of “phase 1” of her RA journey, which became more bumpy and complex after that first remission ended.
My parents advice to others: My parents share their best advice to other parents who may be in the position of advocating for their children

Medical disclaimer:

Episode Sponsors

Full episode details including video and transcript

Go to the Arthritis Life Website for full episode details.

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Finding a Realistic Sense of Hope While Juggling Multiple Chronic Illnesses: Katie’s Story

info@myarthritislife.net (Cheryl Crow) — Mon, 17 Jul 2023 16:53:16 +0000

You are not alone. In this episode, host Cheryl Crow and Rheum to THRIVE Graduate Katie Searfross discuss how to find a realistic sense of hope when coping with multiple fluctuating, complex chronic illnesses that are sometimes out of our control.

Katie shares how she copes and finds ways to hold on to moments of joy even when her symptoms of Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome), Migraine and Rheumatoid Arthritis remain. Katie and Cheryl share how they’ve learned to be gentle with themselves and patient in those tough moments when you do “everything right” and your symptoms remain. They also discuss the complexity of moments where you have to decide whether to push past your pain and when to slow down and listen to your body.

Katie and Cheryl also discuss the value of group support and a sense of community, which Katie found in Rheum to THRIVE. Katie also shares lessons she learned as a children’s pastor specializing in grief, which can apply to people with chronic illness as well.

Episode at a glance:

Diagnosis story: Prior to her rheumatoid arthritis (RA) diagnosis, Katie knew she had other diagnoses including Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome) and Migraine. As a result, it was difficult for her to recognize “normal” symptoms for RSD compared to out of the ordinary symptoms which pointed to a new diagnosis of rheumatoid arthritis.
Pain and dissociating: Katie shares how she found herself dissociating from pain / distracting herself from pain, and needing to learn to reconnect with her body.
Katie’s coping toolbox: At first, adjusting to RA diagnosis felt like losing everything. It’s frustrating to have days when you do everything right and still have pain. Katie shares how in Rheum to THRIVE, being provided with evidence-based tools to manage pain and fatigue while having acknowledgement of the reality that sometimes your symptoms will remain despite doing everything right was empowering. It’s a reminder that we can still focus on ways to find joy and thrive. Katie found freedom in knowing her diagnosis is not her fault, and learned to be gentle with herself.
Social support: Katie shares how important it was for her to find a sense of authenticity, understanding, valid information and connection and how she found that in Rheum to THRIVE. Having expert guidance and an ability to ask questions helps to make sense of diagnosis, experiences, and lifestyle considerations.
Lessons learned from Katie’s work in grief: Katie shares lessons she has learned in her work as children’s pastor with adults and children who are grieving; many of these lessons can also help people with chronic illness, including learning to be gentle with yourself.
Katie’s best advice for newly diagnosed: Find a safe community - don’t try to do this as an island, because it’s too much for one person to hold all on their own. All suffering is valid, it’s never helpful to say it could be worse.
What it means to Katie to thrive with rheumatic disease: Using the “and” - this is hard and I want to laugh and make memories. It is embracing that and not putting life on hold. I remind myself that I’m doing my best.

Medical disclaimer:

Episode Sponsors

Episode details & Transcript:

Go to to the episode page on the Arthritis Life website for full episode details including a transcript and video!

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How to Find Your “New Normal” with Rheumatoid Arthritis: Jennifer Weaver’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 22 Jun 2023 18:43:43 +0000

Jenni shares how her symptoms were initially dismissed before she got diagnosed with rheumatoid arthritis. She then got her diagnosis and experienced a rare medication side effect: medically induced pustular psoriasis. Through it all, she also balanced being a mom, wife and friend. In this episode Jenni shares how she learned the importance of social-support, self-advocacy, humor and an unashamed embracing of her “new normal.”

Episode at a glance:

Diagnosis and treatment Saga: After experiencing knee pain, fatigue, and fevers, Jenni is first diagnosed with an “infection in her knee” and then told she needs to “just lose weight; after advocating for herself Jenni gets a second opinion and a preliminary RA diagnosis, then has many complications with treatments including medically induced pustular psoriasis.
Learning Self-Advocacy: Jenni talks about the importance of finding a doctor who is the right fit for you, listens to your story, and explains their treatment clearly - while avoiding medical gaslighting and weight blame
The importance of social support: Jenni shares how she lost some friendships, but also found amazing people to keep her going. Jenni started “My Spoonie Sisters” to help others feel less alone.
Jenni’s Coping Tools: She works to lean hard into the mindset of embracing her reality and not feeling shame about her health.
Finding a “New Normal:” Be honest with the people in your life - including finding ways to talk about it to your children if you have any. Don’t be afraid to ask for help and be specific! Be open to trying new things and sharing/connecting with others.
Best Advice for Newly Diagnosed Patients: When things feel out of control - you matter, you’re enough, your life matters; use what you’re going through to help others.
Favorite Mantra: Don’t forget your spoon - save one for yourself!
Thriving with Rheumatic Disease: Thriving with rheumatic disease means not giving up! Have hope that you will still live a wonderful life, even if it’s not exactly how you may have once envisioned it.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

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How to Track Symptoms Without Getting Stressed & Overwhelmed, with Dr. Millie

info@myarthritislife.net (Cheryl Crow) — Thu, 8 Jun 2023 16:17:43 +0000

Episode at a glance:

What is a naturopathic doctor? Naturopathic doctors use a holistic approach to patient care. They often include nutrition, mind-body medicine, exercise, and natural approaches to their treatment. Naturopathic doctors must take professional board exams in order to be licensed to practice.
Mymee: Mymee aims for personalized care for people with autoimmune rheumatic disease and symptoms resulting from long-COVID, aiming to track variables that may make symptoms better or worse.
Symptom Tracking 101: With Mymee, tracking pain focuses on quality vs quantity - so it’s not just the average 1-10 pain scale. The importance of context and ability to participate in activities is taken into consideration.
Coping with unpredictability: Part of being human is dealing with the unknown. Control can also be a double-edged sword: it can be empowering, but also overwhelming if obsessed over and freeing to let go over.
Tips for exercise & fatigue: Overexertion can be trigger, so pace your movement! Incorporating snacks with your exercise may help with fatigue, and calisthenic exercise can be beneficial for strength training with the bonus of having minimal equipment requirements.
Words of wisdom: Some things aren’t modifiable / controllable, but be open to possibilities for the things that can be controlled. Practice self-compassion and take care of yourself, first! You don’t have to know it all.

Medical disclaimer:

Episode Sponsors:

For Full Episode Show Notes + Transcript:

Go to the Arthritis Life Website at: https://arthritis.theenthusiasticlife.com/

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How does RA Affect Identity? Reflections on Gender, Sexual Orientation, Mental Health and More with Psychotherapist Timothy Weymann

info@myarthritislife.net (Cheryl Crow) — Fri, 26 May 2023 01:21:42 +0000

In this episode, host Cheryl Crow and psychotherapist Timothy Weymann delve deep into the existential, philosophical questions that chronic illness poses. Is there hope without healing? Is it possible to “make peace with loss and change?” How on earth can you “access a sense of peace in the midst of ambiguity,” particularly when that ambiguity has to do with your own health and wellbeing?

Timothy reflects on gender, sexual orientation, disability, acceptance and more, sharing how he used “minority survival skills” he learned as a gay man to help him navigate his newfound identity as a person with rheumatoid arthritis. He and Cheryl also discuss how gratitude, forgiveness, self-acceptance, compassion, and social connection help them and others face health difficulties with meaning and purpose.

Episode at a glance:

Diagnosis story: Timothy advocated for himself as his symptoms worsened despite experiencing medical gaslighting. Eventually he was tested for and diagnosed with Mixed Connective Tissue Disorder and Rheumatoid Arthritis - which came with feeling crushed and wondering: “Is this going to be my new life?”.
Impact of gender and chronic illness: Men are a minority in the rheumatoid arthritis community, and Timothy shared how his gender has affected his experiences of healthcare and belonging in the chronic illness community. He reflects on how our culture has often given the message that men should tough things out and not ask for help, which can be challenging for mental health.
Sexual identity: Timothy shares lessons he learned while navigating being a minority as a gay man. Gaining protective skills through this experience helped prepare him for the considerations of sharing disability-related information.
Mental health: Early on in Timothy’s diagnosis he felt like he was in a “crisis phase”, which led to self-blame, shame, and an urge to keep it hidden. Cheryl shares that many people aim to ‘conquer” the diagnosis in an effort to feel like they can control it, but in time inevitably reach limits. Tim reflects on the wisdom of turning away from control and learning ways to “access a sense of peace in the midst of ambiguity”.
Coping Toolbox: Timothy explores existential psychology, which is rooted in existential philosophy and is a non-religious examination of the human condition. The 4 ultimate concerns of this are captivity versus freedom, meaning versus meaninglessness (we get to define what is meaningful to us as individuals), connection versus isolation (we’re independent but also need support), and life versus death / ambiguous loss (experiencing limitations and losses). These 4 ultimate concerns can ground one in building a fulfilling life despite chronic illness.
Best advice for newly diagnosed: Know that it’s ok to not be ok, and it’s ok to let everything unfold. Build a good team, be patient with yourself and others, get connected through support, and utilize collective wisdom.
What it means to Timothy to thrive with rheumatic disease: Reframing life purpose to mean that a rich life includes both difficulties and happy moments.

Medical disclaimer:

Episode Sponsors

For full episode details and a transcript:

Go to the episode page on the Arthritis Life Website.

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What Happens When Your Journey is an Autoimmune Soap Opera? Kelly Conway’s Story

info@myarthritislife.net (Cheryl Crow) — Wed, 10 May 2023 19:23:53 +0000

Kelly shares the long and winding road trialing medications and building her coping toolbox as she navigates an undetermined form of autoimmune arthritis. She shares what it’s like to work as a Speech-Language Pathologist while balancing her health needs, and reflects on the pros and cons of disclosing health information to coworkers.

With advocacy and education in mind, Kelly has also co-founded The International Foundation for Autoimmune and Autoinflammatory Arthritis and is the author of the blog As My Joints Turn: My Autoimmune Soap Opera. Cheryl and Kelly talk about the benefits of spending time with pets, along with the importance of prioritizing mental health, practicing mindfulness, and getting connected with a supportive community.

Episode at a glance:

Diagnosis story: Kelly has learned to cope with a changing diagnosis under the umbrella of “autoimmune arthritis,” along with Grave’s Disease. She has tried a variety of treatments to manage symptoms and help determine the underlying diagnosis.
Balancing Work and Chronic Illness: Kelly works as a Speech-Language Pathologist, and is also the co-founder of The International Foundation for Autoimmune and Autoinflammatory Arthritis and author of the blog As My Joints Turn: My Autoimmune Soap Opera. In the workplace, she navigates disclosing her health to her coworkers and being aware of accommodation options.
A look inside Kelly’s Arthritis Toolbox: Practicing mindfulness, spending time with pets, getting support, and taking care of mental health.
Advice for Newly Diagnosed Patients: You’ll be invited to a lot of arguments but don’t have to engage.

Medical disclaimer:

Episode Sponsors

For full episode details including a transcript and video:

Go to the show page on the Arthritis Life website! www.MyArthritisLife.Net

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What’s in Gittel’s Coping Toolbox? Group Support, Overcoming Ableism & More

info@myarthritislife.net (Cheryl Crow) — Fri, 28 Apr 2023 16:19:27 +0000

Content / trigger warning: mass shooting discussion

Learning to thrive with chronic illness is a marathon, not a sprint. Cheryl and Gittel discuss coping through unlearning toxic positivity, confronting internalized ableism, getting social support and adapting though accommodations.

Gittel shares what’s in her coping toolbox for life with ankylosing spondylitis, from exploring the benefits of medicinal cannabis to getting support in Rheum to THRIVE. Becoming a “life hacker”, learning acceptance, going with the flow, and letting go of control can help you find joy despite pain, one moment at a time!

Episode at a glance:

Journey to diagnosis: After 15 years of chronic pain, Gittel was diagnosed with Ankylosing Spondylitis and Crohn's disease. With diagnosis came a combination of emotions: validation that something was wrong, sad that it wasn’t something acute and fixable, and empowered with information that she could research. She learned to adapt and ask for accommodations without shame.
Gittel’s coping toolbox: Understanding and unlearning toxic positivity, confronting ableism (including internalized ableism), and building health literacy.
Medical Cannabis: Gittel has experienced pain relief, appetite stimulation, and mental health benefits from medical cannabis, which can be injested, topical, or smoked. Her favorite medicinal brand is Level.
Getting support: After trying individual therapy, Gittel found Rheum to THRIVE and felt seen and heard with multiple people who “get it”.
Finding joy despite pain: One moment at a time, my now is not my forever.
Best advice for newly diagnosed patients: Be patient with yourself! This is a marathon, not a sprint. To me, thriving with rheumatic disease means becoming a life hacker, learning acceptance, going with the flow and letting go of control

Medical disclaimer:

Episode Sponsors

For full episode details

To see full details including a transcript and video, go to the episode page on the Arthritis Life Website here.

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How to Build Resilience while Living with Chronic Pain: Tips from a Psychologist & Pain Researcher, with Dr. Afton Hassett

info@myarthritislife.net (Cheryl Crow) — Tue, 18 Apr 2023 20:54:16 +0000

Summary:

Psychologist Dr. Afton Hassett and Cheryl Crow, OT explore the neuroscience behind chronic pain and how its interconnection with fatigue, sleep, stress, and emotions may affect your experience of pain over time.

Dr. Hassett is an Associate Professor and Director of Pain and Opioid Research in the Department of Anesthesiology at the University of Michigan. In this episode, she explains how pain is not "all in your head," however it is in your BRAIN! Because the areas of your brain that process pain overlap with the areas that process thoughts and emotions, there is much you can do to influence pain signals. Further, there is evidence that building your resilience through mindfulness, social support, optimism, and healthy lifestyle habits can positively alter how the brain perceives pain.

Dr. Hassett also shares lessons from her soon-to-be-released book, The Chronic Pain Reset, and Cheryl shares how she developed her Rheum to THRIVE course and program to help address the full picture of chronic pain patients’ needs.

Episode at a glance:

Professional background: Dr. Hassett studied clinical psychology in San Diego, where she received her doctorate. She now works as an Associate Professor and principal investigator at University of Michigan in the renowned Chronic Pain and Fatigue Research Center, one of the largest Chronic Pain Research centers in the world.

Pain Science 101: Pain is not “all in your head”... but the brain processes pain using many of the same areas and structures of your brain that process emotions and thoughts. Thus, our thoughts, emotions, and life context can greatly affect how pain is processed and experienced.

Tools for Fatigue: Pain, poor sleep, poor mood, and lack of energy often group together and affect each other - if you can improve one it can help improve the others. Saving “spoons” for relationships and supportive connections and spending time outside getting fresh air and sunshine can also help improve symptoms of fatigue.

Tips for building resilience and optimism: Cope with uncertainty by practicing mindfulness, make time to do the things you love and value even with some lingering pain, and keep a gratitude journal or other practices to help you stay centered and increase positive emotions.

Advice to newly-diagnosed patients: Seek a mentor who can help you navigate, find ways to do activities that feel purposeful to you, and know that you’ve got this!

Chronic Pain Reset book: Set to release September 5, 2023, Dr. Hassett wrote this book for people with chronic pain and their care providers. She begins by explaining the neuroscience of chronic pain the connection between pain and stress, social relationships, positive and negative emotions, gratitude, joy, and physical health. The second part of the book leads you through a 30-day journey to try evidence-based activities and practices to find the ones you like best. The last part of the book helps you customize a program filled with activities that make sense to you and address multiple domains of wellness.

Medical disclaimer:

Episode Sponsors

Speaker Bios:

Dr. Afton Hassett is a licensed clinical psychologist who is an Associate Professor and Director of Pain and Opioid Research in the Department of Anesthesiology at the University of Michigan. She studies behavioral interventions for people with chronic pain including those that promote resilience. She has published over 100 articles in scientific journals and has over $10M in NIH research funding. She is also a Past President of the Association for Rheumatology Professionals, a division of the ACR.

Cheryl Crow

Episode links:

Links to things mentioned in episode or additional listening
- Chronic Pain and Fatigue Research Center at U Michigan
- Afton’s research - link to all research publications
- Dr Marty Seligman Positive Psychology - UPenn
- Afton’s research w/Dr. Martin Seligman (optimism) on soldiers -
- Chronic Pain Reset book, will be released September 2023
Afton’s social media
- Twitter - @aftonhasset
Cheryl’s Arthritis Life Pages:
Arthritis Life website
Youtube channel
Instagram @arthritis_life_cheryl
TikTok @arthritislife
Arthritis Life Facebook Page
Cheryl on Twitter: @realcc
Arthritis Life Podcast Facebook Group

For Full Episode Show Notes + Transcript

Go to the Arthritis Life website at www.arthritis.theenthusiasticlife.com

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“The Art of Reframing:” Cheryl Koehn on Learning to Love Herself & Life with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Tue, 28 Mar 2023 19:04:02 +0000

Cheryl C. and Cheryl K. share key tools for thriving with arthritis, like finding ways to ask for help, developing health literacy, practicing self-compassion, and getting support. They also discuss the safety of modern medicine and how to balance it with complementary therapies to create an individualized plan for managing rheumatoid arthritis.

Additionally, they delve into the mental health techniques that have helped them cope, including: reframing exercises, and working past bias. Cheryl K. shared how she used her experiences to form Arthritis Consumer Experts, a patient-led and science-based organization with the goal of providing better education to people with arthritis.

Episode at a glance:

Navigating chronic illness when the internet was just starting: Cheryl Koehn had an athletic background, but when symptoms struck she went to the library to do her own research and advocated for herself despite medical gaslighting.
Trialing treatment options: Cheryl K. initially denied Western Medicine before she ended up with 36 active swollen joints within a year and progressively worsening quality of life. Following this, she received gold injections and other conventional DMARDs initially, adding in Methotrexate and later transitioning to newer medications like biologics as they became available.
Coping with peer pressure: People trying to convince her that “natural is better” and to avoid medications, however natural isn’t inherently better at controlling disease and newer medications are backed by research. Cheryl C. and Cheryl K. discuss how a balance of complementary therapies and medication help people safely manage their conditions. Koen practices reframing exercises, works on explicit and implicit bias, and considers “what can I learn from this person today” with an open mind.
Wisdom for newly diagnosed patients: Find ways to ask for help! Develop health literacy as a tool for advocating for yourself and to guide decision making.
What does it mean to thrive with rheumatic disease: Practice self-love and self-compassion, love what you do, and give yourself room to breathe.
Arthritis Consumer Experts (ACE): Cheryl K. used her experiences of running her own consulting firm, volunteering, and being on the board at the Arthritis Society to form this organization. Her goal is to provide better education to people with arthritis, and to not be the only person with arthritis with a say in arthritis organizations.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!

For Full Episode Details Including Transcript:

Go to the Arthritis Life website

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It’s Not Just Dry Eyes: Deep Dive into Systemic Sjogren’s Disease with Dr Kara Wada

info@myarthritislife.net (Cheryl Crow) — Thu, 16 Mar 2023 21:23:36 +0000

Dr. Wada and Cheryl delve into the connection between Sjogren’s and Rheumatoid Arthritis, discover what’s in Dr. Wada’s disease management toolkit, and share insights into living a full, vibrant life with chronic illness.

Dr. Wada and Cheryl also share insights into how mental health can be affected by chronic illness, and reflect on how the “overachiever” lifestyle is not always helpful. They encourage listeners to focus on making decisions that align with their values and target living well with chronic conditions rather than focusing on total symptom elimination. They encourage listeners to find ways to live a balanced lifestyle and develop a support system which can help you thrive throughout the highs and lows of chronic illness life.

Episode at a glance:

Understanding Sjogren’s Syndrome: The immune system attacks moisture producing glands and parts of the nervous system, leading to a variety of symptoms including dry eyes and mouth, difficulty swallowing, fatigue, body aches, irritable bowel, and small fiber neuropathy. Rheumatologists are typically the specialists seen for Sjogren’s, but patients may also get support from neurologists, ophthalmologists, and other specialists.
Perspective as an Allergist-Immunologist: Advocacy, bringing awareness, and education
A look Inside Dr. Wada's Toolkit: Finding the right medications, carrying a water bottle, using eye drops, utilizing stress management skills, and being mindful of lifestyle factors like sleep hygiene, movement, and nourishing your body with proper nutrition.
Chronic illness and mental health: Initially felt like being an “overachiever” by working out often and taking supplements would ease symptoms, but that’s not necessarily helpful.
Words of caution re: supplements & “natural” methods: Dr. Wada and Cheryl discuss the reasons to be cautious about supplements as there isn’t much regulation or transparency with them currently.
Advice for living well despite chronic illness: Take a deep breath, there will be good days and bad days no matter what. Focus on making decisions in alignment with your values.
Want more Sjogren’s support? Check out the Sjogren’s Summit - April 1st-2nd!:

Medical disclaimer:

Episode Sponsors

For full episode details including a full transcript:

Go to the show page on the Arthritis Life website at www.MyArthritisLife.Net.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Hand Therapy Secrets Everyone with Arthritis Should Know, with Certified Hand Therapist & OT Hoang Tran

info@myarthritislife.net (Cheryl Crow) — Fri, 10 Mar 2023 04:06:04 +0000

Episode summary

In this episode, occupational therapists Cheryl Crow & Hoang Tran go in depth on how and why the human hand is so complex, and how people with inflammatory arthritis can take good care of their hands to relieve hand pain and improve function.

This episode includes an in depth exploration of what it’s like to see a hand therapist, why hand therapy helps people with arthritis, what people with rheumatic diseases need to know about hand anatomy, and how to advocate for yourself to get an interdisciplinary team supporting you (in addition to your rheumatologist). They also take a deep dive into how rheumatoid arthritis can transition to a more orthopedic issue long term, and Cheryl & Hoang share their best advice & tips for newly diagnosed patients.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, an online course & support group program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!

Full episode notes + transcript

Go to the show page on the Arthritis Life website, thanks!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Cope when your Diagnosis Changes: Clare's Myofascial Pain Syndrome Story

info@myarthritislife.net (Cheryl Crow) — Tue, 28 Feb 2023 17:35:14 +0000

Clare and Cheryl share tips for how to cope with periods of no diagnosis or changing diagnosis. Clare also provides insights from her unique perspective as someone diagnosed with autism as an adult, soon after her myofascial pain syndrome diagnosis.

Cheryl and Clare discuss the importance of perseverance in seeking help, building a personalized treatment plan, and ways to find joy in the midst of chronic illness while accepting that it’s okay to feel sad or angry too.

The episode concludes with a discussion about how pain, brain fog, anxiety, and burnout are hard, but support is out there and can make a big difference in living well despite the challenges.

Episode at a glance:

Journey to diagnosis of myofascial pain syndrome and autism: getting referred to a variety of specialists to troubleshoot symptoms that mimic other conditions, learning to unmask and cope with pain, brain fog, anxiety, and burnout
Building a personalized treatment toolbox: currently incorporating pharmaceutical medication with integrative treatment. Physical therapy and exercise with gentle movement, yoga, and weight training, Cymbalta for depression and chronic pain
Finding joy: Find a community where you can learn new things and have compassionate and caring support. Don’t forget to find joy in the “little things”, like cozy blankets or a TV show / movie / book to escape to.
Advice for undiagnosed patients: You’re not crazy! The gray area is scary, but it won’t last forever. Keep an open mind, and know it’s okay to feel sad and angry.
Coping with a change in diagnosis: Clare’s tips from her experience having her diagnosis changed: being open to new possibilities, advocating for yourself, and being realistic about what doctors know
Living well despite chronic illness: Getting to a place where you’re friends with your body - not fighting against it but rather acknowledging what your body has survived.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE,

an online course & support group program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!

For full episode Details, Links, Video & Transcription

Go to the Arthritis Life Website: www.MyArthritisLife.Net (episode page coming soon!)

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Burlesque Dancing to Support Groups: How Marisa Thrives with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Thu, 2 Feb 2023 20:17:32 +0000

In this episode, Marisa shares what it was like to be diagnosed with rheumatoid arthritis around her thirtieth birthday after thinking her wrist pain was only carpel tunnel syndrome. She opens up about her mixed emotions after her diagnosis and shares what helps her cope and thrive, including burlesque dancing, group fitness, the Rheum to THRIVE support group program and more. The episode concludes with a discussion about how Cheryl and Marisa learned to be kind to themselves.

Episode at a glance:

Diagnosis journey - thought it was carpel tunnel in both hands, turned out to be RA, diagnosed around her 30th birthday.
Emotional response to diagnosis: mixed feelings, bittersweet - partly relieved to have answers, but frustrated about not being able to do what she used to. Went down google “rabbit holes” and got overwhelmed
What helped her adjust and thrive: joining Rheum to THRIVE for more credible information and support from others going through similar things
The role of fitness: Marisa explains how her work as a group fitness instructor and her fitness habits help her manage her RA symptoms, mood and stress.
The role of burlesque dancing: Marisa joins a local burlesque dancing group and connects with her body in new ways
Learning to be kinder to herself: Marisa shares how through therapy and Rheum to THRIVE she learned to be less judgmental of herself and more compassionate.
Tips for Work with RA - Marisa shares what helps her work full time

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, an empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!

For full episode details, links & transcript:

Go to the episode page (coming soon) at the Arthritis Life website: www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How I Survived “Survival Mode:” Marriage, Faith & Near Death Experiences with Vasculitis Warrior Hayley “Hay” Farris

info@myarthritislife.net (Cheryl Crow) — Tue, 17 Jan 2023 17:36:20 +0000

Trigger warning: This episode includes a discussion of near-death experiences, medical trauma and decisions about quality of life versus prolonging of life. If you are having a mental health crisis or are struggling with suicidal thoughts, in the US you may call “988” for the Suicide and Crisis Lifeline which is staffed 24 hours a day.

In this episode, Hay shares her tumultuous experiences with autoimmune vasculitis. She and Cheryl urge fellow chronic illness warriors to resist trying to fit their experience into a tidy narrative and instead ride the waves of uncertainty. While extremely challenging, Hay notes that “deep calls unto deep”, allowing shared humanity and connections based on what unites us all.

For Full Episode Details Including Transcript:

Go to the episode page on the Arthritis Life Website at: https://arthritis.theenthusiasticlife.com/2023/01/17/how-i-survived-survival-mode-marriage-faith-near-death-experiences-with-autoimmune-vasculitis-warrior-hay/

Episode at a Glance:

Education and work: Hay earned her PharmD (Pharmacy Doctorate) in 2011, but began experiencing chronic illnesses shortly after. She has learned to understand that your value is not based on your productivity.
Relationships: Symptoms like fall risk, limitations on leaving the house, and being in “survival mode” have been trying on her marriage, but her husband never gave up.
Diagnosis saga: living with Behcet’s vasculitis, common variable immune deficiency, Microscopic colitis, and respiratory failure, along with a variety of complications
Treatment journey: Hay explains how she uses total parenteral nutrition (TPN, aka “vein food”) due to her GI tract not absorbing and has had a lot of trial and error with medications over the years, some even working against each other. She eventually found a promising mix of medications that has recently been helping her improve. She has been working with a team of seven specialists who collaborate on her treatment, especially from a palliative care perspective.
Coping and advice: Hay shares the importance of art, faith, clear communication, and having boundaries. She explores how she tries to live life to the fullest within constraints. After having to deal with end of life conservations, she notes that “The way you hold people’s stories has to be infinitely more gentle than you thought”. Having been a writer and interning for a literary agent, she is used to stories being explained in 45-65 minutes but life with chronic illness feels like “you’re on a blindfolded roller coaster you’ve never seen before”. Cheryl and Hay discuss the benefits of resisting the urge to force your experience into a tidy narrative.
Surviving SURVIVAL MODE: Hay shares how some days have been just living breath to breath and opens up how she’s allowed herself to grieve and learned to “riding the waves of uncertainty.” She shares what it’s like to have conversations about quality of life vs prolonging life. She explains the importance of connecting to others and exploring our shared humanity, “because deep calls unto deep” - what is happening, why am i here, what connects us, and understanding you’re not alone. She also shares how religion and faith have served an important purpose in her life.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in March 2023!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Yoga is a Philosophy, Not Just an Exercise: Demystifying Yoga for Arthritis with Dr. Steffany Moonaz

info@myarthritislife.net (Cheryl Crow) — Wed, 4 Jan 2023 04:30:14 +0000

Yoga therapist and researcher Dr. Steffany Moonaz and host Cheryl Crow discuss the many benefits of yoga for people with inflammatory arthritis. They also bust common myths and misconceptions about yoga, including that it’s just an exercise or series of physical poses.

Dr. Moonaz shares her best tips for patients newly diagnosed with arthritis and explains how the philosophy of yoga can help people with arthritis fully embrace the present moment and improve overall wellbeing. Dr. Moonaz is the founder of Yoga for Arthritis, which aims to bring evidence-informed and heart-centered yoga practices to people living with arthritis and chronic pain worldwide.

Episode at a glance:

Yoga meaning and philosophy: The union of mind and body through movement, breath, and mindfulness - not just poses and exercise!
What makes Yoga Therapists different than Yoga Teachers: Yoga therapists have further training in understanding of health conditions to help patients manage chronic illness or imbalances through yoga.
The power of movement for mental health: After experiencing improvements in her own mental health through dance and exercise, Dr. Moonaz realized her purpose of reducing suffering for people through mindful movement. She focuses on arthritis due in part to it being a leading cause of disability.
Research on Yoga for Arthritis: It is considered integrative medicine with improvements for overall quality of life. This is due to relief of pain and stiffness, increase in physical function through balance, strength, and flexibility, and mindfulness for stress reduction
Beginner Tips: Ask your rheumatologist if there are positions you should avoid, search for a Yoga Therapist who has experience with accessible / adaptive yoga through the International Association of Yoga Therapists, private lessons can be beneficial for added safety and personalized / targeted symptom management
Advice for newly diagnosed patients: find “RA Thrivers” and listen to their stories, use social media as a resource for building connections, and join Rheum to THRIVE for education and support!

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in 2023!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full show notes including transcript and video

Go to www.MyArthritisLife.Net to the show page, which should be up soon!

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“It’s a Moving Target:” How to Cope with Rheumatoid Arthritis Ups and Downs, with Emily Jacobs

info@myarthritislife.net (Cheryl Crow) — Sat, 10 Dec 2022 01:40:18 +0000

Emily & Cheryl discuss ways to cope with the ups and downs of chronic illness, especially during times of uncertainty or when it seems the disease is posing “moving targets.” Emily shares what helps her thrive despite obstacles, including: having a supportive community, learning tips & tricks, and using products for accessibility.

Episode at a glance:

Emily’s diagnosis story: second opinions, new/fluctuating symptoms, uncertainty
Emily’s treatment journey: methotrexate, steroids, medical cannabis
Pregnancy and postpartum journey with RA: how RA has impacted functional/lifestyle tasks with parenting
Work life: Emily shares what it was like working as an ER nurse while managing RA
Coping with “hard seasons”/flares: having community, validation, knowing “it’s not in my head,” connecting with other patients in the Rheum to THRIVE group; learning tips / tricks / products; accessibility
What Emily wishes she knew when first diagnosed: autoimmune journey is not linear/is like a moving target; wondering “is this a temporary flare up, or is this long-term”; setting treatment goals - “I want to not be distractingly aware of my RA/health”
Coping: through a supportive community who “gets it”, learning tips and tricks for creating a rheumatoid arthritis “toolbox”, and addressing the mental health impact that isn’t often talked about

Medical disclaimer:

Episode Sponsors

For full episode show notes including a video and transcript:

Go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

“No one Tells You About the Uncertainty:” Dianna’s RA Story

info@myarthritislife.net (Cheryl Crow) — Wed, 23 Nov 2022 19:18:40 +0000

Episode at a Glance:

Dianne’s Diagnosis story and subsequent emotional roller coaster
Dianna’s Treatment Journey: Dianna went from resistant to medicines to trying a biologic and feeling a large improvement in symptoms
The Importance of Support - Dianna shares how the Rheum to THRIVE group support & education program was a “lifeline” and helped her get out of a cycle of self-blame. She highlights the ways she learned how to explain her condition to others and process some of the social effects and pressures (such as not drinking wine)
Anxiety and Uncertainty: Cheryl & Dianna discuss how uncertainty and not being able to be in control triggers their anxiety
What helps you cope? “It’s a gift knowing you can’t solve it;” Dianna shares what else is in her toolbox alongside acceptance: exercise, movement, journaling, social time and more
The role of writing and journaling in Dianna’s life
Rapid fire questions
- Best advice for newly diagnosed patients? Encourage others to join Rheum to THRIVE or a similar program for social support; trust in the process
- Favorite arthritis gadget or tool in your arthritis toolbox: Compression gloves - from Grace & Able
- Do you have a favorite mantra or inspirational saying? - “Si combino tuto” - everything works out;
- What’s bringing you joy right now? The fall weather; essay published - 2 online
- What does it mean to you to live a good life with rheumatic disease / thrive with rheumatoid arthritis: to accept the new me; just relax into it;

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For Full Episode Details + Show Notes

Go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

It’s not Your Fault: How Marion learned to Avoid Self-Blame While Living with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Thu, 3 Nov 2022 22:19:08 +0000

Episode at a glance:

Marion’s Diagnosis Story
Marion’s Treatment Journey: changes in medications over 15 years,
Working while Living with Rheumatoid Arthritis: from struggling in silence to disclosing and getting support
How Marion went from feeling guilty and afraid she’d be seen as “lazy” to realizing her condition wasn’t her fault
Values: How RA led Marion to “crystallize her values” and redefine what success means to her, and to become more assertive
The role of online support communities in Marion’s coping and acceptance
Rapid fire “lightning round” questions

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap,

a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full Episode Show Notes Including Transcript

See the show page on the Arthritis Life Website here.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Finding Acceptance and Community with Chronic Illness, with Nitika Chopra, CEO of Chronicon

info@myarthritislife.net (Cheryl Crow) — Thu, 20 Oct 2022 16:43:36 +0000

Nitika and Cheryl discuss how acceptance is an ongoing journey when living with multiple chronic health conditions, and share insights into how they cope with uncertainty. Nitika shares how and why she founded the incredibly impactful Chronicon conference and online community which inspires and uplifts people living with chronic illness around the globe. Nitika and Cheryl also discuss what brings them joy and how they balance present moment acceptance with hope for the future.

Episode at a glance

Nitika’s emotional journey with psoriasis and psoriatic arthritis in childhood
How acceptance of chronic illness is an ongoing journey: Nitika shares how a new diagnosis last year challenged her, but she eventually concluded that “acceptance and hope aren’t not mutually exclusive.” Cheryl & Nitika discuss how acceptance can sometimes bring up grief or other uncomfortable emotions.
Uncertainty: Cheryl & Nitika explore how they have coped with uncertainty
Listening to your body & nurturing yourself: Nitkka shares how she learned the importance of listening to her body and how she integrates nurturing self care into her daily routines
A discussion about how to accept the need for medications along with utilizing non-medicinal disease management tools
The “a-ha” moment that inspired Nitika to start the event & community Chronicon !
Community: Cheryl & Nitika discuss the importance of supportive and uplifting communities when you live with chronic illness

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For Full Episode Show Notes + Transcript

Go to the episode show notes page at the Arthritis Life website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Cope With Comorbidities: Jan's Story

info@myarthritislife.net (Cheryl Crow) — Mon, 10 Oct 2022 03:19:15 +0000

In this episode, seasoned patient and registered nurse (RN) Jan Hempstead shares her best tips for managing stress and living a fulfilling life with multiple comorbidities. Jan lives with rheumatoid arthritis (RA), Ehlers-Danlos Syndrome Hypermobile type (EDS), hereditary alpha-tryptasemia (HAT), Dysautonomia, and more. This includes discussions about the importance of support (including Cheryl’s Rheum to THRIVE program) and mindfulness, meditation and Stoic Philosophy in Jan’s journey.

Episode at a glance:

Diagnosis story: Jan shares how her rheumatoid arthritis diagnosis was very difficult due to her comorbid conditions: EDS Ehler-s danlos syndrome, dysautonomia, and hereditary alpha-tryptasemia (HAT)
Best tools in Jan’s toolbox for RA and EDS
Biggest challenges with Managing multiple comorbidities
What helps Jan cope with managing multiple conditions
Importance of community and support groups
Rapid fire questions (lightning round)

Medical disclaimer:

Episode Sponsors

Full Episode Details

See full details including a transcript at www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Computer Programming, Medical Retirement and the power of Art: Lessons from Wendy Hawkins

info@myarthritislife.net (Cheryl Crow) — Fri, 30 Sep 2022 14:48:23 +0000

Episode at a Glance:

Wendy’s diagnosis story of juvenile rheumatoid arthritis as a baby
Growing up in the 1970s and 1980s with JRA: Wendy shares her ups and downs, from acceptance in grade school to isolation in high school and young adulthood (when she first met someone with her same condition at age 26)
Treatments: Reflections on how treatments have changed in the current era as compared to the 1980s
Career choices with JRA: Wendy’s shares how she managed a career as a computer programmer at Hewlett Packard after initially hoping to become an artist.
Disability and “medical retirement:” Wendy wants to keep working longer but her job is not conducive to her medical needs; she has a smooth process of going on social security disability but experiences a very tedious and dehumanizing experience while attempting to utilize her long term disability insurance benefits through her company.
Importance of Art and Mandalas in Wendy’s coping: “Art was the one place I could be free.” Wendy takes a healing art class with a focus on mandalas and shares how “it’s about getting quiet with yourself”
Support groups: Wendy gets involved with the Arthritis foundation support groups and then is asked Kim Burda to help admin Co-Admin of the 26,000 person “Rheumatoid Disease (RD) - Laughing, Living, Loving, and Learning” for people with various forms of Rheumatoid Disease. SHe shares the ups and downs of being an admin.
Wendy’s best advice newly diagnosed patients? Find a good rheum who will partner with you and share and answer questions. Don’t be afraid of the meds.

Medical disclaimer:

Episode Sponsor

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

For full episode details including a transcript

Go to www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Confused to Confident with Psoriatic Arthritis: Chef Kate’s Story

info@myarthritislife.net (Cheryl Crow) — Tue, 20 Sep 2022 21:52:23 +0000

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full episode details and transcript

Please go to the show page on www.MyArthritisLife.Net for full episode details including a transcript.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Loving Your Body through Fitness and Sexual Intimacy: Insights from Liv Loo

info@myarthritislife.net (Cheryl Crow) — Fri, 2 Sep 2022 14:40:39 +0000

Content Warning - This episode contains profanity and explicit sexual content

Episode at a glance:

Liv’s diagnosis story for juvenile idiopathic arthritis and uveitis
Highlights and lowlights of growing up with juvenile idiopathic arthritis
Liv’s Fitness and self-advocacy Journey: switching jobs to protect her energy and stress levels and finding her own personal training business MovetoLiv
When to push and when to rest?
Mindfulness and being present even in pain discussion
Busting the biggest myths about arthritis-friendly / flare friendly workouts
Why is intimacy is so important for spoonies - learning to connect with our bodies, trust them, and communicate with partners. Live shares how sexual intimacy, kink, and BDSM found a place in her chronic pain management.
Liv’s best Advice for the Newly diagnosed

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full episode details including transcript:

Go to www.MyArthritisLife.Net for full details and a transcript.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Rheumatoid Arthritis at age 30 versus 40: Cheryl’s Story

info@myarthritislife.net (Cheryl Crow) — Sat, 6 Aug 2022 15:48:17 +0000

Cheryl reflects on a blog post she wrote at age thirty called: “Ten Years with Rheumatoid Arthritis: What’s the Impact?” This includes a deep dive into the physical effects of rheumatoid arthritis, effects on my daily routines, as well as finances, social and emotional life, school, career, hobbies, travel and overall life philosophy.

Cheryl shares how pregnancy and parenting changed her disease progression, and details how she coped with additional health issues and injuries in her thirties along with adjusting to her new role as a mother. For full show notes plus a transcript, go to the episode page on the Arthritis Life Website.

Medical disclaimer:

Episode Sponsors

Full Show Notes, Links & Transcript

For full show notes plus a transcript, go to the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Riding the Rheumatoid Arthritis Rollercoaster: Methotrexate, Medication Changes and More with Ali DiGiacomo

info@myarthritislife.net (Cheryl Crow) — Mon, 25 Jul 2022 04:49:37 +0000

Ali and Cheryl discuss how overwhelming medication changes can be, and Ali describes what it was like to switch doses of methotrexate, switch to a new biologic medication and add prednisone and NDSAIDs in the mix. Ali & Cheryl also discuss what it’s like to have costochondritis and how they cope with unresolved health issues while still trying to live a full, joyful life.

This episode also includes reflections about how to cope with social media jealousy within the chronic illness community, how to set boundaries with friends and loved ones during Covid times, and more. This interview was conducted in February 2022.

Episode at a glance:

Flare up leads to medication changes: Ali shares what it was like to switch biologics, take a course of prednisone and add in NSAID (Non steroidal anti inflammatory medications) and alter her methotrexate dosage
Heartbreak: when Ali discovered she wasn’t in medicated remission, she feels heartbroken
Emergency Room Visit: Ali goes to the emergency room with severe pelvic pain, doesn’t get any clear answers, follows up with both Gynecology and GI doctors
Costochondritis and “hypochondriac” accusations: Cheryl & Ali discuss their experiences with costochondritis and how they were both accused of being hypochondriacs before their accurate diagnosis of costochondritis
Coping: we discuss how we cope with the ups and downs of chronic illness life
Covid and social life: discussion about how to set boundaries socially around covid precautions
Social Media and Jealousy: reflections about how to cope when others seem to be doing better than you
Everyone is different: there’s no badge for managing RA a certain way
Ali’s advice to people just starting out on Methotrexate, or who are hesitant about it

Medical disclaimer:

Episode Sponsors

For full episode details including a transcript, please go to the Arthritis Life Website at www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Love Your Body While Living with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Wed, 13 Jul 2022 02:58:09 +0000

Stefanie was diagnosed with rheumatoid arthritis after the birth of her first child. In this episode, she shares how her weight gain and difficulty performing daily tasks led to a negative body image.

Cheryl and Stefanie discuss ways to overcome ableism and shame, and gain a sense of body positivity or at least a “body neutral” stance. They also discuss the importance of self compassion and challenging societal norms.

For full episode details including a transcript, go to the show page.

Episode at a glance:

Overview: how does chronic illness affect body image?
Stefanie’s personal journey: postpartum diagnosis of RA, coping with weight gain and difficulty performing basic daily activities
What is “normal?” Stefanie and Cheryl discuss how it’s hard to know what’s normal or expected as a first time parent, especially when you receive an autoimmune diagnosis
Overcoming ableism and shame: how Stefanie and Cheryl have learned to grow in confidence and embrace their perfectly imperfect bodies
It’s ok to feel “body neutral:” sometimes being neutral is a middle ground step between body shame and body confidence
Self-Compassion: Cheryl shares why self compassion is so critical for people with chronic illness
Stefanie’s best advice for newly diagnosed people who might be struggling with body image

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For Full Episode links Plus Transcript:

For full episode details including a transcript, go to the show page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

“Camp is Where She Can Be Herself:” The importance of Community with JIA

info@myarthritislife.net (Cheryl Crow) — Wed, 29 Jun 2022 14:53:19 +0000

In this episode, parents Leeza Broome and Courtney Bruce share why arthritis-specific summer camps have been such a lifeline to their families over the years. As volunteers, they helped start the very first Pacific Northwest family camp for kids with arthritis, “KAT-Fish Camp,” which has historically been put on by the Arthritis Foundation.

Cheryl also shares her experiences volunteering at the camp. All three speakers share their favorite camp memories from the last two decades and explore the importance of community and belonging in chronic illness communities.

Episode at a glance:

Diagnosis story: Courtney shares her daughter’s diagnosis story at 18 months, which started with a swollen knee and a misdiagnosis.
Diagnosis story: Leeza shares her son’s diagnosis story, which started with difficulty getting out of the toddler bed and swollen fingers.
Why is it important to have family camps for kids with juvenile idiopathic arthritis? Leeza and Courtney share what they’ve learned in the parent education sessions, from advocacy to emotional tips for coping with injecting a child who’s afraid of needles. Cheryl, Leeza and Courtney explore the emotions that parents, children with JIA and siblings experience at these camps including: relief, shared anger at similar negative experiences people have gone through, envy, hope and more.
Favorite camp memories: all three speakers share their favorite memories, from S’Mores and campfire songs to talent shows.
Where can you sign up to volunteer at a camp or attend one? Links below!

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full Episode Details, Links plus Transcript:

Go to the show page on the Arthritis Life website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Parenting to Work, How to Keep Thriving when Rheumatoid Arthritis Changes your Life

info@myarthritislife.net (Cheryl Crow) — Mon, 20 Jun 2022 22:06:12 +0000

Dr. Codd and Cheryl share specific tips for coping with how an inflammatory arthritis condition (like psoriatic arthritis, rheumatoid arthritis or ankylosing spondylitis) can lead to difficulties adjusting to one’s new role as a parent, in addition to other important roles.

*Celebrating 50,000 downloads of the Arthritis Life Podcast: now through July 15th, enter for a chance to win a Arthritis Friendly Prize Package Giveaway - full details here or at bit.ly/arthritis50

Episode at a glance:

Research: Review of Dr Codd’s research on how inflammatory arthritis (rheumatoid, psoriatic, ankylosing spondylitis, etc) affects important life roles including parenting
Becoming a Parent with Inflammatory Arthritis: A conversation about the complexity of asking for help and how it relates to control, grieving, ableism and independence
Play is important: how to play with your child when you have pain and tips for coming to terms with how your condition affects your ability to parent.
Why it’s important for health professionals to address life roles, not just symptom management: Dr. Codd explains how occupational therapists help people with inflammatory arthritis participate in meaningful daily roles and activities and bring joy back to their lives
Dr. Codd’s best advice for the newly diagnosed

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full episode show notes including a full transcript:

See the episode page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

When the Doctor Becomes the Patient: a Pediatric Rheumatologist’s Journey with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Tue, 7 Jun 2022 14:08:47 +0000

Dr. Saimun Singla shares her journey first becoming a pediatric rheumatologist (a Pediatrician who further specializes in rheumatology), then becoming diagnosed with adult rheumatoid arthritis after the birth of her second child.

Dr. Singla’s experiences as a patient changed her approach to her patients, and led her to pursue a fellowship in integrative medicine. She shares what’s in her personal RA management toolbox, from sleep and meditation to medication and exercise. She also reflects on how her experiences ultimately led her to open up her own private practice in Houston, TX.

Episode at a glance:

How Dr Singla became a pediatric rheumatologist
Diagnosis: Dr Singla gets diagnosed with adult rheumatoid arthritis after the birth of her second child
Pregnancy: What it was like to be pregnant before rheumatoid arthritis and after her RA diagnosis
Integrative Medicine: How Dr Singla’s personal journey with RA led her to pursue Integrative medicine
What’s in Dr. Singla’s personal RA management toolbox: lifestyle factors like nutrition, sleep ,exercise, medication and other mind-body approaches in addition to medications
Being both patient and doctor: Dr Singla describes how humbling it’s been to be a patient and how that’s led her to be a more empathetic doctor
Pivoting career due to RA: how she started her own integrative pediatric rheumatology practice, Rheum to Grow, in Houston, TX which allows her to control her schedule and accommodates her RA needs
Culture and the patient experience: Dr Singla reflects on how her South Asian identity and culture affects her patient experience
Dr Singla’s words of wisdom for the newly diagnosed

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

##Full Episode Details & Transcript:
Go to the episode page at www.MyArthritisLife.Net for all links and details!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Hypermobility, EDS and POTS 101, With Occupational Therapist Emily Rich

info@myarthritislife.net (Cheryl Crow) — Mon, 30 May 2022 15:13:04 +0000

People living with rheumatoid arthritis (RA) and related autoimmune forms of arthritis (such as psoriatic arthritis and ankylosing spondylitis) are at greater risk of developing hypermobility, Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS).

Emily and Cheryl discuss ways for people living with arthritis and EDS or POTS to manage the day to day of their conditions and cope with the ups and downs and uncertainties that come with fluctuating chronic illnesses. They also discuss the role of occupational therapists in helping people with these conditions improve their self-management abilities and confidence in building a meaningful life despite health challenges.

Episode at a glance:

Emily’s diagnosis story for EDS and POTS at age 14: joint pain, feeling like passing out, digestive symptoms and more
What is POTS?
Autoimmune conditions, Covid-19 and POTS: Emily and Cheryl discuss the connections between these conditions
EDS and Hypermobility Spectrum Disorder and General hypermobility: Emily explains the difference between hypermobility and EDS (which includes one of 13 subtypes being hypermobile type)
Who diagnoses EDS and POTS?
Connection to arthritis: Emily and Cheryl review the data about the incidence of POTS and EDS amongst people with rheumatoid arthritis and other related conditions
Tips for coping when you have both arthritis and EDS: the fluctuation and the uncertainty; whack a mole - live in the moment, acceptance
What’s in Emily’s toolbox for coping with POTS and EDS: sleep routines, hand splints, planning ahead, energy conservation and more
What is the occupational therapist’s role in helping people manage dysautonomia and EDS? Sleep hygiene, energy conservation, fatigue management, pain tools, teaching strategies and more
Self-Management for Chronic Conditions: Emily and Cheryl share insights into this often overlooked area of need for many patients.
Emily’s best advice for people newly diagnosed with EDS and/or POTS

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full Episode Show Notes & Transcript

For full episode show notes, including links discussed in the episode and a full transcript, go to the show page on the Arthritis Life website: www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Tips for Making Difficult Medical Decisions with Nurse Practitioner Kori Dewing

info@myarthritislife.net (Cheryl Crow) — Tue, 24 May 2022 18:01:32 +0000

Kori and Cheryl discuss ways to approach assessing the risks versus benefits of medications from the "shared decision making" model. They also explore how insurance barriers in the United States can make medication decisions all the more complex. Kori shares her tips for getting prescription medication support, as well as her words of wisdom for diagnosed patients. The conversation concludes with a discussion of the latest research developments Kori is most excited about in the world of rheumatology.

Episode at a glance:

What is an Advanced Registered Nurse Practitioner (ARNP)? What is the role of the nurse practitioner on the rheumatology team?
Tips for making medical decisions: Kori explains how she helps her patients assess the risks of treating (like medication side effects) versus the risks of undertreating (like disease progression).
What to do if you have insurance barriers to medication: Kori discusses insurance barriers and gives tips including copay cards, patient assistance programs, ways to proactively research medication costs, and what the deal is with prior authorizations and specialty pharmacies
Advocacy: Cheryl and Kori discuss how patients can support reforms to healthcare through sharing their stories
Newly Diagnosed: Kori’s words of wisdom for newly diagnosed patients
Latest research developments: What recent innovations in the field of rheumatology Kori is most excited about?

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full episode details including a Transcript:

Go to the Arthritis Life Website at: www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Becoming an Advocate with Lupus and Type 1 Diabetes: Melissa’s Story

info@myarthritislife.net (Cheryl Crow) — Tue, 17 May 2022 17:03:47 +0000

Melissa shares how she learned to be a more effective advocate over time, and provides insights into how she copes with the ups and downs of chronic illness life.

Episode at a glance:

Melissa’s Diagnosis story for Lupus & Type 1 Diabetes as a nine year old
Melissa becomes a mental health occupational therapist while managing her conditions
Melissa shares her treatment ups and downs for lupus, including medications and lifestyle factors such as exercise and stress management
Advocacy: Melissa shares her journey towards becoming a health advocate
What to do when your supporters or caregivers don’t “get it?”
Melissa’s Best Advice for people newly diagnosed with Lupus and/or Type 1 Diabetes
Melissa’s Mental health / coping tips for chronic illness life

Episode Sponsors
Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Medical Cannabis & Arthritis 101 with Registered Dietitian Cristina Montoya

info@myarthritislife.net (Cheryl Crow) — Mon, 9 May 2022 14:11:49 +0000

Episode at a glance:

How Cristina’s postpartum flare up and difficulty with pain control led her to delve into medical cannabis; helped especially with fibromyalgia.
Cannabis, CBD & THC 101:
- How the endocannibinoid system (within our body) helps with homeostasis, memory, pain, mood, inflammation and even skin.
- The difference between cannabis, help, THC, CBD, endocannabinoids and phytocannabinoids
What people with arthritis might want to know about how cannabis affects pain, inflammation, sleep, anxiety, appetite and mood (including a discussion of what risks there are versus benefits)
What are the different methods of consumption for cannabis (Sublingual, Topical creams, Transdermal patch, Oral Suppositories (vaginal), inhalation, IV and more)
Where to find valid information about CBD and chronic pain
Where to find a dispensary: - check the laws in your area; five things Cristina looks for in a cannabis dispensary
Communication to medical team: Cristina discusses the importance of this
Cristina answers listener questions
How to learn more from Cristina

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadma

p, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

##Full Episode Details + Transcript

See the Arthritis Life Website at www.MyArthritisLife.Net for full details, including a transcript!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Medical Gaslighting to Patient Advocacy: Meggie's Story

info@myarthritislife.net (Cheryl Crow) — Sat, 30 Apr 2022 15:43:59 +0000

Meaghan shares her journey growing up with juvenile idiopathic arthritis, which turned into psoriatic arthritis (PSA) in her twenties. She busts common myths about PSA and delves into the importance of advocacy, mental health, sharing our stories and more.

##Episode at a glance:

Meaghan’s Diagnosis story / saga for JIA and then PsA: medical gaslighting, delays in care, learning to advocate for herself and more
What does Meggie Wish People Knew about PSA? Dispelling common misconceptions
Meggie’s advocacy journey: from insurance step therapy to formal advocacy
Relationships: Meggie reflects on dating with arthritis and shares how her husband supports her
Meggie reflects on the importance of mental health & how being open about her diagnosis helped her
What’s it been like to share your story online? Meggie shares her story writing for Bezzy PSA from Healthline and sharing her story on social media
Meggie’s advice for newly diagnosed patients
Where to find Meggie: Instagram: @Arthritis_Meggie

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For Full Episode Details + Transcript:

Go to www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Lonely and Broken to Feeling Strong: Jen Blair’s Story of Juvenile Idiopathic Arthritis

info@myarthritislife.net (Cheryl Crow) — Mon, 25 Apr 2022 18:30:57 +0000

As a child and teenager growing up with juvenile idiopathic arthritis, Jen Blair often felt lonely, isolated and "broken." Fast forward to the present: Jen is a mother of three, accepts her "new normal" and has come to see herself as strong rather than broken.

This episode delves into Jen’s story and includes details about her different prescription treatments, how she came to embrace exercise and dietary contributions to her health, her pregnancy and parenting journey and her experiences both with working and being on disability.
Episode at a glance:

Jen’s diagnosis story of juvenile idiopathic arthritis
Jen’s treatment journey over the years: biologics, exercises, nutrition, serial casting (which is no longer done for JIA) and more
Pregnancy with JIA & RA
What is it like being a mom of three children while living with JIA?
Jen’s emotional journey: as a teenager and young adult, experiences loneliness, isolation, yearning for acceptance, and feelings of being “broken.”
Jen’s experiences working in different environments and then going on disability
Jen’s advice for people newly diagnosed with inflammatory arthritis

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full Episode Details including Transcript:

Go to www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Power of Lifestyle Changes for Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Mon, 18 Apr 2022 22:08:30 +0000

Emily Johnson, the Arthritis Foodie, shares her journey from medical gaslighting to a diagnosis of seronegative arthritis during her university years. She and Cheryl discuss how they combine lifestyle changes with western medication to manage rheumatoid arthritis.

Emily also explains how her experiences inspired her to write a book about lifestyle changes for rheumatoid arthritis, called “Beat Arthritis Naturally.” Cheryl and Emily discuss the wisdom of a “both/and” rather than an “either/or” approach to combining pharmaceutical with lifestyle approaches to disease and symptom management. They also share insights on how they cope with fluctuating symptoms and difficult times with self-kindness.

Episode Sponsor

Medical disclaimer:

Full Episode Show Notes & Transcript

Please go to the show page on MyArthritisLife.Net for full episode show notes and a transcript.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How We Cope with Rheumatoid Arthritis Stress, with Chronic Eileen

info@myarthritislife.net (Cheryl Crow) — Mon, 4 Apr 2022 15:25:46 +0000

Cheryl and Eileen’s personal stress management toolboxes include: formal therapy, delegating tasks, prioritizing self care, snuggling with their pets, acceptance, mindfulness, addressing past traumas, advocacy and more.

This conversation originally took place as an Instagram Live discussion in March 2022.

Medical disclaimer:

Episode Sponsors

For full episode details and transcript

Go to www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Overwhelmed to Confident: Camille & Gittel’s Rheumatoid Arthritis Stories

info@myarthritislife.net (Cheryl Crow) — Thu, 24 Mar 2022 03:10:42 +0000

Camille and Gittel share how lost and overwhelmed they felt trying to manage rheumatoid arthritis and ankylosing spondylitis on their own. They describe how Rheum to THRIVE helped them not only on a practical level but also emotionally, and share their best tips for managing flare-ups.

This conversation originally took place as an Instagram Live discussion in September 2021.

Episode at a glance:

Camille’s journey getting diagnosed with rheumatoid arthritis (Camille is at https://www.instagram.com/camilledemere/ on Instagram)
Gittel’s journey with ankylosing spondylitis: diagnosed in 2018 after a lifetime of chronic pain (Gittel is at https://www.instagram.com/gittel_gt/ on Instagram)
How Gittel and Camille felt overwhelmed, confused and alone while trying to manage their conditions on their own. Gittel finds an online support group but it wasn’t a good fit for her.
Gittel & Camille join Cheryl’s Rheum to THRIVE educational support group program
Camille reflects on how the group has helped her process challenges around the pandemic and uncertainty
Gittel shares her experience overcoming shame around using mobility aids and helps others confront internalized ableism
Camille loses her health insurance and is forced to go to “Dr Google” for answers, which was terrifying
Camille joins Rheum to THRIVE and transforms to feeling confident and supported
Gittel shares how terrified she was about using “Dr. Google” to learn about ankylosing spondylitis and how the organization of Rheum to THRIVE helped her feel less overwhelmed
Cheryl, Gittel and Camille share tips for flare ups: rest breaks, hot showers, breath work, alternative pain relief such as cannabis, mental work such as anchor breathing and mindfulness exercises
Cheryl, Gittel & Camille share their Covid19 vaccine experiences

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap

A self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Full Episode Details including Transcript

See more details and a full transcript at www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Terrified to Empowered: Erin & Heather’s Rheumatoid Arthritis Stories

info@myarthritislife.net (Cheryl Crow) — Wed, 16 Mar 2022 00:01:30 +0000

Erin & Heather share their diagnosis journeys for rheumatoid arthritis, and how Cheryl’s “Rheum to THRIVE” program helped them become more empowered and supported.

This conversation originally took place as an Instagram Live discussion in September 2021.

Episode at a glance:

Erin shares her diagnosis story: originally ankylosing spondylitis, then changed to rheumatoid arthritis
Heather shares how she felt “desperate to find answers” after her rheumatoid arthritis worsened
Erin and Heather share how they became more empowered through joining the Rheum to THRIVE program
Heather shares how important it was for her to have access to a consistent set of resources and how she benefited from learning skills to “be the CEO of her care team!”
Erin shares what it meant to her to have a supportive community
Erin reflects on how she previously did not ask for work accommodations due to shame and guilt, before she became empowered and understood the power of counteracting your own internalized ableism
Heather reflects on how she used to “fake it til you make it” or “power through,” then she gained the courage to talk to her boss about her needs for accommodations at work
Erin and Cheryl reflect on how their experiences with Facebook “support groups” is different than Rheum to THRIVE
Amy shares what she got out of Rheum to THRIVE
Cheryl answers some FAQs about the program

Medical disclaimer:

Episode Sponsor

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Registration is open now through March 31st, 2022 - it’s only open twice a year so join now if you’re interested!

Full Episode Details + Transcript

Go to www.MyArthritisLife.Net for full details including a full transcript.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it like to be a Nurse with Rheumatoid Arthritis, Fibromyalgia and Endometriosis? Catina's Story

info@myarthritislife.net (Cheryl Crow) — Tue, 8 Mar 2022 23:46:43 +0000

Episode at a glance:

Catina’s Diagnosis journey/saga for endometriosis, RA, fibromyalgia: was initially told it was “growing pains,” not believed for years
How Catina managed to push through pain and work as a nurse
Catina’s experiences as a black woman managing multiple chronic conditions
How Catina’s experiences inspired her to form the Nurse Loves Essentials company, community and coaching services
Catina’s mindset tips for coping with chronic pain and chronic illness

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Registration is open now through March 31st, 2022 - it’s only open twice a year so join now if you’re interested!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

##For full episode details including a transcript:

Please go to Cheryl's website at www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it like to be a Lawyer with Rheumatoid Arthritis? Amy’s Story

info@myarthritislife.net (Cheryl Crow) — Tue, 1 Mar 2022 03:36:52 +0000

Amy shares what she’s learned while managing a fast paced, mentally taxing career as a lawyer while living with rheumatoid arthritis. Amy & Cheryl share their experiences in peer support groups, and explore how they've both learned how to challenge their internalized ableism and overcome shame through connecting with others in Cheryl's Rheum to THRIVE support group.

Episode at a glance

Amy’s diagnosis journey during the Covid19 pandemic- after severe fatigue, brain fog and pain, Amy gets preliminary diagnosed with RA by her primary care doctor but faces a long waiting time to see a Rheumatologist. She also experiences other challenges getting healthcare due to the Covid19 pandemic.
Reflections on balancing a demanding career as a lawyer with RA, including a discussion about how and whether to disclose your disability in the workplace
The importance of support: Amy discovers she doesn’t have to go through this alone after connecting with others on social media and joining Cheryl’s Rheum to THRIVE support group
Shame, mobility aids and challenging internalized ableism: Amy shares how she’s gone from hiding her disability to having a pretty cane she can show off, but continues to face some challenges using mobility aids such as wheelchairs.

Medical disclaimer:

Episode Sponsors

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts on April 2nd and registration closes on March 31st - sign up today!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full Episode Details including a Transcript

Go to www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Importance of Autoimmune Friendships, with Erika Bustos & Rachel Albo

info@myarthritislife.net (Cheryl Crow) — Tue, 22 Feb 2022 14:29:55 +0000

Erika Bustos and Rachel Albo share how their individual journeys with managing rheumatoid arthritis and holistic health coaching led them to connect on social media. They then transformed their virtual relationship to a “real life” friendship and business partnership in their podcast “Autoimmune & You."

Episode at a glance:

Rachel and Erika’s diagnosis stories for rheumatoid arthritis in their 20s
Erika pivots from studying marriage and family therapy to becoming a holistic health coach after her diagnosis of rheumatoid arthritis, and Rachel pivots from traditional occupational therapy to health and wellness coaching as well
Erika and Rachel both delve into holistic lifestyle changes that help them manage rheumatoid arthritis but also caution others not to fall into some of the common traps in holistic communities, for example “one size fits all” approaches
How Rachel and Erika found each other on social media and grew from acquaintances to true friends before ever even meeting in person
How Rachel & Erika combined their personal and professional passions (as autoimmune coaches) into their joint podcast, “Autoimmune & You”
Rachel & Erika briefly discuss their experiences contacting Covid-19 and how that’s affected their rheumatoid arthritis
Rachel, Erika and Cheryl’s tips for navigating social media interactions and friendships - how to get what you need out of it without experiencing the downsides.

Medical disclaimer:

Episode Sponsor

Full episode details and transcript

Go to the show page on the Arthritis Life website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it like to still be on methotrexate? Updates from Paulina, Ananthi and Jo

info@myarthritislife.net (Cheryl Crow) — Tue, 15 Feb 2022 14:00:00 +0000

Paulina, Ananthi and Jo update the audience about their methotrexate journeys for rheumatoid arthritis, including having to titrate the dosage up or down due to liver enzyme numbers, decisions about whether to add a biologic medication in addition to methotrexate, and reflections on the emotional ups and downs of living with a chronic, unpredictable illness during a pandemic.

This episode is a follow up to episode 45 (which was originally recorded in July 2020), where eight patients shared their experiences taking methotrexate for rheumatoid arthritis or psoriatic arthritis. Today’s episode was recorded in the fall of 2021.

Episode at a glance:

Paulina provides an update to her methotrexate journey and what has helped her cope with the ups and downs of rheumatoid arthritis
Ananthi shares how she initially tolerated methotrexate but her liver enzymes went up so she had to fiddle around with the dosage a bit to get to a just right amount
Reflections on the need to stay on top of tracking our bloodwork and take charge of our care
Jo explains how she felt she wasn’t able to control her disease well with methotrexate alone but her doctor did not think she qualified yet for biologics, which was a very sad and frustrating experience
Everyone reflects on how the pandemic continues to affect their ability to make appointments and see their doctors
We reflect on the limitations of standardized assessments for rheumatoid arthritis
Everyone gives a piece of wisdom for listeners

Medical disclaimer:

Episode Sponsors

Full Episode Details

For full episode details including a complete transcript, please go to the show page on the Arthritis Life Website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dental Health, the Oral Microbiome & Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Wed, 9 Feb 2022 14:16:01 +0000

Dr. Victoria Sampson explains how oral health, the oral microbiome and rheumatoid arthritis inflammation are all interrelated. She provides ample details about why people with rheumatoid arthritis should take extra care with their oral health, and explains how altering the oral microbiome can potentially lead to improvements in RA disease activity. See full episode notes including a detailed transcript here.

Episode at a glance:

How rheumatoid arthritis can lead to gum damage and why flossing is so important
Specific action steps people with RA can take to improve their dental health and oral microbiome
Cheryl and Dr. Sampson’s tips and life hacks for flossing, brushing and other oral health care when you have hand pain
What it means to be a holistic dentist or integrative dentist
What is the oral microbiome and why should people with rheumatoid arthritis care?
A case study of a patient with severe RA who had dramatically positive response to changing her gut and oral microbiome, as well as overall RA disease activity, through diet and oral hygiene habits.

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full episode details including speaker bios and a full transcript:

Go this episode's page at the Arthritis Life website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Cope with Uncertainty During a Pandemic?

info@myarthritislife.net (Cheryl Crow) — Tue, 1 Feb 2022 20:55:48 +0000

After living with rheumatoid arthritis, a disease characterized by at times unpredictable flare-ups and remissions) for nineteen years, host Cheryl Crow is no stranger to uncertainty.

However, the pandemic has brought a whole new level of uncertainty to the lives of those who are vulnerable, including Cheryl.

In this discussion, mental health occupational therapist Carlyn Neek and Cheryl focus discuss ways that Acceptance and Commitment Therapy tools can help people cope with uncertainty and continue moving towards a full and meaningful life despite so many things being out of their control.

Cheryl & Carlyn also delve into specific ways that being immunocompromised and vulnerable to other’s actions has emotionally affected people, and ways to cope with difficult emotions like anger, jealousy and anxiety.\

Medical disclaimer:

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full episode notes plus a transcription:

Full episode notes including links to things discussed in this episode and a full transcription can be found on the episode page on the Arthritis Life website.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Storm After the Calm: Cheryl’s Journey with Postpartum Anxiety and Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Fri, 21 Jan 2022 14:00:00 +0000

What happens when the person who loves everything suddenly likes nothing? Arthritis Life founder and Arthritis Life host Cheryl Crow shares her rocky transition to motherhood while managing a rheumatoid arthritis flare up.

She also opens up about her experience with symptoms of postpartum depression and postpartum anxiety, and highlights the importance of therapy in helping her get back to her “usual self.”

Please note: this interview initially took place in 2020 on the “What about the Mama?” podcast, hosted by occupational therapist Karena Skibinsky, on episode 11: “What about being a mama with a chronic illness?"

Episode at a glance:

Why Cheryl founded Arthritis Life after working as an occupational therapist in pediatrics, and the value of “edutainment” (entertaining educational content)!
Brief overview of Cheryl’s pregnancy remission and postpartum flare up of rheumatoid arthritis
Cheryl describes the irritability and mental exhaustion she experienced postpartum with decision fatigue around her medical needs and her baby’s needs
How Cheryl’s postpartum mood changes affected her social relationships
The exact moment Cheryl realized she needed to go to therapy
How “leaning in” to work was helpful in some ways and unhelpful in others
The dangers of a “breast is best” mentality and how Cheryl learned to embrace formula and a “Fed is Best” perspective
How being stubborn and optimistic is both the best and worst thing for Cheryl and her husband
Cheryl’s advice to other prospective mothers living with chronic illnesses
How Acceptance and Commitment Therapy helped Cheryl cope with her health and motherhood adjustment challenges

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Medical disclaimer:

Full Episode Links, including a transcript:

https://arthritis.theenthusiasticlife.com/2022/01/21/the-storm-after-the-calm-cheryls-journey-with-postpartum-anxiety-and-rheumatoid-arthritis/

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Precision Medicine and Patient Advocacy

info@myarthritislife.net (Cheryl Crow) — Mon, 10 Jan 2022 22:43:25 +0000

Episode at a glance:

Tiffany’s diagnosis journey: from initial diagnosis of RA to eventual diagnosis of non-radiographic axial spondyloarthritis
How Tiffany learned the importance of patient advocacy
Why Tiffany formed AiARTHRITIS - International Foundation for Autoimmune & Autoinflammatory Arthritis”
What is precision medicine and why is it important?
Tiffany’s best advice to newly diagnosed patients
How you can get involved in patient advocacy and volunteer work at her organization

Speaker Bios:

Tiffany Westrich-Robertson

I am the CEO of the International Foundation for Autoimmune & Autoinflammatory Arthritis, "AiArthritis" for short. I am also a person living with non-radiographic axial spondyloarthritis, after originally being diagnosed with rheumatoid arthritis (RA). I dedicate my time to running the organization, which has a unique mission to help other patients have a voice, alongside all other stakeholders, as equals. Together, we can solve problems and develop innovative solutions that positively impact education, advocacy, and research.

Cheryl Crow

Episode Sponsors

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Medical disclaimer:

Full episode details:

For full episode details go to the episode page here!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Loving Life with Rheumatoid Arthritis, One Handed: Colleen’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 16 Dec 2021 13:00:00 +0000

Episode at a glance:

Colleen shares what it was like to grow up with one hand.
Colleen’s diagnosis story for rheumatoid arthritis and treatments that have helped.
How Colleen met her husband and her tips for chronically ill relationships.
How Colleen maintains a “glass half full” attitude and a brief discussion of “toxic positivity.”
Pain management strategies that helped Colleen after over 4 joint replacement or fusion surgeries.
Colleen’s favorite adaptations and gadgets that help her function with one hand affected by rheumatoid arthritis .
Cheryl & Colleen discuss what brings them joy and how they’ve found meaning in “fandom” communities.
Colleen’s fertility journey and how she relishes her current role as a “bonus mom” to her best friend’s children.
Colleen’s best advice for people newly diagnosed with rheumatoid arthritis.

Speaker Bios:

Colleen Hood:

My name is Colleen Hood. I am a housewife and have been with my husband 34 years. I was diagnosed with RA age 20 and it started on my hands and knees. I was born with a limb difference of having just one hand. But honestly, I love every part of myself, even the RA. It makes me ME. I have always been determined, strong, “I will get this” type person. RA just made things a little harder, but never stopped me.

I am my own bionic woman. I had my 4 knuckles replaced through surgery, my wrist and ankle fused surgically, my right hip was replaced and I’ve had lots of rheumatoid nodules removed from my feet, fingers, and my little arm elbow.

OT and PT have helped me a lot since I have one hand. I use gadgets and tools and just practice makes progress. I did develop cataracts at age 37 and early osteoporosis in my mid 30s due to long and large steriod use. But no complaints... I am all good now.

I love the infusion meds... been on different ones since 2008 and things have been way better since. I did stop working in 2014 as just having one hand and 2 functional fingers, I put my health first. I worked 28yrs and am proud of it. So now I just care for my hubby and did care for my mom before she died in 2019. I am everyone's cheerleader and grateful I joined instagram last January.

Cheryl Crow

Episode Sponsor

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Episode links:

Colleen’s Channels
- Instagram channel - https://www.instagram.com/mad4minnie/
Cheryl’s Arthritis Life Pages:
Arthritis Life website - https://arthritis.theenthusiasticlife.com/
Youtube channel - https://www.youtube.com/c/arthritislife
Instagram @arthritis_life_cheryl - https://www.instagram.com/arthritis_life_cheryl/
TikTok @arthritislife - https://www.tiktok.com/@arthritislife
Arthritis Life Facebook Page - https://www.facebook.com/arthritisLIFE
Cheryl on Twitter: @realcc https://twitter.com/realcc
Arthritis Life Podcast Facebook Group - https://www.facebook.com/groups/arthritislifepodcastandsupport
Arthritis Life Program Links

Join the waitlist for Rheum to THRIVE, 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Medical disclaimer:

Full Episode Transcript:

See www.MyArthritisLIfe.Net for a full episode transcript!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Life with Fibromyalgia, Migraine & More: Natalie’s Unchargeable Journey

info@myarthritislife.net (Cheryl Crow) — Fri, 10 Dec 2021 15:26:29 +0000

Episode at a glance:

Natalie’s diagnosis stories for fibromyalgia, migraine, celiac, cold urticaria, Hashimoto’s, and other conditions
What does fibromyalgia feel like?
Cheryl & Natalie discuss how useful the “faulty battery charger” metaphor is for explaining fatigue
How Natalie uses humor to cope with her chronic illnesses, and how that led her to create funny T-shirts and ultimately the Unchargeables community
Natalie’s tips for making invisible illness more visible (including how she formed the “Chargimals” plushies and wrote books to spread awareness)
Cheryl & Natalie discuss the value of using entertainment, storytelling and fun to educate people about disabilities
How Natalie deals with negative feedback on social media
How Cheryl & Natalie navigate being entrepreneurs with chronic illness
Natalie’s advice for newly diagnosed patients with any chronic health condition

Speaker Bios:

Natalie is a chronically ill online entrepreneur, living her best life despite all the health challenges. She lives with Fibromyalgia, Hashimoto's disease, and a bunch of other conditions ever since she was a young girl. She lives on a sunny island with her family and pets.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Episode Sponsor

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Episode links:

Natalie’s channels
- https://www.instagram.com/wearethechargimals/
- https://Facebook.com/thechargimals
- https://vm.tiktok.com/ZMevL8Tqk/ “The Unchargeables by Natalie”
- Unchargeables shop: https://www.theunchargeablesshop.com/pages/links
Cheryl’s Arthritis Life Pages:
Arthritis Life website - https://arthritis.theenthusiasticlife.com/
Youtube channel - https://www.youtube.com/c/arthritislife
Instagram @arthritis_life_cheryl - https://www.instagram.com/arthritis_life_cheryl/
TikTok @arthritislife - https://www.tiktok.com/@arthritislife
Arthritis Life Facebook Page - https://www.facebook.com/arthritisLIFE
Cheryl on Twitter: @realcc https://twitter.com/realcc
Arthritis Life Podcast Facebook Group - https://www.facebook.com/groups/arthritislifepodcastandsupport
Arthritis Life Program Links

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Medical disclaimer:

Full Episode Transcript

Go to MyArthritisLife.Net for a full episode transcript

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What is Ableism? With Lene Andersen

info@myarthritislife.net (Cheryl Crow) — Tue, 30 Nov 2021 22:35:01 +0000

Episode at a glance:

0:00 - 3:25: Lene’s journey with juvenile idiopathic arthritis from diagnosis at age 9 to using a power wheelchair starting at age 16 to now
3:25 - 10:40: What is ableism, and how does it relate to other forms of descrimination such as racism or sexism?
10:40 - 17:51 - What is health privilege?
17:51 - 24:30 - What is internalized ableism and how might it manifest in a person with chronic illness?
24:30 - 30:00 - How to dismantle internalized ableism: disentangling worth from productivity, not being ashamed to use mobility aids or daily living aids
30:00 - 34:50 - How Lene is not “wheelchair bound” but in fact a wheelchair is liberating and a helpful tool for everyday life
34:50 - 41:00 - The social model of disability and how external barriers are often more limiting to quality of life than the disability itself
41:00 - 46:50: The differences between living with an invisible versus visible disability
46:50 - 48:10: TRIGGER WARNING (suicide): Brief discussion of assisted suicide as it relates to disability
48:10 - 52:50 - How the tropes of disabled people in media (movies, books) are often incredibly over simplified
52:50 - 55:30: What does it mean to have a “dynamic disability” with fluctuating symptoms?
55:30 - endUniversal design versus accessibility

Speaker Bios:

Lene (pronounced Lena) is an award-winning writer and rheumatoid arthritis advocate living in Toronto, Canada. Born and raised in Denmark, Lene has had autoimmune arthritis since childhood and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and writes books about living well with RA and other types of chronic illness. Lene shares her home with a cat and too many books.

Episode Sponsor

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full episode links and show notes:

Go to the Arthritis Life website at: www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Ask Cheryl Anything: Celebrating 50 Episodes!

info@myarthritislife.net (Cheryl Crow) — Wed, 24 Nov 2021 15:27:30 +0000

In this episode I share why I became an occupational therapist (spoiler alert - it wasn’t about arthritis initially!), answer your “just for fun questions” (including my favorite Taylor Swift songs), answer your arthritis related questions and share insights about coping with the roller coaster of emotions that accompanies chronic illness life.

I’m beyond honored and touched to have reached fifty episodes and almost 30,000 downloads of the Arthritis Life podcast!

Speaker Bio:

Episode Sponsor

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Episode links:

Things mentioned in this episode;
- Podcasts I like:
  - Maximum Fun podcast network - artist owned, listener supported independent podcast network
  - Judge John Hodgman podcast
  - We Got This with Mark and Hal podcast
  - This American Life Podcast
  - Sarah Putt - OT4Lyfe Podcast
- Past episodes I mentioned
  - Best advice for newly diagnosed patients
Cheryl’s Arthritis Life Pages:
Arthritis Life website - https://arthritis.theenthusiasticlife.com/
Youtube channel - https://www.youtube.com/c/arthritislife
Instagram @arthritis_life_cheryl - https://www.instagram.com/arthritis_life_cheryl/
TikTok @arthritislife - https://www.tiktok.com/@arthritislife
Arthritis Life Facebook Page - https://www.facebook.com/arthritisLIFE
Cheryl on Twitter: @realcc https://twitter.com/realcc
Arthritis Life Podcast Facebook Group - https://www.facebook.com/groups/arthritislifepodcastandsupport
Arthritis Life Program Links

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Medical disclaimer:

Full Episode Transcript

Coming soon to the Arthritis Life webpage for this episode!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How Food, Fitness & Faith help RA Warrior Ashley Nicole

info@myarthritislife.net (Cheryl Crow) — Wed, 10 Nov 2021 15:57:13 +0000

Episode at a glance:

Ashley’s rheumatoid arthritis diagnosis story: getting the diagnosis at age twenty-seven after being told she was “too young” when she first presented with symptoms
Faith: How Ashley’s different kinds of faith help her: faith in God, and faith in herself that she can persevere and achieve her goals, and faith that she can change her mindset.
Fitness: Ashley’s journey becoming a personal trainer in 2018, even when those close to her questioned whether she could succeed in that field while having RA
Food: How Ashley found a food plan that worked for her to help manage her weight and overall healthy lifestyle
Cheryl & Ashley discuss different ways to approach a healthy diet in a balanced way that supports quality of life rather than a restriction mindset
From sedentary to active: Ashley’s fitness journey was kickstarted with Jazzercise, then a gym membership and then personal training. How fitness helped decrease her pain.
Tips for exercising and improving fitness with rheumatoid arthritis: think movement if exercise is intimidating; celebrate what you *can* do and do more of that; make it convenient for you;
What is it like to work with a personal trainer?
What are some adaptations or modifications for strength training with rheumatoid arthritis when your fingers or wrists hurt?
Shame & Comparison: Cheryl & Ashley discuss how to avoid the “comparison trap” on social media, and Cheryl discusses the shame she feels at times due to being a former athlete who now is not in as good of shape as she used to be, and how her identity has shifted away from an identity as an athlete.
Positive mindset without minimizing negative emotions: Cheryl & Ashley discuss ways to focus on the positive while not minimizing or delegitimizing the true negative feelings we have
Ashley’s entrepreneur experience: starting RA Warrior Fitness LLC two months before the pandemic in 2020
Advice for newbies: either newly diagnosed, or people who are new to fitness & RA

Speaker Bios:

My name is Ashley Nicole and I am a RA Warrior! I've lived with RA for 17 years and counting. It is now my mission to empower women living with rheumatoid arthritis to improve their quality of life through faith, food and fitness.

Episode Sponsor

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Episode links:

Ashley’s channels
- IG: @ashnic_rawarriorfitness, @rawarriorfitness
- FB: RA Warrior Fitness, LLC
- Website: https://www.rawarriorfitness.com/
Cheryl’s Arthritis Life Pages:
Arthritis Life website
Youtube channel
Instagram
TikTok
Facebook Page
Twitter
Arthritis Life Podcast Facebook Group

Medical disclaimer:

Full episode transcript:

Available on the episode page on the Arthritis Life website!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it like to be a Teenager with Juvenile Arthritis?

info@myarthritislife.net (Cheryl Crow) — Mon, 1 Nov 2021 12:00:00 +0000

Natasha and Cheryl discuss her treatment journey, how her social life was affected by JIA, the importance of diet and stress management in her treatment plan, and why Natasha formed the nonprofit Take a Pain Check.

Episode at a glance:

Natasha’s diagnosis story and early experiences with juvenile idiopathic arthritis
Different treatments Natasha has tried, including steroid joint injections, methotrexate, biologic medications, nutrition and dietary changes, Ayurvedic medicine, meditation and other lifestyle changes
How Natasha’s mother helped support and advocate for her when it felt like “nothing was working” in her treatment plan
How Natasha navigates peer pressure to drink
Ways Natasha manages stress while living with juvenile idiopathic arthritis
The importance of cultural representation and what it means for Natasha to see other South Asian people in the chronic illness community
Things that bring Natasha joy, including singing
Natasha’s inspiration for forming the nonprofit Take a Pain Check
The importance of patient involvement in research and advocacy

Episode Sponsor

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Episode links:

Submit an “Ask me Anything” question to Cheryl in honor of the Arthritis Life Podcast reaching 25,000 downloads! Email at info -at- MyArthritisLife.Net or on the social media links below by Saturday, November 6th.
Natasha and Take a Pain Check’s channels:
- ALL RESOURCES AND PODCAST: https://instabio.cc/takeapaincheck
- Instagram: https://www.instagram.com/takeapaincheck_/
- Twitter: https://twitter.com/takeapaincheck
- Youtube - https://www.youtube.com/channel/UCRF07SYaN-9fbatNCKhL08g
- Website: www.takeapaincheck.com
Other orgs mentioned
- Cheryl on Take a Pain Check podcast
- Cassie & Friends: Juvenile Idiopathic Arthritis Support & Resources
- Research projects - JIA option map at University of Ottowa (research)
- PACER - patients doing reserach on other patients
- Chronic Eileen
Cheryl’s Arthritis Life Pages:
Arthritis Life website: https://arthritis.theenthusiasticlife.com/
Youtube channel: https://www.youtube.com/c/arthritislife
Instagram: https://www.instagram.com/arthritis_life_cheryl/
TikTok: https://www.tiktok.com/@arthritislife
Facebook Page: https://www.facebook.com/arthritisLIFE
Twitter: https://twitter.com/realcc
Arthritis Life Podcast Facebook Group: https://www.facebook.com/groups/arthritislifepodcastandsupport

Medical disclaimer:

Transcript: go to MyArthritisLife.Net for full episode details and a transcript.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Make an Arthritis Friendly Home

info@myarthritislife.net (Cheryl Crow) — Tue, 19 Oct 2021 21:19:07 +0000

Episode at a glance

Occupational therapy (OT): Why Lindsay became an OT, and Lindsay & Cheryl’s definitions of the profession. (1:00-6:00)
Things to think about when accessing a home when you have arthritis: steps, ramps and more, plus tips on aging in place. (6:00-14:29)
Tips for the Bathroom with Arthritis: wiping, bidets, toilet seat height, grab bars, shower gadgets, drying hair and more. (14:30 - 30:25)
Tips for the Kitchen with Arthritis: opening aids, considerations for how you organize items within the kitchen, refrigerator design considerations, kitchen design tips, stools, fatigue mats and chopping aids. (30:30 - 51:00)
Tips for the Bedroom and Dressing with Arthritis: power assist beds, bed rails, pivot grabs, bed ladders, dressing sticks, dressing aids, bras, and more. (51:17-1:01:00)
Tips for Living Rooms and Dining Rooms with Arthritis: recliners, arm rests for chairs, round versus square tables and more. (1:01:00 - 1:07:45)
The emotional side of adaptive equipment: Tips for coping with shame and other emotions around needing adaptive equipment or assistive devices (1:07:48 - 1:17:09)
For a full list of links to everything Lindsay discussed in this episode, go to this special page of her website here https://www.equipmeot.com/arthritislife/.
Check out Cheryl's "Favorite Arthritis Items" page for links to some of the things she discussed on this episode: https://arthritis.theenthusiasticlife.com/2020/03/17/my-favorite-arthritis-products/

Speaker Bios:

Lindsay DeLong: As an occupational therapist, I have spent years treating and supporting individuals dealing with all forms of arthritis. I have been challenged to find creative solutions for individuals to help them maintain their independence, self worth and joy in every day life! I’ve learned so much from the arthritis community and am thrilled for the opportunity to give back in any way I can.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She’s passionate about helping others with rheumatoid arthritis live a full life, by using effective tools to manage physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.

Episode Sponsor

This episode is brought to you by Rheum to THRIVE, a 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today for the next group which starts in Spring, 2022!

Episode links:

Lindsay’s EquipMeOT channels:
- Website: EquipMeOT.com
- Youtube - https://www.youtube.com/c/EquipMeOT
- Instagram - https://www.instagram.com/equipmeot/
- For a full list of links to everything Lindsay discussed in this episode, go to this special page of her website here https://www.equipmeot.com/arthritislife/.

Check out Cheryl's "Favorite Arthritis Items" page for links to some of the things she discussed on this episode: https://arthritis.theenthusiasticlife.com/2020/03/17/my-favorite-arthritis-products/

Cheryl’s Arthritis Life Pages:
Arthritis Life website: https://arthritis.theenthusiasticlife.com/
Youtube channel: https://www.youtube.com/c/arthritislife
Instagram: https://www.instagram.com/arthritis_life_cheryl/
TikTok: https://www.tiktok.com/@arthritislife
Facebook Page: https://www.facebook.com/ArthritisLifeCheryl
Twitter: https://twitter.com/realcc
Arthritis Life Podcast Facebook Group: https://www.facebook.com/groups/arthritislifepodcastandsupport
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Medical disclaimer:

Full Episode Transcript

See arthritis.theenthusiasticlife.com for full episode details, including a transcript

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Wounded Healer: Unity’s Story

info@myarthritislife.net (Cheryl Crow) — Mon, 11 Oct 2021 21:05:59 +0000

Episode at a glance

Full transcript and additional notes available at the Arthritis Life website here.
1:00 - 7:30 Unity’s shares her diagnosis story at 15 months old and details her young childhood experiences growing up with juvenile idiopathic arthritis (JIA)
7:30 - 15:00: How Unity became more active in her care management as an adolescent and explored alternate ways of managing JIA including nutrition, reiki, shamanism, and meditation.
15:00 - 23:00 The importance of meditation and managing stress in Unity’s JIA journey, including a discussion of some of Unity’s favorite books.
23:00 - 30:00 Unity explains what it means to be a “wounded healer” and what “healing” means to her. She also explains her Seasons of Self Energy Report framework.
30:00 - 37:00 Unity explains the importance of addressing mindset and mindfulness while living with a health condition.
37:00 - 40:00 Unity explains the inspiration behind S.O.S. Energy Report: A Survivor's Guide to Self-Healing Breakthroughs
40:00 - 43:00 Unity shares about her experience becoming a mother and now parenting two teenagers while managing her JIA.
43:00 - Unity & Cheryl discuss the many cost benefit analyses they do as patients, and when it’s worth it to do an activity even when it causes pain

Speaker Bios:

Unity Schmit: Born into a near-death experience, and diagnosed with chronic childhood illness, in the form of juvenile rheumatoid arthritis (JRA), Unity awakened to seek self-healing growth and the powerful meaning behind her unusual life start. On her path, she sought to understand how to bring pain to purpose, and how to follow her inner calling to experience her dreams, even though she was told they were unattainable.

By studying self-healing, energy work, reiki, psychology, world religions and shamanism, Unity reached her dreams, and studied with healers and shamans from Canada, the United States and Australia. Through her experiences, Unity has become an author, teacher and 'faery godmother' life coach who seeks to help others awaken their own self-healing breakthroughs to reach their dreams, no matter the storms present or ahead.

Episode Sponsor

Episode Links:

Unity’s Links:
- https://www.instagram.com/unityschmidt/
- ‘S.O.S. Energy Report Experience - this is a special link Unity created for Arthritis Life podcast audience members to allow you to access her “Survivor's Guide To Self-Healing Breakthroughs” for free. As a health provider I am not endorsing any claims from this website but am passing along the opportunity for you to experience it if you are interested, in hopes that it will be helpful.
Books Unity Recommended in this episode
- The Power of Myth - Joseph Campbell
- The Brain that Changes Itself - neuroscience book
- Barbara Brennena - Hands of Light
- Mindfulness, by Dr. Ellen Langer
Cheryl’s Arthritis Life social media pages:
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl & Arthritis Life on Instagram
Cheryl’s website: Arthritis Life
Arthritis Life Tiktok: @ArthritisLife
Arthritis Life Facebook Page
Cheryl’s Twitter: @realcc
Arthritis Life Youtube channel

Medical disclaimer:

For full episode notes and a transcript:

Full transcript and additional notes available at the Arthritis Life website here.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?

info@myarthritislife.net (Cheryl Crow) — Tue, 21 Sep 2021 14:33:46 +0000

In this episode, eight women share their journeys with methotrexate as of July 2020. You can hear an update from Jo, Ananthi and Paulina from October 2021 in episode 58.

Episode at a glance

Introduction to Episode with Methotrexate facts (0:00-5:00)
Patient introductions (5:00-10:00)
Patient stories about being on methotrexate: Paulina, Cheryl, Ali & Ananthi (10:00 - 41:00)
Discussion about natural methods versus medications and decision making around that (41:00 - 47:40)
More patient stories about being on methotrexate: Jo, Aashi, Kristen, Jenny (47:40 - 1:09:00)
Patients share tips on injecting methotrexate or other rheumatic disease medications (1:09:00 - 1:31:00)
Tips for coping with “miracle cures,” unsolicited advice & medication shamers (1:31:00 -

Speaker Handles:

Aashi Bhimani @solo_spoonie on Instagram
Cheryl Crow @Arthritis_Life_Cheryl on Instagram
Ananthi Ramachandran @ar_versus_ra on Instagram
Ali Digiacomo @anotherdaywithRA on Instagram
Kristen Brogan @warriorsmovemountains on Instagram
Jo Mistreanu @thejosphere on Instagram
Jenny Parker @cute_n_chronic on Instagram
Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She’s passionate about helping others with rheumatoid arthritis live a full life, by using effective tools to manage physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.

Episode Sponsor

Episode links:

Resources to learn more about Methotrexate:
- Rheumatoid Arthritis “In the Clinic” - Annals of Internal Medicine Article (2019)
  - ““In most patients, RA is a chronic, progressive disease character-ized by episodes of disease flares or long-term chronic inflamma-tion. Only a few patients achieve long-term remission without the need for long-term medications.”
  - “About half of all patients treated with methotrexate have little or no radiographic progression, although 30% will require addi-al DMARDs (like biologics):
- Global Healthy living Foundation research into how prominent methotrexate side effects are
- Methotrexate Side Effect Stats from the Arthritis Foundation
Cheryl’s Arthritis Life social media pages:
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl & Arthritis Life on Instagram
Cheryl’s website: Arthritis Life
Arthritis Life Tiktok: @ArthritisLife
Arthritis Life Facebook Page
Cheryl’s Twitter: @realcc
Arthritis Life Youtube channel

Medical disclaimer:

Full episode transcript

For additional details including a transcript, please go to www.Arthritis.TheEnthusiasticLife.Com

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Grace's Rheumatoid Arthritis Story

info@myarthritislife.net (Cheryl Crow) — Wed, 8 Sep 2021 15:33:44 +0000

Episode at a glance

Grace’s introduction & diagnosis story (3:22 - 9:00)
Grace’s experience with pregnancy remission and a postpartum flare up (9:21 - 15:00)
What has helped Grace cope mentally and emotionally with chronic pain and stress (15:50 - 32:00)
Grace describes her current business coaching work (32:00 - 37:00)

Speaker Bios:

Grace Nelson is a business coach, specializing in supporting women in corporate start their online business from scratch and make their first consistent 1K+ months online without having to leave their 9-5! She has been “experiencing” Rheumatoid Arthritis over the last 16 years and shares her story about she manages living with an autoimmune condition, running a business and being a first time Mummy to her daughter Eliza-Rae (who is now 1 years old).

Episode Sponsor

Episode links:

Grace pages:
- @Iamgracenelson on Instagram https://www.instagram.com/iamgracenelson/
- Grace’s free ebook training: https://bit.ly/23WaysToGetMoreClients
Cheryl’s Arthritis Life social media pages:
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl & Arthritis Life on Instagram
Cheryl’s website: Arthritis Life
Arthritis Life Tiktok: @ArthritisLife
Arthritis Life Facebook Page
Cheryl’s Twitter: @realcc
Arthritis Life Youtube channel
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Medical disclaimer:

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Three Ways I Manage Stress with Chronic Illness

info@myarthritislife.net (Cheryl Crow) — Wed, 1 Sep 2021 18:19:44 +0000

Episode at a glance

Introduction & definition of terms:
- What is stress, pain versus suffering, statistics on mental health and arthritis, common causes of stress with chronic illness (1:30 - 12:00)
Cognitive behavior therapy for “thinking problems”:
- How “Catching ANTs” is a helpful tool for “thinking problems” (when your stress is caused by maladaptive thinking patterns) (12:30 - 20:45 )
Mindfulness & “perpetual problems”
- Cheryl explains how true mindfulness of the present moment (even uncomfortable parts of the present) can help cope with perpetual problems from chronic illness (21:45 - 27:10).
Acceptance and Commitment Therapy (ACT)
- Cheryl explains how acceptance and commitment therapy helps her devote energy towards present possibilities rather than wasting time trying to solve unsolvable problems (which can lead to unnecessary stress). (27:10 -43:00)
Concluding thoughts: 43:00-end

Sometimes there is not a clear way to make your pain go away, no effective tool to “heal” your condition, and no way to convince someone else that your invisible illness is real.

While that might sound depressing at first, Cheryl explains that accepting this reality helped set her free (“The truth will set you free, but first it will piss you off” - Gloria Steinem).

She explains how she learned this technique from #acceptanceandcommitmenttherapy.

Speaker Bios:

Episode Sponsor

This episode is brought to you by Rheum to THRIVE, a 6 month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today for the next group which starts in early October, 2021!

Episode links:

Sign up to access the video recording of this webinar (which includes the visuals I refer to)
Reproductive Health and Rheumatic Disease Webinar:
- Cheryl will be moderating a free “Reproductive Health and Rheumatic Disease” patient webinar on September 14th 2021, sign up here http://www.rheum4you.org and learn more here https://simpletasks.org/
Things mentioned in the episode:
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
- Arthritis Life Youtube channel
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Medical disclaimer:

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Life with Rheumatoid Arthritis in Three Continents: Maria's Story

info@myarthritislife.net (Cheryl Crow) — Sun, 15 Aug 2021 16:50:47 +0000

Episode at a glance

Art and arthritis: Maria shares how she participates in artistic hobbies like photography and artwork despite hand pain from rheumatoid arthritis
Diagnosis journey: Maria’s diagnosis journey with rheumatoid arthritis in Venezuela and her emotional reaction to the diagnosis at age twenty one
Managing expectations: Maria and Cheryl discuss what it’s like to try to manage your expectations and plan your life when diagnosed with RA so young
College and international studies: The difficulties of managing rheumatoid arthritis while being a college student in the USA, including barriers to medication
Social media: Cheryl & Maria reflect on the benefits and drawbacks of social media, both having been diagnosed prior to social media
Maria moves to Australia: the scarcity of medication and resources in Venezuala leads Maria and her husband to move to Australia
Pregnancy and parenting with rheumatoid arthritis: Maria shares her journey with pregnancy and parenting her two girls with severe pain from rheumatoid arthritis
Remission: Maria shares the happy news of her current remission and how that’s improved her quality of life.
“Auch Revista” - Maria explains why she started this non-profit Spanish language magazine to share stories and tips for others living with chronic illnesses.

Speaker Bios:

Maria Gonzales has lived with rheumatoid arthritis since she was twenty one years old. Throughout the years she has lived on three continents with RA. She also graduated college and had two babies while managing rheumatoid arthritis. She has experienced everything from excruciating pain to a current remission. She enjoys sharing her journey with others and started the “Auch Revista” (translation: Ouch Magazine), a non-profit magazine for the Spanish speaking community living with chronic illness.

Episode Sponsor

Episode links:

Maria’s links:
- Instagram @auch.revista
- AUCH Revista - Spanish language magazine focusing on ways to help people with chronic illnesses
Things we mentioned in the episode:
- Man’s search for meaning book
Cheryl’s Arthritis Life free resources:
- Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course

Medical disclaimer:

Full Episode Details + Transcription

For a full transcription and more details about this episode, go to www.MyArthritisLife.net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

“I’m not Hysterical, I’m Sick:” Kim's Story of Medical Gaslighting and More

info@myarthritislife.net (Cheryl Crow) — Wed, 4 Aug 2021 15:25:13 +0000

Even after getting diagnosed with bi-lateral pulmonary emboli, a necrotizing lung nodule and periodic paralysis, Kim was repeatedly dismissed as being “hysterical,” “just anxious” and having “nothing wrong” with her when it turns out her lung had collapsed, she had an air leak on her lung suture line and she also had rheumatoid arthritis.

Kim shares her experiences and perspectives with candor in hopes that no one who’s gone through similar experiences will feel alone.

Episode at a glance:

Kim’s journey going from 90 minute daily bike rides to not being able to walk due to a collapsed lung and other undiagnosed health issues.
Kim’s multiple experiences with medical gaslighting, or being dismissed by medical providers, including being erroneously diagnosed with “conversion disorder” when she presented with lower body paralysis.
Kim files a complaint with the hospital (who employed Kim’s original surgeon who told her “nothing’s wrong” when she in fact had a collapsed lung) and nothing happens.
Kim and Cheryl discuss ways the medical system can be improved to avoid medical gaslighting in the future, including using systems like “risk management.”
Kim shares what it’s been like to balance treatments for rheumatoid arthritis with hypokalemic periodic paralysis.
Kim shares how she’s mentally coped with everything she’s been through.
SUICIDE PREVENTION RESOURCE: If you are in the USA and you are in crisis, please call the National Suicide Lifeline at 1-800-273-8255. For a list of international suicide hotlines by country see this page.
Kim and Cheryl discuss what it feels like to feel “trapped” in your own body
Kim & Cheryl discuss “thin privilege” and how people who are overweight face additional stigmas when seeking medical care
Kim & Cheryl discuss the “inconvenient truth” that so much of our health is influenced by luck rather than things we can control (like diet).
Kim discusses equity versus equality and relates those concepts to healthcare
Kim shares “a day in the life” and what tools help her function on a daily basis.’
Kim shares what brings her joy in life, including rescuing kittens.
Kim provides an alternative to the 1-10 pain scale.

Speaker Bios:

Kim:

Kim has experienced chronic intermittent pain since she was seven years old. She has been written off by doctors as being depressed, anxious, over exaggerating. Her severe pain experience has been in her head/neck/shoulders but more recently it has extended from her hips to her feet and from her shoulders to hands.

In between her daily struggles with pain, she has experienced massive bi-lateral pulmonary emboli, a lung nodule that started necrotizing her lung tissue, hypermobile joints and most recently periodic paralysis. The necrotizing lung nodule was determined to be rhematoid in nature so that put her into the rheumatoid family and a working diagnosis of rheumatoid arthritis.

Outside of illness, Kim is an academic librarian, an endurance cyclist, newborn foster kitten parent and lover of state and national parks.

Cheryl:

This episode is brought to you by Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected. Join the waitlist today!

Episode links:

SUICIDE PREVENTION RESOURCE: If you or someone you know is suicidal, please call the National Suicide Lifeline at 1-800-273-8255. For a list of international suicide hotlines by country see this page.
Kim’s contact information:
- Klooby2 -at- gmail.com
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition
- Arthritis Life Youtube channel

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What’s it like to grow up with juvenile idiopathic arthritis? Suruthi’s Journey

info@myarthritislife.net (Cheryl Crow) — Tue, 20 Jul 2021 14:45:52 +0000

Episode at a glance:

Suruthi’s diagnosis story of juvenile idiopathic arthritis (JIA) at age 3
What it was like to be a small child with hip displasia and JIA, unable to walk for long periods of time, including social isolation
The challenges Suruthi faced in college with some “friends” and roommates not understanding her condition, accusing her of faking and ultimately bullying and shaming her
How Suruthi’s painful experiences and her volunteer work with “Versus Arthritis” in the UK led her to create her “Fight Rheumatoid Arthritis” instagram account and be more open about her story
How Suruthi’s south Asian culture affected her experience of disability and chronic illness
How and why Suruthi is pursuing a PhD in chemical engineering
“A Day in the Life” for Suruthi today
What Suruthi wishes everyone knew about living with arthritis

Speaker Bios:

Suruthi, I am 22 and I have had Juvenile Idiopathic Arthritis since I was three! Having arthritis has impacted my life in many ways but I rarely saw people like me talking about it which is what led me to start my instagram account, fightrheumatoidarthritis.

This episode is brought to you by Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected.

Episode links:

Suruthi account:
- Instagram @fightrheumatoidarthritis
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc

For full episode details and links, go to: https://arthritis.theenthusiasticlife.com/2021/07/20/whats-it-like-to-grow-up-with-juvenile-idiopathic-arthritis-suruthis-gnanenthirans-journey-from-isolation-to-advocacy/

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Why do Disability Pride and Disability Representation Matter? “Cursed” novelist and JIA Patient Karol Ruth Silverstein

info@myarthritislife.net (Cheryl Crow) — Wed, 14 Jul 2021 14:38:03 +0000

Episode at a glance:

Karol’s experience getting diagnosed with JIA at age 13 and being angry, terrified and grumpy about it
The importance of disability representation beyond the cliche “inspirational” story
How Karol learned the importance of partnership with a doctor and taking an active role in her care in her 20s
Why Karol identifies as disabled, rather than a “person with disability” (including a discussion of the #SayTheWord, #TheWordIsDisabled movement)
How both Cheryl and Karol have confronted their internalized ableism
Why Karol wishes she had listened to her occupational therapists earlier, and why occupational therapy is so important for people with rheumatic diseases
Excerpts from Karol’s award winning young adult novel “Cursed,” about a young woman with JIA who is “frank, funny and full of f-bombs.”
The importance of disability pride

Speaker Bios:

Karol Ruth Silverstein is a children's book author and screenwriter. She was diagnosed with juvenile rheumatoid arthritis at 13 and has identified as disabled since 21. Originally from Philadelphia, she now lives in West Hollywood with her two exceptionally fully cats. You can find her website at: https://www.karolruthsilverstein.com/

This episode is brought to you by Rheum to THRIVE, an online support group and educational program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.\
For full episode links go to: https://arthritis.theenthusiasticlife.com/2021/07/14/why-do-disability-pride-and-disability-representation-matter-with-cursed-novelist-and-jia-patient-karol-ruth-silverstein/

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Prevent and Cope with Rheumatic Disease Flare Ups

info@myarthritislife.net (Cheryl Crow) — Mon, 5 Jul 2021 21:59:45 +0000

Episode at a glance:

Introduction and Agenda Review (1:00)
Definition of a Flare Up for rheumatic disease (which includes ankylosing spondylitis, psoriatic arthritis and rheumatoid arthritis) (6:30)
What causes flare-ups, and why is it so important to discover our own unique flare triggers? (7:40)
Focus on Pain: tools to prevent pain and reduce existing pain (25:00)
Focus on Fatigue: tools to prevent and reduce fatigue (31:00)
Focus on Stress: ways to decrease stress levels & cope with existing stress (37:00)

Medical disclaimer:

Episode Sponsor

Rheum to THRIVE, an empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!

Speaker Bio:

Episode links:

Resources discussed in this episode:
- Video recording of the “Build Your Rheumatic Disease Flare Up Toolkit” webinar (includes presentation slides)
- "Multiple Factors Associated With Fatigue in Rheumatoid Arthritis" research article
- Link to my webinar about stress management
- What is ACT - acceptance and commitment therapy: Information site
- The Happiness Trap - Book and online program from Dr. Russ Harris - explains Acceptance and Commitment Therapy
- Apps for symptom tracking:
  - Cheryl doesn’t have one favorite but some she finds helpful are: Symple, MyArthritis, OpenCare, Wave, MyRaTeam, MyVectra, Chronic Insights, RA Healthline, Arthritis Foundation Track & React
- Recommended episode: 8 Things everyone who loves someone with arthritis should know
Free Facebook group: Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Arthritis Life Program Links
- Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
- Arthritis Life Youtube channel

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Tips for Pregnancy and Postpartum with Rheumatoid Arthritis with Mariah Leach

info@myarthritislife.net (Cheryl Crow) — Thu, 17 Jun 2021 14:50:43 +0000

This episode includes discussions about:

How to decide whether or not to have children while living with a chronic illness
Tips for comfortable sex with chronic pain
Frequently Asked Questions about pregnancy with rheumatoid arthritis, including how to find out which medications are safe
Cheryl and Mariah’s experiences with childbirth and C-sections
How frequent is the postpartum flare-up and how can it be prevented?
Advice for feeding a newborn with rheumatoid arthritis, including discussions about ergonomics, breast versus bottle feeding and “fed is best.”
Practical tips for managing the physical and energy demands of new babies including diapering, clothing, baby wearing and more!

This is part one of a two part series - later, Mariah and Cheryl will share tips for parenting toddlers / “big kids” and managing mental health as chronically ill parents!

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

This episode is brought to you by Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected.

Episode links:

Resources discussed in this episode:
- Mother To Baby - nonprofit resource for medication safety during pregnancy and breastfeeding
- Past episodes of Arthritis Life pod
- Mariah’s book review from rheumatology nurse practitioner Iris Zink Sex – Interrupted: Igniting Intimacy While Living With Illness or Disability
- HealtheVoices - patient advocacy conference Mariah attended
Mariah’s links:
- Twitter & Instagram: @mamasforward
- Facebook page: https://www.facebook.com/mamasforward
- Facebook group: https://www.facebook.com/groups/mamasfacingforward
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Join the waitlist for Rheum to THRIVE an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected.

For full episode details, including a detailed episode breakdown, go to: https://arthritis.theenthusiasticlife.com/2021/06/17/tips-for-pregnancy-and-postpartum-with-rheumatoid-arthritis/

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Arthritis Poetry Reading Event

info@myarthritislife.net (Cheryl Crow) — Tue, 8 Jun 2021 16:49:35 +0000

Speaker bios in order of appearance:

Kristen Brogan: Kristen has been living with rheumatoid arthritis and Sjogren's since 2018. She is a Board Certified Behavior Analyst and has a PhD in Cognitive and Behavioral Sciences, which she uses to inform behavioral chronic illness coaching that she provides for others living with chronic illness. In her free time, she enjoys writing, yoga, meditation, and spending time with her partner and their three dogs.

Links: IG handle @WarriorsMoveMountains and my website which is www.WarriorsMoveMountains.WordPress.com

Emma is a 24 year old living with inflammatory arthritis in Ontario, Canada.

Gittel is a 32-year-old daughter of immigrants from Central America, who was born and raised in downtown Los Angeles. She is a "forever teacher" who is no longer in the workforce due to her diagnosis of ankylosing spondylitis (among others). Currently, she is riding out the pandemic at her parents' and is learning to manage her illness as best she can---one moment at a time. She can be found on IG at @gittie

Melissa McKenzie is a writer from Jamaica who can be found at @pennedbymelissa on Instagram.

Joel Nelson: Writer. Arthritis Advocate. Dad. Sharing my story of Juvenile Idiopathic Arthritis to raise awareness. Specialising in pain, parenting and mental health. Also writes for leading charities and organisations.

Blog: https://joelvsarthritis.co.uk/
Joel’s Facebook: https://www.facebook.com/joelvsarthritis.
Joe’s Twitter: https://www.twitter.com/joelvsarthritis.
Joe’s Instagram: https://www.instagram.com/joelvsarthritis.
Joel’s Youtube Channel: https://www.youtube.com/channel/UCZrEJm2eWSSpXx8qMTjdgWA?view_as=subscriber

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

You can find Cheryl at:

Unity Schmidt: Born into a near-death experience, my journey with JRA became official shortly after my 1st birthday; activating my lifepath to move from chronic pain to purpose. As a life coach, author and teacher, I help my clients understand their energy, move through any blocks/challenges, and awaken their inner magic to reach their biggest dreams! Learn practical, magical ways to uplevel your life and choose your adventure with faery godmother life coaching, classes and my "SOS Energy Report" now available online.

Mary (Mimi) Cross, age 27, diagnosed with rheumatoid arthritis 7 years ago, runs Inflammation Vacation and can be found on Instagram at @inflammationvacation.

Ashley Shrum is a physical therapist living with arthritis who can be found on Instagram at @a.shrummer

Effie Koliopoulos is a freelance writer and rheumatoid arthritis patient advocate. She created her blog Rising Above Rheumatoid Arthritis in 2016, after being inspired to share her story more publicly and connect with others after undergoing a total knee replacement.

Currently residing in Chicago, she is working on her debut children’s picture book, enjoys creating video content for her YouTube channel and other projects. Effie’s Blog

Effie’s Instagram
Effie’s Twitter
Effie’s Rising Above RA RAra Shop Designs (Merch):
Effie’s Youtube Channel: RA and Myself

This podcast is brought to you Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today!

Arthritis Life links:

Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Here's the show breakdown:

01:00 Kristen Brogan: “An Unexpected Rebirth” (Sjogren’s)
05:00 - Emma (inflammatory arthritis)
7:55 - Gittel (AS) - “Being at War with Myself (aka the Rocky Relationship with my Body)”
12:50 - Melissa - “I am More than this Grief”
18:00 - Cheryl Crow - “A Pleasure to Have in Class”
27:00 - Joel Nelson - “The Arthritis Tease” and “The Invisible”
30:10 - Unity - Croon
33:40 - Gittel - additional biographical info
34:40 - Melissa - “Brain Fog” poem
37:10 - Mimi Cross (Inflammation Vacation)
38:15 - Ashley S “You Say You’ll Never but I do.”
41:25 - Gittel - Second poem
43:00 - Effie - reading from Brenda Klean-Sasser poem (2012) “100 Shades of Blue”

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Chronically Brown: The Importance of Cultural Representation in Chronic Illness Communities, With Sukhjeen Kaur

info@myarthritislife.net (Cheryl Crow) — Tue, 25 May 2021 20:00:25 +0000

Topics covered in this episode include:

Stigmas around disability within South Asian communities.
Sukhjeen’s personal story with rheumatoid arthritis and how that led her to form the nonprofit Chronically Brown
Exploration of medication shaming.
Lack of representation of people of color’s voices in online chronic illness communities.
Discussion about how South Asian practices (like yoga, herbal remedies and turmeric) are sometimes bashed within the chronic illness community.
Dos and Don’ts for when reacting to someone’s chronic illness or disability.
What should medical professionals consider when treating someone of South Asian descent?
Exploration of white privilege and microaggressions

Speaker Bios:

Sukhjeen Kaur is the Founder of Chronically Brown which aims to address the ableism in South Asian communities. Chronically Brown is a non-profit organisation dedicated to empowering South Asians with invisible & visible disability through education and support. Sukhjeen has lived with rheumatoid arthritis for 2 years.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and enjoyable patient education and self-management resources.

This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life.

Episode links:

Sukhjeen Kaur links:
- Facebook: https://www.facebook.com/Chronicallybrown
- IG: https://www.instagram.com/chronicallybrown/
- Twitter: @chronicbrown https://twitter.com/chronicbrown
- Website: https://chronicallybrown.com/
Resources and Articles mentioned in this episode:
- South Asian culture affects people’s experiences with chronic illness.
- Medication shaming
- American College of Rheumatology - 2021 Photography contest for skin of color (due date - July 2021)
- “Not everyone with a chronic illness is a skinny white woman” graphic, which was inspired by “Invalid Art”
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
- Arthritis Life Youtube channel

Episode Breakdown:

1:00 - Sukhjeen shares her initial difficulty adjusting to her chronic illness due to lack of representation of people of color in online communities. She shares how she learned to accept her condition after connecting with others from her cultural community.

5:30 - Sukhjeen explains how and why she formed the nonprofit Chronically Brown. She shares how she grew up in a predominantly white area and felt her cultural background was erased during her youth. The exclusion and stigmas for people of color with disabilities leads Sukhjeen to form Chronically Brown.

9:05 - What does “intersectionality” mean and how does that apply to a person of color living with a disability? What does it feel like to be excluded from both your culture and your disability community?

10:30 - Specific stigmas around disability within South Asian communities, including “What will people say?” Pressure to hide your chronic illness, not use mobility aids, “fix” or cure your illness, maintain an image of perfection and more examples.

15:00 - How Sukhjeen became comfortable being more outspoken about her experiences with disability.

20:00 - Sukhjeen explores medication shaming within South Asian communities and the chronic illness community at large.

22:00 - Exploration of how South Asian cultural treatments (like yoga or herbal remedies or turmeric) are sometimes bashed within the chronic illness community. The importance of the language we chose; “have you tried yoga” can be exclusive or derogatory towards South Asian communities.

26:45 - Exploration of the phrase “herbal medicine” and how that often signifies nonwhite practices versus “Western medicine.”

28:35 - Recognition of the emotional and energetic labor that goes into educating others about culture. Recognition that not every South Asian person wants to speak about their culture.

30:30 - Sukhjeen explains her “Dos and Don’ts” when reacting to someone’s chronic illness or disability, and what to say when you don’t know what to say. Why is it so harmful when people say things like “you just need to push through it” or “my friend tried XYZ and they are cured, you should too.”

35:15 - What does Sukhjeen want medical professionals to know about South Asian cultures and disability?

41:00 - Sukhjeen’s final message: the importance of including South Asians in all efforts around chronic illness and disability, and uplifting the voices of people of color.

44:00 - Reflection on #DisabilityTooWhite. The importance of representation of people of color’s experiences. Cheryl’s reflection as a white person about the importance of recognizing your blind spots and subtle forms of racism and biases.

46:00 - Sukhjeen’s examples of racial microaggressions when filling her medication and a pharmacist delaying her medication due to his difficulty understanding her name.

50:00 - Cheryl’s reflections on having white privilege, the importance of recognizing it and using it in a helpful way rather than taking advantage of it.

51:30 - Where to follow up with Sukhjeen.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Worst Good News: What to do when Test Results are Normal but you Feel Awful? Joel Nelson's Story.

info@myarthritislife.net (Cheryl Crow) — Thu, 13 May 2021 14:23:50 +0000

Topics include:

Joel shares what it was like to grow up with juvenile idiopathic arthritis
Joel explores the vulnerability of doctor patient interactions and the concern chronic illness patients often have of being perceived as hypochondriacs.
Joel and Cheryl discuss the imperfections of our current health systems, and the fact that “No Established Cause doesn’t mean No Problem.”
A group Pain Management program helps Joel rewire how he thinks about pain
Cheryl & Joel share tips and exercises for mental wellbeing despite chronic illness

Speaker Bios:

Joel Nelson: Writer. Arthritis Advocate. Dad. Sharing my story of Juvenile Idiopathic Arthritis to raise awareness. Specialising in pain, parenting and mental health. Also writes for leading charities and organisations.

Episode links:

Joel links:
- Blog: https://joelvsarthritis.co.uk/
- Joel’s Facebook: https://www.facebook.com/joelvsarthritis.
- Joe’s Twitter: https://www.twitter.com/joelvsarthritis.
- Joe’s Instagram: https://www.instagram.com/joelvsarthritis.
- Joel’s Youtube Channel: https://www.youtube.com/channel/UCZrEJm2eWSSpXx8qMTjdgWA?view_as=subscriber
Books and resources
- The Happiness Trap book explaining Acceptance and Commitment Therapy concepts
- Versus Arthritis nonprofit with helpful resources
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
- Arthritis Life Youtube channel

Here's the show breakdown:

1:00 - Introduction and Joel’s diagnosis story.

3:00-11:30 - Joel reads from his blog post, “No established cause doesn’t mean no problem.”

11:45 - Cheryl & Joel discuss the vulnerability of seeing new specialist doctors. Joel expands on his experiences with the neurologist who had not reviewed his medical chart.

15:15 - Cheryl & Joel discuss being worried about being perceived as a hypochondriac, and the challenges of filtering what information you share with a doctor / medical provider.

22:45 - Joel expands on his emotional response to the test results letter he received from the neurologist with his test results. Cheryl & Joel discuss the imperfections of our current health system.

28:00 - Cheryl expands on how patients who have difficulty functioning in daily life deserve access to care, for example occupational therapy, even if there is “no known cause.”

30:00 - Joel explains what his GP (primary care) said after his neurological test results were normal. He went through pain management therapy which included disability adjustment training. He made a conscious choice to put his energy into adapting to it and making peace with it, yet continues living in fear that a neurological episode will happen again.

35:30 - Joel talks about his Pain Management program, which included group therapy, individual therapy, occupational therapy, physical therapy, learning about pain and special wellbeing topics. It helps him “rewire how he thought.”

40:00 - Cheryl’s perspective about finding a balance between trying to heal or eliminate pain, and building our capacity to adapt to our life as it is, even including pain.

42:30 - Joel describes a helpful exercise from his pain management program: writing down the biggest issues with your current situation and recognizing that pain wasn’t necessarily the biggest problem, it was partly the spiraling thoughts around it.

46:30 - Cheryl’s analogy for positive versus negative thoughts - like a radio station you can choose to fight them, try to constantly turn them up or down or drown them out, or we can just acknowledge that they are simply there, sometimes they’re helpful, sometimes not and I can continue going where I want to go despite them.

48:00 - Joel’s realization that he might not be able to turn “off” the negative thoughts, but he can let them have less power over him. Example of his work as an IT manager and how he struggles with guilt when he takes time off.

51:30 - Cheryl and Joel reflect on how having to say no and take sick days challenges your sense of self. Discuss the challenges of activity pacing when you are a parent.

55:00- Concluding thoughts - link between physical and mental health. Don’t be afraid to ask your medical providers questions and be involved with decision making.

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Parenting, Faith and Respecting Different Treatment Choices: Conversation with The Rheumatoid Arthritis Mama Renee Anderson

info@myarthritislife.net (Cheryl Crow) — Tue, 4 May 2021 14:43:21 +0000

Episode at a glance:

Renee’s diagnosis journey after a decade of mystery symptoms
How rheumatoid arthritis has affected Renee’s parenting and homeschooling
Renee’s Christian faith helps her cope with challenging times
Cheryl and Renee share their different treatment choices (western medicine and natural only approaches) and how important it is to respect each other despite different choices
How Renee adopts an anti-inflammatory lifestyle
The dark side of focusing on wellness and diet: Renee shares about orthorexia, an unhealthy obsession with healthy food
Why Renee started her Rheumatoid Arthritis Mamas Sisterhood Facebook group

Speaker Bios:

Renee is a former middle school teacher turned homeschooling mom of three. She’s been married for 17 years and lives in West Michigan. She started The Rheumatoid Arthritis Mama after her RA diagnosis in late 2017 when she began sharing her journey, faith, and experiences with RA openly and authentically on Instagram and Facebook.

Since then, Renee has been interviewed by and featured in media outlets such as Healthline, Health Central, CreakyJoints, WEGO Health, Self Magazine, and more. Her Facebook support group, The Rheumatoid Arthritis Mamas Sisterhood, has nearly 2,000 members and she uses the group as a space for all women to come together regardless of their treatment choices to support one another, share their experiences, and connect with other autoimmune disease warriors.

Renee has a passion to support and encourage other women (especially moms) who are battling autoimmune diseases. Her goal is to provide others with encouragement and hope, feel less alone, and inspire them to live their best lives despite battling autoimmune disease. Her newest endeavor, a podcast called Every Day with Autoimmune, is set to launch during the summer of 2021!

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for eighteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Episode links:

Things discussed in episode
- https://www.nationaleatingdisorders.org/learn/by-eating-disorder/other/orthorexia
- ACR guidelines
- “Food freedom” Elizabeth Dahl - woman of wellness -
Renee links
- Instagram: https://www.instagram.com/the_rheumatoid_arthritis_mama/
- FB: https://www.facebook.com/TheRheumatoidArthritisMama/
- FB Support Group: http://www.facebook.com/groups/TheRheumatoidArthritisMamasSisterhood
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
- Arthritis Life Youtube channel

Here's the detailed show breakdown:

2:14 - Renee’s journey getting her RA diagnosis after a decade of mystery symptoms.

5:23 - Renee has mixed emotions after her diagnosis: fear and confusion, mixed with relief that she finally had a definitive answer.

6:45: Discussion about how common it is for people with autoimmune symptoms to be dismissed by medical professionals.

8:30 - How Renee’s three children have become more compassionate and sensitive as a result of mommy’s rheumatoid arthritis. How she initially tried to hide her diagnosis from them, and how she then realized she needed to be open with her children and husband.

13:15 - Renee opens up about her infertility journey and what she learned about communication, stress management and how to relinquish control.

15:40 - How Renee structures her daily routine to suit her RA needs and her family’s needs.

18:10 - How Renee’s Christian faith and eternal perspective helps her cope with RA.

20:00 - Cheryl reflects on how, despite being an agnostic / atheist now, she carries forward lessons she learned as a child about the importance of unconditional love and the idea that everyone is worthy even if they have a health challenge.

21:55 - Cheryl & Renee discuss how different people have different treatment paths and the divides within the RA community at times between a “natural” and a “western medication” approach. How Renee explored lifestyle and diet and worked with a functional medicine doctor.

26:35 - While Renee is able to control her RA with lifestyle and diet, she will never fault or judge anyone for taking medication.

27:35 - Cheryl’s perspective as someone on three RA medications. The importance of differentiating as patients between sharing our experiences and then making the leap that *because* it worked for me, it 100% will work for you. Important to remember the current scientific evidence at the population level favors an early aggressive medication approach.

29:20 - How Renee’ focuses on an overall anti inflammatory lifestyle; an integrative approach - not “either/or” but “both.”

30:00 - How Renee’s experience with unkindness and negativity in Facebook groups inspired her to start her own group: the Rheumatoid Arthritis Mamas Sisterhood.

34:05 - The dark side to obsessing over “healthy food,” you can become orthorexic - obsessive with eating only healthy or “clean” foods.

36:35 - Patients are the expert on our own patient journeys but that doesn’t mean that we know what will work for another patient.

37:10 Renee shares the foods that trigger *her* inflammation.

38:45 - How Renee healed herself from her negative emotions around food and has built a healthy relationship with food through Elizabeth Dahl, a food coach. How to learn food is not the enemy. Learning to be careful about what she eats without being militant has helped her.

43:35 - Discussion of disease-specific Facebook groups, how it’s important to have a place to vent sometimes but it’s also important to find groups that suit your needs, and if you’d like a more supportive and positive place there are groups for that too.

47:25 - Concluding thoughts.

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It's just a bad day, not a bad life: Julie Croner's Psoriatic Arthritis Journey

info@myarthritislife.net (Cheryl Crow) — Sat, 24 Apr 2021 20:59:04 +0000

Specific topics include:

Julie’s experience with multiple knee surgeries
Avascular Necrosis leads to Complex Regional Pain Syndrome and Julie is bedriddenfor 6 months
How a trip to Disney World led to Julie’s epiphany that she should share her story and start a blog
How Julie put her Information Technology (IT) degree to use while tracking her symptoms and discovering her unique inflammation triggers
How Julie discovered the most important tools for living a healthy, full life with PSA
Julie’s current role as a patient advocate with WEGO health
How PSA affected Julie’s dating life and how she met her now husband
Julie’s experiences with pregnancy and parenting with PSA

Speaker Bios:

Julie Croner, a psoriatic arthritis patient leader, is on a mission to advocate for ALL advocates. She's the Vice President of the Patient Leader Network at WEGO Health and was named to MM&M's inaugural class of 40 Under 40 in 2020. Julie has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more.

Episode links:

Julie’s sites:
- Blog: Itsjustabadday.com
- Twitter: twitter.com/justagoodlife
- Facebook: Facebook.com/itsjustabaddaynotlife
- Instagram: Instagram.com/itsjustabaddaynotlife
- LinkedIn: www.linkedin.com/in/juliecerrone
- Blog Email: justabaddaynotlife@gmail.com
- Work email: Julie.croner@wegohealth.com
Organizations mentioned in this interview:
- WEGO Health
- MothertoBaby - research studies of medications and pregnancy / breastfeeding
- Mindful Mamas App
Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
Cheryl’s Arthritis Life social media pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
- Arthritis Life Youtube channel

Here's the show breakdown:

1:00 - Introduction to Julie.

2:00 - Julie’s winding journey to a psoriatic arthritis diagnosis: knee surgeries / swelling from fifth grade until after college and during work as an Information Technology (IT) consultant.

4:55 - Julie gets the adult diagnosis of psoriatic arthritis (PSA) and her rheumatologist helps get it under control. She’s able to connect the dots of her chronic health issues in retrospect and see how it all relates to psoriatic arthritis (PSA).

8:24 - Julie also experiences avascular necrosis in the femur bone (leg) which led to complex regional pain syndrome (CRPS). She started connecting to other patients online, got medication for PSA and started exploring diet and lifestyle.

9:48: Julie researches anti-inflammation lifestyle approaches, and uses her IT consultant skills to make an excel spreadsheet to track everything (food, movement, mood, medications, etc) for 6 months and discovered her unique inflammation and flare triggers.

10:55 The BEST thing she did in her journey!

11:20 - Julie discovers that her body is sensitive to food triggers. She discovers that gentle movement, meditation and mindfulness helps her. She continues going on and off medications when needed.

12:40 - Cheryl reflects on the importance of discovering your own unique triggers and not thinking there is a one size all solution.

14:00 - Julie’s worst food triggers for joint inflammation. (15:12)

15:44 - Julie is bedridden for 6 months due to her Avasular Necrosis and is depressed. Her parents take her to DisneyWorld and she has an epiphany after doing a singing competition! She decides to share her story through starting a blog: “It’s just a bad day not a bad life.”

19:20 - After being on disability for four years, she decides to focus on a career in patient advocacy rather than IT consulting.

20:30 - Julie starts working for WEGO Health, a network of patient leaders. She helps patients and loved ones use their story and get connected to companies wanting their insights.

23:40 - Why Julie thinks it’s so important for patients to share our stories: how she found an answer to her avascular necrosis due to seeing another patient’s story online.

26:50 - How Julie’s health conditions affected her dating life, and how she met her husband. Her husband said, “You talk like you USED to be great, and the person I see IS really great! (28:13)”

30:00 - How did PSA affect her family planning with her spouse who is in the army. When pregnant she felt very nervous and overwhelmed. She signed up for a MothertoBaby study.

33:45 - During her first pregnancy PSA went into remission, psoriasis in 1st trimester. Second pregnancy didn’t go into remission.

35:15 - What helped her when babies were little: asking for help, planning ahead, pacing yourself.

37:15: How Julie copes with big emotions while parenting: Headspace app and Mindful Mamas app.

39:36 - Julie’s best advice for newly diagnosed patients - empower yourself and be a partner with your medical team.

40:45 - Cheryl and Julie’s advice to patients who are overwhelmed when “doing their own research” - how to evaluate which resources are high quality information and which are low quality or dangerous. Reflections on how to navigate disease-specific Facebook groups.

44:15: Julie’s concluding thoughts: if you are dealing with an autoimmune disease, you are not alone.

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From Devastated to Patient Leader: Eileen Davidson’s Rheumatoid Arthritis Story

info@myarthritislife.net (Cheryl Crow) — Thu, 15 Apr 2021 19:12:50 +0000

Episode at a glance:

Eileen shares her rocky road to an RA diagnosis when he son was two years old
How Eileen's blog led her to patient advocacy and research
How symptom tracking helped Eileen reduce pain and improve fatigue
How exercise helps Eileen reduce pain and improve fatigue
What it's like to be a single mom with RA
Reflections on mental health while living with chronic illness

Speaker bios:

Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver British Columbia Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador. When not advocating she is writing about her experience with arthritis through Creaky Joints, Chronic Eileen or can be found being a mom to her son Jacob.

This episode is brought to you by Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

Episode links:

Find Elieen’s writing on:
- Chronic Eileen - Eileen’s blog and website
- Arthritis Society - Canadian nonprofit
- Arthritis Research Canada
- CreakyJoints - research opportunities and Eileen’s writing
- Arthritis Power app from CreakyJoints
- Arthritis Foundation - research and advocacy opportunities
- American College of Rheumatology - patient advocacy and engagement opportunities
- What it’s like to have a mom with arthritis: Article written by Eileen’s son Jacob
- Example article of Eileen’s from Healthline
- Eileen on Instagram: @chroniceileen
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
- Facebook group: Arthritis Life Podcast, Practical Tips and Positive, Realistic Support
Arthritis Life Program Links
- Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
- Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
Cheryl’s Arthritis Life pages:
- Cheryl & Arthritis Life on Instagram
- Cheryl’s website: Arthritis Life
- Arthritis Life Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
- Arthritis Life Youtube channel

Here's the show breakdown:

1:40 - Eileen’s diagnosis story: many years of symptoms prior to her diagnosis when her son was two years old.

5:50 - How Eileen’s symptoms affected her ability to take care of her baby.

8:16 - Eileen’s devastation after receiving her diagnosis due to seeing her aunt suffer from severe rheumatoid arthritis and pass away the same week.

10:00 - How Eileen learned to trust her medical providers.

11:20 - What helped Eileen learn to cope with her RA and share her story publicly; how others responded to her story and how writing introduced her to advocacy efforts.

15:00 - How others’ negativity motivated Eileen, and Eileen shares some of the positive responses to her writing.

17:45 - Eileen describes participating in arthritis research on symptom tracking using a FitBit, with a physiotherapist. Through tracking she started seeing patterns between menstrual cycle, sleep, exercise, rest.

22:30 - Eileen learned the benefits of strength training and helped researchers explore barriers to patients participating in strength training.

26:00 - Physical activity doesn’t have to look like formal exercise, it can be as simple as gardening, Zumba, yoga, or dancing.

29:00 - How the pandemic affected Eileen’s exercise routine and pain levels.

31:30 - How exercise helps Eileen with fatigue.

34:00 - Eileen shares her journey with depression and mental health.

36:20- What’s helped Eileen cope with depression and anxiety from rheumatoid arthritis & pain.

38:00 - Eileen’s advice to other parents with rheumatoid arthritis and reflections on what her son has learned from having a mom with a disability.

41:00 - How her rheumatoid arthritis has made her a better mom and changed her priorities

44:20 - The different forms patient advocacy can take.

46:00 - Eileen’s final message: if you’re interested in getting involved in research, don’t hesitate!

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Pregnancy and Parenting with Psoriatic Arthritis: Jamie’s Story

info@myarthritislife.net (Cheryl Crow) — Thu, 1 Apr 2021 22:52:47 +0000

In this episode, Cheryl & Jamie discuss:

Jamie’s challenging diagnosis journey
The difference between her pre-psoriatic arthritis pregnancy and parenting experience and her experience being pregnant with psoriatic arthritis, including a discussion of medications
The difficulties of being a young person with rheumatic disease
The challenges of family planning with rheumatic disease: whether to have another child or not?
What it’s like to live with anxiety along with rheumatic disease
Balancing gratitude and grief
Learning to overcome “mom guilt”
Our children need us to be present not perfect

Speaker bios:

Jamie lives in Gloucestershire, England, with her husband and their two children; Harper aged 4 and Kit who is almost 5 months. She was diagnosed with psoriatic arthritis in early 2019 and is still in the process of “learning” her condition. She is a freelance writer and self proclaimed coffee addict who is passionate about combining traditional and holistic approaches to find the best combination to manage her chronic illness.

Episode links:

Resources mentioned in the episode:
Jamie’s Socials
- Instagram @mama.bear.squares
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Cheryl’s Arthritis Life social media pages:
- Cheryl on Instagram
- Cheryl’s website: Arthritis Life
- Cheryl’s Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support

Medical disclaimer:

Here's the show breakdown:

01:00 – Jamie’s introduction and her initial health issues: consistent pain in her fingers, spine, and neck after her first child was around two years old.

05:00 – Jamie struggles to get treated seriously by doctors. She’s diagnosed with psoriatic arthritis after originally her doctors said she was “too young” for it.

5:35 - She and Cheryl discuss their similar diagnosis journeys with medical gaslighting, how both of them had to have their parents advocate for them and spend money on additional doctors before they got their diagnoses.

7:30 - Discussion of anxiety as a result of untreated / undiagnosed chronic illness. Jamie & Cheryl discuss their experiences getting therapy for anxiety and coming to terms with it.

9:45 – Jamie’s first pregnancy without psoriatic arthritis, as compared to her second pregnancy with it. Discussion about medication decisions and how difficult it was to decide whether to have another child or not.

12:08 - What was it like to be pregnant with psoriatic arthritis during COVID19 pandemic (in 2020)? Includes a discussion about the pregnancy-induced remission she experienced.

14:30 Jamie discusses her experiences breastfeeding and difficult postpartum medication decisions. Cheryl and Jamie discuss how complicated medical decisions are in the context of a family system, not just what’s “best” for the baby.

16:30 - Jamie discusses comfortable ways to hold the baby during breastfeeding and the ways in which aspects of the newborn process are easier due to lockdown.

18:00 - Jamie discusses her mixed feelings about using adaptive aids or gadgets in the home, as a young person with arthritis.

20:00 - Balancing gratitude and grief as a mom with a disability.

22:00 - The importance of learning how to adapt continuously, rather than seeing your chronic illness as having an “end point.”

23:15 - How Jamie’s flare up affects her ability to parent her “big kid” (her 4 year old) and her feelings of mom guilt, complicated by the fact that she’s experienced parenting her child prior to her diagnosis.

26:10 - Cheryl and Jamie discuss how difficult it can be to decide whether to have additional children when you have a rheumatic disease, and how to spread out the space between your children.

34:45 - Cheryl parenting mantra: “My son needs me to be present, not perfect.”

36:00 - Learning to enjoy the simple pleasures with your children.

39:00 - How Cheryl & Jamie explain their conditions to their children and how it’s helped their children develop empathy.

42:00 - Coping with feelings of “unfairness” when you get diagnosed with an autoimmune disease when you had previously been healthy and had healthy behaviors.

45:00 - Fears of passing your autoimmune condition on to your children.

47:45 - Mamas Facing Forward - resource for moms and moms to be living with chronic illness. Includes books for children about parents that have disabilities.

50:00 - The importance of having clear expectations to your partner and delegating if possible when raising children.

55:00 - The role social media plays in Jamie & Cheryl’s lives; a blessing and a curse. It can be confusing as the diseases differ drastically between people.

58:00 - What the word “progressive” meant to Jamie when diagnosed and how that has changed over time with the modern treatment options and medication.

1:01:00 - Cheryl’s experience when newly diagnosed, having faith in the medications.

1:05:00 - The importance of considering how representative the stories that you’re looking at on social media are. When things are going well, people aren’t on the disease-specific social media groups.

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Can you Live a Normal Life with Rheumatoid Arthritis?

info@myarthritislife.net (Cheryl Crow) — Sat, 27 Mar 2021 17:53:28 +0000

In this episode Cheryl explains how Acceptance and Commitment Therapy (ACT) has been key for her to build a life she loves despite chronic illnesses. She also shares how she’s found a balance between ways to minimize pain and ways to live a good life despite pain. Additionally she urges listeners to ask, “Can I live a good life despite rheumatoid arthritis?” rather than “Can I live a normal life with rheumatoid arthritis?”

Speaker bio:

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.

Links to things discussed in the podcast episode:

Rheum to THRIVE membership - sign up today (registration closes on March 31)!
Articles mentioned in this episode:
- Summary of research article: “Rheumatoid arthritis: 80% of sufferers can now live a “normal” life
- JAMA article: Diagnosis and Management of Rheumatoid Arthritis: A Review
- Marcel the Shell with Shoes on (“Compared to what?”)
- Russ Harris: The Happiness Trap
- Acceptance and Commitment Therapy info page
- 8 Lessons Learned Postpartum - my blog post from 2014
- 10 years with RA - what’s the impact? - blog post from 2013
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Cheryl’s Arthritis Life social media pages:
- Cheryl on Instagram
- Cheryl’s website: Arthritis Life
- Cheryl’s Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
Free Facebook group to discuss the podcast and connect further with others: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support

Show notes:

1:20 - Why I chose this topic for today’s episode.
3:00 - Does “normal” mean lack of severe joint damage? Research study showed 80% of people with rheumatoid arthritis can live a “normal life.”
5:00 - What is your definition of normal - compared to what?
7:00 Is a “normal life” the exact life I imagined for myself pre-diagnosis?
7:55 - Is a “normal life” one where I can experience things that are important and achieve meaningful goals and life experiences?
10:05 - Can you live a normal life with RA? It depends on what your definition is, and what your hopes and dreams are underneath your concept of normal.
10:35: You may not get the normal you wanted or expected, but can you find a NEW normal you can learn to love?
12:40 - There is no guarantee for anyone of a pain free life. Confronting that reality head on can free us from pressure and energy to try to achieve a perfectly pain free life, which is impossible for most.
15:00 - How my therapists taught me the futility of trying to avoid pain and anxiety.
15:45: “The hope is that you can still live a good life despite inevitable pain and suffering, that’s the hope, the hope isn’t that you can avoid it, because avoidance is not a long term sustainable strategy .”
16:00 - We can and should gather evidence based tools to manage and minimize our pain and function on a daily basis, however: “If we ONLY focus on the tools to MINIMIZE pain, the problem can be the expectation or belief that we attach to the idea that if we JUST have the right tools we are going to 100% be guaranteed to avoid all pain, and I do wish that were true, but realistically it’s just not true for most people because, pain, physical or mental, is an inevitable part of the human experience.”
17:15 - Difference between pain and suffering.
17:55 - I was dragged “kicking and screaming” into acceptance. If you are confused, you’re not alone!
18:45: True acceptance of the PRESENT moment is completely different than giving up or resignation.
20:10 - When we’ve done everything we can to reduce pain, instead of struggling with that, we can focus on: what can we still do in the present moment? What can I still DO that ’s important or valuable to me, DESPITE the pain? I eventually learned to let go of the illusion that if I just do the RIGHT THING I could ALWAYS avoid pain, and once I let go, I was set free.
21:30 - Balancing act between plan A (using tools to minimize symptoms) and plan B (tools to “workaround” symptoms and function despite them).
22:20 - We spend a lot of time running away from pain and running away from our disease, but what if we spent more time running TOWARDS things we can still do that are valuable?
23:05 - What I dislike about a “normal” life being defined as one without disease - feels ableist to me
24:15 - My old optimism: if I just find the right solution my pain will go away, RA will have no affect on my life. New optimism: me and people with it can still live rich, meaningful lives DESPITE discomfort.
27:15 - My new mission: finding a balance between controlling symptoms/minimizing symptoms *and* focusing on maximizing our quality of life despite it.
27:30 - Why I developed Rheum to THRIVE membership community and what it stands for.
28:45 - So many people get stuck in this mentality that they have to WAIT until their symptoms are fully controlled before attempting to thrive or live a full life, and I really encourage you to see what is still possible in your life. What can you still do and enjoy and accomplish despite your condition?
29:25: Can you live a normal life with RA? Depends on your definition of normal!
29:45 - The question I like to ask more than “can I live a normal life with RA:” Can I live a GOOD life with RA? Can I be of service to others, can I leave the world better when I leave it than when I found it? I think YES.

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What do you do when you hit rock bottom from chronic pain? Mindfulness, Acceptance and more with James Allen

info@myarthritislife.net (Cheryl Crow) — Wed, 17 Mar 2021 18:04:05 +0000

James and Cheryl discuss in detail how they manage fluctuating symptoms and pain from chronic rheumatic diseases. James also explains how his patient journey led him to create his innovative 3-D symptom tracker app, Chronic Insights.

Speaker bios:

James Allen is 39, and has lived with ankylosing spondylitis (AS) for 22 years. He likes to think of arthritis as a clumsy housemate who moved in without permission, who he used to hate but over the years he’s grown to kind of like. It forced him to leave his job as an IT consultant, which in retrospect has been a positive development, because now he’s doing something he really loves - developing a symptom diary app called Chronic Insights.

Episode links:

Where to follow James:
- James’ Chronic Insights Instagram: @chronicinsights
- Email James: james@chronicinsights.com
- Website: https://chronicinsights.com/
Book James Recommends: “Practicing Mindfulness” audio book
Cheryl’s free webinar on March 26th - Sign up here
Wait list for Rheum to THRIVE membership
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Cheryl’s Arthritis Life social media pages:
- Cheryl on Instagram
- Cheryl’s website: Arthritis Life
- Cheryl’s Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
Free Facebook group to discuss the podcast and connect further with others: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support

Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

02:30 - James shares his relationship to his Ankylosing Spondylitis (AS), it’s like someone who moves into your house who at first you try to make go away, then you make peace with it.
05:30- Cheryl and James discuss how metaphors and Acceptance and Commitment Therapy (ACT) help them cope with chronic illness.
10:00 - James’ journey getting his initial diagnosis of Ankylosing Spondylitis quickly due to his dad’s help.
12:20 - James’ journey managing his AS; initially it was pushed to the back of his mind, then it gradually worsened over time and he sought therapy to help with the struggle.
17:10 - Cheryl and James’ important lessons/insights about the importance of communicating your pain levels to your providers. How hard it can be to admit you are in a lot of pain.
19:40 - James’ switch to his first biologic, Humira and how it changed his life for the better.
21:00 - Cheryl and James discuss the phenomenon that many patients are scared of medications, and how the risk / benefit analysis is different for each patient.
23:50 - James enjoys activities like running a half marathon while his medication worked. Then, experiences his medication wearing off after years of success, which was a massive blow mentally.
25:50 - James starting over with medications, trying different biologics. He experiences progressive deterioration of his health which negatively affects his work life.
30:50 - James’ condition progresses to where he has difficulty getting out of bed and his partner has to help him with daily living tasks. He hits rock bottom.
32:50 - James comes across meditation and mindfulness, leading to breakthroughs in his ability to manage and cope with pain. He learns to be curious about his pain and develops the ability to observe himself and empathize with his experiencing pain, and eventually accept it.
36:50 - Cheryl explains the importance of the developing mental tools to cope with the uncertainties that come with chronic pain and chronic illness.
39:50 - James discovers slow and gentle somatic exercise, which helps him relax and relieves joint stiffness and tension.
41:50 - The benefits of the reclined exercise bike and a sit/standing desk for James’ back and hip pain.
43:50 - How James sometimes allows himself to have a “bad day” and wallow to help his mental wellbeing.
46:50 - Cheryl dives into acceptance and commitment therapy.
48:50 - James’ challenges with difficulty rating his pain on a scale of 1-10, and why that inspired him to create an app for tracking symptoms.
51:20 - Cheryl and James explain the difficulties of rating pain.
53:00 – James elaborating on how he developed his symptom diary app, Chronic Insights, which allows you to draw your symptoms onto an interactive 3-D model.
57:00 - James’ shares the impact of having a visual representation of your pain (via his app), and shares the feedback from others who’ve been using the app.
1:04:00 - Where you can find James

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How can Lifestyle and Integrative Medicine Help People with Rheumatic Diseases? With Dr. Yu

info@myarthritislife.net (Cheryl Crow) — Wed, 3 Mar 2021 13:00:00 +0000

Speaker biographies:

Dr. Micah Yu is double board-certified in internal medicine and lifestyle medicine. He obtained his MD from Chicago Medical School and holds a Masters in Healthcare Administration and Biomedical sciences. He completed his internal medicine residency and rheumatology fellowship at Loma Linda University in Southern California. He has been accepted with a full scholarship to the Andrew Weil Integrative Medicine Fellowship at the University of Arizona. Dr. Yu has a very unique perspective on autoimmune disease and arthritis as he is both a patient with arthritis and a physician.

Links to things discussed in the episode:

Dr Micah Yu website /socials
- Clinic website: www.drlifestyle.org
- TikTok: @myautoimmunemd http://tiktok.com/@myautoimmunemd
- Instagram @myautoimmunemd http://instagram.com/myautoimmunemd
- Youtube: Dr Lifestyle https://www.youtube.com/channel/UCxUp6EwvcIntKm6o4jn6sIA
- Facebook: https://www.facebook.com/MYAutoimmuneMD/
- Twitter: https://twitter.com/myautoimmunemd
Dr Yu’s Recommended reading / viewing:
- Documentary - Forks over Knives
- Book - How Not to Die
- Dr. Andrew Weil
- U of Arizona Integrative Medicine
Arthritis Foundation episode on CBD
Cheryl’s Arthritis Life freebies:
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Free Training: Arthritis Life Hack Crash Course
Cheryl’s Arthritis Life social media pages:
- Cheryl on Instagram
- Cheryl’s website: Arthritis Life
- Cheryl’s Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s Twitter: @realcc
Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Here's the show breakdown:

01:15 - Rheumatologist Dr. Yu’s journey first with gout, then diffuse joint pain while in medical school, then a diagnosis of spondyloarthritis during his fellowship.
4:30 - What made Dr. Yu want to pursue Rheumatology.
6:00 - Dr. Yu pursues Integrative Medicine and the 6 pillars of Lifestyle Medicine with the help of his wife, also a physician. He adopts a whole food, plant based vegan diet and experiences huge improvements shown in lab work, pain levels and overall weight within 2-3 months.
8:28 - Dr. Yu explains what “Integrative Medicine” is and explains the process he’s going through to get board certified in it, including learning about Chinese medicine, ayurveda, herbal medicine and more.
9:51 - Dr. Yu explains what the newer field of “Lifestyle Medicine” is, and the overlap between the two.
10:30 - How can an appointment with an integrative medicine Rheumatologist differ from an appointment with a typical Rheumatologist? Discussions of nutrition, sleep, stress and whether medications are necessary.
12:00 - Cheryl and Dr. Yu discuss the importance of each patient’s treatment plan being individualized and customized to them, and how it can be a source of confusion for newly diagnosed patients when they see that someone else with their “same” diagnosis has a different treatment plan. For example, one person with severe disease who is afraid of medication might be confused why another patient (with more mild disease) was told they could avoid meds.
15:08 - Dr. Yu answers some of the most frequently asked questions about diet and rheumatic disease (vegan diet, plant based, Mediterranean, Paleo and more). Explanation of the influence of the gut microbiome on autoimmune disease
18:50 - Dr. Yu explains which supplements can help with rheumatic diseases and inflammation.
20:15- Dr. Yu shares tips for fatigue.
21:30- Definition of “Functional Medicine” and his recommendations on finding a provider with valid credentials.
23:35 - Cheryl and Dr. Yu discuss the importance of sleep, ruling out a sleep disorder and how poor sleep contributes to fatigue and inflammation.
24:45 - Dr. Yu discusses evidence for THC and CBD for it’s anti-inflammatory and pain relief properties.
26:00 - Is it hard being a patient and provider in Rheumatology? How Dr. Yu’s passion pushes him through the long hours!
28:45 - If Dr. Yu could change anything about Medical School, what would he do?
30:00 - Reflections on how the gray areas in between Integrative / Natural medicine and Western Medicine can be difficult for patients who have anxiety about their condition. How Dr. Yu finds a middle ground with his patients - combining medicines and natural alternatives.
31:30 - Dr. Yu’s message to patients who are afraid of medications.
33:25 - How do you find a Rheumatologist who also has an Integrative Medicine board certification?
34:45 - Where can people find Dr. Yu online?

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How to Balance Western Medicine and Alternative Medicine Approaches with Dr. Wada

info@myarthritislife.net (Cheryl Crow) — Thu, 25 Feb 2021 22:48:00 +0000

Dr. Kara Wada is an Assistant Clinical Professor and Associate Fellowship Program Director of Allergy/Immunology at the Ohio State University in Columbus, Ohio. She graduated from the University of Illinois College of Medicine and completed her Internal Medicine and Pediatrics Residency and Allergy/Immunology Fellowship at the Ohio State University and Nationwide Children’s Hospital.

After having completed additional fellowship training in medical education, Dr. Wada is passionate about building meaningful connection and therapeutic relationships with her patients and inspiring future physicians to do the same. She seeks to empower her patients and coaching clients with a naturally-minded and scientifically-grounded approach to care. She speaks nationally on topics including medical education, allergic and immunologic conditions. Outside of her work, she is an autoimmune patient, a food allergy mom of 2 spunky daughters, and wife to another Dr. Wada.

Links to things discussed in the episode:

Where to find Dr. Kara Wada
- www.crunchyallergist.com
- www.instagram.com/crunchyallergist
- www.facebook.com/groups/crunchyallergist
- www.twitter.com/crunchyallergy
- Clubhouse @crunchyallergy
What is a Allergist Immunologist?
DR. Kara’s Recommendations:
- Sleep book
- University of Arizona Integrative Medicine website -
- Book - Nourish
Cheryl's Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
Cheryl on Instagram
Cheryl’s website: Arthritis Life
Cheryl’s Tiktok: @ArthritisLife
Arthritis Life Facebook Page
Cheryl’s Twitter: @realcc
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Here's the show breakdown:

01:25 - Introduction: Dr. Kara’s job as an Allergist Immunologist doctor at an academic medical center, journey with the autoimmune disease Sjogren's syndrome, and her role as a mother to a child with food allergy.
4:10 - Dr. Kara’s experience having to advocate to get the blood testing and labs drawn for Sjogren’s disease while she was a medical intern.
6:30 - Reflections on the power dynamics in physician - patient relationships and the importance of two way communication.
8:38 - Dr. Kara’s tips on how to develop a trusting relationship with a physician.
13:48 - How Dr. Kara uses a shared decision making to work together with patients, rather than the old model where the doctor told patients what to do.
16:28- Dr. Kara explains the difference between an Allergist Immunologist and a Rheumatologist, and explains how allergist immunologists do more than “just” allergies.
20:25 - How Dr. Kara manages her Sjogren’s currently, with an emphasis on the word “and” (western medicine and other “crunchy” alternatives). An explanation of Dr. Kara’s anti-inflammatory living techniques: food, meditation, and most importantly sleep to support health and healing.
25:10 - How Dr. Kara un-learned her perfectionist tendencies, and Cheryl & Dr. Kara reflect on how parenting helped them lean into “progress over perfection.”
26:28: Reflections on how to accept the reality: you can do everything right, and sometimes your body is going to have a mind of its own. How to accept the element of randomness and move on with an empowered and self-compassionate mindset rather than letting it get us down.
27:00 - Dr. Kara explains how she finds a balance between conventional and complementary alternative treatments: “weeding out the woo.”
31:10 - The warning signs to look out for when looking at different complementary alternative treatment options
33:10 - Dr. Kara explains how the supplement industry is not regulated and can be dangerous and shares her own experience of experiencing liver abnormalities after taking a “superfood” supplement.
36:44 - The importance of a personalized care plan and getting a variety of specialists on your care team.
38:43 - Just because it’s natural doesn’t mean that it’s healthy. Dr. Kara and Cheryl dive into the balance between being open minded and skeptical about alternative methods of managing rheumatic diseases like rheumatoid arthritis and Sjogren’s.
41:00 - Dr. Kara and Cheryl’s discuss the importance of an individualized risk / benefit analysis when trying any new approach (including financial risks / investments, time risks / investments and health risks / investments / benefits).
45:02 - Dr. Kara’s recommended resources for patients looking into alternative options: University of Arizona’s Website.
46:55- Dr. Kara’s advice about lab tests that are marketed as “the tests your doctor doesn’t know to give you,” particularly for “food sensitivities” or food intolerances.
48:33 - Cheryl & Dr. Wada reflect on how to still feel empowered when facing the truth that there may be no “magic wand” solution for rheumatic diseases.
49:05 - Importance of making your ordinary routine fun in small ways to add up to larger gains in health over time. Reflections that many people with rheumatic diseases don’t need many supplements.

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How can Water Exercise and Aquatic Yoga help people with Arthritis and Rheumatic Diseases?

info@myarthritislife.net (Cheryl Crow) — Fri, 12 Feb 2021 04:17:44 +0000

Christa Fairbrother is a skilled and experienced water aerobics and aqua yoga instructor who also lives with multiple chronic illnesses. For Christa, living with arthritis and teaching yoga are integrated. She credits her lack of pain to aqua yoga practice. Being passionate about aqua yoga, she wants to see aqua yoga in more communities worldwide.

Here's the show breakdown:

01:15 - Christa’s diagnosis journey: symptoms of RA and Lupus symptoms started at age 12, initial diagnosis of Mixed Connective Tissue Disease (MCTD) after the birth of her 2nd son.

05:05 - Christa’s MCTD symptoms (including Raynaud’s) and why it’s so hard to get this rare diagnosis.

8:00 - Christa and Cheryl reflect on what it’s like to live with multiple chronic conditions, not knowing at times what is causing which symptom.

10:40 - Christa’s up and down journey managing her conditions over many years.

15:30 - Cheryl and Christa explain what connective tissue and fascia are.

17:33 - Christa’s journey with yoga, which started when she had back pain being a farrier (a craftsperson who trims and shoes horses' hooves).

19:40 - After 20 years of doing yoga, Christa became a yoga instructor.

22:11 - What is aqua yoga, and how Christa discovered and fell in love with it.

25:33 - The numerous medical benefits of exercise in the water for healthy people and those living with arthritis.

32:15 - Christa’s explanation of the offloading of gravity in the water due to buoyancy and how it gives your muscles a more balanced effort.

34:55 - Christa discusses how accessible swimming pools are in the US.

38:55 - Thoughts around safety and germs with aqua yoga and swimming during the COVID-19 pandemic.

41:55 - Interested in the Arthritis Foundation’s aqua therapy program? Here is how you can find it at a local water center!

44:40 - Christa describes what happens in an aqua aerobics class.

47:43 - Cheryl and Christa’s insights on why group classes make people feel empowered, especially during COVID-19.

50:56 - Cheryl and Christa’s views on how the sensory elements of water can help regulate our mood, from prenatal experiences to adulthood.

55:25 - Christa’s advice on what to do if your joints hurt in the water.

1:01:30 - Salt water pools VS. Chlorine pools and water safety advice that you may not be aware of.

Episode links:

Christa’s website
Christa’s Facebook
Christa’s Instagram
Christa’s Pinterest
Book Christa recommended: Vivek Murphy - “Together”
A handout about the AFAP - Arthritis Foundation Aquatic Program
https://arthritis.yoga/
Resources from the aquatic therapy and rehab institute- plus this article
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
Cheryl on Instagram
Cheryl’s website: Arthritis Life
Cheryl’s Tiktok: @ArthritisLife
Arthritis Life Facebook Page
Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Twitter: @realcc
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Life with Arthritis is a Marathon, Not a Sprint: Christy Williams’ Story

info@myarthritislife.net (Cheryl Crow) — Thu, 4 Feb 2021 17:00:32 +0000

Christy Williams is a certified health coach, wife, mother of two and endurance athlete/triathlete. She has been living with an autoimmune disease called Sero-negative spondylarthopathy (blood negative inflammatory arthritis) since the age of 24. She is now 48 and has been in remission for 15 years due to a combination of Remicade (a biologic disease modifier) and an active healthy lifestyle.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She is passionate about helping others with rheumatoid arthritis thrive despite arthritis. She formed the educational company Arthritis Life in 2019 after seeing a need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Episode links:

Christy’s Instagram: @coachchristy10
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
The Happiness Trap book by Russ Harris
Cheryl on Instagram
Cheryl’s website: Arthritis Life
Cheryl’s Tiktok: @ArthritisLife
Arthritis Life Facebook Page
Cheryl’s Twitter: @realcc
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage everyday life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Show Breakdown:

01:00 – Christy shares her diagnosis at 24 after the birth of her first child, and her transition into adulthood.
03:20 – Christy’s tenacious drive to stay active, her journey completing an ironman challenge.
5:35: How Christy has managed her inflammatory arthritis over the years: it’s a marathon not a sprint! How she went from being in a wheelchair to completing triathalons after figuring out the right medication and lifestyle interventions such as exercise.
8:00 - Christy explains how fatigue still affects her quality of life, and how she copes with it by pacing herself.
13:05– Christy shares why and how she became a health coach for people with autoimmune disease, after she achieved remission.
20:30 – How having an autoimmune disease sparked Christy and Cheryl to confront their mortality.
23:10 – Christy’s definition of “remission,” and additional reflections on the fact that no two paths towards remission are the same.
30:10 – Cheryl and Christy share different debates and challenges within the chronic illness community, including medication shaming, or shaming of people who celebrate natural methods.
34:40 - Cheryl reflects on how she’s tried to strike a balance between celebrating how well Western medications have worked for her and also respecting others’ choices if they differ, and how patients within the chronic illness community can unite in our common goals and consider the intent of our messages when we communicate our journeys.
36:00 - How Christy & Cheryl cope with unsolicited advice.
38:00 - How Cheryl’s therapy helped her cope with uncertainty and gray areas during treatment for RA.
41:25 – How Christy has managed her attitude and mindset during the ups and downs of life with inflammatory arthritis.
43:38– Cheryl shares how Acceptance and Commitment Therapy transformed her relationship to uncertainty as a chronic illness patient, and how anxiety makes you want black and white answers and certainty.
50:00 – Common misconceptions and myths around arthritis and remission.
54:27 – Christy’s advice for anyone battling chronic illness and her best coping mechanisms dealing with uncertainty
57:00 - Christy’s pre-diagnosis challenges with people not believing her.
1:03:00 - The importance of sharing our stories, even if we get criticized or misunderstood!

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It's Not Just Joint Pain, and 8 other Things Everyone who Loves Someone with Arthritis Should Know

info@myarthritislife.net (Cheryl Crow) — Thu, 21 Jan 2021 00:58:21 +0000

Episode at a Glance:

0:48: Episode intro
2:50: One - We want you to learn what the disease is and isn’t.
9:55: Two - The fatigue can be just as bad as the pain.
15:48: Three - It doesn’t just affect the body - it also affects the mind and emotions.
20:20**: Four** - It affects EACH person differently.
22:50: Five - Daily symptoms are often unpredictable.
25:45**: Six -** We want credit for how hard we’re fighting, even when we seem “normal.”
27:54: Seven - Sometimes we need problem solving, other times we need empathy.
34:30: Eight - Managing the disease itself is a job that takes time and energy.
35:55: Bonus point: Take care of YOUR needs as the caregiver/friend
37:10: Concluding thoughts

Medical disclaimer:

Episode Sponsors

Links to things discussed in this episode:

Free webinar: How to Use Social Media and Online Information as an RA patient Without Wanting to Tear your Hair Out
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Arthritis Life Instagram
Arthritis Life website
@ArthritisLife on Tiktok
Arthritis Life Facebook Page
Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
Cheryl’s Twitter: @realcc

Thank you so much to episode contributors from Instagram:

@Sophialwebb_ , @mhaggerty_ , @mariavgi , @warriorsmovemountains , @worldofOT , @shelly_steele , _brittanbee_ , @theinvisiblemewarriorspbc , @znev.alia , @aimeefb, @mrs_Alix_Naber, @Lailaschneider, @kat.panning, @Annafitandbeautiful, @danicreegs, @floopilicious, @wsmommie, @house_of_spoons, @Bto22, @diana_rosas023, @chaichat023, @kheartsphotos, @pdxfashionista, @stephanielabonte, @shelly_steele + numerous anonymous contributors!

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Arthritis Storytelling Hour - 13 Patient Stories in 90 Minutes

info@myarthritislife.net (Cheryl Crow) — Tue, 12 Jan 2021 22:59:55 +0000

In December 2020, Arthritis Life hosted an “Arthritis Storytelling Hour” where thirteen patients shared vivid tales from their lives.

Listen and learn about how difficult the diagnosis process is for some, how people with rheumatoid arthritis and ankylosing spondylitis learned to advocate for themselves, how to navigate work life with your condition, what it’s like to be a “spoonie mom,” the importance of mindset, acceptance and self-care, and more!

Video details:

Topic: basics of life with RA, diagnosis stories, how diagnosis led to career

1:28 - Chloe Umpleby JIA (Juvenile Idiopathic Arthritis) journey
6:21 - Kia Peters: diagnosis of RA (rheumatoid arthritis) during graduate school
11:00 - Sammantha Dorazio: diagnosis led to career as Nurse Practitioner
14:20-Paulina Burzynsk: how RA helped her take better care of your body

Topic: Advocacy / learning to speak up

24:30 - Jed Finley example of how he learned how to advocate for himself in the context of medical appointments for his ankylosing spondylitis
30:00 - Mimi Cross - how she learned that if something makes you uncomfortable you need to speak up even if that feels awkward

RA’s effect on work

36:13 - Sarah Dillingham - how she became comfortable talking about RA at work
42:30 - Effie Koliopoulos - how RA led her to her passion for writing

RA’s and family

46:20 - Ushma Sampat - how RA affects family relationships and life partnership / marriage
54:50 - Jes Hosjan How AS affects her experience as a mom and how she learned to advocate as a “spoonie mom!”

Humor and Mindset

1:03:02 - Cristina Montoya - Humorous take on life with RA
1:10:17 - Krista - Her experience chasing a past life to be the same “pre diagnosis” and how she learned to embrace the present
1:17:44 - Cheryl Crow - My journey to acceptance of discomfort and uncertainty in life, how ACT (acceptance and commitment therapy) and my two therapists helped me!

Chloe Umplby - instagram @xchloeumplebyx/ and @spoonfulofchronic/
- Chloe’s Instagram, Chronically Happy Instagram, Spoonful of Chronic shop
Kia Peters Instagram https://www.instagram.com/livewellwithkia/
- Instagram @LiveWellWithKia
Sammantha Dorazio https://www.instagram.com/samdorazio8/
- Sammantha’s Instagram
Paulina Burzynsk https://www.instagram.com/with.paulina/
- Paulina’s Instagram & Chronically Happy Instagram
- Paulina’s Website
Jed Finley Jed’s twitter https://twitter.com/JediMaster941 and Instagram https://www.instagram.com/jedimaster941/
Mimi Cross - https://www.instagram.com/inflammationvacation/
- Mimi’s Instagram, Inflammation Vacation Instagram
- Inflammation Vacation website
Sarah Dillingham - Grace and Able page , Women with Rheumatoid Disease Facebook Group https://www.facebook.com/groups/WomenwithRD
- Grace & Able: Sarah’s company making comfortable and visually appealing wrist braces
- Women with Rheumatoid Disease - Sarah’s Facebook group & page
Effie Koliopoulos - Effie’s blog: https://risingabovera.com/ Effie’s Instagram https://www.instagram.com/risingabovera/
- Effie’s Blog
- Effie’s Instagram
- Effie’s Twitter
- Effie’s Rising Above RA RAra Shop Designs (Merch):
- Effie’s Youtube Channel: RA and Myself
Ushma Sampat - Ushma’s Instagram https://www.instagram.com/worldofot/
- Ushma’s Instagram
Jes Hosjan - Instagram https://www.instagram.com/house_of_spoons/
Cristina Montoya - on Instagram at https://www.instagram.com/arthritisdietitian/
- Cristina’s Instagram
- Cristina’s blog
Krista Rowan - Instagram https://www.instagram.com/kickra18/, TikTok https://www.tiktok.com/@kickra18
Cheryl Crow: instagram https://www.instagram.com/arthritis_life_cheryl/, website https://arthritis.theenthusiasticlife.com/, tiktok https://www.tiktok.com/@arthritislife, free facebook group https://www.facebook.com/groups/arthritislifepodcastandsupport
- Cheryl on Instagram
- Cheryl’s website: Arthritis Life
- Cheryl’s Tiktok: @ArthritisLife
- Arthritis Life Facebook Page
- Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Cheryl’s Twitter: @realcc

This video is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl Crow created to empower people with tools to confidently manage their social, emotional and physical lives with rheumatoid arthritis.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Survive the Holidays with a Chronic Illness: Interview with Lene Andersen

info@myarthritislife.net (Cheryl Crow) — Wed, 16 Dec 2020 00:51:10 +0000

Photo credit for Lene’s photo: David Govoni.

Speaker bios:

Links to things discussed in this episode:

Lene’s website: The Seated View https://theseatedview.com/
Lene’s Twitter @TheSeateView
Lene’s Facebook https://www.facebook.com/LeneAndersenwriter/
Lene’s Instagram @TheSeatedView
Cheryl on Instagram
Cheryl’s website: Arthritis Life
Cheryl’s Tiktok: @ArthritisLife
Arthritis Life Facebook Page
Cheryls Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

· 01:50 – Lene shares her diagnosis story with Juvenile and Rheumatoid Arthritis

· 02:32 – Lene shares some tips for managing the holidays with a chronic illness.

· 05:00 – How Lene learned to embrace “imperfect moments” that create the family legends to make the holidays special.

· 11:45 – Lene’s reflections about navigating the holiday season this year during COVID-19.

· 20:55 – Lene shares her journey of creating her first book while battling major hurdles living with her Juvenile and Rheumatoid Arthritis.

· 26:45 – Anyone battling chronic illness with big aspirations just take it one step at a time – remember: thinking and planning counts as moving in the right direction.

· 31:40 – Lene gives insight about using her power wheelchair at age sixteen empowered her to live life to the fullest.

· 36:25 – Lene discusses human right principles by understanding employment and accommodations for people with chronic illness.

· 42:40 – Lene’s advice for newly diagnosed patients.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to get your Patient Voice Heard to Improve Healthcare

info@myarthritislife.net (Cheryl Crow) — Thu, 3 Dec 2020 00:37:38 +0000

Jen dives deep into how and why she co-founded Savvy-Co-op, whose mission is to empower patients to co-create new solutions alongside health innovators. This includes a discussion of her PhD studies in human factors.

Jen walks us through what it’s like for a patient to get their voice heard and provide feedback to healthcare companies and health innovators through Savvy, all while being monetarily compensated for their time. She also explains why it’s crucial for health innovators to seek diverse patient voices.

Cheryl and Jen discuss the importance of quality of life (QOL) measures as part of patient-reported outcomes (PROs).

The episode ends with a summary of Jen’s life experiences as a young person with juvenile idiopathic arthritis, and her advice for newly diagnosed patients today.

Speaker bios:

Jen Horonjeff was diagnosed with juvenile arthritis as an infant and now has a laundry list of other conditions and surprises (like a brain tumor). She is passionate about elevating and valuing the patient voice, and went on to become a health outcomes researcher, human factors engineer, FDA Consumer Representative, and, most importantly, a patient advocate. Jen earned a PhD in Environmental Medicine from NYU, and studies patient-centered outcomes at Columbia University Medical Center.

Episode links:

Savvy Coop Twitter and Instagram: @savvy_coop
Savvy Website: Savvy.coop
Jen’s personal Twitter & Instagram: @jhoronjeff
Jen’s LinkedIn
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Here's the show breakdown:

1:00 - Jen’s experience getting a phD in Human Factors, accessibility, and patient centered outcomes while balancing her Juvenile Idiopathic Arthritis (JIA).
4:50 - How Jen formed Savvy Co-op: a patient owned, public benefit co-op that connects health innovators with patients to provide feedback, where patients are co-owners of the company and are often compensated for their time and expertise.
8:00 - Why is it important for health organizations to not only get patient feedback, but also seek diverse patient voices.
10:50 - Jen walks us through what it’s like for a patient to get their voice heard and provide feedback to healthcare companies and health innovators through Savvy, all while being monetarily compensated for their time.
15:20 - Why it’s important to follow up with the patient after they complete their “gig,” and let the patient know how their voice had an impact.
17:00 - What does “patients are the expert in their care” mean, and what does “patient centered care” mean?
18:15 - An example of the patient voice changing health systems: patient feedback about the importance of fatigue led to it being incorporated as a “clinical trial outcome set,” or something that’s measured.
21:50: Jen’s experience serving on the FDA’s Arthritis Advisory Committee, and explanation of why quality of life (QOL) measures are so important.
25:15 - Chery’s quick plug for occupational therapy in helping patients achieve the best quality of life possible.
26:15 - Are the current quality of life measures still relevant today, and are they sensitive enough to measure what’s truly important to patients?
31:15 - Issues with patient reported outcomes are not specific to rheumatology, they are common across health conditions; Jen’s example: cystic fibrosis.
32:30 - Cheryl discusses the difference between basic “activities of daily living” (like dressing oneself) and “instrumental activities of daily living” (more time-consuming and cognitively challenging tasks like caring for children, preparing meals, managing finances).
33:30 - Jen’s personal journey with juvenile idiopathic arthritis (JIA): from gold shots in the 1980s and being told to avoid movement and exercise, to a dance major in college.
37:25 - Jen’s advice to parents of children with JIA
38:25 - Why Jen feels her disease DOES define her.
41:10 - Jen’s message for newly diagnosed patients: take time to reflect and grieve, acknowledge that this will suck sometimes, then try to step back and see that there are still probably ways to get to where you want to go.
43:00 - where you can follow Jen and Savvy (+ Jen’s cat as a bonus!).

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Adapting is a Superpower: Stefanie’s Journey as a Mom with RA, Coach and Nurse Practitioner

info@myarthritislife.net (Cheryl Crow) — Tue, 24 Nov 2020 04:11:13 +0000

Stefanie is the Rheumatoid Arthritis Coach. She’s a mother, teacher, volunteer, Family Nurse Practitioner, and also has rheumatoid arthritis. She was diagnosed about six years ago after the birth of her first child. As a medical professional with over ten years of experience at that time, she was completely lost and felt like her world was shattered. The day she was diagnosed she cried for 10 minutes in the car, and then decided: “I’m not only going to take control of MY disease, but I want to help others to do the same!”

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by learning effective tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Links:

Stefanie’s Rheumatoid Arthritis Coach Website
Email: Stefanie@RheumatoidArthritisCoach.com
Facebook Page: Rheumatoid Arthritis Coach
Stefanie’s Instagram: @RheumatoidArthritisCoach
Cheryl’s Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

1:00 - Introduction to Stephanie
2:05 - How Stephanie’s background in medicine helped her figure out her Rheumatoid Arthritis diagnosis.
4:18- How Stephanie took control of her diagnosis and created the 1st arthritis support group in Las Vegas, Nevada through the Arthritis Foundation.
7:13 - Stephanie’s experience working in critical care (ICU - Intensive Care Unit) as a nurse at the time of her diagnosis and afterwards
9:20 - Stephanie’s choice to leave the ICU setting due to her RA diagnosis
10:17 - Stephanie’s advice to people with RA who are conflicted about whether to switch careers: don’t be afraid to change paths due to your condition, particularly if it helps you manage your stress better.
13:25 - Cheryl & Stefanie discuss the importance of patient education.
14:35 - Cheryl & Stefanie discuss how having RA changed how they practice as health providers: learning to listen better and be more present.
18:50 - Stephanie’s most important tool to manage her RA on a daily basis: the ability to adapt (it’s a super power)!
20:25 - Examples of how Stefanie adapts her daily routines to match her condition and abilities: pants with buttons versus pants without buttons, bar soap versus pump soap, types of cans, and more examples.
24:30 - Cheryl’s examples of how occupational therapists help patients with arthritis adapt their daily routines to what works best for each individual.
28:09 - Stefanie’s family history of autoimmune diseases.
29:30 - Stephanie’s first big RA flare after her first child was born and her experience with pregnancy and postpartum with her second child was born.
30:35 - Stefanie’s difficulties with breastfeeding after her first pregnancy, versus her second pregnancy where she knew she couldn’t breastfeed due to medications.
31:47 - Cheryl’s experience with chronic mastitis infections while breastfeeding and her views on infant feeding: fed is best!
34:15 - How Stefanie manages the demands of parenting with young kids: honest communication with your family, and some adaptations like a ramp for her children to get into their own bed.
40:00 - Stefanie’s journey to creating her RA Coaching program
42:30 - More details about Stephanie’s Rheumatoid Arthritis Coach program: diet, symptoms, and medications, individualized medical chart reviews for Rheumatoid Arthritis patients.
46:50 - Stefanie’s reflections on the importance of individualized care.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Staying Safe, Smart, Strong, Sweet and Silly with Spondylitis: Jason's Story

info@myarthritislife.net (Cheryl Crow) — Wed, 11 Nov 2020 18:52:39 +0000

Jason Webb is a 42 year old father of 3 daughters who has lived with inflammatory arthritis for 38 years. He’s also an artist, chef-educator (27 years), stock trading coach, and mentor to other single fathers.

Jason is a creative with a flair for wit and humor. He understands that what works for him might not work for you, but he's there to help you through, so don’t be shy to reach out. He is currently working on a culinary education program and children's book series.

Links to things discussed in the podcast episode:
- Jason’s website: Chefscookies.ca
- Jason’s Instagram:
  - Instagram.com/thejazzyjay
  - Instagram.com/jazzycharts
  - Instagram.com/chefs_cookies
  - Instagram.com/jazzyjayfood
- Jason’s Facebook accounts:
  - www.facebook.com/TheJazzyJay
  - FB @jazzycharts
  - Fb: @chefscookies
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
- This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
- Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

1:09- Jason’s diagnosis story (also known as a journey or saga): from juvenile idiopathic arthritis to ankylosing spondylitis.
6:00 - How Jason copes with gray areas and identify his flare triggers.
8:40 - How Jason manages his physical health at this time.
11:18 - What helps Jason manage Ankylosing Spondylitis: staying “safe, smart, strong, sweet and silly,” plus adaptive aids, massage, knowing his flare cycles, knowing diet and food triggers and more.
16:30 – Coping mechanisms for chronic illness and chronic pain
19:25 - Cheryl once again brings up Acceptance and Commitment Therapy - ACT
21:30 - How Jason’s challenging upbringing taught him how to be adaptable.
23:45 - How Jason learned the importance of self-education.
26:00 - Jason’s reflections on the positives and challenges of parenting with a chronic illness.
29:30 - Jason’s past experiences as a chef & how he experienced cycles of stress, physical challenge and financial challenges as a single father.
32:30 - Jason’s experience mentoring other single dads on Facebook
32:30 - Jason reads his letter to single dads and others who are struggling.
37:00 - Jason’s advice for newly diagnosed patients: educate yourself about the disease, listen to your body
39:00 - Jason reflects on the connection between his emotional state and physical symptoms, how stress has caused flare-ups for him.
42:00 - Jason & Cheryl’s parenting and stress-management advice

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Disability to Dance: How Krista Rowan learned to Love Herself Moving

info@myarthritislife.net (Cheryl Crow) — Wed, 28 Oct 2020 16:47:29 +0000

In January 2000, Krista was diagnosed with Rheumatoid Arthritis; a debilitating autoimmune disease affecting her joints, tissues, skin and organs. Having experienced chronic pain, disability, stress, depression, isolation and hopelessness for years, she relates deeply to the fear and impact to all facets of life when health is deteriorated.

In 2015, Krista began addressing root cause drivers of her inflammation and disease, which not only dramatically improved her quality of life, but led her to become a speaker and certified coach. Today, Krista is on a reMISSION to inspire and empower others to improve their own health and quality of life.

Links to things discussed in the podcast episode:

Krista’s Instagram: @kickra18
Tiktok: @kickra18
Krista's Website: alivetoliving.com
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
Cheryl’s Free Handout: Cheryl’s Master Checklist for Managing RA
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an online education and support program Cheryl created to guide people with RA step by step through how to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Episode Breakdown:

01:00 - Krista’s introduction and diagnosis story at age 29
05:15 - Krista’s initial fears about what life with RA would be like
7:00 - How Krista’s diagnosis affected her relationship with her fiance, wedding planning, family planning and all aspects of life
9:20 - Living in “fear, shame, anger and doom” for the first fifteen years of her journey, without revealing her diagnosis at work or publicly
10:52 - Isolating herself from fear of being perceived as weak
13:45 - Krista’s experience on prednisone, feeling “not broken”
14:50 – Pregnancy challenges due to RA flare
17:19 - Krista’s wedding - home made Keds
19:14 - Krista hits “rock bottom” after 15 years and leaves her 20 year corporate career and decides not to apply for disability.
21:05 - Krista encounters Teri Wahl’s diet and lifestyle journey with MS and the “Wahl’s Protocol”
22:10 – Krista learns about “root cause medicine,” finds hope and goes back to school to become a “holistic nutritionist.”
26:25 - Krista learns to pay attention to her inflammation triggers (stress, foods, fragrances, sleep)
29:33 - Krist and Cheryl reflect on the importance of hope and mindset
31:23 - The importance of avoiding the “positive thinking” trap and how it’s good to validate your feelings.
32:35 - Learning to mentally reframe what was actually happening in her life and address perceptions to stop her stress response.
35:20 - How Cheryl & Krista both learned to curb the urge to be people-pleasers.
36:00 – Krista and Cheryl discuss learning to set boundaries, say no & protect energy.
40:27– Krista joins TikTok in June 2020, makes “I can’t shuffle but I can Shakira” viral video showing belly dance style moves
44:02 - Krista is surprised by the positive responses to her dance videos
47:50 - Inspiring people to move however you can, “love yourself moving”
51:20 - Krista starts showing some of her physical limitations in her videos, and realizes that she doesn’t have to hide her RA anymore.
56:00 - Krista reflects on going from very private to public about her diagnosis
58:20 - How Krista responds to unsolicited advice from people who don’t have a chronic illness
1:00:10 – Krista’s words of wisdom for newly diagnosed patients.
1:03:07 - Krista’s final thoughts: being 50 and being in the best place she’s been in 21 years, learning how to live in the moment even if it’s uncomfortable.

Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Take Care of Your Hands: Interview with Corinne McLees, Occupational Therapist

info@myarthritislife.net (Cheryl Crow) — Wed, 21 Oct 2020 13:52:58 +0000

Speaker bios:

Corinne McLees is passionate about helping individuals maximize the function of their upper extremities, as she believes the hands are imperative to doing the things we love most. She graduated from VCU's Master of Science in Occupational Therapy in 2016 and immediately began working in VCU Heath's hand therapy clinic. Corinne and her OT husband launched My Virtual OT - a 100% virtual occupational therapy practice - in order to safely serve clients amidst COVID-19. She has two small children and one on the way, and she and her husband have greatly enjoyed launching this business together.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She helps others with rheumatoid arthritis determine how to live a full life *despite* arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.

Links to things discussed in this episode:
- What is Occupational Therapy?
- Homonculus - sensory and motor
- My Virtual OT website
- My Virtual OT Youtube Channel
- Corinne’s Virtual OT Instagram
- Free Handout: Cheryl’s Master Checklist for Managing RA
- Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
- This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Episode breakdown:

01:00 – Corinne’s explanation of what Occupational Therapy is

05:00 – Educating clients about hand therapy

07:00 – The brain interprets our hands as disproportionately important given their size; discussion of the homonculus

10:00 – How pain affects daily activities

12:42 – Principles of joint protect while living with chronic hand pain

13:00 – How posture alignment awareness protects joints

19:25 – Overuse of exercises, fatigue, and flares

25:05 – How to better understand human behavior to support behavior change

30:15- Corinne explains what happens during a virtual occupational therapy visit for patients with RA

33:00 – The importance of distinguishing between different tyes of pain

41:10 – How support groups can help keep you accountable

45:15- Additional OT treatments: heat and cold, splinting and joint protection

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How can Yoga Help People with Chronic Illness? Paulina's Story.

info@myarthritislife.net (Cheryl Crow) — Wed, 14 Oct 2020 02:26:23 +0000

In this episode, Paulina shares her personal journey of how she discovered the benefits of yoga after her rheumatoid arthritis diagnosis. She explains how it can help people manage stress and feel a better sense of peace about themselves and their lives.

Paulina also busts some of the top myths about yoga in this episode.

Paulina Burzynska has been a 𝑅ℎ𝑒𝑢𝑚𝑎𝑡𝑜𝑖𝑑 𝐴𝑟𝑡ℎ𝑟𝑖𝑡𝑖𝑠 𝑊𝑎𝑟𝑟𝑖𝑜𝑟 since the age of 18. She has lived with RA for five years, and as a teacher she is dedicated to providing safe, mindful classes for everyone helping them experience the benefits of yoga.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Links Discussed in this episode:

Paulina’s Instagram & Chronically Happy Instagram
Yoga school Paulina went to: Zazyoga
Flexibility versus hypermobility article
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, a comprehensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode breakdown:

01:00 - How Paulina was introduced to Yoga while living with rheumatoid arthritis (RA)

05:00 – You don’t necessarily have to modify your yoga routine

07:00 – How yoga can work with your body’s central nervous system

12:24 – Practicing yoga involves breath work to help with stress and getting your mind and body into a healing state

15:00 – The mental aspect of yoga brings mindfulness

17:56 – Cheryl shares her experience taking Pauline yoga class

22:00- Yoga is not about the intensity but about the healing aspect

26:16 – How people with RA can modify yoga to help work around painful areas

32:00 – Listen to your intuition about your body

35:00 – Top myths around yoga - “I’m Not flexible enough to do yoga”

39:00 – You don’t need special equipment to practice yoga

42:00 – Your muscle fibers through physical activity will get weaker or stronger

45:00 – Certain techniques in yoga can help how your body reacts to stressful situations

48:30 – Insecurities that might prevent people from from trying yoga

52:00 – How yoga can support you

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Five Things I Wish I had Known when I was Diagnosed with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Wed, 7 Oct 2020 13:00:00 +0000

Cheryl explains how rheumatoid arthritis affects more than just joints - it affects people’s whole bodies, and whole lives!

She also explores how she learned to tolerate gray areas rather than seeking black and white answers, and how mindfulness and acceptance helped her with the mental side of life with chronic illness.

This episode also includes a discussion about medical gaslighting, and how Cheryl learned to give herself permission to grieve her diagnosis.

It concludes with a discussion about how managing one’s rheumatoid arthritis is like a full time job.

Episode breakdown:

1:00 - #1 - Rheumatoid Arthritis affects more than just joints.
5:00 - #2 - RA affects your social life in difficult ways (such as misconceptions) and positive ways (such as connections with a chronic illness community)
9:30 - Tips for using websites and social in productive ways
12:40: #3 - Gray areas are the norm for autoimmune disease
16:09: #4 - Living with chronic illness will affect your mental health.
17:49 Cheryl’s experience with allowing herself to grieve her health
19:13 - Medical gaslighting.
22:14 - #5 - Managing RA is a job but you can learn how to do it!

Medical disclaimer:

Episode Sponsor

Rheum to THRIVE, an empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!

Speaker Bio:

She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Links discussed in this episode:

Free training - overcome overwhelm through online health literacy (click “Unit 1” and “Lesson 2” on this page)
Note: In 2021-23 Cheryl updated the "Rheumatoid Arthritis Roadmap" course and renamed it to "Rheum to THRIVE,' to signify that it now includes instruction on all forms of inflammatory arthritis / rheumatic disease, not just rheumatoid arthritis.
Cheryl’s diagnosis story on Youtube
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Race, Gender and Rheumatology with Dr. Maggie Cadet

info@myarthritislife.net (Cheryl Crow) — Wed, 30 Sep 2020 01:43:57 +0000

This episode includes a deep dive into:

Why Dr. Cadet chose to specialize in Rheumatology
What unique issues rheumatology patiences of color face
Why racial representation is important for healthcare providers
Dr. Cadet’s advice for rheumatology patients for how to get the most out of appointments and build a trusting relationship with your provider

Speaker bios:

Dr. Magdalena “Maggie” Cadet is a well respected board certified clinical rheumatologist in New York City. She is an Associate Attending at NYU Langone Medical Center. She has been selected as a 2016,2017, 2018, 2019,2020 Castle Connolly Top Doctor and 2018,2019 Castle Connolly Exceptional Women in Medicine. Dr. Cadet’s interests have always focused on women’s health issues and issues relating to arthritis, autoimmune diseases, sports medicine, and motivating others to live a healthier lifestyle.

Episode links:

Dr. Cadet’s Instagram page where she educates patients and shares her journey.
Dr. Cadet’s Website
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode breakdown

02:30 – How Dr. Cadet became a rheumatologist.

05:16 – The importance of being persistent as a doctor.

08:00 – How Dr. Maggie was able to break societal barriers.

012:45 - Challenges women doctors of color face and how they advocate for themselves.

15:15 – Systemic racial disparities in healthcare among minorities.

19:30 – The importance of racial representation in healthcare for women of color and minorities.

24:00 - The importance of female doctor representation starting in childhood.

27:15– What Dr. Maggie wants rheumatology patients to know.

32:15- Doing your own research as a rheumatology patient is a job in itself.

34:15 – The importance of being honest with your doctor about your symptoms.

37:15 - Other healthcare professions that help with the management of your disease.

39:20 – Advice for patients to get the most out of their appointments.

43:30 – Fatigue and pain approaches for autoimmune patients.

48:58 – Understanding that physicians are humans too.

54:45 – Additional advice and insights for rheumatology patients.

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Can diet and nutrition help people with arthritis? Separating myth from fact with three experts.

info@myarthritislife.net (Cheryl Crow) — Wed, 23 Sep 2020 04:48:44 +0000

Cristina Montoya, Registered Dietitian and Kia Peters, Nutrition Student weave together their lived experience as rheumatoid arthritis (RA) patients and nutrition experts in this episode, alongside Jenifer Tharani, a Registered Dietitian Nutritionist who specializes in anti-inflammatory eating.

This episode covers:

What’s the difference between a “nutritionist” and a “Registered Dietitian” and why is it important?
Nutrition and diet “rabbit holes” that patients often fall down, and mistakes to avoid when seeking support for nutrition.
Top myths about diet and disease management, including:
- Can nutrition choices cure the disease?
- Are dairy, red meat and nighshades bad for everyone?
The psychology behind food choices and how food choices give people a sense of control
The importance of symptom tracking and food journaling
Kia, Cristina and Cheryl’s lived experiences of trying different approaches to food choices and diet at different stages of their disease management.

Medical disclaimer:

Episode Sponsor

Speaker bios:

Cristina Montoya is a Colombian mama living in the land of maple syrup, beavers and hockey, Canada. She is a Registered Dietitian (RD), a member in good standing with the College of Dietitians of Ontario, Dietitians of Canada, and the Arthritis Health Professions Association (AHPA). As a patient advocate, Cristina participates in the Durham Region Sjögren's Syndrome Support Group from the Sjögren's Society of Canada as well as the Online Consumer Panel from the Arthritis Society.

She is passionate about autoimmune rheumatic diseases, medicinal cannabis science, digestive health, Mediterranean diet and anti-inflammatory way of eating, Hispanic heritage foods, home cooking, gluten-free baking, and living one day at a time.

Jenifer Tharani, MS RD (Registered Dietitian)

Jenifer Tharani has completed master’s in human nutrition from Texas State University, San Marcos TX and training in dietetics from Emory University Hospital, Atlanta, GA. She is a member of College of Dietitians of Ontario and registered with the Commission of Dietetic Registration.

She is multilingual and fluently speaks second languages like Hindi and has worked in different settings which has given her experience treating people of all ages with different conditions. Jenifer believes that eating healthy does not have to be boring, time consuming or expensive. She is extremely passionate about helping you adopt an anti-inflammatory eating pattern without restrictions. She doesn’t believe in diets, instead in making small sustainable lifestyle changes to help you find a balance in your everyday life, including trying to keep your favorite foods in the mix! Jenifer’s mantra is “Give a Man a Fish, and You Feed Him for a Day. Teach a Man to Fish, and You Feed Him for a Lifetime” and so she gives you a nutrition toolbox to help manage your health condition or live a healthy and good quality life, whatever your goal may be.

About Jenifer's Virtual Nutrition Coaching Services

In today's technologically driven world, Jenifer provides virtual nutrition coaching to help you take charge of your health from the comfort of your home. In her virtual nutrition practice, she focuses on helping clients adopt an anti-inflammatory eating pattern to help with weight loss, prevent and manage chronic illness like diabetes and autoimmune conditions like rheumatoid and osteoarthritis, fibromyalgia, lupus, psoriatic arthritis, and IBD.

Kia Peters@livewellwithkia is a Nutrition Student who works with Jenifer, RD to educate other chronic illness warriors about anti-inflammatory nutrition without restriction..

Links to things discussed in the episode:

Jenifer Tharani, Registered Dietitian, “The Chronic Pain Nutritionist” on @chronicpain.nutritionist on Instagram
Cristina Montoya, Registered Dietitian, “The Arthritis Dietitian” @arthritisdietitian on Instagram
Kia Peters, MSc, Nutrition Student: @livewellwithkia on Instagram
Cristina’s website: The Arthritis Dietitian
Cristina’s Facebook page
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Value Self-Love and Sexual Pleasure when Living with a Disability: an Occupational Therapist’s Approach

info@myarthritislife.net (Cheryl Crow) — Wed, 16 Sep 2020 03:52:46 +0000

Dr. Sakshi Tickoo (she/her/hers) is a Mumbai-based Occupational Therapist, Personal Counselor and Student Mentor specializing in the fields of Sexuality; Mental Health - Wellness and Rehabilitation. She has served a diverse group of people through home healthcare, telehealth, and school-based settings. She is also the founder and owner of Sex, Love, And OT and The OT Shop.

Sex, Love, and OT is an inclusive and comprehensive platform educating and serving healthcare providers and clients who need tools and resources to advocate for sexual rights and liberation through education, centering pleasure, and freedom of occupational engagement in sexuality towards holistic wellness.

Links discussed in this episode:

Sakshi’s social links:
- Website: sexloveandot.com / the-ot-shop.myshopify.com
- Instagram: @sex.love.andot / @the_otshop
- Facebook: @SexLoveAndOT / @TheOTShop
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, your guide to living a full life with RA. It’s an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Pie chart for time management / scheduling
Promoting sexiness for disability hashtag on social media: #DisabledPeopleAreHot
The Five Love Languages Book
Dr. John Gottman marriage researcher - “Four Horsemen” for marriage

Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode breakdown:

1:00 – Dr. Tickoo’s story: why she became an occupational therapist
3:25 – How Dr. Tickoo discovered the niche of sex and relationships
7:46 – How an occupational therapist can facilitate a client’s engagement in sex and relationships
12:19- How to gain occupational therapy clinical knowledge of how to address sex outside of your textbooks
14:09 – The barriers for people with chronic illnesses face for sexual participation and intimacy
18:06 – Advice on how to feel sexy while living with chronic illness
22:26 - Giving yourself permission to enjoy sex
26:15 – How sex is taboo in India and what Dr. Tickoo does to be sex positive
33:45 – The difference between physical & emotional intimacy
36:48 – Communication about intimacy with your partner and how to handle power dynamics
42:00 – The importance of knowing your partner’s love language
46:00– How adults have sensory regulation needs and how chronic pain affects sensory processing
51:00 – When to mention that you have a chronic condition or disability when dating
54:51- Tips & tricks for intimacy with your partner when you have arthritis: scheduling, connection, experimentation, positioning aids and more
1:06:45 - The importance of client education about the basics of their condition
1:08:45 - How to choose a good lubricant
1:11:00 - Recommended toys
1:13:00 - “Everything can be sexy [including aids] as long as you think it’s sexy.”
1:13:55 - What is pleasure mapping and how can it help?
1:17:00 - Concluding thoughts

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Relationships, Intimacy and Sex with Arthritis

info@myarthritislife.net (Cheryl Crow) — Wed, 9 Sep 2020 03:58:42 +0000

Navigating intimate relationships while managing a chronic illness can be tricky - how and when do you disclose your disability? How do you experiment with sexual positions without “ruining the mood?” Is it possible to communicate with your partner in a way that’s respectful and empowering?

In this episode, five panelists share their best advice for *all* aspects of romantic and intimate relationships, including:

Communication tips for all stages of relationships, from first dates to marriage
How to workaround fatigue that makes it hard to get “in the mood”
Positions that work for wrist or hip pain
Lubes that work for dryness
Workarounds for jaw pain during oral sex
How do disabilities or health conditions contribute to power dynamics in relationships
The importance of emotional connections
The importance of self-love and respect
Why STD prevention and protection are particularly important for people on immunosuppressive medications
Panelists’ best advice for newly diagnosed patients who might be worried about how their condition will affect their sex life and relationships

*Trigger warning - in minutes 30-40 there are descriptions of pressuring and coercion into sex without protection

**This episode discusses adult topics (sex) and includes explicit language.

Minute by Minute breakdown:

Episode breakdown:

02:00 - Introduction to panelists: Chloe, Jo, Ali, Paulina & Cheryl.
3:20 - (Chloe) How juvenile arthritis affected her relationships
07:55 – (Jo) How Jo learned the importance of communication
11:42 – (Ali) Learning to experiment with positions and work around fatigue
16:20 - (Paulina) The importance of communication & emotional connection
23:00 - (Cheryl) Reflection on power dynamics in relationships.
24:25 – (Chloe) Strong emotional connections affect vaginal lubrication.
25:22 – (Chloe) How jaw pain affects oral sex & workarounds, + how fatigue affects sex.
33:00 – (Cheryl) The importance of STD testing for partners due to immunosuppression from meds. Experiences feeling pressured in relationships.
36:00 – (Chloe) Experiences feeling pressured in relationships.
37:45 – (Jo) Tips for positions and lubricants.
39:00– (Ali) Being cautious when dating, how to work around fatigue, tips for positions and communication.
43:14 - (Paulina) Your partner is not a mind reader. Tips for lubricants for sensitive skin & positions.
51:00– (Ali) Best adult toys to use for arthritis.
53:00- (Chloe) Communication & practicing positions
55:00 – (Cheryl) How sex is an “Activity of daily living” according to occupational therapy. Reflection on sex education now versus in the early 1990s.
58:30 – (Paulina) Tips to increase sex drive and address your own pleasure.
1:01:00 – (Chloe) Advice for anyone recently diagnosed.
1:04:00 (Jo) – Final thoughts and advice, disclosing when you are dating online
1:06:00 (Ali) – Final thoughts
1:07:00 (Paulina) – Final thoughts and advice

LINKS discussed in the episode

Where to follow panelists on Instagram: Cheryl @Arthritis_Life_Cheryl, Chloe @xchloeumplebyx & @_chronically_happy_ and on Etsy at SpoonfulOfChronic, Jo @thejosphere, Ali @Anotherdaywithra, Paulina @with.paulina and @_chronically_happy_
Rheumatoid Arthritis Online course - link for the waitlist!
Versus arthritis - Sex & Arthritis booklet
RA and Intimacy article from Arthritis Foundation
Citation: 70% do not reach orgasm (climax) through penetration alone and require clitoral stimulation
Vibrator recommended: Satisfyer Pro Traveler - Clitoral Vibrator
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Rheumatoid Arthritis Roadmap, your guide to a full life with RA. It’s an online program Cheryl created to give people tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

*For full speaker bios, see www.myarthritislife.net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

How to Exercise with Rheumatoid Arthritis: Randi's Story

info@myarthritislife.net (Cheryl Crow) — Wed, 2 Sep 2020 02:26:11 +0000

Randi and Cheryl dive deep into Randi’s diagnosis journey, her career as a track and field athlete at the University of Alabama, her best advice for newly diagnosed patients, her tips for exercise with RA, and even some dating and relationship advice.

Randi was diagnosed with Rheumatoid Arthritis at the age of 16 after 6 years of trying to find an answer. Randi says: “My journey with RA has not always been easy, but it has been rewarding. I have had to learn what works best for me in controlling my RA because of course not everyone’s RA is the same. I manage my RA with exercise, a moderation diet, a medication, chiropractic care, and plenty of rest. Oddly, I am thankful to have been diagnosed with RA at 16 because I have become the best version of myself as a result of it.”

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.

Links to things discussed in the podcast episode:

Randi’s Instagram
Randi’s Youtube Channel
Women’s Health Magazine article about Randi’s story
Statistics about racial disparities in healthcare, chronic pain and rheumatology
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Beginner's Guide to Life with Rheumatoid Arthritis, an intensive online program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Here's the show breakdown:

01:00 – Randi’s diagnosis story
4:35 – What it was like to be a college athlete with RA, doing the triple jump in track and field.
8:20 – Randi’s sports injury misdiagnosis.
10:20 – Why Randi pursued her personal trainer certification.
12:54 – Why Randi pursued Chiropractic medicine as her career.
18:00 – Randi’s tips for how to exercise with RA: resistance training, muscle building, cardio and more.
23:10 – How Randi and Cheryl make cardiovascular exercise fun!
28:45 - Randi’s advice for newly diagnosed patients with RA (hint: there are many sports metaphors in this advice!).
32:45 – Discussion about combining “natural” approaches for RA versus Western medicine, and how to find common ground and balance.
35:00 - Randi’s tips on how to build a good relationship with your provider.
39:38 – How healthcare quality can differ for people of color.
45:46 – How Randi and Cheryl learned not to underreport pain to their providers.
48:00 – Randi’s experience dating with RA and love story with her fiance.
55:15 - Bonus content: Cheryl’s favorite dance routine she learned in the 1990s from MTV videos

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How to Advocate as a Patient

info@myarthritislife.net (Cheryl Crow) — Tue, 25 Aug 2020 02:42:18 +0000

Effie shares many anecdotes and nuggets of wisdom about how she’s learned to advocate for herself over fifteen years of living with rheumatoid arthritis. She also shares examples of finding a good fit with a provider, and how to get involved in legislative advocacy on a national scale.

Effie Koliopoulos is a freelance writer and rheumatoid arthritis patient advocate. She created her blog Rising Above Rheumatoid Arthritis in 2016, after being inspired to share her story more publicly and connect with others after undergoing a total knee replacement. Currently residing in Chicago, she is working on her debut children’s picture book, enjoys creating video content for her YouTube channel and other projects.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others develop tools to navigate physical, emotional and social challenges so that they can live a full life *despite* arthritis. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Links discussed in this episode:

Effie’s Blog
Effie’s Instagram
Effie’s Twitter
Effie’s Rising Above RA RAra Shop Designs (Merch):
Effie’s Youtube Channel: RA and Myself
Advocacy resources: Arthritis Foundation advocacy resources, American College of Rheumatology, ResistBot, WEGO health conference
Free Handout: Cheryl’s Master Checklist for Managing RA
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
This episode is brought to you by the Beginner's Guide to Life with Rheumatoid Arthritis (new name coming soon!), an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Detailed breakdown of show:

01:30 – Effie’s Diagnosis Story.
03:30 – Effie’s advice for students with rheumatoid arthritis.
06:06 – Examples of when Effie has had to advocate for herself and be actively involved in her care during medical appointments.
08:40 – Examples of Effie advocating for her needs when prescription errors occurred.
13:15 - Effie’s experiences with getting second opinions and finding a good fit with a doctor.
15:30 - General advice for patients to learn to advocate for themselves with medical professionals.
17:14 - How Effie & Cheryl learned not to downplay symptoms, and how they confront fears around changing medications.
21:00 – Effie’s advice for formal legislative advocacy at your state or national capitol, and why personal stories are so important.
27:21 – How Effie has advocated for invisible illnesses, and Effie’s experience being accused of “faking” her disability (including someone calling the cops on her for using the disability placard).
31:00 – What Effie wishes healthcare providers knew or did better.
35:00 - The impotence of getting medical guidance from the doctor rather than the internet sometimes.
36:05 – What Effie wishes the general public knew about rheumatoid arthritis.
38:00 - Effie’s final words to anyone newly diagnosed: take advantage of the community.

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How can Applied Behavior Analysis and Mindfulness help People with Chronic Illness? Kristen’s Story.

info@myarthritislife.net (Cheryl Crow) — Wed, 19 Aug 2020 01:22:11 +0000

Kristen delves deep into the science behind behavior analysis and shares how she has used data to help her track her symptoms such as brain fog and fatigue. She also shares how mindfulness and acceptance based therapies can help people living with chronic illnesses achieve a better quality of life.

Kristen also helps other chronic illness warriors apply the principles of behavior analysis to their unique health and lifestyle management goals through 1:1 behavioral coaching. In addition to being a chronic illness warrior, Kristen is also pursuing a PhD in Cognitive and Behavioral Sciences, she is married to her high school sweetheart, and loves hiking and being outdoors with her partner and three dogs.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to successfully navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Links discussed in this episode:

Kristen’s Website: Warriors Move Mountains
Kristen’s Instagram
The Happiness Trap: Russ Harris (explains Acceptance and Commitment Therapy)
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
Arthritis Life Instagram Page
Free Handout: Cheryl’s Master Checklist for Managing RA
This episode is brought to you by the Beginner's Guide to Life with Rheumatoid Arthritis, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Time breakdown:

01:30 – Introduction
03:00 – Kristen’s diagnosis story for Sjogren’s and RA
5:00 - What is Applied Behavior Analysis (ABA) and who are Board Certified Behavior Analysts (BCBAs)?
6:30 - Explanation of how ABA can be applied across diagnoses
8:45 – Explaining controversy around ABA for neurodiverse populations
12:20 – Examples as Kristen utilizes Behavior Analysis as a patient to track symptoms: CBD tincture for fatigue and brain fog
15:20 - How tracking data can be a powerful tool to combat overwhelm
19:17 - Importance of rest and learning how to rest without guilt
21:40 - How thoughts, behaviors and the environment influence each other
25:20 - How Kristen balances being a PhD student with her mental health
27:45: Kristen’s advice for setting boundaries and learn how to say no
29:00 - Cheryl’s experiences having difficulty saying “no” to things when her health is going well and Kristen’s 80% rule
31:20 - Kristen’s experience with going to therapy and how she manages her stress through mindfulness and ACT
36:00 - What does Kristen’s mindfulness practice look like on an average day
39:00 - How Cheryl & Kristen cope with uncertainty and find acceptance with their conditions.
43:10 - Behavior Analysis Coaching with Chronic Illness: how does it work?
46:00 - Balancing act between accepting present and tracking data for future
48:00 - Life Coaching vs Certified Health Coaching versus Board Certified Behavior Analysis
51:00 - Final thoughts

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What does a mind body approach to rheumatoid arthritis look like? Vanessa’s Story

info@myarthritislife.net (Cheryl Crow) — Tue, 11 Aug 2020 03:11:05 +0000

Vanessa Cameron and Cheryl Crow delve deep into Vanessa's rheumatoid arthritis journey, which includes significant work she's done on examining the mind-body connection and finding balance in her life through daily mindfulness, EFT and other practices.

Cameron discovered her passion for hacking her mind and body amid a debilitating bout with Rheumatoid Arthritis. After learning about the emerging science of Self-Compassion and the benefits of meditation, EFT (tapping) and NLP (neuro-linguistic programming) she began incorporating daily science-backed practices that boosted her health and happiness. Her passion led her to start and earn master level practitioner certification to teach EFT and NLP.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She is passionately dedicated to helping others with rheumatoid arthritis figure out how to successfully navigate daily challenges so they can live a life they love despite health challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.

This interview was conducted in December 2019.

Get More Support at:

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected**.** See all the details and join the program or waitlist now!

MEDICAL DISCLAIMER:

Links discussed in this episode:

Vanessa’s Website: www.isparkdaily.com
Vanessa’s Instagram @isparkdaily
Integrated Rheumatologist - Dr. Mir https://www.nyir.com/
“ACEs” study (Adverse Childhood Events)
8 week self compassion meditation class at Stanford
Tara Brach - The RAIN of Self-Compassion
ACT - Acceptance and Commitment Therapy
Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
Free Handout: Cheryl’s Master Checklist for Managing RA
This episode is brought to you by the Beginner's Guide to Life with Rheumatoid Arthritis, an intensive 4 week online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
Medical disclaimer

Detailed episode breakdown:

3:00 Beginning signs of RA
4:30 - Massive flare up, feeling “stuck” in life overall
7:10 - Vanessa experiments with dietary changes and finds a diet that helps her inflammation
11:00 - Massive flare up leads to confusion.
15:00 - How she found a good fit with her doctor
19:00 - How a trusting relationship with Dr. Mir helped Vanessa accept western medications.
21:33 - Vanessa’s low point after contacting the flu.
22:00 - Recognizing she needs to address emotional scars from her past.
26:30- How Vanessa used Emotional Freedom Technique (EFT) - Tapping + Journaling to work through her emotional scars (such as being told she’s “too emotional”), and learning to take an energy inventory
31:30 - How a daily self-compassion meditation course helped.
33:10 - Summary of the lifestyle changes she made to manage her wellness on a daily basis
38:14 - How RA struggle now seems like a blessing in disguise
39:20 - How joining a Buddhist community sparked resilience.
42:19 - Vanessa’s advice to newly diagnosed patients
44:17 - How RA affected her experiences in the workplace, how she learned to advocate
44:40 - How she explains RA to people who don’t know anything about it
46:00 - How both Cheryl & Vanessa learned to say no!
49:50 - Lifestyle changes, including saying no and managing energy
51:00- Vanessa worked with an autoimmune health coach.
52:20 - Learning to see Pain as a messenger
53:07 - How EFT helped Vanessa get to the root of her emotions
54:30 - Cheryl talks about how ACT helped her manage difficult emotions.
56:00 - Discussion of Tara Brach’s “RAIN of self-compassion”
59:50 - Concluding thoughts about how Cheryl & Vanessa came to terms with being comfortable sharing their RA and emotional stories.

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Can you Live a Full Life with Pain?

info@myarthritislife.net (Cheryl Crow) — Tue, 4 Aug 2020 04:42:53 +0000

Cheryl & Bronnie are both occupational therapists who live with chronically painful conditions. In this episode, Bronnie shares her unique perspective on how one pursue a full life *despite* pain, rather than seeking solely to eliminate pain. This episode is a must listen for both patients and practitioners.

Medical disclaimer:

Get More Support:

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

Speaker Bios:

Dr. Bronnie Lennox Thompson is a pain specialist, clinical instructor, and occupational therapist who lives with chronic pain from fibromyalgia. She has a passion to help people experiencing chronic health problems achieve their potential. She has worked for 20 years in the field of chronic pain management, helping people develop “self management” skills. Bronnie completed her Masters in Psychology in 1999, and recently earned her Doctorate in Psychology in the mid 2010s.

Cheryl Crow has lived with rheumatoid arthritis for seventeen years and has been an occupational therapist for seven. After originally working in pediatrics, Cheryl formed the online education and empowerment company Arthritis Life to fill a need for accessible, engaging patient education and self-management resources.

This interview was conducted on May 17, 2020.

For full episode links plus a transcript:

Go to the show page on the Arthritis Life Website here.

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Best Advice for Newly Diagnosed Patients with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Tue, 28 Jul 2020 02:59:12 +0000

This episode including tips for to cope with the initial diagnosis, how to best educate yourself about your condition, ways to utilize social support without getting overwhelmed, how to best collaborate with your provider and make treatment decisions, and finally how to take care of your mind and manage stress.

Episode breakdown:

1:10 - Episode Introduction
2:08 - Analogy for those newly diagnosed - a tourist in an unplanned for land
4:08 - Advice for the initial adjustment period
6:30 - Tips for educating yourself about your condition
10:00 - How to best utilize social support, including social media
18:15 - How to best interact with your providers and medical team.
20:15 - How to choose the best treatment ideas for you
31:44 - Tips for managing stress and taking care of your mind
40:00 - Concluding thoughts

Medical disclaimer:

Episode Sponsor

Links discussed in this episode:

"Welcome to Holland" essay by Emily Perl Kingsley
Free handout: 6 Things Everyone with Arthritis Should Know
Free handout: Master RA Management Checklist
Free Facebook Group: Arthritis Life Podcast, Practical Tips and Positive, Realistic Support
A great letter to newly diagnosed patient from my friend and fellow Chronic Illness advocate Chronic Eileen: The Letter I Wish I sent to Myself the Day I was Diagnosed with Rheumatoid Arthritis

Thank you so much to those who contributed their words of wisdom!

From Instagram: @hopeamidthepain, @Rheumatoiddiaries, @TheNarcissistGames, @Sje70, @deepa.venkatraman, @drmaggiecadet, @A.shrummer, @Jbayze2018, @worldofot, @boop911, @Kimesue, @Mommywithmctd, @ra.and.me , @Paulaburza, @_chronically_happy_, @warriorsmovemountains, @graceandable_official

From Facebook: Monica Thomas, Laura Muller, Christopher Vance.

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Pregnancy, Parenting and More with Rheumatoid Arthritis

info@myarthritislife.net (Cheryl Crow) — Tue, 21 Jul 2020 02:56:45 +0000

Episode at a Glance:

The following is a breakdown of the main topics we discussed - scroll to the end to see hyperlinks for resources mentioned in this episode! As a reminder: this episode was originally recorded in 2019.

01:35 - Claire diagnosis journey for rheumatoid arthritis: difficulty being believed by providers through her official diagnosis and her journey towards accepting it
10:30 Claire’s pregnancy and childbirth experience
14:20 - Claires postpartum experience with RA coming back slowly
16:20 - How Claire parents a Toddler with Rheumatoid Arthritis
18:15 Claire’s advice for people with RA who might want to have a child
20:20 - How to Manage Stress and Anxiety with chronic illness, including tips for finding a good fit with a provider (
26:40: Claire’s advice for newly diagnosed patients
30:10: What Claire wishes doctors did better
31:26: Claire’s tips for a good patient-provider relationship and tips for advocating for yourself
35:36: The Difference between living with an invisible illness and living with a visible one when Claire had to wear a splint!
38:55: How RA affected Claire’s choice of work, and her employment
41:42: How RA affected Claire’s relationship with her husband
44:00 - Fatigue and RA
45:44 – How RA affects friendships and relationships in adulthood

Get More Support at:

External resources mentioned in this episode or relevant to it:

Suzie Edward May “Arthritis Pregnancy and the Path to Parenthood”
Mother to Baby - website for evidence based information for pregnancy and medications
Arthritis Life Podcast, Practical Tips & Support - Cheryl's Facebook group
Free download from Cheryl: my Master RA Checklist
Free download: the 6 Things Everyone with Arthritis Should Know

MEDICAL DISCLAIMER:

All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Episode 2: Rheumatology Basics with Dr. Balderia

info@myarthritislife.net (Cheryl Crow) — Tue, 14 Jul 2020 03:18:16 +0000

Episode at a Glance

Cheryl (rheumatoid arthritis patient and occupational therapist) and rheumatologist Dr. Percy Balderia discuss:

1:00-2:00: - What is Rheumatology?
2:00 - Why did Dr. Balderia choose to become a Rheumatologist?
04:50- Day in the life of a Rheumatologist
06:45 - How to build a good relationship with your provider & prepare for appointments
11:16- What should patients know about Rheumatology?
13:07- Meeting the mental health needs of people with chronic illnesses
14:02- How to pick the best treatment plan & utilize supports available to you!

This interview was originally conducted in April 2019.

Episode is brought to you by:

Additional links relevant to this episode:

Dr. Percy Balderia is a rheumatologist who sees patients at The Polyclinic Madison Center and The Polyclinic Downtown in Seattle, Washington. He has a special interest in rheumatoid arthritis. He trained at the University of Washington and was awarded The Arthritis Foundation fellowship.

Thank you to our podcast interns, Sarieni & Laura from The Modern OTs podcast, for your help in editing this episode!

MEDICAL DISCLAIMER:

All content found on the Arthritis Life Youtube Channel was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have heard on this podcast. Please seek the advice of a physician or other appropriate healthcare provider before putting information from this channel to use. Links to educational content not created by Cheryl Crow of Arthritis Life are taken at your own risk. Reliance on any information provided by Arthritis Life is solely at your own risk.

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Episode 1: Sarah Dillingham

info@myarthritislife.net (Cheryl Crow) — Tue, 7 Jul 2020 22:22:53 +0000

Episode at a Glance

She and Cheryl discuss their best advice for newly diagnosed patients, explore how fatigue can be more debilitating than pain, highlight the importance of mental health treatment for chronic conditions, and dig into the impact of rheumatoid disease on everyday life.

Sarah's experience designing her own custom wedding day splint (due to not wanting to wear the typical ugly splints available in the current market) led her to form a start-up called Grace and Able, where she's developing more comfortable and aesthetically pleasing wrist braces. She also runs the Women with Rheumatoid Disease Facebook community.

Here's the show breakdown:

01:25 - Sarah's diagnosis story and brief medical history
08:30 - Highlights and lowlights from Sarah's experience with medical providers
23:34 - Sarah's advice for newly diagnosed patients (includes a discussion on social media)
38:00 - How rheumatoid disease has affected Sarah's experiences at work
42:27 - The effects rheumatoid disease has had on Sarah's friendships and romantic relationships
47:11 - The origin of Sarah's custom wedding day splint, which led her to form Grace & Able.
51:00 - How chronic illness has affected Sarah and Cheryl's mental health.
59:54 - Why fatigue is the hardest part of coping with RA (even more so than pain).
1:07:20 - What to do when there are no more treatment options - how to have this discussion with your doctor and care team.
1:11:41 - Sarah's frustrations with day to day living, and how she's learned much of what she's needed to cope with pain and daily living challenges from other patients and not health professionals.
1:18:00 - The three MOST important parts of Sarah's current management of her condition.

Additional links relevant to this episode:

Get more support at:

MEDICAL DISCLAIMER:

All content found on this podcast was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or heard on this channel.

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Welcome to the Arthritis Life Podcast!

info@myarthritislife.net (Cheryl Crow) — Sun, 21 Jun 2020 00:47:48 +0000

This episode is brought to you by Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

Learn more at:

Cheryl's full diagnosis story video (20 minutes)
Arthritis Life Podcast, Practical Tips & Support - Cheryl's Facebook group
Free download from Cheryl: my Master RA Checklist
Free download: the 6 Things Everyone with Arthritis Should Know
Arthritis Life Youtube Channel, where you can find life hack demonstrations, patient interviews, provider advice and more.
Cheryl's Instagram account where she regularly shares stories, infographics and life hacks.
Arthritis Life Facebook Page
Arthritis Life Website
Cheryl's Twitter Account

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